Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Key facts about Hemophilia Federation of America
In short: Hemophilia Federation of America gave $25K across 3 grants in 2024 (avg $8K), top state Tennessee. Source: 2024 IRS Form 990.
- EIN
- 72-1282316
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $25,000
- Grants made (2024)
- 3
- Average grant
- $8,333
- Median grant
- $9,000
- Total assets
- $7,886,811
- Primary geography
- Tennessee (36% of itemized 2024 grant dollars)
Data from IRS Form 990, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$7.9M
+1.6% YoY
Annual Giving
$25K
-93.1% YoY
Grant Count
3
-90.3% YoY
Avg Grant Size
$8K
-28.7% YoY
About Hemophilia Federation of America
Based on IRS filings
Hemophilia Federation of America is a public charity focused on Health, based in Washington, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.9M in total assets. In 2024, it awarded 3 grants totaling $25K. Net investment income was $208K.
Focus Areas
Open Grants
5 open opportunities from Hemophilia Federation of America
BioRx Educational Scholarships
Hemophilia Federation of America
Amount
$2,000 per recipient
Deadline
Deadline not published
Blood Brotherhood Program (CDC Cooperative Agreement)
Hemophilia Federation of America
Amount
$289,000 per year
Deadline
Deadline not published
COTT Travel Scholarships (Committee of Ten Thousand Partnership)
Hemophilia Federation of America
Amount
$15,000 total; 33 travel scholarships available
Deadline
Deadline not published
Ready to take the next step with Hemophilia Federation of America?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $25K (2024) to $380K (2022). In 2024 it made 3 grants totaling $25K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was Tennessee Hemophilia and Bleeding Disorders Foundation ($9K). Together the top 3 received $25K.
Grant Size Distribution
67 grants across all recorded years
The most common grant size was under $50K: 67 grants of 67 (100%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Tennessee Hemophilia and Bleeding Disorders Foundation Murfreesboro, TN | Impact Grant and Hurricane Disaster Relief | $9,000 |
| Bleeding Disorders Foundation of North Carolina Morrisville, NC | Impact Grant and Disaster Relief | $9,000 |
| Hemophilia Foundation of Southern California Pasadena, CA | Impact Workshop and Fire Disaster Relief | $7,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,886,811 | $7,762,326 | $6,691,676 |
| Revenue | $4,510,978 | $5,110,030 | $5,559,810 |
| Expenses | $4,033,073 | $5,927,594 | $5,864,407 |
| Net Investment Income | $207,550 | $192,173 | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS November 7, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 1, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 29, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Hemophilia Federation of America is led by Daniel Kelsey, President & CEO since 2024 (on filings since 2023); 5 of 20 officers listed in 2024 are compensated.
Officers on the 2024 filing
Daniel Kelsey
President & CEO
President & CEO - → President & CEO, 2024
On filings since 2023
40 hrs/week
$140K (2023) → $211K (2024)
Lucas Runion
Chair
Board Member → Treasurer, 2021
Treasurer → Chair, 2023
On filings since 2020
3 hrs/week
No compensation reported
Daniel Mikkola
Director
Board Member → Member at Large, 2022
Member at Large → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
David Huskie
Director
Board Member → Member at Large, 2022
Member at Large → Director, 2023
On filings since 2021
1 hr/week
No compensation reported
Lynne Capretto
Director & Moac Liaison
On filings since 2023
1 hr/week
No compensation reported
Renita Johnson
Director
On filings since 2023
1 hr/week
No compensation reported
Ashley Lacy
Director
New on the 2024 filing
1 hr/week
No compensation reported
Geneva Osteen
Director
New on the 2024 filing
1 hr/week
No compensation reported
Joe Pugliese
Director
New on the 2024 filing
1 hr/week
No compensation reported
Kailey Townsend
Director
New on the 2024 filing
1 hr/week
No compensation reported
Patricia Schake
Director
New on the 2024 filing
1 hr/week
No compensation reported
Shanthi Hegde
Director
New on the 2024 filing
1 hr/week
No compensation reported
Dave Rogers
Vice President of Development
New on the 2024 filing
40 hrs/week
$103K (2024)
Janet Chupka
Vice President of Education
New on the 2024 filing
40 hrs/week
$106K (2024)
Nassim Gale
Vice President of Communications
New on the 2024 filing
40 hrs/week
$109K (2024)
Patricia Brown
Vice President of Meetings, Services & Dei
New on the 2024 filing
40 hrs/week
$113K (2024)
Anne-Louise Wirthlin
Secretary
Board Member → Member at Large, 2022
Member at Large → Secretary, 2023
On filings since 2020
1 hr/week
No compensation reported
Tracy Cleghorn
Past Chair
On filings since 2021
1 hr/week
No compensation reported
Diane Lima
Vice Chair
Director → Vice Chair, 2024
On filings since 2023
3 hrs/week
No compensation reported
Thomas Wallace
Treasurer
Treasurer - → Treasurer, 2024
On filings since 2023
2 hrs/week
No compensation reported
Former officers (68)
- Former: Joseph Markowitz (2020–2023) — Vice Chair
- Former: Maria Chavez (2020–2023) — Director
- Former: Barbra Kavanaugh (2021–2023) — Interim CEO -
- Former: George Stone (2021–2023) — Treasurer -
- Former: Angela Brown (2020–2022) — Board Member
- Former: Austin Holland (2020–2022) — Board Member
- Former: Bernadette Fox (2020–2022) — Board Member
- Former: Britnee Vieira (2020–2022) — Board Member
- Former: Carletha Gates (2020–2022) — Board Member
- Former: Carson Ouellette (2020–2022) — Board Member
- Former: Cheri Wakeham (2020–2022) — Board Member
- Former: Debra Schwartz (2020–2022) — Board Member
- Former: Dena Shepard (2020–2022) — Board Member
- Former: Estefana Monge-Sotelo (2020–2022) — Board Member
- Former: Jesus Escobedo-Soto (2020–2022) — Board Member
- Former: Kasey Shade (2020–2022) — Board Member
- Former: Kristine Manns (2020–2022) — Board Member
- Former: Laura Portales (2020–2022) — Board Member
- Former: Monica Diaz Mattei (2020–2022) — Board Member
- Former: Natasha Burroughs (2020–2022) — Board Member
- Former: Ronald Staake (2020–2022) — Board Member
- Former: Scott Domowicz (2020–2022) — Board Member
- Former: Shari Luckey (2020–2022) — Board Member
- Former: Sharon Meyers (2020–2022) — President & CEO
- Former: Stephen Long (2020–2022) — Vice Chair
- Former: Taha Amir (2020–2022) — Board Member
- Former: Tanya Ricchi (2020–2022) — Board Member
- Former: Tyshawn Constantine (2020–2022) — Board Member
- Former: Ashley Castello (2021–2022) — Board Member
- Former: Danielle Leitner Baxter (2021–2022) — Board Member
- Former: Jourdan Watkins (2021–2022) — Board Member
- Former: Katherine Mears (2021–2022) — Board Member
- Former: Kim Madeiros (2021–2022) — Board Member
- Former: Leigh Goldstein (2021–2022) — Board Member
- Former: Michelle Burg (2021–2022) — Vice President Operations
- Former: Michelle Palmatier (2021–2022) — Board Member
- Former: Nikole Schroeder (2021–2022) — Board Member
- Former: Patricia Tucker (2021–2022) — Board Member
- Former: Victoria Hubbert (2021–2022) — Member at Large
- Former: Alane Foley (2022) — Board Member
- Former: Allie Ritcey (2022) — Chair
- Former: Carla Wells (2022) — Board Member
- Former: Charlene Cowell (2022) — Board Member
- Former: Jeremy Griffin (2022) — Board Member
- Former: Matthew Porges (2022) — Board Member
- Former: Stephanie Krambrink (2022) — Board Member
- Former: Alice Arapshian (2020–2021) — Board Member
- Former: Allison Ritcey (2020–2021) — Chair
- Former: Gillian Schultz (2020–2021) — Secretary
- Former: Carla Szentkiralyi (2021) — Board Member
- Former: Donnie Akers (2021) — Advisor
- Former: Ellen Mulligan (2021) — Board Member
- Former: Mable Crescioni (2021) — Project Director
- Former: Anne Parrott (2020) — Board Member
- Former: Ashley Gregory (2020) — Member at Large
- Former: Brad Benne (2020) — Board Member
- Former: Clyde Brawner (2020) — Treasurer
- Former: Daniel Warren (2020) — Board Member
- Former: Erica Simpson (2020) — Board Member
- Former: Jeffery Watkins (2020) — Board Member
- Former: Lindsay Hooper (2020) — Board Member
- Former: Meagan Rhyanedd Murray (2020) — Board Member
- Former: Michael Deeb (2020) — Board Member
- Former: Scott Muir (2020) — Board Member
- Former: Sean Hubbert (2020) — Board Member
- Former: Stephanie Mancusi (2020) — Board Member
- Former: Suzanne Martin (2020) — Board Member
- Former: Thomas Beaudet (2020) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $211K, to Daniel Kelsey (President and CEO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about Hemophilia Federation of America
How much does Hemophilia Federation of America give each year?
Hemophilia Federation of America gave $25K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $362K across 31 grants.
What is Hemophilia Federation of America's typical grant size?
Hemophilia Federation of America's median grant in 2024 was $9,000, and its average grant was $8,333, across 3 grants on its 2024 IRS Form 990.
Where does Hemophilia Federation of America give grants?
Hemophilia Federation of America's top state is Tennessee, with 36% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were North Carolina (36%) and California (28%).
Does Hemophilia Federation of America give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Hemophilia Federation of America's 2024 IRS Form 990 were described as general or operating support.
How large is Hemophilia Federation of America?
Hemophilia Federation of America reported $7.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $4.5M.
What is Hemophilia Federation of America?
Hemophilia Federation of America is a public charity focused on Health, based in Washington, DC. It holds $7.9M in total assets as of 2024.
What is Hemophilia Federation of America's EIN?
Hemophilia Federation of America's EIN (Employer Identification Number) is 72-1282316. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Hemophilia Federation of America by hand.
Explore Open Grants
Browse active grant opportunities in Hemophilia Federation of America's focus areas in our free grants database
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