Indiana Hemophilia & Thrombosis Center Inc logo

Indiana Hemophilia & Thrombosis Center Inc

Public charity · Grantmaker Indianapolis, IN EIN: 35-2047838 Website

The Indiana Hemophilia & Thrombosis Center Inc (IHTC) is an Indianapolis-based public charity that provides comprehensive care and services for people with bleeding, clotting, and other hematologic disorders and their families. Established in 1998, it serves pediatric and adult patients throughout Indiana and describes itself as the state’s only federally recognized comprehensive hemophilia treatment center.

Key facts about Indiana Hemophilia & Thrombosis Center Inc

In short: Indiana Hemophilia & Thrombosis Center Inc gave $3.6M across 10 grants in 2024 (avg $359K), mostly in Indiana. 0% of 2024 grantees were new. Source: 2024 IRS Form 990.

EIN
35-2047838
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$3,587,658
Grants made (2024)
10
Average grant
$358,766
Median grant
$127,500
New grantees (estimate)
0% first-time grantees (0 of 10, 2024; small sample)
Total assets
$74,045,300
Primary geography
Indiana (59% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$74.0M

-65.4% YoY

Annual Giving

$3.6M

+62.9% YoY

Grant Count

10

+11.1% YoY

Avg Grant Size

$359K

+46.6% YoY

Is Indiana Hemophilia & Thrombosis Center Inc open to new grantees?

0%

first-time grantees, 2024

In 2024, 0 of 10 grantees (0%) were first-time recipients. With only 10 grantees, that is a small sample: one grantee more or less moves the share by about 10 points. How we count

  • 80% of 2024 grantees were also funded in 2023. Method
  • Giving fell 22% from 2021 to 2024. Method

Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Research compiled by Grantable AI from public sources. Last updated October 2026.

Mission & Focus Areas

IHTC states that it is committed to providing high-quality comprehensive services and holistic care to patients with bleeding, clotting, and other hematologic disorders and their families. Its filing describes patient care, clinical research, and education for medical students, residents, fellows, patients, families, and community members.

IHTC’s 2024 grants supported a range of organizations and activities. The filing identifies a contract with The Martin Center for transportation and assistance initiatives, a patient education conference, and social services; support for a hematology fellowship program at Indiana University; and patient assistance, services, and program support through Hemophilia of Indiana. It also describes support for bleeding disorders awareness and a community health exhibit at the Children’s Museum of Indianapolis, medical and dental care for underserved and vulnerable populations through Community Health Clinic, and the World Federation of Hemophilia USA’s Living Guidelines Project.

The grantees’ stated missions illustrate the range of organizations supported. Hemophilia Foundation of Michigan says it works to improve quality of life for people affected by hemophilia and related disorders. Hemophilia of Indiana says it supports the treatment and cure of hemophilia and related bleeding disorders through research, education, and service. Accessia Health describes its mission as providing financial assistance and services to people and families living with chronic medical conditions. The National Bleeding Disorders Foundation says it works on research, education, advocacy, and preventing complications of inherited blood and bleeding disorders. The Martin Center says it provides services, advocacy, and education for people affected by sickle cell and associated disorders. These are the grantees’ missions, not IHTC’s.

Grantmaking

In filing year 2024, IHTC reported 10 grants totaling $3,587,658. Grant amounts ranged from $10,000 to $1,501,367, with a median of $127,500.

Among the largest grants were $1,501,367 to Community Health Clinic, $693,392 to Hemophilia Foundation of Michigan, $598,016 to Hemophilia of Indiana, and $350,438 to the American Thrombosis & Hemostasis Network. Other reported grants included $155,000 to Accessia Health, $100,000 to World Federation of Hemophilia USA, $86,606 to Indiana University, $75,000 to the National Bleeding Disorders Foundation, $17,839 to The Martin Center, and $10,000 to the Children’s Museum of Indianapolis.

The filing describes several awards as contracts for services or program support.

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Geographic Focus

Where this funder awards grants

IHTC’s filing says it serves pediatric and adult patients throughout Indiana, and its website describes statewide outreach clinics, local nursing support, and home visits. In 2024, 59% of its grant dollars went to recipients in Indiana, 22% to Michigan, 10% to Illinois, 5% to New York, and 4% to Virginia.

Grant Distribution by State

7states

Share of 2024 grant dollars across all 10 itemized grants.

Cities

IndianapolisDetroitMidlothianNew YorkMilwaukeeTopekaAnn ArborYpsilantiAlbanyRiverwoodsBaton Rouge

Giving Over Time

Total grant dollars and number of grants per year

$0$2M$4M$6M7 grants2020 12 grants2021 9 grants2022 9 grants2023 10 grants2024

From 2020 to 2024, annual grant giving ranged from $489K (2020) to $4.6M (2021). In 2024 it made 10 grants totaling $3.6M.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

Community Health Clinic: $1.5MCommunity Health Clinic$1.5MHemophilia Foundation of Michigan: $693KHemophilia Foundation ofMichigan$693KHemophilia of Indiana: $598KHemophilia of Indiana$598KAmerican Thrombosis & Hemostasis Network: $350KAmerican Thrombosis &Hemostasis Network$350KAccessia Health: $155KAccessia Health$155KWorld Federation of Hemophilia USA: $100KWorld Federation of HemophiliaUSA$100KIndiana University - Dept 78867: $87KIndiana University - Dept78867$87KNational Bleeding Disorders Foundation: $75KNational Bleeding DisordersFoundation$75KThe Martin Center: $18KThe Martin Center$18KChildren's Museum of Indianapolis: $10KChildren's Museum ofIndianapolis$10K

The largest 2024 recipient was Community Health Clinic ($1.5M). Together the top 10 received $3.6M.

Grant Size Distribution

47 grants across all recorded years

12<$50K15$50–100K11$100–250K1$250–500K5$500K–1M3$1–5M$5M+

The most common grant size was in the $50–100K range: 15 grants of 47 (32%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Community Health Clinic Topeka, INSee Part IV$1,501,367
Hemophilia Foundation of Michigan Ypsilanti, MISee Part IV$693,392
Hemophilia of Indiana Indianapolis, INSee Part IV$598,016
American Thrombosis & Hemostasis Network Riverwoods, ILSee Part IV$350,438
Accessia Health Midlothian, VASee Part IV$155,000
World Federation of Hemophilia USA Albany, NYSee Part IV$100,000
Indiana University - Dept 78867 Detroit, MISee Part IV$86,606
National Bleeding Disorders Foundation New York, NYSee Part IV$75,000
The Martin Center Indianapolis, INSee Part IV$17,839
Children's Museum of Indianapolis Indianapolis, INSee Part IV$10,000

Financial History

Multi-year comparison from IRS filings

Filing year Assets Revenue Expenses Grants reported
2024 $74,045,300 $39,420,575 $45,183,867 $3,587,658
2023 $214,000,867 $56,975,342 $56,574,065 $2,202,043
2022 $205,388,132 $55,708,442 $48,585,161 $680,450
Revenue
Expenses
Net Investment Income
$0$20M$40M$60M$80M2020 2021 2022 2023 2024
Metric202420232022
Total Assets$74,045,300$214,000,867$205,388,132
Revenue$39,420,575$56,975,342$55,708,442
Expenses$45,183,867$56,574,065$48,585,161
Net Investment Income$520,020$6,323,426$5,823,824

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS November 15, 2025)
  6. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Leadership team and compensation from IRS filings

The 2024 filing lists Amy D. Shapiro, MD, as president/CEO and medical director; Anne Greist, MD, as director and medical director; Russell Sherlock as chairman; Chris Roberson as chief research officer and secretary; and Eric Gray as chief operations officer. Other listed directors are Dennis Casey, Edward Schmidt, James Gilroy III, Phillip Himelstein, and Jennifer Maahs, director of clinical care.

Indiana Hemophilia & Thrombosis Center Inc is led by Amy D. Shapiro MD, President, CEO & Medical Director on every filing since 2020; all 20 officers listed in 2024 are compensated.

Officers on the 2024 filing

  • Amy D. Shapiro MD

    President, CEO & Medical Director

    On filings since 2020

    10 hrs/week

    $869K (2020) → $211K (2024)

  • Nancy Hoard

    Executive Director

    On filings since 2020

    17 hrs/week

    $477K (2020) → $184K (2024)

  • Russell Sherlock

    Chairman

    Director → Chairman, 2024

    On filings since 2020

    3 hrs/week

    $71K (2020) → $14K (2024)

  • Anne Greist MD

    Director & Medical Director

    On filings since 2020

    5 hrs/week

    $653K (2020) → $92K (2024)

  • Dennis Casey

    Director

    On filings since 2020

    2 hrs/week

    $61K (2020) → $9K (2024)

  • Edward Schmidt

    Director

    Secretary & Consultant → Director, 2024

    On filings since 2020

    2 hrs/week

    $160K (2020) → $9K (2024)

  • Kelly McCarthy

    Director of Multidisciplinary T

    Director of Clinical Opera → Director of Multidisciplinary Teams & Quality Analytics, 2021

    Director of Multidisciplinary Teams & Quality Analytics → Director of Multidisciplinary T, 2022

    On filings since 2020

    31 hrs/week

    $235K (2020) → $209K (2024)

  • Phillip Himelstein

    Director

    Chairman & Consultant → Director, 2024

    On filings since 2020

    2 hrs/week

    $137K (2020) → $9K (2024)

  • Jennifer Maahs

    Director of Clinical Care

    Director of Clinical Care Operations → Director of Clinical Care, 2022

    On filings since 2021

    29 hrs/week

    $191K (2021) → $189K (2024)

  • Stevan Mizimakoski

    Director of Pharmacy Opera

    Director of Pharmacy Operations → Director of Pharmacy Opera, 2022

    On filings since 2021

    23 hrs/week

    $167K (2021) → $116K (2024)

  • James Gilroy III

    Director

    New on the 2024 filing

    3 hrs/week

    $33K (2024)

  • Brandon Hardesty MD

    Hematologist

    On filings since 2020

    13 hrs/week

    $441K (2020) → $169K (2024)

  • Chris Roberson

    Chief Research Officer & Secretary

    Director of Medical Program → Chief Research Officer, 2023

    Chief Research Officer → Chief Research Officer & Secretary, 2024

    On filings since 2020

    26 hrs/week

    $262K (2020) → $208K (2024)

  • David Hedrick MD

    Hematologist

    On filings since 2020

    13 hrs/week

    $434K (2020) → $168K (2024)

  • Eric Gray

    Chief Operations Officer

    Director of Finance, Bus Ops & C → Chief Operations Officer, 2023

    On filings since 2020

    18 hrs/week

    $363K (2020) → $181K (2024)

  • Jay Gaddy MD

    Hematologist

    On filings since 2020

    14 hrs/week

    $497K (2020) → $175K (2024)

  • Magdalena Lewandowska MD

    Hematologist

    On filings since 2020

    13 hrs/week

    $433K (2020) → $165K (2024)

  • Anthony Betbadal MD

    Hematologist

    On filings since 2021

    15 hrs/week

    $388K (2021) → $172K (2024)

  • Kevin Simmons

    Chief Financial Officer

    New on the 2024 filing

    37 hrs/week

    $190K (2024)

  • Sanjya Ahuja MD

    Chief Medical & Informatics Officer

    New on the 2024 filing

    12 hrs/week

    $34K (2024)

Former officers (10)
  • Former: Jennifer Rhodes (2020–2023) — Director
  • Former: Leah Meyer Austin (2020–2023) — Director
  • Former: Patricia Roe (2020–2023) — Director
  • Former: Holiday Hart McKiernan (2021–2023) — Director
  • Former: Jeffery Martin (2021–2023) — Director
  • Former: Sherry Slick (2022–2023) — Chief Information Officer
  • Former: Michael Oestreicher (2020–2022) — Director
  • Former: Anthony Antonopoulos (2020) — Former Key Employee
  • Former: Kevin Betz (2020) — Former Director
  • Former: Nicole Randall MD (2020) — Hematologist

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Amy D Shapiro MD — President/CEO, Medical DIR: $211KAmy D Shapiro MDPresident/CEO, Medical DIR$211KKelly McCarthy — DIR of Multidisciplinary T: $209KKelly McCarthyDIR of Multidisciplinary T$209KChris Roberson — Chief Research Officer/ Secretary: $208KChris RobersonChief Research Officer/…$208KKevin Simmons — Chief Financial Officer: $190KKevin SimmonsChief Financial Officer$190KJennifer Maahs — Director of Clinical Care: $189KJennifer MaahsDirector of Clinical Care$189KNancy Hoard — Executive Director: $184KNancy HoardExecutive Director$184KEric Gray — Chief Operations Officer: $181KEric GrayChief Operations Officer$181KJay Gaddy MD — Hematologist: $175KJay Gaddy MDHematologist$175KAnthony Betbadal MD — Hematologist: $172KAnthony Betbadal MDHematologist$172KBrandon Hardesty MD — Hematologist: $169KBrandon Hardesty MDHematologist$169KDavid Hedrick MD — Hematologist: $168KDavid Hedrick MDHematologist$168KMagdalena Lewandowska MD — Hematologist: $165KMagdalena Lewandowska MDHematologist$165KStevan Mizimakoski — Director of Pharmacy Opera: $116KStevan MizimakoskiDirector of Pharmacy Opera$116KAnne Greist MD — Director, Medical Director: $92KAnne Greist MDDirector, Medical Director$92KSanjya Ahuja MD — Chief Medical & Informatics Officer: $34KSanjya Ahuja MDChief Medical & Informatics…$34KJames Gilroy III — Director: $33KJames Gilroy IIIDirector$33KRussell Sherlock — Chairman: $14KRussell SherlockChairman$14KDennis Casey — Director: $9KDennis CaseyDirector$9KEdward Schmidt — Director: $9KEdward SchmidtDirector$9KPhillip Himelstein — Director: $9KPhillip HimelsteinDirector$9K

The highest reported compensation on the 2024 filing was $211K, to Amy D Shapiro MD (President/CEO, Medical DIR). 20 officers or directors reported compensation on that filing.

Contact

Mailing address: 8326 Naab Rd, Indianapolis, IN 46260-1920
Phone: (317) 871-0000
Website: https://ihtc.org

Frequently asked questions about Indiana Hemophilia & Thrombosis Center Inc

How much does Indiana Hemophilia & Thrombosis Center Inc give each year?

Indiana Hemophilia & Thrombosis Center Inc gave $3.6M across 10 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $2.2M across 9 grants.

What is Indiana Hemophilia & Thrombosis Center Inc's typical grant size?

Indiana Hemophilia & Thrombosis Center Inc's median grant in 2024 was $127,500, and its average grant was $358,766, across 10 grants on its 2024 IRS Form 990.

Where does Indiana Hemophilia & Thrombosis Center Inc give grants?

Indiana Hemophilia & Thrombosis Center Inc gives mostly in Indiana: 59% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were Michigan (22%) and Illinois (10%). The most frequent recipient cities were Indianapolis, IN (3 grants).

Does Indiana Hemophilia & Thrombosis Center Inc give general operating support?

Not in 2024: none of the 10 grants with a stated purpose on Indiana Hemophilia & Thrombosis Center Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "See Part IV" (10 grants).

Who are Indiana Hemophilia & Thrombosis Center Inc's largest grantees?

Indiana Hemophilia & Thrombosis Center Inc's largest 2024 grantees include Community Health Clinic ($1,501,367), Hemophilia Foundation of Michigan ($693,392) and Hemophilia of Indiana ($598,016), according to its 2024 IRS Form 990. Together they received 78% of its itemized 2024 grant dollars.

How large is Indiana Hemophilia & Thrombosis Center Inc?

Indiana Hemophilia & Thrombosis Center Inc reported $74.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $39.4M.

What does Indiana Hemophilia & Thrombosis Center Inc fund?

IHTC states that it is committed to providing high-quality comprehensive services and holistic care to patients with bleeding, clotting, and other hematologic disorders and their families. See mission & focus areas ↑

How do I apply for a grant from Indiana Hemophilia & Thrombosis Center Inc?

Indiana Hemophilia & Thrombosis Center Inc has no public application process in the sources Grantable reviewed. Check ihtc.org for current guidelines, or contact the foundation directly before submitting a request.

What is Indiana Hemophilia & Thrombosis Center Inc's EIN?

Indiana Hemophilia & Thrombosis Center Inc's EIN (Employer Identification Number) is 35-2047838. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.

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