Everylife Foundation for Rare Diseases
INFORMATION REGARDING THE FOUNDATION'S PROGRAMS CAN BE OBTAINED AT WWW.EVERYLIFEFOUNDATION.ORG.
Key facts about Everylife Foundation for Rare Diseases
- EIN
- 26-4614274
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $615,000
- Grants made (2024)
- 1
- Average grant
- $615,000
- Median grant
- $615,000
- Total assets
- $6,217,588
- Primary geography
- Minnesota (100% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated April 2026.
How Everylife Foundation for Rare Diseases gives
- Giving grew 108% from 2021 to 2024. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Everylife Foundation for Rare Diseases
- How to evaluate Everylife Foundation for Rare Diseases as a funder
Our grant prospecting guide: read the 990-PF, check fit, and decide whether to apply.
- Draft an LOI to Everylife Foundation for Rare Diseases with AI
AI grant writing that drafts from your organization’s own materials, in your voice.
- Track this opportunity in a free grant tracker
A free Google Sheets or Excel template for deadlines, award terms, and reports due.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$6.2M
+7.1% YoY
Annual Giving
$615K
+42.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$615K
+42.0% YoY
About Everylife Foundation for Rare Diseases
Based on IRS filings
Everylife Foundation for Rare Diseases is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $6.2M in total assets. In 2024, it awarded 1 grant totaling $615K. Net investment income was $130K.
Focus Areas
Ready to take the next step with Everylife Foundation for Rare Diseases?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 1 itemized 2024 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $6,217,588 | $5,806,862 | $4,495,405 |
| Revenue | $7,031,574 | $6,794,644 | $5,789,261 |
| Expenses | $6,841,685 | $6,057,115 | $5,792,631 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $129,792 | $51,937 | $31,173 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include Scholarship America ($615,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Scholarship America Minneapolis, MN | scholarships | $615,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Anne Kennedy | Policy & Advocacy | 40 | $259,793 |
| Michael Pearlmutter | CEO | 40 | $201,335 |
| Megan Pinegar | COO | 40 | $192,408 |
| Jamie Sullivan | Sr. Dir of Policy | 40 | $151,230 |
| Edward Brasfield | Sr Dir of Develop | 40 | $132,484 |
| Shannon Von Felden | Sr Director of Adv | 40 | $127,440 |
| Vicky Seyfert-Margolis | Chair | 2 | — |
| Frank Sasinowski | Vice Chair | 2 | — |
| Stephen Groft | Treasurer | 2 | — |
| Jennifer Bernstein | Secretary | 2 | — |
| Amrit Ray - until 224 | Director | 2 | — |
| Ritu Baral | Director | 2 | — |
| Shandra Trantham | Director | 2 | — |
| Abbey Hauser | Director | 2 | — |
| Lisa Carlton | Director | 2 | — |
| Cristina Casanova Might - until 122 | Director | 2 | — |
| Merrill Friedman | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Everylife Foundation for Rare Diseases?
Everylife Foundation for Rare Diseases is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC. It holds $6.2M in total assets as of 2024.
How large is Everylife Foundation for Rare Diseases?
As of 2024, Everylife Foundation for Rare Diseases holds $6.2M in total assets with $7.0M in annual revenue. It awarded 1 grant totaling $615K in 2024.
Where does Everylife Foundation for Rare Diseases operate?
Everylife Foundation for Rare Diseases has awarded grants in Minnesota.
What size grants does Everylife Foundation for Rare Diseases award?
In 2024, Everylife Foundation for Rare Diseases awarded 1 grant totaling $615K — an average of about $615K per grant, based on its IRS Form 990 filings.
What is Everylife Foundation for Rare Diseases's EIN?
Everylife Foundation for Rare Diseases's EIN (Employer Identification Number) is 26-4614274. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Everylife Foundation for Rare Diseases's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Adam R Scripps Foundation
Ft Mitchell, KY
Assets
$754.6M
Grants
281
Total Given
$35.5M
Educational Credit
Minneapolis, MN
Assets
$209.1M
Grants
293
Total Given
$177.0M
S&P Global Foundation
New York, NY
Assets
$194.4M
Grants
13
Total Given
$13.0M
Pan-Oyler Foundation
Pittsburgh, PA
Assets
$507K
Grants
23
Total Given
$1.1M
O'Brion Frank Trust Uw
Brooklyn, OH
Assets
—
Grants
5
Total Given
$43K
Battelle Memorial Institute
Columbus, OH
Assets
$1.8B
Grants
162
Total Given
$17.4M
Pension Real Estate Association
Hartford, CT
Assets
$12.8M
Grants
4
Total Given
$115K
James L & Nellie Westlake Sfund-Uma
Milwaukee, WI
Assets
—
Grants
1
Total Given
$833K
Ruth and Jack Glantz Family Foundation Inc
Wilmington, DE
Assets
$1.5M
Grants
72
Total Given
$70K
IAMANGEL Foundation
Brookfield, WI
Assets
—
Grants
1
Total Given
$250K
Skywater Foundation Fund Inc
Bloomington, MN
Assets
$152K
Grants
1
Total Given
$98K
The Greater New Orleans Foundation
New Orleans, LA
Assets
$513.0M
Grants
623
Total Given
$34.6M
More Funders in District of Columbia
Data last updated April 2026. Sourced from IRS Form 990-PF filings.