National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF) is a 501(c)(3) nonprofit organization headquartered in New York, NY. Founded in 1948 as the National Hemophilia Foundation, the organization rebranded to its current name in August 2023 to reflect its broader focus. NBDF is dedicated to finding cures for inheritable blood and bleeding disorders, preventing complications, and empowering individuals and families through research, education, and advocacy. The organization employs 99 people and maintains a presence in Canada and Australia.
Key facts about National Bleeding Disorders Foundation
- EIN
- 13-5641857
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $838,500
- Grants made (2024)
- 23
- Average grant
- $36,457
- Median grant
- $14,000
- New grantees (estimate)
- 35% first-time grantees (8 of 23, 2024)
- Total assets
- $30,813,469
- Primary geography
- North Carolina (25% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
Who National Bleeding Disorders Foundation funds
By grant dollars, the top recipient states for National Bleeding Disorders Foundation's 23 itemized 2024 grants were North Carolina (25%), Massachusetts (21%) and California (14%). The most frequent recipient cities were Boston, MA (2 grants). None of its 23 grants with a stated purpose were described as general or operating support. Recurring purposes include "State Based Advocacy Coalition & Unite Walk Grants" (8 grants) and "Chapter Capacity Building & Unite Walk Grants" (3 grants).
Is National Bleeding Disorders Foundation open to new grantees?
35%
first-time grantees, 2024
In 2024, 8 of 23 grantees (35%) were first-time recipients. First grants averaged $69K; repeat grants $19K. How we count
Medians: $53K first-time, $14K repeat.
Estimate from itemized IRS Form 990-PF grant lists (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
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Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$30.8M
-8.0% YoY
Annual Giving
$839K
+62.9% YoY
Grant Count
23
-4.2% YoY
Avg Grant Size
$36K
+70.0% YoY
Mission & Focus Areas
NBDF's mission is to find cures for inheritable blood and bleeding disorders and to address and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive.
Core program areas include:
Health Education and Training: NBDF operates programs such as "Own Your Path," which focuses on improving treatment adherence for individuals with hemophilia or von Willebrand disease. The foundation distributes educational publications on diagnosis, treatment, and care for those living with bleeding disorders.
Women's Health Initiatives: The "Victory for Women" and "Better You Know" programs aim to improve awareness of bleeding disorder symptoms in women to increase diagnosis rates and provide affected women with education and support.
Research: NBDF supports research advancement through grants and fellowships to accelerate development of transformational therapies and technologies.
Advocacy: The organization works to improve outcomes and health equity for the bleeding disorders community.
Grantmaking
NBDF operates an active research grant program. The organization announced research grant awardees and opened applications for its 2025 research grant cycle. In 2024, NBDF awarded $22 million in fellowships to advance bleeding disorders research.
Review Cycle
. In 2024, NBDF awarded $22 million in fellowships to advance bleeding disorders research.
Ready to take the next step with National Bleeding Disorders Foundation?
Geographic Focus
Where this funder awards grants
NBDF is headquartered in New York, NY and maintains international presence in Canada and Australia. The organization works with community partners across the United States to raise awareness of bleeding disorders.
Grant Distribution by State
Share of all 23 itemized 2024 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
Most Recent Financial Data (2024):
- Total Revenues: $16,570,137
- Total Expenses: $19,646,649
- Total Assets: $30,813,469
Prior Year Data (2023):
- Revenue: $19,000,000
- Expenses: $23,100,000
- Total Assets: $33,500,000
- Total Liabilities: $3,790,000
NBDF maintains a strong financial position and holds a Four-Star rating based on its accountability, finance, leadership, and community engagement metrics.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $30,813,469 | $33,488,551 | $37,819,346 |
| Revenue | $16,570,137 | $19,047,848 | $18,150,168 |
| Expenses | $19,646,649 | $23,080,348 | $23,065,785 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,743,292 | $1,005,490 | $400,817 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
162 grants across all recorded years
Open Grants
1 open opportunity from National Bleeding Disorders Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include University of North Carolina at Chapel Hill ($200,000), The Board of Trustees of the Leland Stanford Junior University ($104,000), Beth Israel Deaconess Medical Center ($104,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL Chapel Hill, NC | CLINICAL FELLOWSHIP AWARD | $200,000 |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY Los Angeles, CA | RESEARCH JUDITH GRAHAM POOL AWARD | $104,000 |
| BETH ISRAEL DEACONESS MEDICAL CENTER Boston, MA | RESEARCH JUDITH GRAHAM POOL AWARD | $104,000 |
| WORLD FEDERATION OF HEMOPHILIA USA Albany, NY | WOMEN & GIRLS WITH BLEEDING DISORDERS, AND CHAPTERS CHALLENGE GRANTS | $90,000 |
| EMORY UNIVERSITY Atlanta, GA | CAREER DEVELOPMENT AWARD | $70,000 |
| BRIGHAM AND WOMEN'S HOSPITAL Boston, MA | CAREER DEVELOPMENT AWARD | $70,000 |
| ASOCIACION PUERTORRIQUENA DE HEMOFILIA San Juan, PR | STATE BASED ADVOCACY COALITION & UNITE WALK GRANTS | $18,000 |
| INTERMOUNTAIN HEALTHCARE FOUNDATION INC Salt Lake City, UT | SOCIAL WORK EXCELLENCE FELLOWSHIP | $15,000 |
| UNIVERSITY OF FLORIDA Gainesville, FL | PHYSICAL THERAPY EXCELLENCE FELLOWSHIP | $15,000 |
| MAINE HEALTH Westbrook, ME | NURSING EXCELLENCE FELLOWSHIP | $15,000 |
Leadership & Key People
Leadership team and compensation from IRS filings
Key executives include:
- Kelli Walters: Executive Director
- Peter Harvey: Chief Business Officer
- Dawn Rotellini: Chief Operating Officer
- Adeli Lopez: Vice President Human Resources
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Ryan Griffith | Chair | 10 | — |
| Susan Hartmann | Vice Chair | 10 | — |
| Joseph Alioto MD | Treasurer | 10 | — |
| Paulette Bryant MD | Secretary | 10 | — |
| James R Christensen | Director | 10 | — |
| Joseph J Helfert II | Director | 10 | — |
| Peter a Kouides MD | Director | 10 | — |
| Megan Lee | Director | 10 | — |
| Ziva Mann | Director | 10 | — |
| Scott Miller CPA Esq | Director | 10 | — |
| Sharon Richardson PHD | Director | 10 | — |
| Lucas Taylor | Director | 10 | — |
| Kelly Wornall | Director | 10 | — |
| Leonard Valentino | President & CEO - Thru 3/31/24 | 40 | $135,983 |
| Philip Gattone | President & CEO | 40 | $333,391 |
| Peter Harvey | Chief Business Officer | 40 | $214,515 |
| Michael Recht | Chief Scientific Officer | 40 | $398,637 |
| Sandra D Rotellini | Chief Operating Officer | 40 | $219,819 |
| Teri Willey | Managing Director | 40 | $306,003 |
| Nathan Schaefer | S.V.P. of Public Policy | 40 | $175,228 |
| Timothy Brent | Venture Principal | 40 | $175,948 |
| Keri Norris SVP of Health | Access & Strategic Innovation | 40 | $178,161 |
| Renee Peck | Senior Development Director | 40 | $205,808 |
Recent News & Activity
Recent developments and announcements
NBDF announced 2024 research fellowship recipients, awarding $22 million in fellowships to advance bleeding disorders research
NBDF Announces Research Grant AwardeesThe organization opened applications for its 2025 research grant cycle
NBDF Announces Research Grant AwardeesIn 2024, NBDF distributed 30,777 educational publications to the bleeding disorders community
NBDF Awards $22M in Fellowships to Advance Bleeding Disorders Research |NBDF expanded its "Own Your Path" health coaching program for individuals with hemophilia and von Willebrand disease
The foundation reached out to 26 community partners in 2024 to share information about signs and symptoms of bleeding disorders
NBDF Awards $22M in Fellowships to Advance Bleeding Disorders Research |Frequently Asked Questions
What does National Bleeding Disorders Foundation fund?
NBDF's mission is to find cures for inheritable blood and bleeding disorders and to address and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive. Core program areas include: • **Health Education and Training**: NBDF operates programs such as "Own Your Path," which focuses on improving treatment adherence for individuals with hemophilia or von Willebrand disease. The foundation distributes educational publications o…
How do I apply for a grant from National Bleeding Disorders Foundation?
NBDF operates an active research grant program. The organization announced research grant awardees and opened applications for its 2025 research grant cycle. In 2024, NBDF awarded $22 million in fellowships to advance bleeding disorders research. **Pathway to Cures**: NBDF created Pathway to Cures (P2C), a venture philanthropy fund established in 2022, to fill funding gaps and invest in the development of transformational therapies and technologies for inheritable blood and bleeding disorders. …
Where does National Bleeding Disorders Foundation make grants?
NBDF is headquartered in New York, NY and maintains international presence in Canada and Australia. The organization works with community partners across the United States to raise awareness of bleeding disorders.
What size grants does National Bleeding Disorders Foundation award?
In 2024, National Bleeding Disorders Foundation awarded 23 grants totaling $839K — an average of about $36K per grant, based on its IRS Form 990 filings.
What is National Bleeding Disorders Foundation's EIN?
National Bleeding Disorders Foundation's EIN (Employer Identification Number) is 13-5641857. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.