Rory Belle Foundation
To champion opportunities and change outcomes for everyone impacted by nars1 disorder, every single day.
Rory Belle Foundation at a glance
In short: Rory Belle Foundation gave $10K across 1 grant in 2024 (avg $10K), mostly in Pennsylvania. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $10,000
- Grants made (2024)
- 1
- Average grant
- $10,000
- Median grant
- $10,000
- Total assets
- $467,999
- +74.9% vs 2023
- Primary geography
- Pennsylvania (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Rory Belle Foundation
- Next open deadline
- December 1, 2026 (The Rory Belle Foundation Research Grant Program)
Open Grants
1 open opportunity from Rory Belle Foundation
Who Rory Belle Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Uplifting Athletes ($10K).
Grant Size Distribution
1 grant across all recorded years
The most common grant size was under $50K: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2024 it made 1 grant totaling $10K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Uplifting Athletes Doylestown, PA | Cofund Dr Vallee | $10,000 |
Ready to take the next step with Rory Belle Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $467,999 | $302,262 | $104,371 | $10,000 | 1 | $7,535 |
| 2023 | $267,644 | $214,750 | $5,234 | — | — | $3,499 |
| 2022 | $57,968 | $60,128 | $2,160 | — | — | — |
About Rory Belle Foundation
Based on IRS filings
Rory Belle Foundation is a public charity focused on Medical Research, based in Denver, CO. IRS filing data is available from 2022 through 2024. As of 2024, the organization holds $468K in total assets. In 2024, it awarded 1 grant totaling $10K. Net investment income was $8K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Rory Belle Foundation is led by Catherine Riggs, Executive Director since 2024 (on filings since 2022); none of the 6 officers listed in 2024 report compensation.
Officers on the 2024 filing
Catherine Riggs
Executive Director
Director of Patient Engage → Director of Research, 2023
Director of Research → Executive Director, 2024
On filings since 2022
8 hrs/week
No compensation reported
Teri Declercq
Board Chair Director Development
Vice President → Board Chair Director Development, 2024
On filings since 2022
10 hrs/week
No compensation reported
Ross McCarthy
Director of Patient Engage
On filings since 2023
3 hrs/week
No compensation reported
Christoffer B. Declercq
Treasurer
On filings since 2022
5 hrs/week
No compensation reported
Rachel Heilmann
Cofounderdirresearch
President → Cofounderdirresearch, 2024
On filings since 2022
20 hrs/week
No compensation reported
Lauren Anderson
Secretary
On filings since 2023
3 hrs/week
No compensation reported
Former officers (2)
- Former: Judy Kjelstad (2022–2023) — Director of Development
- Former: Susan Holsclaw (2022–2023) — Secretary
Data from IRS Form 990 filings, 2022–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Rory Belle Foundation
How much does Rory Belle Foundation give each year?
Rory Belle Foundation gave $10K across 1 grant in 2024, according to its 2024 IRS Form 990.
How large is Rory Belle Foundation?
Rory Belle Foundation reported $468K in total assets on its 2024 IRS Form 990. Its revenue that year was $302K.
What is Rory Belle Foundation?
Rory Belle Foundation is a public charity focused on Medical Research, based in Denver, CO. It holds $468K in total assets as of 2024.
Where does Rory Belle Foundation operate?
Rory Belle Foundation has awarded grants in Pennsylvania.
What is Rory Belle Foundation's EIN?
Rory Belle Foundation's EIN (Employer Identification Number) is 88-1920584. IRS Form 990 filing data is available on this page for 2022–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2022–2024
Explore Open Grants
Browse active grant opportunities in Rory Belle Foundation's focus areas in our free grants database
Similar Funders
Funders with grantees in common
ARID1B Research Foundation Inc
Chevy Chase, MD
To advance the scientific and clinical understanding of disorders associated with ARID1B gene and the development of potential therapies for such disorders.
Assets
$465K
Grants
1
Total Given
$10K
GRIN2B Foundation
Niles, IL
GRIN2B Foundation is a parent-run organization dedicated to furthering research on the grin2b gene and providing support and education to the small, but growing community of individuals and families impacted by a grin2b diagnosis.
Assets
$231K
Grants
1
Total Given
$42K
Tatton Brown Rahman Syndrome Community Inc
Stanfordville, NY
TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
Assets
$782K
Grants
2
Total Given
$82K
Castleman Disease Collaborative Network
Paso Robles, CA
To develop awareness of castleman's disease and to raise money to fund education and laboratory research to determine cause, treatment and ultimate cure.
Assets
$3.0M
Grants
2
Total Given
$298K
The Neuromuscular Disease Foundation
Beverly Hills, CA
THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.
Assets
$660K
Grants
3
Total Given
$113K
Asxl Rare Research Endowment Foundation
Gorham, ME
Support research and education that lead to improved quality of life for individuals with ASXL syndromes.
Assets
$1.1M
Grants
3
Total Given
$179K
More similar funders
More Funders in Colorado
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Rory Belle Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Rory Belle Foundation down — hundreds of funders to go?