The Hemophilia Alliance Group Purchasing
The Hemophilia Alliance Group Purchasing Organization, Inc. is a nonprofit organization headquartered in Clearwater, Florida. Founded in 1999, the organization comprises federally funded hemophilia treatment centers (HTCs) across the United States. The Alliance advises, advocates for, and negotiates on behalf of more than 100 HTCs, providing expertise, resources, and advocacy support to member centers.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$26.0M
+140.7% YoY
Annual Giving
$3.0M
-4.2% YoY
Grant Count
7
-30.0% YoY
Avg Grant Size
$423K
+36.9% YoY
Mission & Focus Areas
Mission: The Hemophilia Alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.
Primary Activities:
- Facilitating purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with hemophilia or related bleeding disorders
- Providing counseling to centers on complying with state and federal law and grant requirements
- Offering educational resources and support
- Providing payer support and discounted manufacturer and vendor pricing
- Supporting members in establishing or maintaining pharmacy programs under Section 340B of the Public Health Service Act
Grantmaking
The organization's grant-making focuses on Education, Philanthropy, Voluntarism & Grantmaking, and Human Services. Typical grant awards range from $6,500 to $869,000, with primary funding activity in New York, Wisconsin, and Pennsylvania.
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Geographic Focus
Where this funder awards grants
Primary funding activity occurs in New York, Wisconsin, and Pennsylvania. The organization serves hemophilia treatment centers across the United States, with membership comprising more than 100 HTCs nationally, including university, hospital, and independent centers.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | Amount |
|---|---|
| Total Assets | $26,037,862 |
| Annual Revenue | $10,838,467 |
| Total Giving | $3,005,828 |
| Total Expenses | $8,220,000 (2023) |
Tax Status: 501(c)(3) organization; tax-exempt since April 2007; EIN: 20-2529619
Rating: Three-Star rating with 77% score based on Accountability & Finance metrics
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $26,037,862 | $10,815,535 | $21,636,521 |
| Revenue | $10,882,096 | $9,774,069 | $8,928,051 |
| Expenses | $8,817,944 | $8,224,147 | $6,260,744 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $666,198 | $544,066 | $151,636 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
83 grants across all recorded years
Open Grants
1 open opportunity from The Hemophilia Alliance Group Purchasing
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Key Staff:
- Heidi Lane, Senior Vice President
- Karen Bowe-hause, Director of Community
Organization Size: 15 employees (as of most recent data, representing 28.6% year-over-year growth)
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JEFFREY BLAKE | PRESIDENT/CEO | 40 | $400,000 |
| JOSEPH N PUGLIESE | FORMER PRESIDENT/CEO | 40 | $271,000 |
| JENNIFER BORRILLO | SVP MEMBER & COMM. RELATIONS | 40 | $233,000 |
| SEAN SINGH | SVP MARKETING & OPERATIONS | 40 | $250,843 |
| MARK A PLENCNER | DIR, MEMBER & COMM. RELATIONS | 40 | $185,269 |
| JEFFREY A AMOND | DIR, MEMBER & COMM. RELATIONS | 40 | $181,843 |
| ANGELA BLUE | Dir - Member & Comm. Relations | 40 | $171,889 |
| KAREN HAUSE | Dir - Member & Comm. Relations | 40 | $178,272 |
| ZACHARY DUFFY | DIR, MEMBER & COMM. RELATIONS | 40 | $165,059 |
| ERIC GRAY CPA | CHAIR | 2 | — |
| BECKY BURNS | VICE CHAIR | 2 | — |
| DEAN M HINDENLANG PHD | SECRETARY | 2 | — |
| STEVEN M POWELL MBA | TREASURER | 2 | — |
| LOUISE M BACA MSN RN | DIRECTOR | 1 | — |
| REGINA BUTLER RN-BC | DIRECTOR | 1 | — |
| STACY CROTEAU | DIRECTOR | 1 | — |
| COLLEEN DRUZGAL | DIRECTOR | 1 | — |
| MIGUEL A ESCOBAR MD | DIRECTOR | 1 | — |
| REBECCA KRUSE-JARRES MD | DIRECTOR | 1 | — |
| JOHN MYERS RPH MBA | DIRECTOR | 1 | — |
| JUSTIN NELSON-DEERINGMHACPH | DIRECTOR | 1 | — |
| JASON WITTES | DIRECTOR | 1 | — |
| MICHAEL SILVEY MD | DIRECTOR | 1 | — |
| SACHIKO SUZUKI | DIRECTOR | 1 | — |
Contact Information
- Website: www.hemoalliance.org
- Address: 2655 Ulmerton Road, Suite 263, Clearwater, FL 33762-3337
- Phone: 215-279-9236
- Email: info@hemoalliance.org
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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