HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$7.9M
+1.6% YoY
Annual Giving
$25K
-93.1% YoY
Grant Count
3
-90.3% YoY
Avg Grant Size
$8K
-28.7% YoY
About Hemophilia Federation of America
Based on IRS filings
Hemophilia Federation of America is a nonprofit organization focused on Health, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.9M in total assets. In 2024, it awarded 3 grants totaling $25K. Net investment income was $208K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,886,811 | $7,762,326 | $6,691,676 |
| Revenue | $4,510,978 | $5,110,030 | $5,559,810 |
| Expenses | $4,033,073 | $5,927,594 | $5,864,407 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $207,550 | $192,173 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
67 grants across all recorded years
Open Grants
5 open opportunities from Hemophilia Federation of America
BioRx Educational Scholarships
HEMOPHILIA FEDERATION OF AMERICA
Amount
$2,000 per recipient
Deadline
Rolling / Open
Blood Brotherhood Program (CDC Cooperative Agreement)
HEMOPHILIA FEDERATION OF AMERICA
Amount
$289,000 per year
Deadline
Rolling / Open
COTT Travel Scholarships (Committee of Ten Thousand Partnership)
HEMOPHILIA FEDERATION OF AMERICA
Amount
$15,000 total; 33 travel scholarships available
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| LUCAS RUNION | CHAIR | 3 | — |
| DIANE LIMA | VICE-CHAIR (START 4/24) | 3 | — |
| THOMAS WALLACE | TREASURER | 2 | — |
| ANNE-LOUISE WIRTHLIN | SECRETARY | 1 | — |
| LYNNE CAPRETTO | DIRECTOR AND MOAC LIAISON | 1 | — |
| SHANTHI HEGDE | DIRECTOR | 1 | — |
| DAVID HUSKIE | DIRECTOR | 1 | — |
| RENITA JOHNSON | DIRECTOR | 1 | — |
| ASHLEY LACY | DIRECTOR | 1 | — |
| DANIEL MIKKOLA | DIRECTOR | 1 | — |
| GENEVA OSTEEN | DIRECTOR (START 4/24) | 1 | — |
| JOE PUGLIESE | DIRECTOR (START 4/24) | 1 | — |
| PATRICIA SCHAKE | DIRECTOR (START 4/24) | 1 | — |
| KAILEY TOWNSEND | DIRECTOR (START 4/24) | 1 | — |
| DANIEL KELSEY | PRESIDENT AND CEO | 40 | $210,526 |
| TRACY CLEGHORN | PAST CHAIR | 1 | — |
| NASSIM GALE | VP OF COMMUNICATIONS | 40 | $108,836 |
| PATRICIA BROWN | VP OF MEETINGS, SERVICES AND DEI | 40 | $112,660 |
| JANET CHUPKA | VP OF EDUCATION | 40 | $106,279 |
| DAVE ROGERS | VP OF DEVELOPMENT | 40 | $102,644 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Total Given
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Assets
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Total Given
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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