Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
To provide the most comprehensive care and support to people living with als and their families in chicagoland, so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of als.
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd at a glance
In short: Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd gave $1.1M across 4 grants in 2024 (avg $282K), mostly in Illinois. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $1,126,959
- -7.5% vs 2023
- Grants made (2024)
- 4
- +0.0% vs 2023
- Average grant
- $281,740
- -7.5% vs 2023
- Median grant
- $200,000
- Total assets
- $4,414,309
- +34.3% vs 2023
- Primary geography
- Illinois (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
- Next open deadline
- April 1, 2027 (Iron Horse Scholarship)
Open Grants
1 open opportunity from Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
Who Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Northwestern University Feinberg School of Medicine ($827K across 3 grants). Together the top 2 received $1.1M.
Grant Size Distribution
18 grants across all recorded years
The most common grant size was in the $500K–1M range: 7 grants of 18 (39%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
States
Cities
How Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd gives
- Giving fell 24% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $916K (2022) to $2.3M (2019). In 2024 it made 4 grants totaling $1.1M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Northwestern University Feinberg School of Medicine Chicago, IL | Research to Find a Cure | $700,000 |
| Lois Insolia ALS Clinic Chicago, IL | Clinic for the Therapy of ALS Patients | $300,000 |
| Northwestern University Feinberg School of Medicine Chicago, IL | Endowment for ALS Research and Patient Center | $100,000 |
| Northwestern University Feinberg School of Medicine Chicago, IL | Education | $26,959 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $4,414,309 | $4,524,784 | $3,333,281 | $1,126,959 | 4 | $107,409 |
| 2023 | $3,286,760 | $2,682,408 | $3,355,940 | $1,217,914 | 4 | $102,365 |
| 2022 | $3,764,134 | $2,660,033 | $2,786,124 | $916,190 | 4 | $28,645 |
| 2021 | $3,335,798 | $3,120,220 | $3,082,990 | $1,481,000 | 3 | $7,789 |
| 2020 | $3,428,851 | $3,551,407 | $2,924,430 | $1,446,667 | 3 | $31,685 |
| 2019 | $2,454,778 | $3,673,033 | $3,796,366 | $2,277,344 | 5 | $61,872 |
About Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
Based on IRS filings
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is a public charity, based in Skokie, IL. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $4.4M in total assets. In 2024, it awarded 4 grants totaling $1.1M. Net investment income was $107K.
Leadership & Key People
Officers and directors from IRS filings
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd is led by Laura Freveletti, Chief Executive Officer on every filing since 2023; 4 of 23 officers listed in 2024 are compensated.
Officers on the 2024 filing
Laura Freveletti
Chief Executive Officer
On filings since 2023
40 hrs/week
$148K (2023) → $191K (2024)
Erin Reardon Cohn
Board Chair
Director → Treasurer, 2020
Treasurer → Board Chair, 2022
On filings since 2019
2 hrs/week
No compensation reported
Mark Heiden
Director of Communications
New on the 2024 filing
40 hrs/week
$128K (2024)
Bonny Gaffen
Director
On filings since 2019
2 hrs/week
No compensation reported
Diana Pisone
Director
On filings since 2019
2 hrs/week
No compensation reported
Janene Jonas
Director
Secretary → Director, 2021
On filings since 2019
2 hrs/week
No compensation reported
Jodi M. Harris
Director
Director → Vice Chair, 2023
Vice Chair → Director, 2024
On filings since 2019
2 hrs/week
No compensation reported
Joshua Newsome
Director
On filings since 2019
2 hrs/week
No compensation reported
Ken Hoffman
Director
Board Chair → Treasurer, 2022
Treasurer → Director, 2024
On filings since 2019
2 hrs/week
No compensation reported
Mary Lou Pisone
Director
On filings since 2019
2 hrs/week
No compensation reported
Sarvesh Soi
Director
On filings since 2019
2 hrs/week
No compensation reported
Aalok Dave
Director
On filings since 2021
2 hrs/week
No compensation reported
Frank Granata
Director
On filings since 2022
2 hrs/week
No compensation reported
Sean Fallon
Director
On filings since 2022
2 hrs/week
No compensation reported
Tina Cascio
Director
On filings since 2022
2 hrs/week
No compensation reported
Lauren Webb
Chief Advocacy & Outreach Officer
Director of Support Services & Education → Director of Support Services, 2021
Director of Support Services → Chief Advocacy & Outreach Officer, 2024
On filings since 2020
40 hrs/week
$101K (2020) → $121K (2024)
Constance Paesel
Chief Operations Officer
New on the 2024 filing
40 hrs/week
$114K (2024)
Deborah Crockett
Treasurer
Director → Treasurer, 2024
On filings since 2019
2 hrs/week
No compensation reported
Harvey Gaffen
Chair Emeritus
Treasurer → Chair Emeritus, 2020
On filings since 2019
2 hrs/week
No compensation reported
Joel A. Schechter
Vice Chair
On filings since 2019
2 hrs/week
No compensation reported
John Coleman III MD
Vice Chair
Director → Vice Chair, 2021
On filings since 2019
2 hrs/week
No compensation reported
Robin Fern
Vice Chair
On filings since 2019
2 hrs/week
No compensation reported
Thomas F. Boleky
Vice Chair
On filings since 2019
2 hrs/week
No compensation reported
Former officers (9)
- Former: Andrea Pauls Backman (2019–2023) — CEO
- Former: Steve Schapiro (2020–2023) — Director of Development
- Former: Rich Ashlin (2022–2023) — Director
- Former: Matthew Brown (2019–2022) — Director
- Former: Melissa Wilder (2019–2022) — Director
- Former: Philip Schwarz (2019–2022) — Director
- Former: Daniel Libit (2019–2020) — Director
- Former: David T. Hoppe (2019–2020) — Director
- Former: Meg Rooney (2019–2020) — Director
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $191K, to Laura Freveletti (Chief Executive Officer). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd
How much does Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd give each year?
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd gave $1.1M across 4 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.2M across 4 grants.
What is Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's typical grant size?
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's median grant in 2024 was $200,000, and its average grant was $281,740, across 4 grants on its 2024 IRS Form 990.
Where does Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd give grants?
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd gives mostly in Illinois: 100% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The most frequent recipient cities were Chicago, IL (4 grants).
Does Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's 2024 IRS Form 990 were described as general or operating support.
How large is Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd?
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd reported $4.4M in total assets on its 2024 IRS Form 990. Its revenue that year was $4.5M.
What is Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's EIN?
Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's EIN (Employer Identification Number) is 36-2916466. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS July 26, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 3, 2025)
- IRS filings on file for fiscal years 2019–2024
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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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