Everylife Foundation for Rare Diseases
INFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$6.2M
+7.1% YoY
Annual Giving
$615K
+42.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$615K
+42.0% YoY
About Everylife Foundation for Rare Diseases
Based on IRS filings
Everylife Foundation for Rare Diseases is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $6.2M in total assets. In 2024, it awarded 1 grants totaling $615K. Net investment income was $130K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $6,217,588 | $5,806,862 | $4,495,405 |
| Revenue | $7,031,574 | $6,794,644 | $5,789,261 |
| Expenses | $6,841,685 | $6,057,115 | $5,792,631 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $129,792 | $51,937 | $31,173 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Scholarship America ($615,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Scholarship America Minneapolis, MN | scholarships | $615,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Anne Kennedy | Policy & Advocacy | 40 | $259,793 |
| Michael Pearlmutter | CEO | 40 | $201,335 |
| Megan Pinegar | COO | 40 | $192,408 |
| Jamie Sullivan | Sr. Dir of Policy | 40 | $151,230 |
| Edward Brasfield | Sr Dir of Develop | 40 | $132,484 |
| Shannon Von Felden | Sr Director of Adv | 40 | $127,440 |
| Vicky Seyfert-Margolis | Chair | 2 | — |
| Frank Sasinowski | Vice Chair | 2 | — |
| Stephen Groft | Treasurer | 2 | — |
| Jennifer Bernstein | Secretary | 2 | — |
| Amrit Ray - until 224 | Director | 2 | — |
| Ritu Baral | Director | 2 | — |
| Shandra Trantham | Director | 2 | — |
| Abbey Hauser | Director | 2 | — |
| Lisa Carlton | Director | 2 | — |
| Cristina Casanova Might - until 122 | Director | 2 | — |
| Merrill Friedman | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Everylife Foundation for Rare Diseases?
Everylife Foundation for Rare Diseases is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. It holds $6.2M in total assets as of 2024.
How large is Everylife Foundation for Rare Diseases?
As of 2024, Everylife Foundation for Rare Diseases holds $6.2M in total assets with $7.0M in annual revenue. It awarded 1 grants totaling $615K in 2024.
Where does Everylife Foundation for Rare Diseases operate?
Everylife Foundation for Rare Diseases has awarded grants in Minnesota.
What size grants does Everylife Foundation for Rare Diseases award?
In 2024, Everylife Foundation for Rare Diseases awarded 1 grants totaling $615K — an average of about $615K per grant, based on its IRS Form 990 filings.
What is Everylife Foundation for Rare Diseases's EIN?
Everylife Foundation for Rare Diseases's EIN (Employer Identification Number) is 26-4614274. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Everylife Foundation for Rare Diseases's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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