National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF), formerly the National Hemophilia Foundation, is a public charity based in New York, NY. Formed in 1948, it supports work related to inheritable blood and bleeding disorders through research, education, and advocacy.
National Bleeding Disorders Foundation at a glance
In short: National Bleeding Disorders Foundation gave $839K across 23 grants in 2024 (avg $36K), top state North Carolina. 35% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $838,500
- +62.9% vs 2023
- Grants made (2024)
- 23
- -4.2% vs 2023
- Average grant
- $36,457
- +70.0% vs 2023
- Median grant
- $14,000
- Total assets
- $30,813,469
- -8.0% vs 2023
- New grantees (estimate)
- 35% first-time grantees (8 of 23, 2024; small sample)
- Primary geography
- North Carolina (25% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to National Bleeding Disorders Foundation
- Contact
Mailing address: 1230 Avenue Of The Americas 16Th F, New York, NY 10020
Phone: (212) 328-3700
Website: https://bleeding.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
1 open opportunity from National Bleeding Disorders Foundation
Who National Bleeding Disorders Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of North Carolina at Chapel Hill ($200K). Together the top 10 received $701K.
Grant Size Distribution
162 grants across all recorded years
The most common grant size was under $50K: 135 grants of 162 (83%).
Geographic Focus
Where this funder awards grants
NBDF is based in New York, NY. Its 2024 grant dollars went to recipients in multiple states and Puerto Rico. The largest state shares were North Carolina (25%), Massachusetts (21%), California (14%), New York (11%), and Georgia (8%).
Grant Distribution by State
Share of 2024 grant dollars across all 23 itemized grants.
States
Cities
Is National Bleeding Disorders Foundation open to new grantees?
35%
first-time grantees, 2024
In 2024, 8 of 23 grantees (35%) were first-time recipients. With only 23 grantees, that is a small sample: one grantee more or less moves the share by about 4 points. First grants averaged $69K; repeat grants $19K. How we count
Medians: $53K first-time, $14K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $515K (2023) to $2.2M (2020). In 2024 it made 23 grants totaling $839K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of North Carolina at Chapel Hill Chapel Hill, NC | Clinical Fellowship Award | $200,000 |
| The Board of Trustees of the Leland Stanford Junior University Los Angeles, CA | Research Judith Graham Pool Award | $104,000 |
| Beth Israel Deaconess Medical Center Boston, MA | Research Judith Graham Pool Award | $104,000 |
| World Federation of Hemophilia USA Albany, NY | Women & girls with bleeding disorders, and chapters challenge grants | $90,000 |
| Emory University Atlanta, GA | Career Development Award | $70,000 |
| Brigham and Women's Hospital Boston, MA | Career Development Award | $70,000 |
| Asociacion Puertorriquena De Hemofilia San Juan, PR | State Based Advocacy Coalition & Unite Walk Grants | $18,000 |
| Intermountain Healthcare Foundation Inc Salt Lake City, UT | Social Work Excellence Fellowship | $15,000 |
| University of Florida Gainesville, FL | Physical Therapy Excellence Fellowship | $15,000 |
| Maine Health Westbrook, ME | Nursing Excellence Fellowship | $15,000 |
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Financial History
Multi-year comparison from IRS filings
NBDF’s 2024 filing states that it appropriates funds for research fellowships annually at a rate of up to 4% of the fund’s average fair market value over the most recent 36-month period, taking relevant economic, investment, and financial conditions into consideration.
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $30,813,469 | $16,570,137 | $19,646,649 | $838,500 | 23 | $1,743,292 |
| 2023 | $33,488,551 | $19,047,848 | $23,080,348 | $514,723 | 24 | $1,005,490 |
| 2022 | $37,819,346 | $18,150,168 | $23,065,785 | $1,038,258 | 27 | $400,817 |
| 2021 | $46,786,068 | $26,439,522 | $18,557,069 | $1,202,354 | 22 | $2,891,140 |
| 2020 | $38,811,644 | $21,485,204 | $19,037,685 | $2,185,877 | 66 | $1,176,717 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
NBDF states that it is dedicated to finding cures for inheritable blood and bleeding disorders and addressing and preventing their complications through research, education, and advocacy, enabling people and families to thrive.
Its research grants support work in areas including the biological mechanisms of inheritable bleeding and blood disorders and related comorbidities, novel therapies, translational science, clinical advances, quality of care, and health equity, diversity, inclusion, and access to care. Its programs also include education and training for people affected by bleeding disorders and healthcare providers, and advocacy and chapter support.
Grantees’ own stated missions illustrate the range of organizations supported. The Hemophilia Foundation of Michigan says it strives to improve quality of life for people affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications. The Western Pennsylvania Bleeding Disorders Foundation describes its work as improving care and enriching lives through education, advocacy, resources, and referrals. WFH USA says it advances the World Federation of Hemophilia’s mission in the United States and builds awareness for the global vision of Treatment for All.
Grantmaking
In filing year 2024, NBDF reported 23 grants totaling $838,500. Grant amounts ranged from $5,250 to $200,000, with a median of $14,000. Its research awards include the Judith Graham Pool Postdoctoral Research Fellowship, Career Development Award, Clinical Fellowship, and Excellence Fellowships for nurses, social workers, and physical therapists. The foundation’s research FAQ describes awards of up to $52,000 per year for two years for the Judith Graham Pool fellowship, $70,000 per year for up to three years for the Career Development Award, $100,000 per year for two years for the Clinical Fellowship, and $15,000 for one year to 18 months for Excellence Fellowships.
The largest reported 2024 grants included $200,000 to the University of North Carolina at Chapel Hill for a clinical fellowship; $104,000 each to Stanford University and Beth Israel Deaconess Medical Center for Judith Graham Pool research awards; and $90,000 to World Federation of Hemophilia USA for women and girls with bleeding disorders and chapter challenge grants. Other reported awards included $70,000 each to Emory University and Brigham and Women’s Hospital for career development awards.
NBDF’s research FAQ says applicants must be affiliated with a U.S.-based organization; U.S. citizenship is not required. A grantee may not hold multiple NBDF grants simultaneously, and grants may not overlap. The Judith Graham Pool fellowship listing is marked active and describes support of up to $52,000 annually for two years for pre-clinical or basic science research related to hemophilia and other inherited bleeding disorders. NBDF’s research materials direct applicants to the instructions for the specific award.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Ryan Griffith as chair, Susan Hartmann as vice chair, Joseph Alioto, MD, as treasurer, and Paulette Bryant, MD, as secretary. Listed directors are James R. Christensen, Joseph J. Helfert II, Peter A. Kouides, MD, Megan Lee, Ziva Mann, Scott Miller, CPA, Esq., Sharon Richardson, PhD, and Lucas Taylor.
National Bleeding Disorders Foundation is led by Leonard Valentino, President & CEO - since 2024 (on filings since 2020); 10 of 23 officers listed in 2024 are compensated.
Officers on the 2024 filing
Leonard Valentino
President & CEO -
President & Chief Executive Officer → President & CEO, 2021
President & CEO → President & CEO -, 2024
On filings since 2020
40 hrs/week
$271K (2020) → $136K (2024)
Philip Gattone
President & CEO
New on the 2024 filing
40 hrs/week
$333K (2024)
Ryan Griffith
Chair
Director → Treasurer, 2021
Treasurer → Chair, 2024
On filings since 2020
10 hrs/week
No compensation reported
Teri Willey
Managing Director
On filings since 2023
40 hrs/week
$309K (2023) → $306K (2024)
Renee Peck
Senior Development Director
On filings since 2023
40 hrs/week
$198K (2023) → $206K (2024)
Scott Miller CPA Esq.
Director
Chair → Director, 2022
On filings since 2020
10 hrs/week
No compensation reported
Ziva Mann
Director
On filings since 2020
10 hrs/week
No compensation reported
James R. Christensen
Director
On filings since 2023
10 hrs/week
No compensation reported
Joseph J. Helfert II
Director
On filings since 2023
10 hrs/week
No compensation reported
Peter A. Kouides MD
Director
On filings since 2023
10 hrs/week
No compensation reported
Kelly Wornall
Director
New on the 2024 filing
10 hrs/week
No compensation reported
Lucas Taylor
Director
New on the 2024 filing
10 hrs/week
No compensation reported
Megan Lee
Director
New on the 2024 filing
10 hrs/week
No compensation reported
Sharon Richardson PhD
Director
New on the 2024 filing
10 hrs/week
No compensation reported
Peter Harvey
Chief Business Officer
On filings since 2020
40 hrs/week
$80K (2020) → $215K (2024)
Sandra D. Rotellini
Chief Operating Officer
On filings since 2020
40 hrs/week
$202K (2020) → $220K (2024)
Timothy Brent
Venture Principal
Senior Director of Business Development → Senior Director of Busines, 2021
Senior Director of Busines → Venture Principal, 2024
On filings since 2020
40 hrs/week
$157K (2020) → $176K (2024)
Keri Norris Svp Of Health
Access & Strategic Innovation
Equity Diversity & Inclusion → Access & Strategic Innovation, 2024
On filings since 2022
40 hrs/week
$176K (2022) → $178K (2024)
Michael Recht
Chief Scientific Officer
On filings since 2023
40 hrs/week
$290K (2023) → $399K (2024)
Nathan Schaefer
S.v.p. of Public Policy
New on the 2024 filing
40 hrs/week
$175K (2024)
Susan Hartmann
Vice Chair
Director → Vice Chair, 2024
On filings since 2020
10 hrs/week
No compensation reported
Paulette Bryant MD
Secretary
Director → Secretary, 2022
On filings since 2021
10 hrs/week
No compensation reported
Joseph Alioto MD
Treasurer
Director → Treasurer, 2024
On filings since 2023
10 hrs/week
No compensation reported
Former officers (24)
- Former: Brett Spitale (2020–2023) — V.p. of Advancement
- Former: Derick Stace-Naughton (2020–2023) — Director
- Former: Neil Frick (2020–2023) — S.v.p. of Research & Medic
- Former: Scott Martin (2020–2023) — Chair
- Former: Kai Brown (2021–2023) — Director -
- Former: Maria Eileen San Juan (2021–2023) — Director
- Former: Lisa R. Pitler (2023) — Director
- Former: Anna Sprovskaya (2020–2022) — Controller
- Former: John Faria MBA (2020–2022) — Vice Chair
- Former: Lynne Capretto (2020–2022) — Director
- Former: Michelle Witkop (2020–2022) — V.p. of Research
- Former: Kevin Mills Chief (2022) — Scientific Officer
- Former: Michelle Rice Former (2022) — Chief External Affair Officer
- Former: Brian Andrew (2020–2021) — Director
- Former: Cindy Komar (2020–2021) — Director
- Former: James A. Heer (2020–2021) — Director
- Former: Patrick Mancini (2020–2021) — Director
- Former: Kevin Mills (2021) — Chief Scientific Officer
- Former: Michelle Rice Chief External (2021) — Affairs Officer
- Former: Gary D. Farro (2020) — Director
- Former: Jordana Zeger (2020) — Chief Fiscal Officer
- Former: Mark Borreliz (2020) — Director
- Former: Michelle Rice (2020) — Chief External Affairs Officer
- Former: Val Bias (2020) — Former Chief Executive Officer
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $399K, to Michael Recht (Chief Scientific Officer). 10 officers or directors reported compensation on that filing.
Frequently asked questions about National Bleeding Disorders Foundation
How much does National Bleeding Disorders Foundation give each year?
National Bleeding Disorders Foundation gave $839K across 23 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $515K across 24 grants.
What is National Bleeding Disorders Foundation's typical grant size?
National Bleeding Disorders Foundation's median grant in 2024 was $14,000, and its average grant was $36,457, across 23 grants on its 2024 IRS Form 990. Organizations receiving their first grant from National Bleeding Disorders Foundation that year got $69K on average.
Where does National Bleeding Disorders Foundation give grants?
National Bleeding Disorders Foundation's top state is North Carolina, with 25% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (21%) and California (14%). The most frequent recipient cities were Boston, MA (2 grants).
Does National Bleeding Disorders Foundation give general operating support?
Not in 2024: none of the 23 grants with a stated purpose on National Bleeding Disorders Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "State Based Advocacy Coalition & Unite Walk Grants" (8 grants) and "Chapter Capacity Building & Unite Walk Grants" (3 grants).
Who are National Bleeding Disorders Foundation's largest grantees?
National Bleeding Disorders Foundation's largest 2024 grantees include University of North Carolina at Chapel Hill ($200,000), The Board of Trustees of the Leland Stanford Junior University ($104,000) and Beth Israel Deaconess Medical Center ($104,000), according to its 2024 IRS Form 990. Together they received 49% of its itemized 2024 grant dollars.
How large is National Bleeding Disorders Foundation?
National Bleeding Disorders Foundation reported $30.8M in total assets on its 2024 IRS Form 990. Its revenue that year was $16.6M.
What does National Bleeding Disorders Foundation fund?
NBDF states that it is dedicated to finding cures for inheritable blood and bleeding disorders and addressing and preventing their complications through research, education, and advocacy, enabling people and families to thrive. See mission & focus areas ↑
How do I apply for a grant from National Bleeding Disorders Foundation?
National Bleeding Disorders Foundation has no public application process in the sources Grantable reviewed. Check bleeding.org for current guidelines, or contact the foundation directly before submitting a request.
What is National Bleeding Disorders Foundation's EIN?
National Bleeding Disorders Foundation's EIN (Employer Identification Number) is 13-5641857. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 8, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 27, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 13, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 6, 2025)
- IRS filings on file for fiscal years 2020–2024
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Cite this profile
Grantable. (2026). National Bleeding Disorders Foundation funder profile. GrantGraph. Retrieved October 17, 2026, from https://grantable.co/funders/national-bleeding-disorders-foundation-morg_88c7313fe65649d88b6a39558d09f12a
BibTeX
@misc{grantable_135641857_2026,
author = {{Grantable}},
title = {{National Bleeding Disorders Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/national-bleeding-disorders-foundation-morg_88c7313fe65649d88b6a39558d09f12a},
note = {Accessed 2026-10-17. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from National Bleeding Disorders Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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