The Association for Frontotemporal Degeneration

Nonprofit · Grant recipient Also a grantmaker → King of Prussia, PA EIN 41-2073220

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$10.9M

Foundation funders

90

Grants recorded

200

Years covered

2019–2025

Who funds The Association for Frontotemporal Degeneration?

The Association for Frontotemporal Degeneration is funded by 90 grantmakers, led by National Philanthropic Trust ($4.2M), Arizona Community Foundation ($2.3M), Fidelity Non-Profit Management Foundation ($800K). In total, IRS Form 990 filings record $10.9M in grants to The Association for Frontotemporal Degeneration between 2019–2025.

FunderTotal givenGrantsYears
National Philanthropic Trust$4,183,10062020–2025
Arizona Community Foundation$2,250,00032022–2025
Fidelity Non-Profit Management Foundation$800,00012024
Amyotrophic Lateral Sclerosis Assn$536,39832023–2025
George L Ohrstrom Foundation$531,00032022–2024
Rockler Jackson Family Foundation$500,00012024
Jewish Communal Fund$399,814112019–2025
William Randolph Hearst Foundation$225,00012023
Vanguard Charitable Endowment Program$181,91042021–2024
The Edward John &$150,00052020–2025
The Dayton Foundation$115,56062020–2025
Rochester Area Community Foundation$100,00022020–2022
Oneoc$92,76112022
The Speyer Family Foundation Inc$80,00042021–2025
The Bessemer Giving Fund$75,00032021–2024
Morgan Stanley Global Impact Funding Trust Inc$70,00052020–2024
The United Way of Central Maryland Inc$65,40232021–2024
Fred & Jean Allegretti Foundation$50,00062020–2025
Charities Aid Foundation America$40,67632022–2025
University of Miami$40,00012023
The Blackbaud Giving Fund$36,26122022–2023
The Goldman Sachs Charitable Gift Fund$31,30032020–2025
PM Foundation Inc$30,00022024–2025
Pledgeling Foundation$27,22132022–2024
Richard L & Lois S Werner Family$22,50062020–2025
Show all 90 funders
William Lion Penzner Foundation$20,58812025
The Trustees of Columbia University in the City of New York$20,00022024–2025
The Hebrew Home for the Aged at Riverdale Foundation Inc$15,00012024
Sarah Long and David Solomon$15,00012024
The Service Family Foundation$15,00012024
Jackson Lewis Foundation$15,00012023
Natl Christian Charitable Fdn Inc$13,82522021–2022
JPMorgan Chase Foundation$11,89272020–2025
The Chicago Community Trust$10,00012025
East Bay Community Foundation$10,00012024
Arkansas Community Foundation Inc$10,00012024
Chaucer Charitable Foundation$10,00042021–2024
Curepsp Inc$10,00012021
Alzheimer's Drug Discovery Foundation$10,00012021
United Way Miami Inc$10,00012020
Jim Neuberger and Helen Stambler Neuberger$9,50062020–2025
Viking Global Foundation Inc$7,50022024
The New York Community Trust$7,50012023
Foundation for the Carolinas$6,00012021
America's Charities$5,74412024
The Neubauer Family Foundation$5,40012024
Unbridled Acts$5,34012024
Larry J and Dinah M Bird Family$5,00012024
The Strohm Link Family Foundation$5,00012020
Credit Suisse Americas Foundation$4,40512020
The Douglas S and Barbara J Barrett Family Foundation$3,50022022–2023
Michael & Susan Dell Foundation$3,50012022
The Fortin Foundation Inc$2,50012023
The William J J Gordon Family Foundation$2,00012021
Sempra Foundation$1,81412022
The Leviton Foundation Inc - New York$1,50012023
The Plymouth Rock Assurance Foundation$1,50012021
Kevin G Schoeler Foundation$1,50012021
Bristol-Myers Squibb Foundation Inc$1,457112021–2023
Gloria & Harvey Levine Charitable$1,00012025
Cody Foundation$1,00012024
Paul and Marian Gerhart Charitable Fund$1,00012024
The Lazard Charitable Foundation$1,00012023
Armanino Foundation$1,00022023
EGL Currie Foundation$1,00012022
The Sirkin Family$1,00012020
Janklow Foundation$1,00012020
Assurant Foundation$95012024
American Express Foundation$93672020–2023
Shell USA Company Foundation$72012024
Synchrony Foundation$70022021–2022
The Pfizer Foundation Inc$62662021–2024
Cooper Family Foundation$50012022
LPL Financial Foundation Inc$50012021
Textron Charitable Trust Dtd 122353$40012021
Verizon Foundation$35132021–2024
The Cigna Group Foundation$35132022–2024
Motulsky-Nacht Family Foundation$26012023
Chubb Charitable Foundation$25012023
Gannett Foundation Inc$22532022–2023
The Graco Foundation$20212023
The Premselaar Foundation Inc$10112023
Citizens Charitable Foundation$10012023
Arbella Insurance Foundation$10012022
Siff Charitable Foundation$10012021
American Tower Corporation Foundation$10012020
The Yelp Foundation$5012023
Firstenergy Foundation$5012022
Baird Foundation Inc$5012021
Rasmuson Foundation$5012020

Funding over time

Grant dollars and counts received per year

$0$1M$2M$3M$4M1 grant2019 21 grants2020 29 grants2021 39 grants2022 49 grants2023 42 grants2024 19 grants2025

From 2019 to 2025, annual grant giving ranged from $25K (2019) to $3.2M (2023). In 2025 it made 19 grants totaling $2.5M.

What grants has The Association for Frontotemporal Degeneration received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025Arizona Community FoundationTHIS AWARD IS GENERAL SUPPORT FOR AFTDS MISSION.$1,200,000
2025National Philanthropic TrustHEALTH$1,042,800
2025Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$30,475
2025Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$30,475
2025The Edward John &GENERAL SUPPORT$25,000
2025Charities Aid Foundation AmericaCHARITABLE DONATION$23,907
2025The Dayton FoundationCONTINUING RESEARCH RELATING TO PSP AND THE CURE OF THAT DISEASE$20,810
2025William Lion Penzner FoundationMENTAL HEALTH$20,588
2025PM Foundation IncSUPPORT FOR ASSOCIATION AND THOSE AFFECTED BY FD$20,000
2025The Goldman Sachs Charitable Gift FundMEDICAL/SCIENTIFIC RESEARCH & PROGRAMS$17,050
2025The Speyer Family Foundation IncGENERAL SUPPORT$10,000
2025The Trustees of Columbia University in the City of New YorkProgram Services$10,000
2025The Chicago Community TrustGeneral support for programs, operations and other charitable purposes$10,000
2025Amyotrophic Lateral Sclerosis AssnSTRATEGIC INITIATIVE$6,398
2025Richard L & Lois S Werner FamilyGENERAL SUPPORT$5,000
2025Fred & Jean Allegretti FoundationHEALTH$5,000
2025Jim Neuberger and Helen Stambler NeubergerGeneral & Unrestricted$2,000
2025JPMorgan Chase FoundationMATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)$1,050
2025Gloria & Harvey Levine CharitableFURTHER DONEE'S EXEMPT PURPOSE$1,000
2024National Philanthropic TrustCULTURE & ARTS$1,022,800
2024Fidelity Non-Profit Management FoundationDISCOVERY RESEARCH (SCIENCE)$800,000
2024Rockler Jackson Family FoundationGENERAL SUPPORT$500,000
2024George L Ohrstrom FoundationGENERAL OPERATING SUPPORT$200,000
2024Vanguard Charitable Endowment ProgramFOR RECIPIENT'S EXEMPT PURPOSE$82,910
2024Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$46,752
2024Jewish Communal FundIN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE$46,752
2024Morgan Stanley Global Impact Funding Trust IncUNRESTRICTED GENERAL SUPPORT$30,000
2024The Edward John &GENERAL SUPPORT$25,000
2024The Bessemer Giving FundGENERAL SUPPORT$25,000
2024The United Way of Central Maryland IncDESIGNATED AND OR GRANTED IN SUPPORT OF AGENCY PROGRAMS$20,486

Showing 30 most recent of 200 recorded grants.

Frequently Asked Questions

Who funds The Association for Frontotemporal Degeneration?

The Association for Frontotemporal Degeneration is funded by 90 grantmakers, led by National Philanthropic Trust ($4.2M), Arizona Community Foundation ($2.3M), Fidelity Non-Profit Management Foundation ($800K). In total, IRS Form 990 filings record $10.9M in grants to The Association for Frontotemporal Degeneration between 2019–2025.

Who is The Association for Frontotemporal Degeneration's largest funder?

National Philanthropic Trust is the largest recorded funder of The Association for Frontotemporal Degeneration, with $4.2M across 6 grants (2020–2025).

How much grant funding has The Association for Frontotemporal Degeneration received?

IRS 990 filings record $10.9M in grants to The Association for Frontotemporal Degeneration across 200 grants from 90 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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