The Hemophilia Alliance Foundation logo

The Hemophilia Alliance Foundation

Public charity · Grantmaker Clearwater, FL EIN: 80-0902096 Website

The Hemophilia Alliance Foundation is a public charity based in Clearwater, Florida. Incorporated in 2013, it administers funds for eligible organizations serving people with inherited bleeding and thrombotic disorders, including support for organizational capacity and direct consumer financial assistance programs.

The Hemophilia Alliance Foundation at a glance

In short: The Hemophilia Alliance Foundation gave $805K across 73 grants in 2024 (avg $11K), top state California. 19% of 2024 grantees were new. Source: 2024 IRS Form 990.

Annual giving (2024)
$804,925
-10.0% vs 2023
Grants made (2024)
73
+2.8% vs 2023
Average grant
$11,026
-12.5% vs 2023
Median grant
$8,000
Total assets
$70,750
+32.5% vs 2023
New grantees (estimate)
19% first-time grantees (14 of 73, 2024)
Primary geography
California (11% of itemized 2024 grant dollars)
Latest 990 filing
Form 990, 2024 View filing

Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).

How to apply to The Hemophilia Alliance Foundation

How to Apply

Applications are available annually and are reviewed by the Foundation’s board or scholarship committee, as applicable.

Review Cycle
For the 2026 Impact Grant, applications are due July 17, 2026.
Deadline
For the 2026 Impact Grant, applications are due July 17, 2026.
Contact

Mailing address: 2655 Ulmerton Road 265, Clearwater, FL 33762
Phone: (317) 657-5913
Website: https://hemophiliaalliancefoundation.org

Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.

Who The Hemophilia Alliance Foundation funds

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

Hemophilia Foundation of Michigan: $34KHemophilia Foundation ofMichigan$34KBleeding Disorders Association of South Carolina: $24KBleeding Disorders Associationof South Carolina$24KBleeding Disorders Foundation of North Carolina: $24KBleeding Disorders Foundationof North Carolina$24KHemophilia Association of San Diego County: $24KHemophilia Association of SanDiego County$24KHemophilia Association of the Capital Area: $24KHemophilia Association of theCapital Area$24KHemophilia Foundation of Southern California: $24KHemophilia Foundation ofSouthern California$24KNorthern Ohio Hemophilia Foundation: $24KNorthern Ohio HemophiliaFoundation$24KWest Virginia Chapter of the National Hemophilia Foundation: $24KWest Virginia Chapter of theNational Hemophilia Foundation$24KGreat Lakes Hemophilia Foundation: $18KGreat Lakes HemophiliaFoundation$18KCascade Foundation of Southern Arizona: $16KCascade Foundation of SouthernArizona$16K

The largest 2024 recipient was Hemophilia Foundation of Michigan ($34K). Together the top 10 received $236K.

Grant Size Distribution

353 grants across all recorded years

343<$50K10$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 343 grants of 353 (97%).

Geographic Focus

Where this funder awards grants

The 2024 grant-dollar shares by recipient state were California, 11%; New York, 9%; Ohio, 7%; Michigan, 6%; and Florida, 5%. The listed 2024 recipients also include organizations in states such as South Carolina, North Carolina, Virginia, West Virginia, Wisconsin, Arizona, Hawaii, and New Jersey.

Grant Distribution by State

44states

Share of 2024 grant dollars across all 73 itemized grants.

Cities

New YorkChicagoLouisvilleDaytonGreenvilleRochesterSpringfieldBaton RougeClevelandCincinnatiMilwaukeeSacramentoBozemanBuffaloCorvallisDedhamDenverEast LansingFargoLas Vegas

Is The Hemophilia Alliance Foundation open to new grantees?

19%

first-time grantees, 2024

In 2024, 14 of 73 grantees (19%) were first-time recipients. First grants averaged $10K; repeat grants $11K. How we count

Medians: $8K first-time, $8K repeat.

  • 64% of 2024 grantees were also funded in 2023. Method
  • Giving held roughly steady from 2021 to 2024 (−8%). Method

Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$500K$1M$1.5M75 grants2020 79 grants2021 55 grants2022 71 grants2023 73 grants2024

From 2020 to 2024, annual grant giving ranged from $692K (2022) to $1.2M (2020). In 2024 it made 73 grants totaling $805K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Hemophilia Foundation of Michigan Ypsilanti, MIPromote Hemophilia$34,000
Bleeding Disorders Association of South Carolina Greenville, SCPromote Hemophilia$24,000
Bleeding Disorders Foundation of North Carolina Morrisville, NCPromote Hemophilia$24,000
Hemophilia Association of San Diego County San Diego, CAPromote Hemophilia$24,000
Hemophilia Association of the Capital Area Springfield, VAPromote Hemophilia$24,000
Hemophilia Foundation of Southern California Pasadena, CAPromote Hemophilia$24,000
Northern Ohio Hemophilia Foundation Cleveland, OHPromote Hemophilia$24,000
West Virginia Chapter of the National Hemophilia Foundation Morgantown, WVPromote Hemophilia$24,000
Great Lakes Hemophilia Foundation Milwaukee, WIPromote Hemophilia$18,000
Cascade Foundation of Southern Arizona Tucson, AZPromote Hemophilia$16,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2024$70,750$1,026,732$1,009,373$804,92573—
2023$53,392$784,931$929,850$894,56071—
2022$198,311$622,145$721,635$691,50855—
2021$297,801$865,673$896,723$873,47879—
2020$328,851$1,226,869$1,245,445$1,205,20075$6

Research compiled by Grantable AI from public sources. Last updated September 2026.

Mission & Focus Areas

The Foundation’s mission is to receive and administer funds that help eligible organizations in the inherited bleeding and thrombotic disorders community build capacity and support direct consumer financial assistance programs. Its stated grant purpose includes helping charitable organizations assist individuals and families in managing and improving care for inherited bleeding and clotting disorders.

The Foundation’s grants have supported organizations with a range of community missions. For example, the Hemophilia Foundation of Michigan says it strives to improve quality of life for people affected by hemophilia and other coagulation disorders; the Hemophilia Association of New Jersey describes its work as providing resources, education, and advocacy for people with bleeding disorders and their families; and VWD Connect Foundation says it focuses on support, education, and connection for people affected by severe von Willebrand disease and their families.

Grantmaking

Applications for grants and scholarships are available on an annual cycle and are reviewed by the Foundation’s board or, for scholarships, its scholarship committee. Award recipients have 12 months from the award date to spend the funds. The Foundation’s listed opportunities include HAF Impact Grants, Project Grants, Patient Assistance Grants, Regional Core Centers Grants, and the Joe Pugliese Educational Award Scholarship.

For 2024, the Foundation reported 73 grants totaling $804,925. Individual grants ranged from $6,287 to $34,000, with a median of $8,000. Its largest listed 2024 award was $34,000 to the Hemophilia Foundation of Michigan. Other listed awards included $24,000 each to the Bleeding Disorders Association of South Carolina, Bleeding Disorders Foundation of North Carolina, Hemophilia Association of San Diego County, Hemophilia Association of the Capital Area, Hemophilia Foundation of Southern California, Northern Ohio Hemophilia Foundation, and West Virginia Chapter of the National Hemophilia Foundation. The Foundation’s website reports $1,060,425 in grants awarded in 2025.

The Project and Patient Assistance Grant guidance gives ceilings of $8,000 for local patient organizations and hemophilia treatment and sickle cell centers, and $10,000 for national organizations and the eight HHS-designated federally funded regional core coordinating centers. Examples include projects that strengthen an organization’s services, patient or consumer financial assistance, and regional treatment center annual meetings. The Joe Pugliese Educational Award is a scholarship for eligible individuals with inherited bleeding or thrombotic disorders who are active patients at federally funded Hemophilia Treatment Centers; it supports post-secondary educational expenses.

For the 2026 Impact Grant, the guidance calls for an IRS tax-exempt certification or 501(c)(3) documentation, a W-9, a detailed budget with justification, and, for collaborations, letters from partners describing their roles. The W-9 and nonprofit-status documentation are required for the applicant or fiscal agent responsible for the funds. Incomplete applications will not be reviewed; grants are subject to available funds, and the Foundation reserves the right to reduce requested amounts. Funds may not be used for other purposes.

Leadership & Key People

Leadership team and compensation from IRS filings

The 2024 filing lists Maria Manahan as treasurer; Michael Craciunoiu as chairman; Ralph Gruppo as vice chairman; and Sabrina Farina as secretary. Directors listed are Stephanie Raymond, Donnie Akers, Amy Marquez, Tracy Cleghorn, Courtney Huckel, and Regina Butler.

The Hemophilia Alliance Foundation is led by Michael Craciunoiu, Chairman since 2023 (on filings since 2020); none of the 13 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Michael Craciunoiu

    Chairman

    Secretary → Vice Chairman, 2021

    Vice Chairman → Chairman, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Amy Marquez

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Donnie Akers

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Stephanie Raymond

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Tracy Cleghorn

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Courtney Huckel

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Chad Stevens

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Regina Butler

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Joseph Palascak

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Susan Cutter

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Maria Manahan

    Treasurer

    On filings since 2020

    1 hr/week

    No compensation reported

  • Ralph Gruppo

    Vice Chairman

    Director → Vice Chairman, 2023

    On filings since 2021

    1 hr/week

    No compensation reported

  • Sabrina Farina

    Secretary

    Director → Secretary, 2023

    On filings since 2021

    1 hr/week

    No compensation reported

Former officers (5)
  • Former: Brenda Riske (2020–2022) — Chairman
  • Former: Grant Hiura (2020–2022) — Secretary
  • Former: Anjali Sharathkumar (2020) — Director
  • Former: Laurel Pennick (2020) — Director
  • Former: Susan Karp RN (2020) — Chairman

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about The Hemophilia Alliance Foundation

How much does The Hemophilia Alliance Foundation give each year?

The Hemophilia Alliance Foundation gave $805K across 73 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $895K across 71 grants.

What is The Hemophilia Alliance Foundation's typical grant size?

The Hemophilia Alliance Foundation's median grant in 2024 was $8,000, and its average grant was $11,026, across 73 grants on its 2024 IRS Form 990. Organizations receiving their first grant from The Hemophilia Alliance Foundation that year got $10K on average.

Where does The Hemophilia Alliance Foundation give grants?

The Hemophilia Alliance Foundation's top state is California, with 11% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were New York (9%) and Ohio (7%). The most frequent recipient cities were New York, NY (5 grants), Chicago, IL (2 grants), Rochester, NY (2 grants) and Louisville, KY (2 grants).

Does The Hemophilia Alliance Foundation give general operating support?

Not in 2024: none of the 73 grants with a stated purpose on The Hemophilia Alliance Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Promote Hemophilia" (73 grants).

Who are The Hemophilia Alliance Foundation's largest grantees?

The Hemophilia Alliance Foundation's largest 2024 grantees include Hemophilia Foundation of Michigan ($34,000), Bleeding Disorders Association of South Carolina ($24,000) and Bleeding Disorders Foundation of North Carolina ($24,000), according to its 2024 IRS Form 990. Together they received 10% of its itemized 2024 grant dollars.

How large is The Hemophilia Alliance Foundation?

The Hemophilia Alliance Foundation reported $71K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.0M.

What does The Hemophilia Alliance Foundation fund?

The Foundation’s mission is to receive and administer funds that help eligible organizations in the inherited bleeding and thrombotic disorders community build capacity and support direct consumer financial assistance programs. See mission & focus areas ↑

How do I apply for a grant from The Hemophilia Alliance Foundation?

Applications are available annually and are reviewed by the Foundation’s board or scholarship committee, as applicable. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑

What is The Hemophilia Alliance Foundation's EIN?

The Hemophilia Alliance Foundation's EIN (Employer Identification Number) is 80-0902096. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.

Data update history

(6)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS July 19, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS October 26, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
  6. IRS filings on file for fiscal years 2020–2024

Live grants for the work The Hemophilia Alliance Foundation funds

Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.

Explore Open Grants

Browse active grant opportunities in The Hemophilia Alliance Foundation's focus areas in our free grants database

Similar Funders

Funders that support many of the same organizations

Colburn-Keenan Foundation Inc

Enfield, CT

The Colburn-Keenan Foundation supports people and families affected by inherited bleeding disorders through financial aid, scholarships, camps, and family programs, and funds organizations serving that community in the United States. Its 2024 grants had a median of $3,500, though amounts varied widely; individual assistance is generally considered up to $3,000 per year. It accepts applications for several programs, including its 2026 organizational grant cycle and camp and family programs.

Philanthropy, Voluntarism & Grantmaking

Assets

$10.9M

Grants

49

Total Given

$342K

National Bleeding Disorders Foundation

New York, NY

NBDF funds research on inheritable bleeding and blood disorders, as well as education, advocacy, and support for affected communities and organizations. Its 2024 grants ranged from $5,250 to $200,000, with a median of $14,000, and went to recipients across the United States and Puerto Rico; research applicants must be affiliated with a U.S.-based organization. The profile describes applications for specific research awards but does not state whether NBDF accepts unsolicited requests.

Assets

$30.8M

Grants

23

Total Given

$839K

The Hemophilia Alliance Group Purchasing Organization

Clearwater, FL

The Hemophilia Alliance Group Purchasing funds organizations supporting people with bleeding and clotting disorders, including advocacy, education, research, and care at treatment centers. In 2024, it made seven grants ranging from $8,012 to $869,000, with a median of $402,000, to recipients in New York, Pennsylvania, Indiana, and Wisconsin. The profile does not state whether it accepts unsolicited requests.

Assets

$26.0M

Grants

7

Total Given

$3.0M

Hemophilia Federation of America

Washington, DC

Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.

Health

Assets

$7.9M

Grants

3

Total Given

$25K

American Thrombosis and Hemostasis Network Inc

Hickory, NC

The American Thrombosis and Hemostasis Network funds data management and research projects that improve care for people with bleeding and clotting disorders, including work by treatment centers, hospitals, universities, and community organizations. Its 2024 grants ranged from $5,324 to $566,663, with a median of $14,400, and went to recipients in multiple U.S. states. The profile does not state whether it accepts unsolicited requests.

Assets

$5.2M

Grants

71

Total Given

$4.8M

American Cancer Society Inc

Atlanta, GA

The American Cancer Society funds cancer research, patient support, and advocacy, including grants to researchers, institutions, and related organizations. Its 2025 grants ranged from $5,648 to $9.6 million, with a median of $15,000; research funding supports institutions across the United States. It accepts applications for specific research programs through ProposalCentral, but the profile does not state whether it accepts unsolicited requests generally.

Assets

$1.7B

Grants

509

Total Given

$23.1M

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Cite this profile

Grantable. (2026). The Hemophilia Alliance Foundation funder profile. GrantGraph. Retrieved October 22, 2026, from https://grantable.co/funders/the-hemophilia-alliance-foundation-morg_5211ec2f345e4699b3549abd361b01eb

BibTeX
@misc{grantable_800902096_2026,
  author       = {{Grantable}},
  title        = {{The Hemophilia Alliance Foundation funder profile}},
  howpublished = {GrantGraph},
  year         = {2026},
  url          = {https://grantable.co/funders/the-hemophilia-alliance-foundation-morg_5211ec2f345e4699b3549abd361b01eb},
  note         = {Accessed 2026-10-22. Data licensed CC BY 4.0}
}

The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.

Figures come from The Hemophilia Alliance Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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