Support research and education that lead to improved quality of life for individuals with ASXL syndromes.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.1M
+61.7% YoY
Annual Giving
$179K
Grant Count
3
Avg Grant Size
$60K
About Asxl Rare Research Endowment Foundation
Based on IRS filings
Asxl Rare Research Endowment Foundation is a nonprofit organization focused on Medical Research, based in GORHAM, ME. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 3 grants totaling $179K. Net investment income was $24K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,081,250 | $668,547 | $614,250 |
| Revenue | $887,604 | $283,786 | $228,516 |
| Expenses | $474,919 | $229,386 | $224,596 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $24,147 | $518 | $175 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
7 grants across all recorded years
Open Grants
1 open opportunity from Asxl Rare Research Endowment Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Kennedy Krieger Institute ($119,341), Regents University of California Los Angeles ($50,000), Uplifting Athletes Inc ($10,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Regents University of California Los Angeles Los Angeles, CA | Support for the ASXL Registry and Biobank held at UCLA | $50,000 |
| Kennedy Krieger Institute Baltimore, MD | Support for various studies regarding outcome measurements and research priorities | $119,341 |
| Uplifting Athletes Inc Doylestown, PA | Support of Young Investigators award | $10,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Amanda Johnson | Executive Director | 40 | $105,900 |
| Laura Badmaev | President | 5 | — |
| Daniel Ordower | Treasurer | 5 | — |
| Michael Salad | Director | 5 | — |
| Julie Lopez | Director | 5 | — |
| Lauren Adams | Director | 5 | — |
| Sankar Madhavan | Director | 5 | — |
| Amanda Scheirer | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Asxl Rare Research Endowment Foundation?
Asxl Rare Research Endowment Foundation is a nonprofit organization focused on Medical Research, based in GORHAM, ME. It holds $1.1M in total assets as of 2024.
How large is Asxl Rare Research Endowment Foundation?
As of 2024, Asxl Rare Research Endowment Foundation holds $1.1M in total assets with $888K in annual revenue. It awarded 3 grants totaling $179K in 2024.
Where does Asxl Rare Research Endowment Foundation operate?
Asxl Rare Research Endowment Foundation has awarded grants in California, Maryland, Pennsylvania, Texas.
What size grants does Asxl Rare Research Endowment Foundation award?
In 2024, Asxl Rare Research Endowment Foundation awarded 3 grants totaling $179K — an average of about $60K per grant, based on its IRS Form 990 filings.
What is Asxl Rare Research Endowment Foundation's EIN?
Asxl Rare Research Endowment Foundation's EIN (Employer Identification Number) is 82-3890665. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Asxl Rare Research Endowment Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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