Cystic Fibrosis Foundation
SEE SCHEDULE O
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$5.0B
+2.1% YoY
Annual Giving
$189.6M
+1.5% YoY
Grant Count
624
-1.4% YoY
Avg Grant Size
$304K
+3.0% YoY
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Financial History
Multi-year comparison from IRS filings
Revenue
Expenses
Qualifying Distributions
Net Investment Income
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,986,222,387 | $4,885,921,122 | $4,735,058,992 |
| Revenue | $355,798,320 | $292,016,280 | $248,630,352 |
| Expenses | $439,138,919 | $443,404,599 | $396,664,114 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $231,324,892 | $179,149,610 | $128,066,687 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
3,084 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Cystic Fibrosis Foundation fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
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- 11M+ connections in GrantGraph™
Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $1,054,388 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | — |
| DAVID A MOUNT | TREASURER | 5 | — |
| DODZIE SOGAH PHD | TRUSTEE | 3 | — |
| DOMINIC J CARUSO | TRUSTEE | 3 | — |
| ELISE EBERWEIN | TRUSTEE | 3 | — |
| ERIC R OLSON PHD | VICE CHAIR | 5 | — |
| ERIC SCHNEIDER MD | TRUSTEE | 3 | — |
| JESSICA H BOYD MD | TRUSTEE | 3 | — |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | — |
| KATE O'DONNELL | TRUSTEE | 3 | — |
| KC BRYAN WHITE | CHAIR | 8 | — |
| LOUIS A DEFALCO | VICE CHAIR | 5 | — |
| PAUL A MOTENKO | TRUSTEE | 3 | — |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | — |
| STEVEN SHAK MD | TRUSTEE | 3 | — |
| TERESA L ELDER | VICE CHAIR | 5 | — |
| IRENA BARISIC | EVP & CHIEF OPERATING & FINANCIAL OFFICER | 40 | $761,939 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER | 40 | $558,135 |
| ALBERT FARO MD | Chief Medical Officer Beg. 7/1/2024 | 40 | $571,672 |
| BRUCE MARSHALL MD | Chief Medical Officer Ending 7/1/2024 | 40 | $515,472 |
| JOHN C MAHLER JR MD | CHIEF INVESTMENT OFFICER | 40 | $1,866,868 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH | 40 | $669,826 |
| STEVEn ROWE MD | EVP, Chief Scientific Officer | 32 | $534,655 |
| ANDREW LEWIS | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,363,454 |
| EARL A LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,226,269 |
| ENRIQUE LIN SHIAO PHD | Principal of Mission Related Investments | 40 | $507,691 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $976,105 |
| GENTIANA S AROVAS | MANAGING DIRECTOR, INVESTMENTS OPERATIONS | 40 | $642,532 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Washington $108.5M (16%)
Ohio $61.9M (9%)
Maryland $43.0M (6%)
California $41.5M (6%)
North Carolina $36.8M (5%)
Pennsylvania $33.6M (5%)
Massachusetts $33.2M (5%)
Colorado $26.9M (4%)
+41 more states
States
AlabamaArkansasArizonaCaliforniaColoradoConnecticutDistrict of ColumbiaDelawareFloridaGeorgiaHawaiiIowaIdahoIllinoisIndianaKansasKentuckyLouisianaMassachusettsMarylandMaineMichiganMinnesotaMissouriMississippiMontanaNorth CarolinaNorth DakotaNebraskaNew HampshireNew JerseyNew MexicoNevadaNew YorkOhioOklahomaOregonPennsylvaniaRhode IslandSouth CarolinaSouth DakotaTennesseeTexasUtahVirginiaVermontWashingtonWisconsinWest Virginia
Cities
AkronAlbanyAlbuquerqueAllentownAnn ArborAthensAtlantaAugustaAustinBagleyBaltimoreBangorBeavertonBerkeleyBerwynBethesdaBillingsBirminghamBismarckBlacksburg
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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