The Association for Frontotemporal Degeneration

Nonprofit · Grant recipient Also a grantmaker → King of Prussia, PA EIN 41-2073220

Funding Overview

From IRS Form 990 filings · 2022–2026

Total received

$12.3M

Foundation funders

117

Grants recorded

200

Years covered

2022–2026

Who funds The Association for Frontotemporal Degeneration?

The Association for Frontotemporal Degeneration is funded by 117 grantmakers, led by National Philanthropic Trust ($4.1M), Arizona Community Foundation ($2.3M), The David Geffen Foundation ($1.0M). In total, IRS Form 990 filings record $12.3M in grants to The Association for Frontotemporal Degeneration between 2022–2026.

FunderTotal givenGrantsYears
National Philanthropic Trust$4,136,10042022–2025
Arizona Community Foundation$2,250,00032022–2025
The David Geffen Foundation$1,000,00012024
Fidelity Non-Profit Management Foundation$800,00012024
Amyotrophic Lateral Sclerosis Assn$536,39832023–2025
George L Ohrstrom Foundation$531,00032022–2024
SG Schimenti Foundation Inc$500,00012025
Rockler Jackson Family Foundation$500,00012024
Jewish Communal Fund$324,45482022–2025
William Randolph Hearst Foundation$225,00012023
Vanguard Charitable Endowment Program$162,41032022–2024
Kissick Family Foundation$100,00012024
Oneoc$92,76112022
The Dayton Foundation$79,71842022–2025
Nagin Foundation Inc$76,00012024
The Edward John &$75,00032023–2025
Morgan Stanley Global Impact Funding Trust Inc$75,00092023–2024
Ganzi Family Foundation UAD 12192009$50,00012025
The Bessemer Giving Fund$50,00022022–2024
Rochester Area Community Foundation$50,00012022
Charities Aid Foundation America$40,67632022–2025
The United Way of Central Maryland Inc$40,40222023–2024
University of Miami$40,00012023
The Margo Fowler Family Foundation$39,50022024–2025
The Blackbaud Giving Fund$36,26122022–2023
Show all 117 funders
PM Foundation Inc$30,00022024–2025
The Speyer Family Foundation Inc$30,00032023–2025
Fred & Jean Allegretti Foundation$30,00042022–2025
Pledgeling Foundation$27,22132022–2024
The Goldman Sachs Charitable Gift Fund$23,55022022–2025
William Lion Penzner Foundation$20,58812025
The Trustees of Columbia University in the City of New York$20,00022024–2025
Richard L & Lois S Werner Family$17,50042022–2025
The Hebrew Home for the Aged at Riverdale Foundation Inc$15,00012024
Florence V Burden Foundation$15,00012024
Sarah Long and David Solomon$15,00012024
The Service Family Foundation$15,00012024
Jackson Lewis Foundation$15,00012023
Dementia Society Inc$10,00012025
The Chicago Community Trust$10,00012025
The Banks Foundation Inc$10,00022024–2025
East Bay Community Foundation$10,00012024
Smith Richardson Foundation Inc$10,00012024
Rainwater Charitable Foundation$10,00012024
The Sullivan & Cromwell Foundation$10,00012024
Arkansas Community Foundation Inc$10,00012024
JPMorgan Chase Foundation$8,77652022–2025
Soul Soup Foundation$8,00012024
Viking Global Foundation Inc$7,50022024
Chaucer Charitable Foundation$7,50032022–2024
The New York Community Trust$7,50012023
Natl Christian Charitable Fdn Inc$6,75012022
Jim Neuberger and Helen Stambler Neuberger$6,50042023–2025
The Robert a and Shirley J Jones Foundation$6,00022024–2025
America's Charities$5,74412024
The Neubauer Family Foundation$5,40012024
Unbridled Acts$5,34012024
Bien Family Foundation$5,00012025
Lindenmuth Family Foundation$5,00012024
Larry J and Dinah M Bird Family$5,00012024
Nextfifty Initiative$5,00012024
The Newman Foundation Inc$5,00012024
Diamonstein-Spielvogel Foundation Inc$5,00012024
Jackie Pang Fund$5,00012024
Adams Family Foundation Inc$4,00022024–2025
Lawrence a Neubauer Foundation$3,60012024
The Douglas S and Barbara J Barrett Family Foundation$3,50022022–2023
Michael & Susan Dell Foundation$3,50012022
Paler Foundation Inc$2,50012024
The Fortin Foundation Inc$2,50012023
Castaways Foundation$2,00012025
Morse Family Foundation$2,00012025
Milburn Foundation$2,00012024
Sempra Foundation$1,81412022
Corky & Rick Steiner Family Foundation$1,50012024
The Leviton Foundation Inc - New York$1,50012023
Bristol-Myers Squibb Foundation Inc$1,35792022–2023
GE Aerospace Foundation$1,20022024
Burnham Family Foundation$1,00012026
Gloria & Harvey Levine Charitable$1,00012025
Steinour Family Foundation$1,00012025
Strong Foundation of New York$1,00012025
Shaw Brothers Family Foundation$1,00012025
Cody Foundation$1,00012024
Feinberg Foundation$1,00012024
Stellar Solutions Foundation$1,00012024
Paul and Marian Gerhart Charitable Fund$1,00012024
The Lazard Charitable Foundation$1,00012023
Armanino Foundation$1,00022023
EGL Currie Foundation$1,00012022
Assurant Foundation$95012024
Shell USA Company Foundation$72012024
Texas Instruments Foundation$55012024
The Pfizer Foundation Inc$50142022–2024
Weinreb Pilecki Segal Foundation$50012025
Foster Foundation$50012025
The Netter Foundation Inc$50012024
Ahuja Family Foundation$50012024
Synchrony Foundation$50012022
Cooper Family Foundation$50012022
Barks Family Foundation$40012024
The Cigna Group Foundation$35132022–2024
American Express Foundation$33632022–2023
Klein Family Foundation$31312024
Verizon Foundation$30022023–2024
Motulsky-Nacht Family Foundation$26012023
Chubb Charitable Foundation$25012023
The Graco Foundation$20212023
Pecha Family Foundation$20012025
Gannett Foundation Inc$15022022–2023
The Premselaar Foundation Inc$10112023
Touching Tomorrow Inc$10012025
The Charles M Grant Foundation$10012024
The Chotin Family Foundation$10012024
Citizens Charitable Foundation$10012023
Arbella Insurance Foundation$10012022
The Yelp Foundation$5012023

Funding over time

Grant dollars and counts received per year

$0$2M$4M$6M35 grants2022 56 grants2023 72 grants2024 36 grants2025 1 grant2026

From 2022 to 2026, annual grant giving ranged from $1K (2026) to $4.3M (2024). In 2026 it made 1 grant totaling $1K.

What grants has The Association for Frontotemporal Degeneration received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2026Burnham Family FoundationHUMAN SERVICES$1,000
2025Arizona Community FoundationTHIS AWARD IS GENERAL SUPPORT FOR AFTDS MISSION.$1,200,000
2025National Philanthropic TrustHEALTH$1,042,800
2025SG Schimenti Foundation IncGENERAL OPERATING SUPPORT$500,000
2025Ganzi Family Foundation UAD 12192009UNRESTRICTED GENERAL$50,000
2025Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$30,475
2025Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$30,475
2025The Edward John &GENERAL SUPPORT$25,000
2025Charities Aid Foundation AmericaCHARITABLE DONATION$23,907
2025The Dayton FoundationCONTINUING RESEARCH RELATING TO PSP AND THE CURE OF THAT DISEASE$20,810
2025William Lion Penzner FoundationMENTAL HEALTH$20,588
2025PM Foundation IncSUPPORT FOR ASSOCIATION AND THOSE AFFECTED BY FD$20,000
2025The Margo Fowler Family FoundationTO SUPPORT RESEARCH AND PROGRAMS TO HELP PEOPLE AND FAMILIES AFFECTED BY FTD$19,500
2025The Goldman Sachs Charitable Gift FundMEDICAL/SCIENTIFIC RESEARCH & PROGRAMS$17,050
2025The Speyer Family Foundation IncGENERAL SUPPORT$10,000
2025Dementia Society Inc—$10,000
2025The Trustees of Columbia University in the City of New YorkProgram Services$10,000
2025The Chicago Community TrustGeneral support for programs, operations and other charitable purposes$10,000
2025Amyotrophic Lateral Sclerosis AssnSTRATEGIC INITIATIVE$6,398
2025Bien Family FoundationGENERAL SUPPORT$5,000
2025Richard L & Lois S Werner FamilyGENERAL SUPPORT$5,000
2025Fred & Jean Allegretti FoundationHEALTH$5,000
2025The Banks Foundation IncGENERAL SUPPORT$5,000
2025The Robert a and Shirley J Jones FoundationResearch for Frontotemporal Degeneration$3,000
2025Jim Neuberger and Helen Stambler NeubergerGeneral & Unrestricted$2,000
2025Castaways FoundationUNRESTRICTEDIN HONOR OF ALDEN RICHARDS$2,000
2025Morse Family FoundationGENERAL OPERATING SUPPORT$2,000
2025Adams Family Foundation IncMEDICAL RESEARCH$2,000
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$1,050
2025Gloria & Harvey Levine CharitableFURTHER DONEE'S EXEMPT PURPOSE$1,000

Showing 30 most recent of 200 recorded grants.

Frequently Asked Questions

Who funds The Association for Frontotemporal Degeneration?

The Association for Frontotemporal Degeneration is funded by 117 grantmakers, led by National Philanthropic Trust ($4.1M), Arizona Community Foundation ($2.3M), The David Geffen Foundation ($1.0M). In total, IRS Form 990 filings record $12.3M in grants to The Association for Frontotemporal Degeneration between 2022–2026.

Who is The Association for Frontotemporal Degeneration's largest funder?

National Philanthropic Trust is the largest recorded funder of The Association for Frontotemporal Degeneration, with $4.1M across 4 grants (2022–2025).

How much grant funding has The Association for Frontotemporal Degeneration received?

IRS 990 filings record $12.3M in grants to The Association for Frontotemporal Degeneration across 200 grants from 117 funders between 2022–2026. Filings are published on a delay, so recent grants may not appear yet.

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