National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF) is a 501(c)(3) nonprofit organization headquartered in New York, NY. Founded in 1948 as the National Hemophilia Foundation, the organization rebranded to its current name in August 2023 to reflect its broader focus. NBDF is dedicated to finding cures for inheritable blood and bleeding disorders, preventing complications, and empowering individuals and families through research, education, and advocacy. The organization employs 99 people and maintains a presence in Canada and Australia.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$30.8M
-8.0% YoY
Annual Giving
$839K
+62.9% YoY
Grant Count
23
-4.2% YoY
Avg Grant Size
$36K
+70.0% YoY
Mission & Focus Areas
NBDF's mission is to find cures for inheritable blood and bleeding disorders and to address and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive.
Core program areas include:
Health Education and Training: NBDF operates programs such as "Own Your Path," which focuses on improving treatment adherence for individuals with hemophilia or von Willebrand disease. The foundation distributes educational publications on diagnosis, treatment, and care for those living with bleeding disorders.
Women's Health Initiatives: The "Victory for Women" and "Better You Know" programs aim to improve awareness of bleeding disorder symptoms in women to increase diagnosis rates and provide affected women with education and support.
Research: NBDF supports research advancement through grants and fellowships to accelerate development of transformational therapies and technologies.
Advocacy: The organization works to improve outcomes and health equity for the bleeding disorders community.
Grantmaking
NBDF operates an active research grant program. The organization announced research grant awardees and opened applications for its 2025 research grant cycle. In 2024, NBDF awarded $22 million in fellowships to advance bleeding disorders research.
Review Cycle
. In 2024, NBDF awarded $22 million in fellowships to advance bleeding disorders research.
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Geographic Focus
Where this funder awards grants
NBDF is headquartered in New York, NY and maintains international presence in Canada and Australia. The organization works with community partners across the United States to raise awareness of bleeding disorders.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Most Recent Financial Data (2024):
- Total Revenues: $16,570,137
- Total Expenses: $19,646,649
- Total Assets: $30,813,469
Prior Year Data (2023):
- Revenue: $19,000,000
- Expenses: $23,100,000
- Total Assets: $33,500,000
- Total Liabilities: $3,790,000
NBDF maintains a strong financial position and holds a Four-Star rating based on its accountability, finance, leadership, and community engagement metrics.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $30,813,469 | $33,488,551 | $37,819,346 |
| Revenue | $16,570,137 | $19,047,848 | $18,150,168 |
| Expenses | $19,646,649 | $23,080,348 | $23,065,785 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,743,292 | $1,005,490 | $400,817 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
146 grants across all recorded years
Open Grants
1 open opportunity from National Bleeding Disorders Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Key executives include:
- Kelli Walters: Executive Director
- Peter Harvey: Chief Business Officer
- Dawn Rotellini: Chief Operating Officer
- Adeli Lopez: Vice President Human Resources
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RYAN GRIFFITH | CHAIR | 10 | — |
| SUSAN HARTMANN | VICE CHAIR | 10 | — |
| JOSEPH ALIOTO MD | TREASURER | 10 | — |
| PAULETTE BRYANT MD | SECRETARY | 10 | — |
| JAMES R CHRISTENSEN | DIRECTOR | 10 | — |
| JOSEPH J HELFERT II | DIRECTOR | 10 | — |
| PETER A KOUIDES MD | DIRECTOR | 10 | — |
| MEGAN LEE | DIRECTOR | 10 | — |
| ZIVA MANN | DIRECTOR | 10 | — |
| SCOTT MILLER CPA ESQ | DIRECTOR | 10 | — |
| SHARON RICHARDSON PHD | DIRECTOR | 10 | — |
| LUCAS TAYLOR | DIRECTOR | 10 | — |
| KELLY WORNALL | DIRECTOR | 10 | — |
| LEONARD VALENTINO | PRESIDENT & CEO - THRU 3/31/24 | 40 | $135,983 |
| PHILIP GATTONE | PRESIDENT & CEO | 40 | $333,391 |
| PETER HARVEY | CHIEF BUSINESS OFFICER | 40 | $214,515 |
| MICHAEL RECHT | CHIEF SCIENTIFIC OFFICER | 40 | $398,637 |
| SANDRA D ROTELLINI | CHIEF OPERATING OFFICER | 40 | $219,819 |
| TERI WILLEY | MANAGING DIRECTOR | 40 | $306,003 |
| NATHAN SCHAEFER | S.V.P. OF PUBLIC POLICY | 40 | $175,228 |
| TIMOTHY BRENT | VENTURE PRINCIPAL | 40 | $175,948 |
| KERI NORRIS SVP OF HEALTH | ACCESS & STRATEGIC INNOVATION | 40 | $178,161 |
| RENEE PECK | SENIOR DEVELOPMENT DIRECTOR | 40 | $205,808 |
Recent News & Activity
Recent developments and announcements
NBDF announced 2024 research fellowship recipients, awarding $22 million in fellowships to advance bleeding disorders research
NBDF Announces Research Grant AwardeesThe organization opened applications for its 2025 research grant cycle
NBDF Announces Research Grant AwardeesIn 2024, NBDF distributed 30,777 educational publications to the bleeding disorders community
NBDF Awards $22M in Fellowships to Advance Bleeding Disorders Research |NBDF expanded its "Own Your Path" health coaching program for individuals with hemophilia and von Willebrand disease
The foundation reached out to 26 community partners in 2024 to share information about signs and symptoms of bleeding disorders
NBDF Awards $22M in Fellowships to Advance Bleeding Disorders Research |Related Funders
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Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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