The Hemophilia Alliance Foundation
The Hemophilia Alliance Foundation is a public charity based in Clearwater, Florida. Incorporated in 2013, it administers funds for eligible organizations serving people with inherited bleeding and thrombotic disorders, including support for organizational capacity and direct consumer financial assistance programs.
Key facts about The Hemophilia Alliance Foundation
In short: The Hemophilia Alliance Foundation gave $805K across 73 grants in 2024 (avg $11K), top state California. 21% of 2024 grantees were new. Source: 2024 IRS Form 990.
- EIN
- 80-0902096
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $804,925
- Grants made (2024)
- 73
- Average grant
- $11,026
- Median grant
- $8,000
- New grantees (estimate)
- 21% first-time grantees (15 of 73, 2024)
- Total assets
- $70,750
- Primary geography
- California (11% of itemized 2024 grant dollars)
- How to apply
- Applications are available annually and are reviewed by the Foundation’s board or scholarship committee, as applicable. Full details ↓
- Deadline
- For the 2026 Impact Grant, applications are due July 17, 2026.
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology). Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$71K
+32.5% YoY
Annual Giving
$805K
-10.0% YoY
Grant Count
73
+2.8% YoY
Avg Grant Size
$11K
-12.5% YoY
Is The Hemophilia Alliance Foundation open to new grantees?
21%
first-time grantees, 2024
In 2024, 15 of 73 grantees (21%) were first-time recipients. First grants averaged $10K; repeat grants $11K. How we count
Medians: $8K first-time, $8K repeat.
- 63% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (−8%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
The Foundation’s mission is to receive and administer funds that help eligible organizations in the inherited bleeding and thrombotic disorders community build capacity and support direct consumer financial assistance programs. Its stated grant purpose includes helping charitable organizations assist individuals and families in managing and improving care for inherited bleeding and clotting disorders.
The Foundation’s grants have supported organizations with a range of community missions. For example, the Hemophilia Foundation of Michigan says it strives to improve quality of life for people affected by hemophilia and other coagulation disorders; the Hemophilia Association of New Jersey describes its work as providing resources, education, and advocacy for people with bleeding disorders and their families; and VWD Connect Foundation says it focuses on support, education, and connection for people affected by severe von Willebrand disease and their families.
Grantmaking
Applications for grants and scholarships are available on an annual cycle and are reviewed by the Foundation’s board or, for scholarships, its scholarship committee. Award recipients have 12 months from the award date to spend the funds. The Foundation’s listed opportunities include HAF Impact Grants, Project Grants, Patient Assistance Grants, Regional Core Centers Grants, and the Joe Pugliese Educational Award Scholarship.
Review Cycle
For the 2026 Impact Grant, applications are due July 17, 2026.
Open Grants
4 open opportunities from The Hemophilia Alliance Foundation
HAF: Impact Grants (Formerly Innovation Grant)
The Hemophilia Alliance Foundation
Amount
US $50,000
Deadline
Rolling / Open
HAF: Project Grant
The Hemophilia Alliance Foundation
Amount
US $8,000 - US $10,000
Deadline
Rolling / Open
Hemophilia Alliance Joe Pugliese Educational Award Grant
The Hemophilia Alliance Foundation
Amount
Varies
Deadline
Rolling / Open
Ready to take the next step with The Hemophilia Alliance Foundation?
Geographic Focus
Where this funder awards grants
The 2024 grant-dollar shares by recipient state were California, 11%; New York, 9%; Ohio, 7%; Michigan, 6%; and Florida, 5%. The listed 2024 recipients also include organizations in states such as South Carolina, North Carolina, Virginia, West Virginia, Wisconsin, Arizona, Hawaii, and New Jersey.
Grant Distribution by State
Share of 2024 grant dollars across all 73 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $692K (2022) to $1.2M (2020). In 2024 it made 73 grants totaling $805K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Hemophilia Foundation of Michigan ($34K). Together the top 10 received $236K.
Grant Size Distribution
353 grants across all recorded years
The most common grant size was under $50K: 343 grants of 353 (97%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Hemophilia Foundation of Michigan Ypsilanti, MI | Promote Hemophilia | $34,000 |
| Bleeding Disorders Association of South Carolina Greenville, SC | Promote Hemophilia | $24,000 |
| Bleeding Disorders Foundation of North Carolina Morrisville, NC | Promote Hemophilia | $24,000 |
| Hemophilia Association of San Diego County San Diego, CA | Promote Hemophilia | $24,000 |
| Hemophilia Association of the Capital Area Springfield, VA | Promote Hemophilia | $24,000 |
| Hemophilia Foundation of Southern California Pasadena, CA | Promote Hemophilia | $24,000 |
| Northern Ohio Hemophilia Foundation Cleveland, OH | Promote Hemophilia | $24,000 |
| West Virginia Chapter of the National Hemophilia Foundation Morgantown, WV | Promote Hemophilia | $24,000 |
| Great Lakes Hemophilia Foundation Milwaukee, WI | Promote Hemophilia | $18,000 |
| Cascade Foundation of Southern Arizona Tucson, AZ | Promote Hemophilia | $16,000 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grant sum | Grant count |
|---|---|---|---|---|---|
| 2024 | $70,750 | $1,026,732 | $1,009,373 | $804,925 | 73 |
| 2023 | $53,392 | $784,931 | $929,850 | $894,560 | 71 |
| 2022 | $198,311 | $622,145 | $721,635 | $691,508 | 55 |
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $70,750 | $53,392 | $198,311 |
| Revenue | $1,026,732 | $784,931 | $622,145 |
| Expenses | $1,009,373 | $929,850 | $721,635 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS July 19, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 26, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Maria Manahan as treasurer; Michael Craciunoiu as chairman; Ralph Gruppo as vice chairman; and Sabrina Farina as secretary. Directors listed are Stephanie Raymond, Donnie Akers, Amy Marquez, Tracy Cleghorn, Courtney Huckel, and Regina Butler.
The Hemophilia Alliance Foundation is led by Michael Craciunoiu, Chairman since 2023 (on filings since 2020); none of the 13 officers listed in 2024 report compensation.
Officers on the 2024 filing
Michael Craciunoiu
Chairman
Secretary → Vice Chairman, 2021
Vice Chairman → Chairman, 2023
On filings since 2020
1 hr/week
No compensation reported
Amy Marquez
Director
On filings since 2020
1 hr/week
No compensation reported
Donnie Akers
Director
On filings since 2020
1 hr/week
No compensation reported
Stephanie Raymond
Director
On filings since 2020
1 hr/week
No compensation reported
Tracy Cleghorn
Director
On filings since 2021
1 hr/week
No compensation reported
Courtney Huckel
Director
On filings since 2022
1 hr/week
No compensation reported
Chad Stevens
Director
On filings since 2023
1 hr/week
No compensation reported
Regina Butler
Director
On filings since 2023
1 hr/week
No compensation reported
Joseph Palascak
Director
New on the 2024 filing
1 hr/week
No compensation reported
Susan Cutter
Director
New on the 2024 filing
1 hr/week
No compensation reported
Maria Manahan
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Ralph Gruppo
Vice Chairman
Director → Vice Chairman, 2023
On filings since 2021
1 hr/week
No compensation reported
Sabrina Farina
Secretary
Director → Secretary, 2023
On filings since 2021
1 hr/week
No compensation reported
Former officers (5)
- Former: Brenda Riske (2020–2022) — Chairman
- Former: Grant Hiura (2020–2022) — Secretary
- Former: Anjali Sharathkumar (2020) — Director
- Former: Laurel Pennick (2020) — Director
- Former: Susan Karp RN (2020) — Chairman
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Contact
Mailing address: 2655 Ulmerton Road 265, Clearwater, FL 33762
Phone: (317) 657-5913
Website: https://hemophiliaalliancefoundation.org
Frequently asked questions about The Hemophilia Alliance Foundation
How much does The Hemophilia Alliance Foundation give each year?
The Hemophilia Alliance Foundation gave $805K across 73 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $895K across 71 grants.
What is The Hemophilia Alliance Foundation's typical grant size?
The Hemophilia Alliance Foundation's median grant in 2024 was $8,000, and its average grant was $11,026, across 73 grants on its 2024 IRS Form 990. Organizations receiving their first grant from The Hemophilia Alliance Foundation that year got $10K on average.
Where does The Hemophilia Alliance Foundation give grants?
The Hemophilia Alliance Foundation's top state is California, with 11% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were New York (9%) and Ohio (7%). The most frequent recipient cities were New York, NY (5 grants), Chicago, IL (2 grants), Rochester, NY (2 grants) and Louisville, KY (2 grants).
Does The Hemophilia Alliance Foundation give general operating support?
Not in 2024: none of the 73 grants with a stated purpose on The Hemophilia Alliance Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Promote Hemophilia" (73 grants).
Who are The Hemophilia Alliance Foundation's largest grantees?
The Hemophilia Alliance Foundation's largest 2024 grantees include Hemophilia Foundation of Michigan ($34,000), Bleeding Disorders Association of South Carolina ($24,000) and Bleeding Disorders Foundation of North Carolina ($24,000), according to its 2024 IRS Form 990. Together they received 10% of its itemized 2024 grant dollars.
How large is The Hemophilia Alliance Foundation?
The Hemophilia Alliance Foundation reported $71K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.0M.
What does The Hemophilia Alliance Foundation fund?
The Foundation’s mission is to receive and administer funds that help eligible organizations in the inherited bleeding and thrombotic disorders community build capacity and support direct consumer financial assistance programs. See mission & focus areas ↑
How do I apply for a grant from The Hemophilia Alliance Foundation?
Applications are available annually and are reviewed by the Foundation’s board or scholarship committee, as applicable. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is The Hemophilia Alliance Foundation's EIN?
The Hemophilia Alliance Foundation's EIN (Employer Identification Number) is 80-0902096. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Here's the math on researching The Hemophilia Alliance Foundation by hand.
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