Amyotrophic Lateral Sclerosis Assn
The ALS Association is a 501(c)(3) nonprofit organization headquartered in Arlington, Virginia. Designated as a charitable organization focused on nerve, muscle, and bone diseases, the Association works to discover treatments and a cure for amyotrophic lateral sclerosis (ALS) while providing comprehensive services to people affected by the disease.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$107.2M
-16.1% YoY
Annual Giving
$8.4M
-44.7% YoY
Grant Count
143
-10.1% YoY
Avg Grant Size
$58K
-38.5% YoY
Mission & Focus Areas
Mission: To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
The organization operates across two primary program areas:
Research: The Association funds scientific research grants to doctors and scientists to find the cause and cure of amyotrophic lateral sclerosis in the United States and around the world.
Patient and Community Services: The Association's national care services department, working with its network of chapters, provides fully developed, managed, and evaluated programs and services to people living with ALS, families, caregivers, and professionals across the United States. Programs incorporate perspectives from key stakeholders including people living with the disease, subject matter experts, clinical best practice, caregivers, technology, academicians, and researchers. Activities include developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice, and implementing certified care center certification and recertification.
Grantmaking
The Association actively funds research and community-based initiatives. Recent grant programs include:
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Geographic Focus
Where this funder awards grants
The Association's grantmaking priorities focus primarily on California, New York, and Pennsylvania, though the organization maintains a nationwide network of chapters and provides services across all U.S. states.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Fiscal Year 2025 (most recent filing):
- Total Revenue: $68,583,051
- Total Expenses: $82,239,637
- Total Assets: $107,245,128
- Total Liabilities: $18,300,000
- Total Giving: $16,679,289
The organization maintains 528 employees and was granted tax-exempt status in July 1990.
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $107,245,128 | $127,891,549 | $94,445,022 |
| Revenue | $68,583,051 | $126,450,238 | $55,567,608 |
| Expenses | $82,239,637 | $98,839,577 | $84,199,819 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,640,602 | $1,597,516 | $1,771,537 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
Grant Size Distribution
250 grants across all recorded years
Open Grants
5 open opportunities from Amyotrophic Lateral Sclerosis Assn
ALS Association Seed Grants
AMYOTROPHIC LATERAL SCLEROSIS ASSN
Amount
Varies
Deadline
Rolling / Open
Hoffman ALS Clinical Trial Awards Program
AMYOTROPHIC LATERAL SCLEROSIS ASSN
Amount
Varies
Deadline
Rolling / Open
Milton Safenowitz Postdoctoral Fellowship Program
AMYOTROPHIC LATERAL SCLEROSIS ASSN
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
President & CEO: Ms. Calaneet Balas
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| SCOTT KAUFFMAN | CHAIR | 5 | — |
| LARRY FALIVENA | CHAIR-ELECT | 5 | — |
| NANCY LEAMOND | VICE CHAIR (AS OF 07/24) | 5 | — |
| FRED M DEGRANDIS | VICE CHAIR (THRU 07/24)/TRUSTEE | 2 | — |
| FRED M DEGRANDIS | TRUSTEE | 5 | — |
| SANDRA PIERSOL | SECRETARY | 4 | — |
| MARK STANCIL | TREASURER | 4 | — |
| CONNIE HOUSTON | TRUSTEE | 2 | — |
| EUGENE BRANDON PHD | TRUSTEE | 2 | — |
| DAVID VAN DE RIET | TRUSTEE | 2 | — |
| CHRISTI L KOLARCIK PHD | TRUSTEE (THRU 07/24) | 2 | — |
| J THOMAS MAY | TRUSTEE | 2 | — |
| MARK CALMES | TRUSTEE (THRU 07/24) | 2 | — |
| PAUL INGHOLT | TRUSTEE (THRU 07/24) | 2 | — |
| TOM CARROLL | TRUSTEE | 2 | — |
| MICHAEL BENATAR | TRUSTEE | 2 | — |
| PETER MCKOWN | TRUSTEE | 2 | — |
| REBECCA MOSS | TRUSTEE | 2 | — |
| KENTON VAN HARTEN | TRUSTEE (THRU 10/24) | 2 | — |
| DOUGH BUTCHER | TRUSTEE | 2 | — |
| WILLIAM SOFFELL | TRUSTEE | 2 | — |
| CHRIS TONNIGES | TRUSTEE | 2 | — |
| JESSE YBARRA | TRUSTEE | 2 | — |
| BERNIE ZIPPRICH | TRUSTEE | 2 | — |
| DANIELLE BOISVERT | TRUSTEE | 2 | — |
| ANNETTE BOWMAN | TRUSTEE | 2 | — |
| EVE DRYER | TRUSTEE | 2 | — |
| SEDA GOFF | TRUSTEE | 2 | — |
| KELLY HALL | TRUSTEE | 2 | — |
| STEVE HANON | TRUSTEE | 2 | — |
| CALANEET BALAS | PRESIDENT AND CEO | 37.5 | $491,499 |
| GREG MITCHELL | CHIEF FINANCIAL OFFICER | 37.5 | $288,086 |
| NEIL THAKUR | CHIEF MISSION OFFICER | 37.5 | $195,440 |
| DEAN FEENER | CHIEF INFORMATION & TECHNOLOGY OFFICER | 37.5 | $264,616 |
| BRIAN FREDERICK | CHIEF MARKETING & COMMUNICATIONS OFFICER | 37.5 | $250,253 |
| PATRICK REEDY | CHIEF DEVELOPMENT OFFICER | 37.5 | $270,892 |
| JENNIFER HJELLE | CHIEF COMMUNITY ENGAGEMENT OFFICER | 37.5 | $244,313 |
| NICOLE ECK | CHIEF STRATEGY OFFICER | 37.5 | $231,124 |
| LANCE SLAUGHTER | SVP STRATEGIC ALLIANCES & GOVERNANCE | 37.5 | $245,671 |
| VICKIE LOBELLO | SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE | 37.5 | $237,001 |
| KULDIP DAVE | SENIOR VICE PRESIDENT RESEARCH | 37.5 | $232,488 |
| KIMBERLY HARDING-MAGINNIS | SENIOR VICE PRESIDENT CARE SERVICES | 37.5 | $221,492 |
| KEITH GARY | VICE PRESIDENT MISSION ACCELERATION | 37.5 | $219,020 |
Recent News & Activity
Recent developments and announcements
The Association has announced multiple recent grant initiatives and awards:
ALS Association Awards Over $2 Million in Grants to Strengthen ALS Care inAwards of over $2 million in grants to strengthen ALS care in local communities
ALS Association Awards Over $2 Million in Grants to Strengthen ALS Care inCall for letters of intent for new ALS research funding through collaborative partnerships
ALS Network and ALS United Announce Call for Letters of Intent for New ALSGroundbreaking ALS trial grants awarded to research organizations
Tiziana Life Sciences Announces Groundbreaking ALS Trial Grant Awarded byContinued investment in the TREAT ALS™ Drug Development Contract Grant Program
The organization is recognized as a four-star charity with a 96% overall score and meets standards for charitable accountability and transparency.
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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