I Am ALS
The mission of I Am ALS is to accelerate a cure for als by mobilizing collective power to drive urgent policy and systems change.
I Am ALS at a glance
- Total assets
- $3,450,337
- +1.1% vs 2024
- Revenue (2025)
- $2,566,419
- -37.7% vs 2024
- Net investment income (2025)
- $89,388
- +38.7% vs 2024
- Expenses (2025)
- $2,569,335
- +0.1% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026.
Who I Am ALS funds
Geographic Focus
Where this funder awards grants
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $1K (2024) to $500K (2020). In 2024 it reported $1K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $3,450,337 | $2,566,419 | $2,569,335 | — | — | $89,388 |
| 2024 | $3,413,223 | $4,117,942 | $2,566,630 | $1,146 | Total only | $64,456 |
| 2023 | $1,851,960 | $2,326,778 | $2,174,696 | — | — | $5,295 |
| 2022 | $1,680,946 | $1,631,851 | $2,291,456 | — | — | $1,004 |
| 2021 | $2,432,581 | $3,345,834 | $2,374,530 | $2,000 | Total only | $2,386 |
| 2020 | $1,045,740 | $1,632,477 | $2,366,291 | $500,000 | 3 | $1,326 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About I Am ALS
Based on IRS filings
I Am ALS is a public charity focused on Health, based in Washington, DC. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $3.5M in total assets. Net investment income was $89K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
I Am ALS is led by Andrea Goodman, CEO on every filing since 2023; 5 of 18 officers listed in 2025 are compensated.
Officers on the 2025 filing
Andrea Goodman
CEO
On filings since 2023
40 hrs/week
$177K (2023) → $300K (2025)
Peter Bowen
Board Chair
Director → Treasurer, 2022
Treasurer → Board Chair, 2023
On filings since 2020
2 hrs/week
No compensation reported
Michael J. Lecker
Vice President of Community Organizing
Vice President of Organizing → Vice President of Community Organizing, 2024
On filings since 2022
40 hrs/week
$111K (2022) → $149K (2025)
Aditi Narayan Minkoff
Vice President of Community Support
On filings since 2024
40 hrs/week
$153K (2024) → $161K (2025)
Dustin Watson
Vice President of Government Relations
New on the 2025 filing
40 hrs/week
$155K (2025)
Erin Alred
Chief of Staff
New on the 2025 filing
40 hrs/week
$120K (2025)
Brian Wallach
Co-Founder
Co-Founder → Co Founder, 2022
Co Founder → Co-Founder, 2023
On filings since 2020
2 hrs/week
No compensation reported
Jano Cabrera
Board Member
Director → Member, 2022
Member → Board Member, 2023
On filings since 2020
2 hrs/week
No compensation reported
Louise Langheier
Board Member
Board Chair → Board Member, 2024
On filings since 2020
2 hrs/week
No compensation reported
Sandra Abrevaya
Co-Founder
Co-Founder → Co Founder, 2022
Co Founder → Co-Founder, 2023
On filings since 2020
2 hrs/week
No compensation reported
Michael O'Neil
Board Member
Member → Board Member, 2023
On filings since 2022
2 hrs/week
No compensation reported
Neel Parekh
Board Member
Member → Board Member, 2023
On filings since 2022
2 hrs/week
No compensation reported
Dan Tate Jr.
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Jenny Fortner
Board Treasurer
On filings since 2023
2 hrs/week
No compensation reported
Juan A. Reyes
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Peggy Plews-Ogan
Board Secretary
On filings since 2024
2 hrs/week
No compensation reported
Chuck Smith
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Tim Abeska
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (15)
- Former: Michael Slaby (2020–2024) — Board Member
- Former: Jennifer Fortner (2024) — Board Treasurer
- Former: Sonya Elling (2024) — Chief Government Affairs Officer
- Former: Aditi Narayan (2020–2023) — Vice President of Community Support
- Former: Peggy Plews- Ogan (2023) — Board Secretary
- Former: Clare Durrett (2020–2022) — Member
- Former: Daniel Tate Jr. (2020–2022) — Member
- Former: Jessie Rossman (2020–2022) — Secretary
- Former: Laura Pazze Dalle (2022) — Chief Executive Officer
- Former: Danielle Carnival (2020–2021) — CEO
- Former: Divya Silberman (2020–2021) — Director
- Former: Edwin Cohen (2020–2021) — Director
- Former: Michael Slaby See Schd L. (2021) — Director & Then Interim CEO
- Former: Suzanne Anthony (2021) — Chief Operating Officer
- Former: Theresa Garner (2021) — Communications & Organizing Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $300K, to Andrea Goodman (CEO). 5 officers or directors reported compensation on that filing.
Frequently asked questions about I Am ALS
How large is I Am ALS?
I Am ALS reported $3.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.6M.
What is I Am ALS?
I Am ALS is a public charity focused on Health, based in Washington, DC. It holds $3.5M in total assets as of 2025.
Where does I Am ALS operate?
I Am ALS has awarded grants in California, Massachusetts, Virginia.
What is I Am ALS's EIN?
I Am ALS's EIN (Employer Identification Number) is 83-2016277. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 9, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 28, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 13, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 26, 2026)
- IRS filings on file for fiscal years 2020–2024
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Browse active grant opportunities in I Am ALS's focus areas in our free grants database
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from I Am ALS's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
I Am ALS down — hundreds of funders to go?