Everylife Foundation for Rare Diseases

Nonprofit · Grant recipient Also a grantmaker → Washington, DC EIN 26-4614274

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$3.3M

Foundation funders

15

Grants recorded

32

Years covered

2019–2025

Who funds Everylife Foundation for Rare Diseases?

Everylife Foundation for Rare Diseases is funded by 15 grantmakers, led by Marin Community Foundation ($1.3M), Silicon Valley Community Foundation ($1.1M), Amyotrophic Lateral Sclerosis Assn ($211K). In total, IRS Form 990 filings record $3.3M in grants to Everylife Foundation for Rare Diseases between 2019–2025.

Funding over time

Grant dollars and counts received per year

$0$250K$500K$750K$1M2 grants2019 7 grants2020 5 grants2021 4 grants2022 6 grants2023 5 grants2024 3 grants2025

From 2019 to 2025, annual grant giving ranged from $10K (2019) to $853K (2023). In 2025 it made 3 grants totaling $660K.

What grants has Everylife Foundation for Rare Diseases received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025Marin Community FoundationPROVIDE GENERAL OPERATING SUPPORT$438,867
2025Amyotrophic Lateral Sclerosis AssnSCHOLARSHIPS$210,711
2025The Kahlert Foundation IncFY25 PAULA SEGALMAN SCHOLARSHIP FUND$10,000
2024Marin Community FoundationPROVIDE GENERAL OPERATING SUPPORT$193,912
2024Vanguard Charitable Endowment ProgramFOR RECIPIENT'S EXEMPT PURPOSE$50,000
2024Biotechnology Innovation OrganizationCONTRIBUTION$23,500
2024Pharmaceutical Research and Manufacturers of AmericaGENERAL CONTRIBUTION$20,000
2024Advanced Medical Technology AssociationPROGRAM SUPPORT$10,000
2023Silicon Valley Community FoundationHealth$500,000
2023Marin Community FoundationGENERAL OPERATING SUPPORT$222,495
2023The Blackbaud Giving FundGENERAL SUPPORT$50,210
2023Pharmaceutical Research and Manufacturers of AmericaGeneral Contribution$50,000
2023IVI Foundation IncResearch for rare diseases$15,000
2023Biotechnology Innovation OrganizationSPONSORSHIP$15,000
2022Silicon Valley Community FoundationHealth$200,000
2022Danaher FoundationCharitable$100,000
2022Biotechnology Innovation OrganizationCONTRIBUTION$25,000
2022Pharmaceutical Research and Manufacturers of AmericaGeneral Contribution$25,000
2021Marin Community FoundationGENERAL OPERATING SUPPORT$424,087
2021Silicon Valley Community FoundationHealth$225,000
2021Pharmaceutical Research and Manufacturers of AmericaGeneral Contribution$70,000
2021Biotechnology Innovation OrganizationSUPPORT/CONTRIBUTION$50,000
2021The Parent Project for Muscular Dystrophy Research IncRESEARCH PROGRAM- AWARD FOR GENETICS FELLOWSHIP$20,000
2020Silicon Valley Community FoundationHealth$200,000
2020Biotechnology Innovation OrganizationCONTRIBUTION$30,000
2020Pharmaceutical Research and Manufacturers of AmericaGeneral Contribution$25,000
2020The Parent Project for Muscular Dystrophy Research IncRESEARCH PROGRAM- AWARD FOR GENETICS FELLOWSHIP$21,000
2020Biotechnology Innovation OrganizationSPONSORSHIP$15,000
2020Gene Spotlight Inc—$13,000
2020Advanced Medical Technology AssociationPROGRAM SUPPORT$6,000

Showing 30 most recent of 32 recorded grants.

Frequently Asked Questions

Who funds Everylife Foundation for Rare Diseases?

Everylife Foundation for Rare Diseases is funded by 15 grantmakers, led by Marin Community Foundation ($1.3M), Silicon Valley Community Foundation ($1.1M), Amyotrophic Lateral Sclerosis Assn ($211K). In total, IRS Form 990 filings record $3.3M in grants to Everylife Foundation for Rare Diseases between 2019–2025.

Who is Everylife Foundation for Rare Diseases's largest funder?

Marin Community Foundation is the largest recorded funder of Everylife Foundation for Rare Diseases, with $1.3M across 4 grants (2021–2025).

How much grant funding has Everylife Foundation for Rare Diseases received?

IRS 990 filings record $3.3M in grants to Everylife Foundation for Rare Diseases across 32 grants from 15 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.

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