Support research and education that lead to improved quality of life for individuals with ASXL syndromes.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.1M
+61.7% YoY
Annual Giving
$179K
Grant Count
3
Avg Grant Size
$60K
About Asxl Rare Research Endowment Foundation
Based on IRS filings
Asxl Rare Research Endowment Foundation is a nonprofit organization focused on Medical Research, based in GORHAM, ME. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 3 grants totaling $179K. Net investment income was $24K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,081,250 | $668,547 | $614,250 |
| Revenue | $887,604 | $283,786 | $228,516 |
| Expenses | $474,919 | $229,386 | $224,596 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $24,147 | $518 | $175 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
7 grants across all recorded years
Open Grants
1 open opportunity from Asxl Rare Research Endowment Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Amanda Johnson | Executive Director | 40 | $105,900 |
| Laura Badmaev | President | 5 | — |
| Daniel Ordower | Treasurer | 5 | — |
| Michael Salad | Director | 5 | — |
| Julie Lopez | Director | 5 | — |
| Lauren Adams | Director | 5 | — |
| Sankar Madhavan | Director | 5 | — |
| Amanda Scheirer | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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