The Hemophilia Alliance Foundation
The Hemophilia Alliance Foundation is a 501(c)(3) tax-exempt public charity incorporated in 2013. Based in Clearwater, Florida, the foundation generates and administers funds to support organizations serving the inherited bleeding and thrombotic disorders community. The foundation was established as the grants committee of The Hemophilia Alliance, a nonprofit organization founded in 2005 that brings together hemophilia treatment centers to purchase clotting factors and related products more efficiently.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$71K
+32.5% YoY
Annual Giving
$805K
-10.0% YoY
Grant Count
73
+2.8% YoY
Avg Grant Size
$11K
-12.5% YoY
Mission & Focus Areas
The Hemophilia Alliance Foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.
The foundation's primary focus is grantmaking to charitable organizations that assist individuals in managing their care of bleeding and clotting disorders. Grant recipients have used foundation support to enhance education for constituents, train board members, provide equipment and supplies to increase awareness of inherited bleeding disorders, and facilitate strategic planning sessions.
Grantmaking
Grant applications are available on an annual cycle and are carefully reviewed by the Hemophilia Alliance Foundation board, which consists of individuals from the inheritable blood disorders community. Recipients have 12 months from the date of receiving the grant to spend the grant dollars.
Grant Types
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Geographic Focus
Where this funder awards grants
The foundation's grant-making focuses primarily on New York, California, and Florida, though it serves organizations across the United States in the inherited bleeding and thrombotic disorders community.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Most Recent (2024):
- Total assets: $70,750
- Total revenues: $1,026,732
- Total expenses: $1,009,373
- Total giving: $978,925
- Number of employees: 0
Historical Context: The first grants awarded by The Hemophilia Alliance Foundation in 2009 totaled $250,000. Since 2009, the foundation has granted more than $8,260,000.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $70,750 | $53,392 | $198,311 |
| Revenue | $1,026,732 | $784,931 | $622,145 |
| Expenses | $1,009,373 | $929,850 | $721,635 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | — | — | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
250 grants across all recorded years
Open Grants
4 open opportunities from The Hemophilia Alliance Foundation
HAF: Impact Grants (Formerly Innovation Grant)
THE HEMOPHILIA ALLIANCE FOUNDATION
Amount
US $50,000
Deadline
Rolling / Open
HAF: Project Grant
THE HEMOPHILIA ALLIANCE FOUNDATION
Amount
US $8,000 - US $10,000
Deadline
Rolling / Open
Hemophilia Alliance Joe Pugliese Educational Award Grant
THE HEMOPHILIA ALLIANCE FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Jeff Blake – Liaison (contact person listed)
The foundation board consists of individuals from the inheritable blood disorders community.
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MARIA MANAHAN | TREASURER | 1 | — |
| MICHAEL CRACIUNOIU | CHAIRMAN | 1 | — |
| STEPHANIE RAYMOND | DIRECTOR | 1 | — |
| DONNIE AKERS | DIRECTOR | 1 | — |
| AMY MARQUEZ | DIRECTOR | 1 | — |
| TRACY CLEGHORN | DIRECTOR | 1 | — |
| SABRINA FARINA | SECRETARY | 1 | — |
| RALPH GRUPPO | VICE CHAIRMAN | 1 | — |
| COURTNEY HUCKEL | DIRECTOR | 1 | — |
| REGINA BUTLER | DIRECTOR | 1 | — |
| CHAD STEVENS | DIRECTOR | 1 | — |
| SUSAN CUTTER | DIRECTOR | 1 | — |
| JOSEPH PALASCAK | DIRECTOR | 1 | — |
Contact Information
Hemophilia Alliance Foundation
2655 Ulmerton Rd., #265
Clearwater, FL 33762
Phone: 317-657-5913
Email: info@hemophiliaalliancefoundation.org
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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