The Hemophilia Alliance Group Purchasing logo

The Hemophilia Alliance Group Purchasing

CLEARWATER, FL EIN: 20-2529619 Website

The Hemophilia Alliance Group Purchasing Organization, Inc. is a nonprofit organization headquartered in Clearwater, Florida. Founded in 1999, the organization comprises federally funded hemophilia treatment centers (HTCs) across the United States. The Alliance advises, advocates for, and negotiates on behalf of more than 100 HTCs, providing expertise, resources, and advocacy support to member centers.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$26.0M

+140.7% YoY

Annual Giving

$3.0M

-4.2% YoY

Grant Count

7

-30.0% YoY

Avg Grant Size

$423K

+36.9% YoY

Research compiled by Grantable AI from public sources. Last updated April 2026.

Mission & Focus Areas

Mission: The Hemophilia Alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.

Primary Activities:

  • Facilitating purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with hemophilia or related bleeding disorders
  • Providing counseling to centers on complying with state and federal law and grant requirements
  • Offering educational resources and support
  • Providing payer support and discounted manufacturer and vendor pricing
  • Supporting members in establishing or maintaining pharmacy programs under Section 340B of the Public Health Service Act

Grantmaking

The organization's grant-making focuses on Education, Philanthropy, Voluntarism & Grantmaking, and Human Services. Typical grant awards range from $6,500 to $869,000, with primary funding activity in New York, Wisconsin, and Pennsylvania.

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Geographic Focus

Where this funder awards grants

Primary funding activity occurs in New York, Wisconsin, and Pennsylvania. The organization serves hemophilia treatment centers across the United States, with membership comprising more than 100 HTCs nationally, including university, hospital, and independent centers.

Grant Distribution by State

39states
+31 more states

Cities

AlbanyAlbuquerqueBaton RougeBoiseBozemanBrewerBuffaloCedar RapidsChicagoCincinnatiColumbusCorvallisCranberry TownshipDallasDedhamDenverEast BrunswickEdmondsEmeryvilleEwa Beach

Financial History

Multi-year comparison from IRS filings

Metric Amount
Total Assets $26,037,862
Annual Revenue $10,838,467
Total Giving $3,005,828
Total Expenses $8,220,000 (2023)

Tax Status: 501(c)(3) organization; tax-exempt since April 2007; EIN: 20-2529619

Rating: Three-Star rating with 77% score based on Accountability & Finance metrics

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$3M$6M$9M$12M20202021202220232024
Metric202420232022
Total Assets$26,037,862$10,815,535$21,636,521
Revenue$10,882,096$9,774,069$8,928,051
Expenses$8,817,944$8,224,147$6,260,744
Qualifying Distributions
Net Investment Income$666,198$544,066$151,636
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$781K$2M$2M$3M61 grants20208 grants20218 grants202210 grants20237 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 7 recipients in 2024

THE HEMOPHILIA ALLIANCE …$869KNATIONAL BLEEDING DISORD…$819KAMERICAN THROMBOSIS AND …$700KINDIANA HEMOPHILIA & THR…$402KWORLD FEDERATION OF HEMO…$135KTHE COALITION FOR HEMOPH…$28KVERSITI INC$8K

Grant Size Distribution

83 grants across all recorded years

57<$50K3$50–100K4$100–250K5$250–500K14$500K–1M$1–5M$5M+

Open Grants

1 open opportunity from The Hemophilia Alliance Group Purchasing

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include The Hemophilia Alliance Foundation ($869,000), National Bleeding Disorders Foundation ($819,353), American Thrombosis and Hemostatis Network ($700,000).

RecipientPurposeAmount
THE HEMOPHILIA ALLIANCE FOUNDATION LANSDALE, PASEE PART IV$869,000
NATIONAL BLEEDING DISORDERS FOUNDATION NEW YORK, NYSEE PART IV$819,353
AMERICAN THROMBOSIS AND HEMOSTATIS NETWORK ROCHESTER, NYSEE PART IV$700,000
INDIANA HEMOPHILIA & THROMBOSIS CENTER INC INDIANAPOLIS, INSEE PART IV$402,000
WORLD FEDERATION OF HEMOPHILIA ALBANY, NYSEE PART IV$135,000
THE COALITION FOR HEMOPHILIA B INC NEW YORK, NYSEE PART IV$27,500
VERSITI INC MILWAUKEE, WISEE PART IV$8,012

Leadership & Key People

Leadership team and compensation from IRS filings

Key Staff:

  • Heidi Lane, Senior Vice President
  • Karen Bowe-hause, Director of Community

Organization Size: 15 employees (as of most recent data, representing 28.6% year-over-year growth)

Compensation Overview

From 2024 IRS filing

JEFFREY BLAKEPRESIDENT/CEO$400KJOSEPH N PUGLIESEFORMER PRESIDENT/CEO$271KSEAN SINGHSVP MARKETING & OPERATIONS$251KJENNIFER BORRILLOSVP MEMBER & COMM. RELATIONS$233KMARK A PLENCNERDIR, MEMBER & COMM. RELATIONS$185KJEFFREY A AMONDDIR, MEMBER & COMM. RELATIONS$182KKAREN HAUSEDir - Member & Comm. Relations$178KANGELA BLUEDir - Member & Comm. Relations$172KZACHARY DUFFYDIR, MEMBER & COMM. RELATIONS$165K

From 2024 filing

NameTitleHoursCompensation
JEFFREY BLAKEPRESIDENT/CEO40$400,000
JOSEPH N PUGLIESEFORMER PRESIDENT/CEO40$271,000
JENNIFER BORRILLOSVP MEMBER & COMM. RELATIONS40$233,000
SEAN SINGHSVP MARKETING & OPERATIONS40$250,843
MARK A PLENCNERDIR, MEMBER & COMM. RELATIONS40$185,269
JEFFREY A AMONDDIR, MEMBER & COMM. RELATIONS40$181,843
ANGELA BLUEDir - Member & Comm. Relations40$171,889
KAREN HAUSEDir - Member & Comm. Relations40$178,272
ZACHARY DUFFYDIR, MEMBER & COMM. RELATIONS40$165,059
ERIC GRAY CPACHAIR2
BECKY BURNSVICE CHAIR2
DEAN M HINDENLANG PHDSECRETARY2
STEVEN M POWELL MBATREASURER2
LOUISE M BACA MSN RNDIRECTOR1
REGINA BUTLER RN-BCDIRECTOR1
STACY CROTEAUDIRECTOR1
COLLEEN DRUZGALDIRECTOR1
MIGUEL A ESCOBAR MDDIRECTOR1
REBECCA KRUSE-JARRES MDDIRECTOR1
JOHN MYERS RPH MBADIRECTOR1
JUSTIN NELSON-DEERINGMHACPHDIRECTOR1
JASON WITTESDIRECTOR1
MICHAEL SILVEY MDDIRECTOR1
SACHIKO SUZUKIDIRECTOR1

Contact Information

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What does The Hemophilia Alliance Group Purchasing fund?

**Mission:** The Hemophilia Alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders. **Primary Activities:** • Facilitating purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with hemophilia or related bleeding disorders • Providing counseling to centers on complying with state and federal law and gran…

How do I apply for a grant from The Hemophilia Alliance Group Purchasing?

The organization's grant-making focuses on Education, Philanthropy, Voluntarism & Grantmaking, and Human Services. Typical grant awards range from $6,500 to $869,000, with primary funding activity in New York, Wisconsin, and Pennsylvania. **Recent Financial Activity:** • Total giving: $3,005,828 (most recent filing)

Where does The Hemophilia Alliance Group Purchasing make grants?

Primary funding activity occurs in New York, Wisconsin, and Pennsylvania. The organization serves hemophilia treatment centers across the United States, with membership comprising more than 100 HTCs nationally, including university, hospital, and independent centers.

What size grants does The Hemophilia Alliance Group Purchasing award?

In 2024, The Hemophilia Alliance Group Purchasing awarded 7 grants totaling $3.0M — an average of about $423K per grant, based on its IRS Form 990 filings.

What is The Hemophilia Alliance Group Purchasing's EIN?

The Hemophilia Alliance Group Purchasing's EIN (Employer Identification Number) is 20-2529619. IRS Form 990 filing data is available on this page for 2020–2024.

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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.

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