HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$7.9M
+1.6% YoY
Annual Giving
$25K
-93.1% YoY
Grant Count
3
-90.3% YoY
Avg Grant Size
$8K
-28.7% YoY
About Hemophilia Federation of America
Based on IRS filings
Hemophilia Federation of America is a nonprofit organization focused on Health, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.9M in total assets. In 2024, it awarded 3 grants totaling $25K. Net investment income was $208K.
Focus Areas
Ready to take the next step with Hemophilia Federation of America?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,886,811 | $7,762,326 | $6,691,676 |
| Revenue | $4,510,978 | $5,110,030 | $5,559,810 |
| Expenses | $4,033,073 | $5,927,594 | $5,864,407 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $207,550 | $192,173 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
67 grants across all recorded years
Open Grants
5 open opportunities from Hemophilia Federation of America
BioRx Educational Scholarships
HEMOPHILIA FEDERATION OF AMERICA
Amount
$2,000 per recipient
Deadline
Rolling / Open
Blood Brotherhood Program (CDC Cooperative Agreement)
HEMOPHILIA FEDERATION OF AMERICA
Amount
$289,000 per year
Deadline
Rolling / Open
COTT Travel Scholarships (Committee of Ten Thousand Partnership)
HEMOPHILIA FEDERATION OF AMERICA
Amount
$15,000 total; 33 travel scholarships available
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Tennessee Hemophilia and Bleeding Disorders Foundation ($9,000), Bleeding Disorders Foundation of North Carolina ($9,000), Hemophilia Foundation of Southern California ($7,000).
| Recipient | Purpose | Amount |
|---|---|---|
| TENNESSEE HEMOPHILIA AND BLEEDING DISORDERS FOUNDATION MURFREESBORO, TN | IMPACT GRANT AND HURRICANE DISASTER RELIEF | $9,000 |
| HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA PASADENA, CA | IMPACT WORKSHOP AND FIRE DISASTER RELIEF | $7,000 |
| BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA MORRISVILLE, NC | IMPACT GRANT AND DISASTER RELIEF | $9,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| LUCAS RUNION | CHAIR | 3 | — |
| DIANE LIMA | VICE-CHAIR (START 4/24) | 3 | — |
| THOMAS WALLACE | TREASURER | 2 | — |
| ANNE-LOUISE WIRTHLIN | SECRETARY | 1 | — |
| LYNNE CAPRETTO | DIRECTOR AND MOAC LIAISON | 1 | — |
| SHANTHI HEGDE | DIRECTOR | 1 | — |
| DAVID HUSKIE | DIRECTOR | 1 | — |
| RENITA JOHNSON | DIRECTOR | 1 | — |
| ASHLEY LACY | DIRECTOR | 1 | — |
| DANIEL MIKKOLA | DIRECTOR | 1 | — |
| GENEVA OSTEEN | DIRECTOR (START 4/24) | 1 | — |
| JOE PUGLIESE | DIRECTOR (START 4/24) | 1 | — |
| PATRICIA SCHAKE | DIRECTOR (START 4/24) | 1 | — |
| KAILEY TOWNSEND | DIRECTOR (START 4/24) | 1 | — |
| DANIEL KELSEY | PRESIDENT AND CEO | 40 | $210,526 |
| TRACY CLEGHORN | PAST CHAIR | 1 | — |
| NASSIM GALE | VP OF COMMUNICATIONS | 40 | $108,836 |
| PATRICIA BROWN | VP OF MEETINGS, SERVICES AND DEI | 40 | $112,660 |
| JANET CHUPKA | VP OF EDUCATION | 40 | $106,279 |
| DAVE ROGERS | VP OF DEVELOPMENT | 40 | $102,644 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Hemophilia Federation of America?
Hemophilia Federation of America is a nonprofit organization focused on Health, based in WASHINGTON, DC. It holds $7.9M in total assets as of 2024.
How large is Hemophilia Federation of America?
As of 2024, Hemophilia Federation of America holds $7.9M in total assets with $4.5M in annual revenue. It awarded 3 grants totaling $25K in 2024.
Where does Hemophilia Federation of America operate?
Hemophilia Federation of America has awarded grants in California, District of Columbia, Florida, Iowa, Illinois, Louisiana, Massachusetts, Maryland, Maine, Michigan, Missouri, Montana, North Carolina, North Dakota, New Jersey, New York, Ohio, Oklahoma, Oregon, Pennsylvania, Pr, South Carolina, Tennessee, Texas, Utah, Virginia, Wisconsin.
What size grants does Hemophilia Federation of America award?
In 2024, Hemophilia Federation of America awarded 3 grants totaling $25K — an average of about $8K per grant, based on its IRS Form 990 filings.
What is Hemophilia Federation of America's EIN?
Hemophilia Federation of America's EIN (Employer Identification Number) is 72-1282316. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Hemophilia Federation of America's focus areas in our free grants database
Related Funders
Similar funders by location and focus area
Demand Justice Initiative
WASHINGTON, DC
Assets
$7.6M
Grants
1
Total Given
$225K
American Academic Leadership Institute
WASHINGTON, DC
Assets
$3.6M
Grants
2
Total Given
$50K
Cnfa
WASHINGTON, DC
Assets
$18.3M
Grants
9
Total Given
$4.2M
Partnership for a Healthier America
WASHINGTON, DC
Assets
$10.8M
Grants
12
Total Given
$350K
Association of Schools of Allied Health
WASHINGTON, DC
Assets
$2.3M
Grants
2
Total Given
$60K
Fulcrum Foundation Inc
WASHINGTON, DC
Assets
$53K
Grants
10
Total Given
$13K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Hemophilia Federation of America on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities
Go from researching Hemophilia Federation of America to a real strategy.