The Hemophilia Alliance Group Purchasing Organization
The Hemophilia Alliance Group Purchasing is a public charity based in Clearwater, Florida. Its 2024 filing describes work to help member Hemophilia Treatment Centers (HTCs) sustain comprehensive care for people with bleeding and clotting disorders, including facilitating favorable purchasing terms for treatment products and supporting centers with compliance, education, and advocacy.
Key facts about The Hemophilia Alliance Group Purchasing Organization
In short: The Hemophilia Alliance Group Purchasing Organization gave $3.0M across 7 grants in 2024 (avg $423K), mostly in New York. Source: 2024 IRS Form 990.
- EIN
- 20-2529619
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $2,960,865
- Grants made (2024)
- 7
- Average grant
- $422,981
- Median grant
- $402,000
- Total assets
- $26,037,862
- Primary geography
- New York (57% of itemized 2024 grant dollars)
Data from IRS Form 990, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$26.0M
+140.7% YoY
Annual Giving
$3.0M
-4.2% YoY
Grant Count
7
-30.0% YoY
Avg Grant Size
$423K
+36.9% YoY
How The Hemophilia Alliance Group Purchasing Organization gives
- Giving grew 21% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Mission & Focus Areas
The organization’s mission, as stated in its 2024 filing, is to provide member HTCs with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders. Its filing describes facilitating purchasing terms and favorable pricing for blood clotting factor and other treatment products, counseling centers on state and federal law and grant requirements, producing educational materials, and promoting the value of comprehensive care to policymakers, patients, and third-party payers. The filing also says it engaged legislative consultants to coordinate meetings with legislators on healthcare matters, proposed 340B legislation, and topics related to its mission.
The organization’s website says it supports HTCs with operations, payer relations, contract pharmacy, regulatory compliance, and legal updates affecting practices. It also describes the Hemophilia Alliance Foundation as awarding grants to chapters, associations, and centers serving the bleeding disorders community, with funds applied to research, equipment, and education.
The Hemophilia Alliance and the Hemophilia Alliance Foundation also jointly fund the Joe Pugliese Educational Award. The award provides educational support to members of the bleeding disorders community pursuing academic goals; it is a scholarship for individuals, not a grant program for outside organizations.
Grantmaking
In filing year 2024, the organization reported seven grants totaling **$2,960,865**. Grant amounts ranged from **$8,012 to $869,000**, with a median of **$402,000**. The filing says the board approves a total grant budget and then determines individual awards.
Open Grants
1 open opportunity from The Hemophilia Alliance Group Purchasing Organization
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Geographic Focus
Where this funder awards grants
The 2024 grants went to recipients in New York, Pennsylvania, Indiana, and Wisconsin. The reported shares of grant dollars were 57% to New York, 29% to Pennsylvania, 14% to Indiana, and less than 1% to Wisconsin.
Grant Distribution by State
Share of 2024 grant dollars across all 7 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $2.3M (2022) to $3.1M (2020). In 2024 it made 7 grants totaling $3.0M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
The largest 2024 recipient was The Hemophilia Alliance Foundation ($869K). Together the top 7 received $3.0M.
Grant Size Distribution
94 grants across all recorded years
The most common grant size was under $50K: 67 grants of 94 (71%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Hemophilia Alliance Foundation Lansdale, PA | See Part IV | $869,000 |
| National Bleeding Disorders Foundation New York, NY | See Part IV | $819,353 |
| American Thrombosis and Hemostatis Network Rochester, NY | See Part IV | $700,000 |
| Indiana Hemophilia & Thrombosis Center Inc Indianapolis, IN | See Part IV | $402,000 |
| World Federation of Hemophilia Albany, NY | See Part IV | $135,000 |
| The Coalition for Hemophilia B Inc New York, NY | See Part IV | $27,500 |
| Versiti Inc Milwaukee, WI | See Part IV | $8,012 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants |
|---|---|---|---|---|
| 2024 | $26,037,862 | $10,882,096 | $8,817,944 | $2,960,865 (7 grants) |
| 2023 | $10,815,535 | $9,774,069 | $8,224,147 | $3,089,927 (10 grants) |
| 2022 | $21,636,521 | $8,928,051 | $6,260,744 | $2,265,430 (8 grants) |
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $26,037,862 | $10,815,535 | $21,636,521 |
| Revenue | $10,882,096 | $9,774,069 | $8,928,051 |
| Expenses | $8,817,944 | $8,224,147 | $6,260,744 |
| Net Investment Income | $666,198 | $544,066 | $151,636 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Jeffrey Blake as President/CEO and Joseph N. Pugliese as former President/CEO. It also lists Jennifer Borrillo as SVP Member & Community Relations; Sean Singh as SVP Marketing & Operations; Mark A. Plencner, Jeffrey A. Amond, Angela Blue, Karen Hause, and Zachary Duffy as directors of Member & Community Relations; and Eric Gray, CPA, as chair.
The Hemophilia Alliance Group Purchasing Organization is led by Jeffrey Blake, President & CEO since 2024 (on filings since 2020); 9 of 24 officers listed in 2024 are compensated.
Officers on the 2024 filing
Jeffrey Blake
President & CEO
Vice President → Senior Vice President Member & Community Relations, 2023
Senior Vice President Member & Community Relations → President & CEO, 2024
On filings since 2020
40 hrs/week
$256K (2020) → $400K (2024)
Joseph N. Pugliese
Former President & CEO
President → Former President & CEO, 2024
On filings since 2020
40 hrs/week
$651K (2020) → $271K (2024)
Eric Gray CPA
Chair
Vice Chair → Chair, 2023
On filings since 2020
2 hrs/week
No compensation reported
Jeffrey A. Amond
Director, Member & Committee Relations
Director, Member & Community Relations → Director, Member & Communications, 2023
Director, Member & Communications → Director, Member & Committee Relations, 2024
On filings since 2022
40 hrs/week
$156K (2022) → $182K (2024)
Karen H. Hause
Director - Member & Committee Relations
Director, Member & Community Relations → Director - Member & Committee Relations, 2024
On filings since 2022
40 hrs/week
$153K (2022) → $178K (2024)
Mark A. Plencner
Director, Member & Committee Relations
Director, Member & Community Relations → Director, Member & Communications, 2023
Director, Member & Communications → Director, Member & Committee Relations, 2024
On filings since 2022
40 hrs/week
$173K (2022) → $185K (2024)
Angela Blue
Director - Member & Committee Relations
New on the 2024 filing
40 hrs/week
$172K (2024)
Zachary Duffy
Director, Member & Committee Relations
New on the 2024 filing
40 hrs/week
$165K (2024)
Regina Butler Rn-Bc
Director
On filings since 2020
1 hr/week
No compensation reported
Stacy Croteau
Director
On filings since 2020
1 hr/week
No compensation reported
Michael Silvey MD
Director
On filings since 2021
1 hr/week
No compensation reported
Colleen Druzgal
Director
On filings since 2022
1 hr/week
No compensation reported
John Myers Rph MBA
Director
On filings since 2023
1 hr/week
No compensation reported
Louise M. Baca Msn RN
Director
On filings since 2023
1 hr/week
No compensation reported
Miguel A. Escobar MD
Director
On filings since 2023
1 hr/week
No compensation reported
Rebecca Kruse-Jarres MD
Director
On filings since 2023
1 hr/week
No compensation reported
Sachiko Suzuki
Director
On filings since 2023
1 hr/week
No compensation reported
Jason Wittes
Director
New on the 2024 filing
1 hr/week
No compensation reported
Justin Nelson-Deeringmhacph
Director
New on the 2024 filing
1 hr/week
No compensation reported
Jennifer Borrillo
Senior Vice President Member & Committee Relations
Director → Senior Vice President Member & Committee Relations, 2024
On filings since 2020
40 hrs/week
$233K (2024)
Sean Singh
Senior Vice President Marketing & Operations
Vice President → Senior Vice President Marketing & Operations, 2023
On filings since 2020
40 hrs/week
$254K (2020) → $251K (2024)
Becky Burns
Vice Chair
Director → Vice Chair, 2023
On filings since 2020
2 hrs/week
No compensation reported
Steven M. Powell MBA
Treasurer
On filings since 2020
2 hrs/week
No compensation reported
Dean M. Hindenlang PhD
Secretary
Director → Secretary, 2023
On filings since 2022
2 hrs/week
No compensation reported
Former officers (12)
- Former: Laurie Reger (2020–2023) — Director
- Former: Zack Duffy (2022–2023) — Director, Member & Communications
- Former: Justin Nelson-Deering Mha Cpht (2023) — Director
- Former: Leigh Carpenter (2023) — Director
- Former: Dan Dalton (2020–2022) — Director
- Former: Heidi Lane (2020–2022) — Chair
- Former: Kimo Stine (2020–2022) — Director
- Former: Ralph Woods (2020–2022) — Secretary
- Former: Stephanie Raymond (2020–2022) — Director
- Former: Kiet Huynh (2022) — Manager of It Solutions
- Former: Leigh Carpenter Rph (2022) — Director
- Former: Chris Guelcher (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $400K, to Jeffrey Blake (President/CEO). 9 officers or directors reported compensation on that filing.
Contact
Mailing address: 2655 Ulmerton Rd Suite 263, Clearwater, FL 33762
Phone: (215) 279-9236
Website: https://hemoalliance.org
Frequently asked questions about The Hemophilia Alliance Group Purchasing Organization
How much does The Hemophilia Alliance Group Purchasing Organization give each year?
The Hemophilia Alliance Group Purchasing Organization gave $3.0M across 7 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $3.1M across 10 grants.
What is The Hemophilia Alliance Group Purchasing Organization's typical grant size?
The Hemophilia Alliance Group Purchasing Organization's median grant in 2024 was $402,000, and its average grant was $422,981, across 7 grants on its 2024 IRS Form 990.
Where does The Hemophilia Alliance Group Purchasing Organization give grants?
The Hemophilia Alliance Group Purchasing Organization gives mostly in New York: 57% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were Pennsylvania (29%) and Indiana (14%). The most frequent recipient cities were New York, NY (2 grants).
Does The Hemophilia Alliance Group Purchasing Organization give general operating support?
Not in 2024: none of the 7 grants with a stated purpose on The Hemophilia Alliance Group Purchasing Organization's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "See Part IV" (7 grants).
Who are The Hemophilia Alliance Group Purchasing Organization's largest grantees?
The Hemophilia Alliance Group Purchasing Organization's largest 2024 grantees include The Hemophilia Alliance Foundation ($869,000), National Bleeding Disorders Foundation ($819,353) and American Thrombosis and Hemostatis Network ($700,000), according to its 2024 IRS Form 990. Together they received 81% of its itemized 2024 grant dollars.
How large is The Hemophilia Alliance Group Purchasing Organization?
The Hemophilia Alliance Group Purchasing Organization reported $26.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $10.9M.
What does The Hemophilia Alliance Group Purchasing Organization fund?
The organization’s mission, as stated in its 2024 filing, is to provide member HTCs with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders. See mission & focus areas ↑
How do I apply for a grant from The Hemophilia Alliance Group Purchasing Organization?
The Hemophilia Alliance Group Purchasing Organization has no public application process in the sources Grantable reviewed. Check hemoalliance.org for current guidelines, or contact the foundation directly before submitting a request.
What is The Hemophilia Alliance Group Purchasing Organization's EIN?
The Hemophilia Alliance Group Purchasing Organization's EIN (Employer Identification Number) is 20-2529619. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
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