I Am ALS

Nonprofit · Grant recipient Also a grantmaker → Washington, DC EIN 83-2016277

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$3.3M

Foundation funders

90

Grants recorded

139

Years covered

2019–2025

Who funds I Am ALS?

I Am ALS is funded by 90 grantmakers, led by Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd ($1.3M), Judy and Peter Blum Kovler Foundation ($201K), Rosenthal Family Foundation ($175K). In total, IRS Form 990 filings record $3.3M in grants to I Am ALS between 2019–2025.

FunderTotal givenGrantsYears
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd$1,262,34412019
Judy and Peter Blum Kovler Foundation$201,14412023
Rosenthal Family Foundation$175,00012023
The San Francisco Foundation$170,00042022–2025
Charlottesville Area Community Foundation$150,00022023–2024
Vanguard Charitable Endowment Program$132,00022022–2024
Rate Foundation NFP$104,46012024
National Philanthropic Trust$89,00042022–2025
John S and James L Knight Foundation$85,00022022–2024
Adira Foundation$75,00012020
GS Donor Advised Philanthropy Fund for Wealth Management Inc$62,50032021–2023
Jewish Communal Fund$60,00042022–2024
HFO Foundation$50,00012024
The Steven H Madden Foundation Inc$50,00012022
Combined Jewish Philanthropies of Greater Boston Inc$50,00012020
The Goldman Sachs Charitable Gift Fund$37,00022022–2024
Charities Aid Foundation America$35,96122024–2025
One Roof Foundation$32,00012024
Douglas Drane Charitable Trust$30,00022024–2025
The Puskar Family Foundation$30,00022021–2024
Greater Washington Community Foundation$30,00012022
Impactassetsinc$20,50022021–2022
Saint Paul & Minnesota Foundation$20,00012021
Christopher Reeve Foundation$19,00012025
Monumental Sports & Entertainment Foundation$17,41322023–2024
Show all 90 funders
The Chicago Community Trust$16,50022024–2025
The Warburg Pincus Foundation$16,50022022–2023
The Blackbaud Giving Fund$15,37512022
Chicago Cubs Charities$13,75022021–2022
The US Charitable Gift Trust$12,00022023–2024
Gofundmeorg$10,00012025
Lakshmi Foundation$10,00012025
The Richard Stravitz Foundation$10,00022024–2025
The Stanford Morris Private Foundation$10,00012024
Santa Barbara Foundation$10,00012024
The Blessing Way Foundation Inc$10,00012021
TLJC Foundation$10,00012021
Endaoment Inc$9,88512022
The SETH Project$8,00022023–2024
Grace Jones Richardson Testamentary$6,00032020–2023
Ralph L Smith Foundation 13952400$6,00032020–2022
United Way of Bergen County$5,82012022
Pledgeling Foundation$5,61212024
Chizen Family Foundation$5,00022023–2024
Astros Foundation$5,00012023
Thierer Family Foundation$5,00012023
Arie and Ida Crown Memorial$5,00012022
The Baltimore Orioles Foundation Inc$5,00012021
The Cooper Family Foundation Inc$5,00012021
Newman's Own Foundation$5,00012021
CME Group Foundation$5,00012021
The Zients Family Foundation$5,00012020
The Tapestry Foundation Inc$3,40012024
The Pfizer Foundation Inc$2,76522021–2022
The Draper Foundation$2,58112021
Warren Cross Foundation$2,50022022–2023
Gallop Family Foundation$2,50012021
The Bonne Bell Family Foundation$2,00022023–2024
The Eganwood Family Foundation Inc$2,00012022
The J E Fehsenfeld Family Foundation Inc$1,50032020–2023
American Express Foundation$1,48992021–2024
Baker Hughes Foundation$1,20012021
The Sobel Family Foundation Inc$1,00022023–2024
The Stewart Title Foundation Inc$1,00012023
The Poses Family Foundation$1,00012021
AC Israel Foundation Inc$1,00012020
The Cecily & David Murphy Majerus Foundation$1,00012019
B & J Association Inc$76622019–2020
Koch Kornick to Foundation$75012021
Adducci Family Foundation$52512025
Arthur J Gallagher Foundation$52012024
John D and Catherine T Macarthur Foundation$51112021
W P Carey Foundation Inc$50012024
The John and Gracilda Murphy Family Foundation$50012022
National Life Group Charitable$40012024
JPMorgan Chase Foundation$37532023–2025
Citizens Charitable Foundation$33822023–2024
Debbas Hope 4 Tomorrow$25012025
Richard & Liliann Zisook Family Fou$25012021
The Yelp Foundation$20112024
McKesson Foundation Inc$20012023
Jay and Ruth Pack Foundation$18012024
Western Union Foundation$10312022
Read Foundation Inc$10012025
Ike Nizam Foundation Inc$10012024
Viking Global Foundation Inc$10012024
Duke Energy Foundation$10012021
Baxter International Foundation$5012022
Ima Foundation$2612025
Synchrony Foundation$2512021

Funding over time

Grant dollars and counts received per year

$0$500K$1M$1.5M3 grants2019 8 grants2020 25 grants2021 26 grants2022 27 grants2023 36 grants2024 14 grants2025

From 2019 to 2025, annual grant giving ranged from $121K (2025) to $1.3M (2019). In 2025 it made 14 grants totaling $121K.

What grants has I Am ALS received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025Charities Aid Foundation AmericaCHARITABLE DONATION$25,109
2025Douglas Drane Charitable Trustunrestricted$20,000
2025Christopher Reeve FoundationPEER MENTORING AND SUPPORT$19,000
2025National Philanthropic TrustHEALTH$12,500
2025GofundmeorgCHARITABLE CONTRIBUTION$10,000
2025Lakshmi FoundationGENERAL SUPPORT$10,000
2025The San Francisco FoundationFOR GENERAL SUPPORT$10,000
2025The Chicago Community TrustGeneral support for programs, operations and other charitable purposes$8,750
2025The Richard Stravitz FoundationGeneral & Capital Purposes, unless noted$5,000
2025Adducci Family FoundationFunding research$525
2025Debbas Hope 4 TomorrowDonation to assist individuals living with ALS$250
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$200
2025Read Foundation IncGeneral Purpose$100
2025Ima FoundationPROGRAM SERVICES$26
2024Rate Foundation NFP2024 ALS FUNDRAISER - ALS NONPROFIT ORGANIZATION GRANTEE$104,460
2024Charlottesville Area Community FoundationGENERAL PURPOSES$100,000
2024National Philanthropic TrustEDUCATION$56,000
2024HFO FoundationGENERAL$50,000
2024One Roof FoundationGENERAL SUPPORT$32,000
2024Vanguard Charitable Endowment ProgramFOR RECIPIENT'S EXEMPT PURPOSE$29,500
2024John S and James L Knight FoundationTO SUPPORT THE GENERAL OPERATIONS OF I AM ALS, A PATIENT-LED, PATIENT-CENTRIC COMMUNITY LEADING THE FIGHT AGAINST ALS, RESHAPING PUBLIC UNDERSTANDING AND SEARCHING FOR CURES.$25,000
2024The Goldman Sachs Charitable Gift FundMEDICAL/SCIENTIFIC RESEARCH & PROGRAMS$25,000
2024Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$20,000
2024Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$20,000
2024Charities Aid Foundation AmericaCHARITABLE DONATION$10,852
2024The Puskar Family FoundationTO FURTHER THEIR EXPRESSED CHARITABLE PURPOSE$10,000
2024The Stanford Morris Private FoundationCHARITABLE GRANT TO QUALIFIED CHARITY$10,000
2024Douglas Drane Charitable Trustunrestricted$10,000
2024Santa Barbara FoundationBEHAVIORAL HEALTH & HEALTH CARE$10,000
2024The San Francisco FoundationFOR GENERAL SUPPORT.$10,000

Showing 30 most recent of 139 recorded grants.

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Frequently Asked Questions

Who funds I Am ALS?

I Am ALS is funded by 90 grantmakers, led by Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd ($1.3M), Judy and Peter Blum Kovler Foundation ($201K), Rosenthal Family Foundation ($175K). In total, IRS Form 990 filings record $3.3M in grants to I Am ALS between 2019–2025.

Who is I Am ALS's largest funder?

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is the largest recorded funder of I Am ALS, with $1.3M across 1 grant (2019).

How much grant funding has I Am ALS received?

IRS 990 filings record $3.3M in grants to I Am ALS across 139 grants from 90 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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