The Neuromuscular Disease Foundation
THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$660K
-30.4% YoY
Annual Giving
$113K
+197.0% YoY
Grant Count
3
-25.0% YoY
Avg Grant Size
$38K
+296.0% YoY
About The Neuromuscular Disease Foundation
Based on IRS filings
The Neuromuscular Disease Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BEVERLY HILLS, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $660K in total assets. In 2024, it awarded 3 grants totaling $113K. Net investment income was $38K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $660,321 | $948,612 | $886,359 |
| Revenue | $65,419 | $561,017 | $442,823 |
| Expenses | $352,447 | $499,650 | $1,031,908 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $37,948 | $39,034 | $14,437 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
21 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Abigail Wexner Research Inst ($48,750), University of Washington ($32,500), Yale University ($31,618).
| Recipient | Purpose | Amount |
|---|---|---|
| Abigail Wexner Research Inst Columbus, OH | Research Genetic Disorders | $48,750 |
| University of Washington Seattle, WA | Research Genetic Disorders | $32,500 |
| Yale University New Haven, CT | Research Genetic Disorders | $31,618 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Navid Rachman | Director | 1 | — |
| Tara Voogel | Secretary | 1 | — |
| Amy Curran | Director | 1 | — |
| Tahseen Mozaffar | Director | 1 | — |
| Coleman Kennedy | CEO | 1 | — |
| David Golden | CFO | 1 | — |
| Suma Rao-Gupta | Director | 1 | — |
| David Haverim | Director | 1 | — |
| Isabella Tyszler | Director | 1 | — |
| David Dahl | Director | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Neuromuscular Disease Foundation?
The Neuromuscular Disease Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BEVERLY HILLS, CA. It holds $660K in total assets as of 2024.
How large is The Neuromuscular Disease Foundation?
As of 2024, The Neuromuscular Disease Foundation holds $660K in total assets with $65K in annual revenue. It awarded 3 grants totaling $113K in 2024.
Where does The Neuromuscular Disease Foundation operate?
The Neuromuscular Disease Foundation has awarded grants in Connecticut, Maryland, Ohio, Pennsylvania, Washington.
What size grants does The Neuromuscular Disease Foundation award?
In 2024, The Neuromuscular Disease Foundation awarded 3 grants totaling $113K — an average of about $38K per grant, based on its IRS Form 990 filings.
What is The Neuromuscular Disease Foundation's EIN?
The Neuromuscular Disease Foundation's EIN (Employer Identification Number) is 06-1789643. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The Neuromuscular Disease Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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