Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is a public charity based in Bethesda, Maryland, formed in 1955. It funds cystic fibrosis research and drug development, partners with the CF community, and advances specialized care.
Cystic Fibrosis Foundation at a glance
In short: Cystic Fibrosis Foundation gave $189.6M across 624 grants in 2024 (avg $304K), top state Illinois. 4% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $189,565,612
- +1.5% vs 2023
- Grants made (2024)
- 624
- -1.4% vs 2023
- Average grant
- $303,791
- +3.0% vs 2023
- Median grant
- $149,692
- Total assets
- $4,986,222,387
- +2.1% vs 2023
- New grantees (estimate)
- 4% first-time grantees (9 of 224, 2024)
- Primary geography
- Illinois (0% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Cystic Fibrosis Foundation
- How to Apply
-
Review the specific funding opportunity for its requirements and submit through the Foundation’s grants management system. The Foundation says application review can take four to eight months, depending on the opportunity; some require an approved letter of intent before a full application.
- Review Cycle
- The listed May 12, 2026 deadline for the spring Research Grants cycle has passed. The academic opportunities page also lists May and December deadlines for some programs, but does not specify the years for those cycles.
- Deadline
- The listed May 12, 2026 deadline for the spring Research Grants cycle has passed.
- Contact
Mailing address: 4550 Montgomery Avenue 1100N, Bethesda, MD 20814
Phone: (301) 951-4422
Website: https://cff.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
24 open opportunities from Cystic Fibrosis Foundation
CF Foundation/NIH K-Unfunded Award
Cystic Fibrosis Foundation
Amount
Varies
Deadline
Deadline not published
CFF/NIH R01-Unfunded Award
Cystic Fibrosis Foundation
Amount
Varies
Deadline
Deadline not published
Clinical Fellowship – Research Awards Grant
Cystic Fibrosis Foundation
Amount
Up to US $105,000
Deadline
Deadline not published
Who Cystic Fibrosis Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Seattle Children's Hospital ($28.9M across 8 grants). Together the top 10 received $82.1M.
Grant Size Distribution
3,084 grants across all recorded years
The most common grant size was in the $100–250K range: 1,140 grants of 3,084 (37%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 624 itemized grants.
States
Cities
Is Cystic Fibrosis Foundation open to new grantees?
4%
first-time grantees, 2024
In 2024, 9 of 224 grantees (4%) were first-time recipients. First grants averaged $208K; repeat grants $873K. How we count
Medians: $96K first-time, $271K repeat.
- 94% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (+16%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $163.8M (2021) to $189.6M (2024). In 2024 it made 624 grants totaling $189.6M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Seattle Children's Hospital | Clinical Research Study | $12,893,328 |
| Seattle Children's Hospital | Clinical Research Center | $10,180,397 |
| Jaeb Center for Health Research Foundation Inc | Clinical Research Study | $6,907,230 |
| Seattle Children's Hospital | Clinical Research | $5,459,200 |
| Trustees of Indiana University | Clinical Research Study | $4,014,448 |
| Healthwell Foundation | Patient Assistance | $3,000,000 |
| University of Alabama at Birmingham | Research | $2,962,497 |
| Case Western Reserve University | Research | $2,183,802 |
| University of Washington | Clinical Research Study | $2,155,537 |
| State University of Iowa | Therapeutics Discovery Research | $2,053,746 |
Ready to take the next step with Cystic Fibrosis Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $4,986,222,387 | $355,798,320 | $439,138,919 | $189,565,612 | 624 | $231,324,892 |
| 2023 | $4,885,921,122 | $292,016,280 | $443,404,599 | $186,780,931 | 633 | $179,149,610 |
| 2022 | $4,735,058,992 | $248,630,352 | $396,664,114 | $172,994,773 | 599 | $128,066,687 |
| 2021 | $5,691,109,976 | $417,237,551 | $375,611,186 | $163,786,972 | 619 | $306,161,908 |
| 2020 | $5,369,999,661 | $800,629,953 | $381,380,991 | $172,594,190 | 609 | $681,199,107 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
The Foundation’s mission is to cure cystic fibrosis and provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
Its research priorities include developing genetic-based therapies, addressing rare and nonsense mutations, advancing CFTR modulator therapies, and improving care. Academic opportunities include basic science research, clinical research, and professional development and training. The Foundation says applications are reviewed by subject-matter experts through peer review; some clinical research applications also receive feedback from people with CF and their families.
Grantmaking
In filing year 2024, the Foundation reported 624 grants totaling $189,565,612. Grant amounts ranged from $2,800 to $12,893,328, with a median of $149,692. Among its largest reported awards were $12,893,328 and $10,180,397 to Seattle Children’s Hospital for a clinical research study and clinical research center, respectively; $6,907,230 to Jaeb Center for Health Research Foundation Inc for a clinical research study; and $4,014,448 to Trustees of Indiana University for a clinical research study. Other large awards included $3,000,000 to HealthWell Foundation for patient assistance and $2,962,497 to the University of Alabama at Birmingham for research.
The Foundation’s website lists research grants, pilot and feasibility awards, clinical research awards, and training opportunities. For example, its Research Grants support hypothesis-driven basic science research, with spring-cycle support listed at $150,000 per year plus 12% for indirect costs for up to two years. Its listed Path to a Cure Collaborative Research Grant may provide up to $1 million per year plus 12% for indirect costs for three years. The website describes a peer-review process and an application process that may include a letter of intent, depending on the opportunity. Applicants use the Foundation’s grants management system.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Michael P. Boyle, MD, as President and CEO; David A. Mount as Treasurer; and John S. Weinberg as Executive Vice Chair. It also lists Eric R. Olson, PhD, as Vice Chair, and Carole B. Griego, MD, Dodzie Sogah, PhD, Dominic J. Caruso, Elise Eberwein, Eric Schneider, MD, and Jessica H. Boyd, MD, as trustees.
Cystic Fibrosis Foundation is led by Michael P. Boyle MD, President & CEO on every filing since 2020; 13 of 29 officers listed in 2024 are compensated.
Officers on the 2024 filing
Michael P. Boyle MD
President & CEO
On filings since 2020
40 hrs/week
$819K (2020) → $1.1M (2024)
Kc Bryan White
Chair
Trustee → Chair, 2022
On filings since 2020
8 hrs/week
No compensation reported
Earl A. Lee
Managing Director & Investments
Managing Director & Investment → Managing Director & Investments, 2021
On filings since 2020
40 hrs/week
$726K (2020) → $1.2M (2024)
Eric Koehrsen
Managing Director & Investments
Managing Director & Investment → Managing Director & Investments, 2021
On filings since 2020
40 hrs/week
$627K (2020) → $976K (2024)
Gentiana S. Arovas
Managing Director & Investments Operations
Investment Operations Director → Managing Director & Investments, 2023
Managing Director & Investments → Managing Director & Investments Operations, 2024
On filings since 2021
40 hrs/week
$467K (2021) → $643K (2024)
Andrew Lewis
Managing Director & Investments
On filings since 2023
40 hrs/week
$1.3M (2023) → $1.4M (2024)
Carole B. Griego MD
Trustee
On filings since 2020
3 hrs/week
No compensation reported
Jessica H. Boyd MD
Trustee
On filings since 2020
3 hrs/week
No compensation reported
Steven Shak MD
Trustee
On filings since 2020
3 hrs/week
No compensation reported
Dominic J. Caruso
Trustee
On filings since 2021
3 hrs/week
No compensation reported
Paul A. Motenko
Trustee
On filings since 2021
3 hrs/week
No compensation reported
Eric Schneider MD
Trustee
On filings since 2022
3 hrs/week
No compensation reported
Dodzie Sogah PhD
Trustee
On filings since 2023
3 hrs/week
No compensation reported
Kate O'Donnell
Trustee
On filings since 2023
3 hrs/week
No compensation reported
Elise Eberwein
Trustee
New on the 2024 filing
3 hrs/week
No compensation reported
Albert Faro MD
Chief Medical Officer
Vice President & Clinical Affairs → Vice President Clinical Affairs, 2023
Vice President Clinical Affairs → Chief Medical Officer, 2024
On filings since 2020
40 hrs/week
$418K (2020) → $572K (2024)
Bruce Marshall MD
Chief Medical Officer Ending
Senior Vice President & Clinical Affair → Executive Vice President & Chief Medical Officer, 2021
Executive Vice President & Chief Medical Officer → Chief Medical Officer Ending, 2024
On filings since 2020
40 hrs/week
$600K (2020) → $515K (2024)
John P. Clancy MD
Senior Vice President & Clinical Research
Vice President & Clinical Research → Senior Vice President & Clinical Research, 2022
On filings since 2020
40 hrs/week
$478K (2020) → $670K (2024)
Irena Barisic
Executive Vice President, Chief Operating & Financial Officer
Executive Vice President, Cfao, Assistant Secretary & Assistant Trsr. → Executive Vice President, Chief Oper & Finance Officer, 2023
Executive Vice President, Chief Oper & Finance Officer → Executive Vice President, Chief Operating & Financial Officer, 2024
On filings since 2021
40 hrs/week
$347K (2021) → $762K (2024)
Michael B. Cavadel
Senior Vice President & Chief Legal Officer
Senior Vice President, Chief Legal Officer & Secretary → Senior Vice President & Chief Legal Officer, 2023
On filings since 2022
40 hrs/week
$194K (2022) → $558K (2024)
John C. Mahler Jr. MD
Chief Investment Officer
On filings since 2023
40 hrs/week
$2.7M (2023) → $1.9M (2024)
Enrique Lin Shiao PhD
Principal of Mission Related Investments
New on the 2024 filing
40 hrs/week
$508K (2024)
STEVEn ROWE MD
Executive Vice President & Chief Scientific Officer
New on the 2024 filing
32 hrs/week
$535K (2024)
David A. Mount
Treasurer
On filings since 2020
5 hrs/week
No compensation reported
Eric R. Olson PhD
Vice Chair
Trustee → Vice Chair, 2021
On filings since 2020
5 hrs/week
No compensation reported
John S. Weinberg
Executive Vice Chair
On filings since 2020
5 hrs/week
No compensation reported
Louis A. Defalco
Vice Chair
On filings since 2020
5 hrs/week
No compensation reported
Robert H. Niehaus
Vice Chair
On filings since 2020
5 hrs/week
No compensation reported
Teresa L. Elder
Vice Chair
Trustee → Vice Chair, 2022
On filings since 2020
5 hrs/week
No compensation reported
Former officers (16)
- Former: Preston W. Campbell III MD (2020–2023) — Former CEO & Strategic Advisor
- Former: William Skach MD (2020–2023) — Executive Vice President & Chief Scientific Officer
- Former: Anthony Durmowicz MD (2020–2022) — Vice President & Clinical Development
- Former: Catherine C. McLoud (2020–2022) — Trustee
- Former: Chad T. Moore (2020–2022) — Trustee
- Former: Chris Gegelys (2020–2022) — Former Chief Legal Officer
- Former: Jack Mahler MD (2020–2022) — Chief Investment Officer
- Former: Marc S. Ginsky (2020–2022) — Former COO
- Former: Paul W. Whetsell (2020–2022) — Trustee
- Former: Vera H. Twigg (2020–2022) — Former Executive Vice President & CFO
- Former: Mary Dwight (2022) — Chief Policy & Advocacy Officer
- Former: Marybeth McMahon (2022) — Chief of Staff
- Former: Richard J. Gray Esq. (2020–2021) — Trustee
- Former: Susan L. Hook (2020–2021) — Trustee
- Former: Theodore J. Torphy PhD (2020–2021) — Vice Chair
- Former: Maureen Fraser (2021) — Senior Vice President & Field Mngmt
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $1.9M, to John C Mahler Jr MD (Chief Investment Officer). 13 officers or directors reported compensation on that filing.
Frequently asked questions about Cystic Fibrosis Foundation
How much does Cystic Fibrosis Foundation give each year?
Cystic Fibrosis Foundation gave $189.6M across 624 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $186.8M across 633 grants.
What is Cystic Fibrosis Foundation's typical grant size?
Cystic Fibrosis Foundation's median grant in 2024 was $149,692, and its average grant was $303,791, across 624 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Cystic Fibrosis Foundation that year got $208K on average.
Does Cystic Fibrosis Foundation give general operating support?
Not in 2024: none of the 624 grants with a stated purpose on Cystic Fibrosis Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "CF Care Center" (174 grants), "Clinical Research Center" (92 grants) and "Research" (55 grants).
Who are Cystic Fibrosis Foundation's largest grantees?
Cystic Fibrosis Foundation's largest 2024 grantees include Seattle Children's Hospital ($28,940,353 across 8 grants), University of Alabama at Birmingham ($8,699,437 across 13 grants) and Jaeb Center for Health Research Foundation Inc ($6,907,230), according to its 2024 IRS Form 990. Together they received 23% of its itemized 2024 grant dollars.
How large is Cystic Fibrosis Foundation?
Cystic Fibrosis Foundation reported $5.0B in total assets on its 2024 IRS Form 990. Its revenue that year was $355.8M.
What does Cystic Fibrosis Foundation fund?
The Foundation’s mission is to cure cystic fibrosis and provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. See mission & focus areas ↑
How do I apply for a grant from Cystic Fibrosis Foundation?
Review the specific funding opportunity for its requirements and submit through the Foundation’s grants management system. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Cystic Fibrosis Foundation's EIN?
Cystic Fibrosis Foundation's EIN (Employer Identification Number) is 13-1930701. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 12, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Cystic Fibrosis Foundation's focus areas in our free grants database
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Cystic Fibrosis Foundation down — hundreds of funders to go?