Everylife Foundation for Rare Diseases
INFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$6.2M
+7.1% YoY
Annual Giving
$615K
+42.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$615K
+42.0% YoY
About Everylife Foundation for Rare Diseases
Based on IRS filings
Everylife Foundation for Rare Diseases is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $6.2M in total assets. In 2024, it awarded 1 grants totaling $615K. Net investment income was $130K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $6,217,588 | $5,806,862 | $4,495,405 |
| Revenue | $7,031,574 | $6,794,644 | $5,789,261 |
| Expenses | $6,841,685 | $6,057,115 | $5,792,631 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $129,792 | $51,937 | $31,173 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Anne Kennedy | Policy & Advocacy | 40 | $259,793 |
| Michael Pearlmutter | CEO | 40 | $201,335 |
| Megan Pinegar | COO | 40 | $192,408 |
| Jamie Sullivan | Sr. Dir of Policy | 40 | $151,230 |
| Edward Brasfield | Sr Dir of Develop | 40 | $132,484 |
| Shannon Von Felden | Sr Director of Adv | 40 | $127,440 |
| Vicky Seyfert-Margolis | Chair | 2 | — |
| Frank Sasinowski | Vice Chair | 2 | — |
| Stephen Groft | Treasurer | 2 | — |
| Jennifer Bernstein | Secretary | 2 | — |
| Amrit Ray - until 224 | Director | 2 | — |
| Ritu Baral | Director | 2 | — |
| Shandra Trantham | Director | 2 | — |
| Abbey Hauser | Director | 2 | — |
| Lisa Carlton | Director | 2 | — |
| Cristina Casanova Might - until 122 | Director | 2 | — |
| Merrill Friedman | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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