Aplastic Anemia & MDS International Foundation Inc logo

Aplastic Anemia & MDS International Foundation Inc

Public charity · Grantmaker Rockville, MD EIN: 52-1336903 Website

To support patients, families and caregivers coping with aplastic anemia, mds, pnh and related bone marrow failure diseases by providing answers, support and hope.

Key facts about Aplastic Anemia & MDS International Foundation Inc

In short: Aplastic Anemia & MDS International Foundation Inc gave $120K across 4 grants in 2025 (avg $30K), mostly in California. Source: 2025 IRS Form 990.

EIN
52-1336903
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$120,000
Grants made (2025)
4
Average grant
$30,000
Median grant
$30,000
Total assets
$8,296,083
Primary geography
California (50% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$8.3M

+11.1% YoY

Annual Giving

$120K

+33.3% YoY

Grant Count

4

+33.3% YoY

Avg Grant Size

$30K

+0.0% YoY

How Aplastic Anemia & MDS International Foundation Inc gives

  • Giving held roughly steady from 2022 to 2025 (+0%). Method

From the foundation's IRS Form 990 filings. Methodology.

About Aplastic Anemia & MDS International Foundation Inc

Based on IRS filings

Aplastic Anemia & MDS International Foundation Inc is a public charity, based in Rockville, MD. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $8.3M in total assets. In 2025, it awarded 4 grants totaling $120K. Net investment income was $180K.

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1 open opportunity from Aplastic Anemia & MDS International Foundation Inc

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Share of 2025 grant dollars across all 4 itemized grants.

Cities

New YorkChicagoBethesdaIndependenceMemphisPhiladelphiaBostonClevelandDoylestownDuarteRedwood City

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K4 grants2020 4 grants2021 4 grants2022 4 grants2023 3 grants2024 4 grants2025

From 2020 to 2025, annual grant giving ranged from $90K (2020) to $120K (2025). In 2025 it made 4 grants totaling $120K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2025

Cleveland Clinic Foundation: $30KCleveland Clinic Foundation$30KCity of Hope: $30KCity of Hope$30KThe Johns Hopkins University: $30KThe Johns Hopkins University$30KThe Board of Trustees of the Leland Stanford Junior University: $30KThe Board of Trustees of theLeland Stanford Junior…$30K

The largest 2025 recipient was Cleveland Clinic Foundation ($30K). Together the top 4 received $120K.

Grant Size Distribution

19 grants across all recorded years

19<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 19 grants of 19 (100%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Cleveland Clinic Foundation Independence, OHResearch$30,000
City of Hope Duarte, CAResearch$30,000
The Johns Hopkins University Chicago, ILResearch$30,000
The Board of Trustees of the Leland Stanford Junior University Redwood City, CAResearch$30,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$2M$4M$6M2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$8,296,083$7,464,678$7,229,650
Revenue$3,170,442$3,039,873$3,416,958
Expenses$2,923,386$2,957,671$2,486,226
Net Investment Income$180,015$223,442$122,445

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS September 16, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS August 15, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS September 29, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS September 4, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS July 15, 2025)
  6. Added Form 990 for fiscal year 2025 (received by the IRS June 25, 2026)
  7. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Aplastic Anemia & MDS International Foundation Inc is led by Brad A. Wong, CEO & Executive Director since 2025 (on filings since 2022); 5 of 20 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Brad A. Wong

    CEO & Executive Director

    CEO & Start → CEO, 2023

    CEO → CEO & Executive Director, 2025

    On filings since 2022

    40 hrs/week

    $18K (2022) → $278K (2025)

  • Deborah Cook

    Chair

    Director → Chair, 2022

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Alice Houk

    Senior Director of Patient & Prof'l Programs

    Senior Director & Health Pr → Senior Director of Patient & Health Professional, 2023

    Senior Director of Patient & Health Professional → Senior Director of Patient & Prof'l Programs, 2025

    On filings since 2020

    40 hrs/week

    $105K (2020) → $152K (2025)

  • Azalea Candelaria

    Senior Director of Development

    On filings since 2024

    40 hrs/week

    $167K (2024) → $182K (2025)

  • Alison Seney

    Director of Development

    New on the 2025 filing

    40 hrs/week

    $106K (2025)

  • Leigh A. Clark

    Director of Patient Programs

    New on the 2025 filing

    40 hrs/week

    $113K (2025)

  • Bart S. Fisher

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • James Gajewski MD

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Melanie Marquez

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Rebecca Doane

    Director

    Director → Treasurer, 2023

    Treasurer → Director, 2025

    On filings since 2020

    1 hr/week

    No compensation reported

  • Stephanie Dillon Hamm

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Hetal Soni

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Marlena Connor

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Mary Horowitz MD

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Abe Kader

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Erie Sampson

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Travis Georgieff

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Judy Paulette

    Vice Chair

    Director → Vice Chair, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Peter Miller

    Treasurer

    Director → Treasurer, 2025

    On filings since 2022

    1 hr/week

    No compensation reported

  • Chris Mills

    Secretary

    On filings since 2023

    1 hr/week

    No compensation reported

Former officers (8)
  • Former: Saira Sufi (2020–2023) — Director
  • Former: Harsha Murthy (2020–2022) — Secretary
  • Former: Kevin Lyons-Tarr (2020–2022) — Director
  • Former: Tony Sanfilippo (2020–2022) — Treasurer
  • Former: Desiree L. Ruiters (2021–2022) — Senior Director of Development
  • Former: Janice Frey-Angel (2021–2022) — CEO
  • Former: Neil Horikoshi JD MBA (2020–2021) — Former CEO
  • Former: Julie Powers (2020) — Senior Director & Patient Advocacy

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Brad a Wong — CEO & Executive Director: $278KBrad a WongCEO & Executive Director$278KAzalea Candelaria — Sr. Director of Development: $182KAzalea CandelariaSr. Director of Development$182KAlice Houk — Sr. DIR. of Patient & Prof'l Programs: $152KAlice HoukSr. DIR. of Patient & Prof'l…$152KLeigh a Clark — Director of Patient Programs: $113KLeigh a ClarkDirector of Patient Programs$113KAlison Seney — Director of Development: $106KAlison SeneyDirector of Development$106K

The highest reported compensation on the 2025 filing was $278K, to Brad a Wong (CEO & Executive Director). 5 officers or directors reported compensation on that filing.

Frequently asked questions about Aplastic Anemia & MDS International Foundation Inc

How much does Aplastic Anemia & MDS International Foundation Inc give each year?

Aplastic Anemia & MDS International Foundation Inc gave $120K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $90K across 3 grants.

What is Aplastic Anemia & MDS International Foundation Inc's typical grant size?

Aplastic Anemia & MDS International Foundation Inc's median grant in 2025 was $30,000, and its average grant was $30,000, across 4 grants on its 2025 IRS Form 990.

Where does Aplastic Anemia & MDS International Foundation Inc give grants?

Aplastic Anemia & MDS International Foundation Inc gives mostly in California: 50% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Ohio (25%) and Illinois (25%).

Does Aplastic Anemia & MDS International Foundation Inc give general operating support?

Not in 2025: none of the 4 grants with a stated purpose on Aplastic Anemia & MDS International Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (4 grants).

How large is Aplastic Anemia & MDS International Foundation Inc?

Aplastic Anemia & MDS International Foundation Inc reported $8.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $3.2M.

What is Aplastic Anemia & MDS International Foundation Inc's EIN?

Aplastic Anemia & MDS International Foundation Inc's EIN (Employer Identification Number) is 52-1336903. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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