Cascade Hemophilia Consortium logo

Cascade Hemophilia Consortium

Private foundation · Grantmaker Ann Arbor, MI EIN: 38-3199649 Website

Cascade Hemophilia Consortium is a private foundation based in Ann Arbor, Michigan, that supports care for people with bleeding disorders. Its work includes patient services and support, and its grantmaking supports medical care and allied health services through organizations in Michigan, Ohio, and Indiana.

Key facts about Cascade Hemophilia Consortium

In short: Cascade Hemophilia Consortium gave $7.4M across 30 grants in 2025 (avg $245K), mostly in Michigan. 4% of 2025 grantees were new. Source: 2025 IRS Form 990-PF.

EIN
38-3199649
Latest 990 filing
Form 990-PF, 2025
Annual giving (2025)
$7,360,625
Grants made (2025)
30
Average grant
$245,354
Median grant
$249,828
New grantees (estimate)
4% first-time grantees (1 of 27, 2025)
Total assets
$108,955,456
Primary geography
Michigan (64% of itemized 2025 grant dollars)
Accepts unsolicited proposals
No
How to apply
The foundation makes contributions only to preselected charitable organizations and does not accept unsolicited requests for funds. Full details ↓

Data from IRS Form 990-PF, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology). Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$109.0M

+8.1% YoY

Annual Giving

$7.4M

+17.5% YoY

Grant Count

30

+3.4% YoY

Avg Grant Size

$245K

+13.6% YoY

Is Cascade Hemophilia Consortium open to new grantees?

4%

first-time grantees, 2025

In 2025, 1 of 27 grantees (4%) were first-time recipients. First grants averaged $250K; repeat grants $255K. How we count

Medians: $250K first-time, $215K repeat.

  • 96% of 2025 grantees were also funded in 2024. Method
  • Giving grew 71% from 2022 to 2025. Method

Estimate from itemized grant lists in IRS Form 990-PF filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Research compiled by Grantable AI from public sources. Last updated September 2026.

Mission & Focus Areas

Cascade’s stated mission is to provide a compassionate, connected care partnership for people with bleeding disorders, with accessible, affordable, high-quality care and support to help patients and families manage their health. It also describes supporting comprehensive care, education, and access to treatment.

Cascade says its supported services include clinical and allied health services, emergency financial assistance, dental care and insurance subsidies, outreach clinics, advocacy, camping programs, and regional family conferences. Its 2024 filing describes direct charitable activity that includes making products available to hemophilia patients, assisting people without adequate insurance, seeking drugs under compassionate-use policies, and providing allied health services and grant contracts for medical care and allied health services.

Grantees reflect a mix of treatment providers and community organizations. Hemophilia Foundation of Michigan says it works to improve quality of life for people affected by bleeding disorders and related complications. Ohio’s FamOhio says it provides education and support to individuals and families dealing with bleeding disorders. Hemophilia of Indiana says it supports treatment and cure through research, education, and service. Medical grantees include hospitals, universities, and treatment centers; University Pediatricians describes its charitable and educational purpose as providing medical and surgical care to sick and injured people.

Grantmaking

Cascade awarded 29 grants totaling $6,265,961 in 2024. Grants ranged from $2,000 to $850,000, with a median of $174,986. Recent annual totals were $5,633,020 across 30 grants in 2023 and $4,301,293 across 29 grants in 2022.

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Geographic Focus

Where this funder awards grants

In 2024, 67% of grant dollars went to recipients in Michigan and 32% to recipients in Ohio. The filing also lists 1% each for Indiana and Missouri, and 0% for Texas. Cascade describes supporting patients and services across Michigan, Ohio, and Indiana.

Grant Distribution by State

5states

Share of 2025 grant dollars across all 30 itemized grants.

Cities

CincinnatiDetroitAnn ArborYpsilantiColumbusToledoIndianapolisAkronClevelandDaytonEast LansingFlintGrand RapidsIndependenceKalamazooTraverse CityVandaliaDublinWorthingtonKansas City

Giving Over Time

Total grant dollars and number of grants per year

$0$2M$4M$6M$8M27 grants2019 26 grants2020 26 grants2021 29 grants2022 30 grants2023 29 grants2024 30 grants2025

From 2019 to 2025, annual grant giving ranged from $3.9M (2020) to $7.4M (2025). In 2025 it made 30 grants totaling $7.4M.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2025

Hemophilia Foundation of Michigan: $1.5M across 3 grantsHemophilia Foundation ofMichigan$1.5M · 3 grantsBarbara Ann Karmanos Cancer Institute: $494KBarbara Ann Karmanos CancerInstitute$494KGreater Ohio Bleeding Disorder Foundation: $443KGreater Ohio Bleeding DisorderFoundation$443KOhio State University Hemophilia Center: $426KOhio State UniversityHemophilia Center$426KHurley Medical Center: $386KHurley Medical Center$386KUniversity Pediatricians: $386KUniversity Pediatricians$386KUniversity of Michigan Hemophilia Treatment Center: $379KUniversity of MichiganHemophilia Treatment Center$379KMichigan State University: $356KMichigan State University$356KUniversity of Cincinnati: $299KUniversity of Cincinnati$299KAkron Children's Hospital: $297KAkron Children's Hospital$297K

The largest 2025 recipient was Hemophilia Foundation of Michigan ($1.5M across 3 grants). Together the top 10 received $5.0M.

Grant Size Distribution

144 grants across all recorded years

31<$50K21$50–100K48$100–250K37$250–500K6$500K–1M1$1–5M$5M+

The most common grant size was in the $100–250K range: 48 grants of 144 (33%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Hemophilia Foundation of Michigan Ypsilanti, MIRegional Core Center Support Grant$850,000
Barbara Ann Karmanos Cancer Institute Detroit, MISupport for medical services for persons with hemophilia and related bleeding disorders$493,990
Various Ann Arbor, MISupport for dental programs$470,228
Greater Ohio Bleeding Disorder Foundation Independence, OHSupport for dental program and educational newsletter printing, mailing, and postage costs$442,646
Ohio State University Hemophilia Center Columbus, OHSupport for medical services for persons with hemophilia and related bleeding disorders$425,524
Hurley Medical Center Flint, MISupport for medical services for persons with hemophilia and related bleeding disorders$385,991
University Pediatricians Detroit, MISupport for medical services for persons with hemophilia and related bleeding disorders$385,987
University of Michigan Hemophilia Treatment Center Ann Arbor, MISupport for medical services for persons with hemophilia and related bleeding disorders$378,545
Hemophilia Foundation of Michigan Ypsilanti, MISupport for the foundations summer camp, Camp Bold Eagle$356,906
Michigan State University East Lansing, MISupport for medical services for persons with hemophilia and related bleeding disorders$355,951

Financial History

Multi-year comparison from IRS filings

Filing year Grant total Number of grants
2024 $6,265,961 29
2023 $5,633,020 30
2022 $4,301,293 29
Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$50M$100M$150M2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$108,955,456$100,791,222$87,266,404
Revenue$22,569,819$26,837,452$25,518,450
Expenses$16,830,915$13,714,861$11,519,139
Qualifying Distributions$133,911,525$124,147,277$114,074,249
Net Investment Income$2,436,554$2,677,286$1,831,756

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990-PF for fiscal year 2019 (received by the IRS August 11, 2020)
  2. Updated Form 990-PF for fiscal year 2020 (received by the IRS August 18, 2021)
  3. Updated Form 990-PF for fiscal year 2021 (received by the IRS April 6, 2022)
  4. Updated Form 990-PF for fiscal year 2022 (received by the IRS August 1, 2023)
  5. Updated Form 990-PF for fiscal year 2023 (received by the IRS August 29, 2024)
  6. Updated Form 990-PF for fiscal year 2024 (received by the IRS August 12, 2025)
  7. Added Form 990-PF for fiscal year 2025 (received by the IRS August 3, 2026)
  8. IRS filings on file for fiscal years 2019–2024

Leadership & Key People

Leadership team and compensation from IRS filings

The 2024 filing lists Elizabeth Sandon-Kleiboer as President, Elizabeth Boelens as Vice President, Kathy Price as Treasurer, Chris Roberson as Secretary, and Stephanie Raymond as Executive Director. It also lists Susan Lerch, Derek Robertson, Jim Mohnach, and Randi Clites as directors, and Mike Callaghan, MD, as Medical Advisor. Cascade’s staff page identifies Stephanie Raymond as Chief Executive Officer.

Cascade Hemophilia Consortium is led by Stephanie Raymond, Executive Director on every filing since 2019; 1 of 14 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Stephanie Raymond

    Executive Director

    On filings since 2019

    40 hrs/week

    $179K (2019) → $333K (2025)

  • Elizabeth Sandon-Kleiboer

    President

    Secretary & President → President, 2022

    On filings since 2021

    1 hr/week

    No compensation reported

  • Susan Lerch

    Director

    On filings since 2019

    1 hr/week

    No compensation reported

  • Jim Mohnach

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Derek Robertson

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Amy Dunn

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Charity Stadler

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Christian CJ Hansen

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Sanjay Ahuja

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • William Berk

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Mike Callaghan MD

    Medical Advisor

    President → Director, 2021

    Director → Medical Advisor, 2024

    On filings since 2019

    1 hr/week

    No compensation reported

  • Elizabeth Boelens

    Vice President

    Secretary → Vice President, 2023

    On filings since 2022

    1 hr/week

    No compensation reported

  • Kathy Price

    Treasurer

    On filings since 2022

    1 hr/week

    No compensation reported

  • Randi Clites

    Secretary

    Director → Secretary, 2025

    On filings since 2022

    1 hr/week

    No compensation reported

Former officers (16)
  • Former: Chris Roberson (2019–2024) — Secretary
  • Former: Bill Sparrow (2019–2023) — Director
  • Former: John Fargo DO FAAP (2019–2023) — Director
  • Former: Erica Godsey (2023) — Director
  • Former: Jim Munn (2023) — Director
  • Former: Nancy Inverso (2023) — Secretary
  • Former: Laura Carlson RN (2019–2022) — Director
  • Former: Jim Munn RN MS (2020–2022) — Director
  • Former: Dean Hindenlang MPA MS (2019–2021) — President
  • Former: Judith Anderson (2019–2021) — Director
  • Former: John Priestap (2021) — Treasurer
  • Former: Michelle Sumerix CRSP (2019–2020) — Treasurer
  • Former: Rosanne Ososki MSN APRN (2019–2020) — Director
  • Former: Steve Pokoj JD (2019–2020) — Director
  • Former: Amy Hepper MD (2019) — Director
  • Former: Kathy Fessler MD (2019) — Director

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Stephanie Raymond — Executive Director: $333KStephanie RaymondExecutive Director$333K

The highest reported compensation on the 2025 filing was $333K, to Stephanie Raymond (Executive Director).

Contact

Mailing address: 2025 Traverwood Drive Ste A, Ann Arbor, MI 48105
Phone: (734) 996-3300
Website: https://cascadehc.org

Frequently asked questions about Cascade Hemophilia Consortium

How much does Cascade Hemophilia Consortium give each year?

Cascade Hemophilia Consortium gave $7.4M across 30 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $6.3M across 29 grants.

What is Cascade Hemophilia Consortium's typical grant size?

Cascade Hemophilia Consortium's median grant in 2025 was $249,828, and its average grant was $245,354, across 30 grants on its 2025 IRS Form 990-PF. Organizations receiving their first grant from Cascade Hemophilia Consortium that year got $250K on average.

Where does Cascade Hemophilia Consortium give grants?

Cascade Hemophilia Consortium gives mostly in Michigan: 64% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The next largest state was Ohio (32%). The most frequent recipient cities were Ypsilanti, MI (3 grants), Detroit, MI (3 grants), Ann Arbor, MI (3 grants) and Cincinnati, OH (3 grants).

Does Cascade Hemophilia Consortium give general operating support?

Not in 2025: none of the 30 grants with a stated purpose on Cascade Hemophilia Consortium's 2025 IRS Form 990-PF were described as general or operating support.

Who are Cascade Hemophilia Consortium's largest grantees?

Cascade Hemophilia Consortium's largest 2025 grantees include Hemophilia Foundation of Michigan ($1,529,607 across 3 grants), Barbara Ann Karmanos Cancer Institute ($493,990) and Greater Ohio Bleeding Disorder Foundation ($442,646), according to its 2025 IRS Form 990-PF. Together they received 34% of its itemized 2025 grant dollars.

How large is Cascade Hemophilia Consortium?

Cascade Hemophilia Consortium reported $109.0M in total assets on its 2025 IRS Form 990-PF. Its revenue that year was $22.6M.

What does Cascade Hemophilia Consortium fund?

Cascade’s stated mission is to provide a compassionate, connected care partnership for people with bleeding disorders, with accessible, affordable, high-quality care and support to help patients and families manage their health. See mission & focus areas ↑

How do I apply for a grant from Cascade Hemophilia Consortium?

The foundation makes contributions only to preselected charitable organizations and does not accept unsolicited requests for funds. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑

What is Cascade Hemophilia Consortium's EIN?

Cascade Hemophilia Consortium's EIN (Employer Identification Number) is 38-3199649. IRS Form 990 filing data is available on this page for 2019–2025.

Does Cascade Hemophilia Consortium accept unsolicited proposals?

No, according to Grantable's research on the foundation's published guidelines. See how to apply ↑

Data last updated September 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.

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