Foundation for Sarcoidosis Research
The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $7.5 million in sarcoidosis specific research efforts.
Foundation for Sarcoidosis Research at a glance
In short: Foundation for Sarcoidosis Research gave $838K across 12 grants in 2024 (avg $70K), top state Pennsylvania. 50% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $838,461
- +196.8% vs 2023
- Grants made (2024)
- 12
- +200.0% vs 2023
- Average grant
- $69,872
- -1.1% vs 2023
- Median grant
- $33,475
- Total assets
- $17,183,158
- +199.2% vs 2023
- New grantees (estimate)
- 50% first-time grantees (6 of 12, 2024; small sample)
- Primary geography
- Pennsylvania (24% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Foundation for Sarcoidosis Research
Open Grants
3 open opportunities from Foundation for Sarcoidosis Research
Cardiac Sarcoidosis Grant
Foundation for Sarcoidosis Research
Amount
US $100,000
Deadline
Deadline not published
FSR Early Career Fellowship Grant
Foundation for Sarcoidosis Research
Amount
US $150,000
Deadline
Deadline not published
FSR Pilot Grant
Foundation for Sarcoidosis Research
Amount
US $100,000
Deadline
Deadline not published
Who Foundation for Sarcoidosis Research funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of Pennsylvania ($200K). Together the top 10 received $819K.
Grant Size Distribution
42 grants across all recorded years
The most common grant size was under $50K: 28 grants of 42 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 12 itemized grants.
States
Cities
Is Foundation for Sarcoidosis Research open to new grantees?
50%
first-time grantees, 2024
In 2024, 6 of 12 grantees (50%) were first-time recipients. With only 12 grantees, that is a small sample: one grantee more or less moves the share by about 8 points. First grants averaged $87K; repeat grants $53K. How we count
Medians: $75K first-time, $16K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $283K (2023) to $838K (2024). In 2024 it made 12 grants totaling $838K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania Philadelphia, PA | Research | $200,000 |
| University of Iowa Iowa City, IA | Research | $163,400 |
| University of California San Francisco Concord, CA | Research | $150,000 |
| Duke University Durham, NC | Research | $100,000 |
| University of Colorado Aurora, CO | Pilot Grant | $100,000 |
| Mayo Clinic Minneapolis, MN | Research | $50,500 |
| Cleveland Clinic Cleveland, OH | Research | $16,450 |
| Northwestern University Evanston, IL | Research | $15,450 |
| University of Illinois at Chicago Chicago, IL | Research | $12,500 |
| American Thoracic Society (ATS) New York, NY | Research | $10,611 |
Ready to take the next step with Foundation for Sarcoidosis Research?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $17,183,158 | $13,585,865 | $3,368,016 | $838,461 | 12 | $364,032 |
| 2023 | $5,742,895 | $2,574,104 | $2,402,436 | $282,500 | 4 | $-22,783 |
| 2022 | $4,929,854 | $1,673,599 | $2,027,945 | $352,100 | 11 | $39,590 |
| 2021 | $6,004,041 | $2,385,283 | $1,728,967 | $363,505 | 10 | $253,123 |
| 2020 | $5,212,814 | $1,785,472 | $1,389,197 | $341,000 | 5 | $446,799 |
About Foundation for Sarcoidosis Research
Based on IRS filings
Foundation for Sarcoidosis Research is a public charity, based in Chicago, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $17.2M in total assets. In 2024, it awarded 12 grants totaling $838K. Net investment income was $364K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Foundation for Sarcoidosis Research is led by Mary E McGowan, President & CEO since 2024 (on filings since 2020); 2 of 15 officers listed in 2024 are compensated.
Officers on the 2024 filing
Mary E McGowan
President & CEO
Executive Director → CEO, 2021
CEO → President & CEO, 2024
On filings since 2020
40 hrs/week
$61K (2020) → $256K (2024)
Mary Cobb
President
Director → Secretary, 2021
Secretary → President, 2024
On filings since 2020
10 hrs/week
No compensation reported
Craig Lipset
Director
Vice President → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Leslie Serchuck
Director
On filings since 2020
1 hr/week
No compensation reported
Louise M. Perkins
Director
President → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Michael A. Walrond Jr.
Director
On filings since 2020
1 hr/week
No compensation reported
Emerson Randy Hall Jr.
Director
On filings since 2021
1 hr/week
No compensation reported
Jeffrey Raich
Director
On filings since 2021
1 hr/week
No compensation reported
Michael Klingher
Director
On filings since 2022
1 hr/week
No compensation reported
Calvin Harris
Director
On filings since 2023
1 hr/week
No compensation reported
Yvette C. Cozier
Director
On filings since 2023
1 hr/week
No compensation reported
Tricha Shivas
Chief of Staff & Strategy
Chief Strategy Officer → Chief of Staff & Strategy, 2024
On filings since 2023
40 hrs/week
$161K (2023) → $201K (2024)
Heidi W. Junk
Vice President
Director → Vice President, 2024
On filings since 2021
5 hrs/week
No compensation reported
Michael Kaplan
Treasurer
Director → Treasurer, 2022
On filings since 2021
5 hrs/week
No compensation reported
Joel Rosen
Secretary
Director → Secretary, 2024
On filings since 2023
5 hrs/week
No compensation reported
Former officers (8)
- Former: Jim Davis Jr. (2020–2022) — Director
- Former: Yvette Cozier Dsc MPH (2021–2022) — Director
- Former: Andrea Wilson (2020) — Director
- Former: Azmi Nabulsi (2020) — Director
- Former: Kirk Allen (2020) — Director
- Former: Louie Hondros (2020) — Treasurer
- Former: Mary Ellen Carroll (2020) — Director
- Former: Reading Wilson (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $256K, to Mary McGowan (President & CEO). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Foundation for Sarcoidosis Research
How much does Foundation for Sarcoidosis Research give each year?
Foundation for Sarcoidosis Research gave $838K across 12 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $283K across 4 grants.
What is Foundation for Sarcoidosis Research's typical grant size?
Foundation for Sarcoidosis Research's median grant in 2024 was $33,475, and its average grant was $69,872, across 12 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Foundation for Sarcoidosis Research that year got $87K on average.
Where does Foundation for Sarcoidosis Research give grants?
Foundation for Sarcoidosis Research's top state is Pennsylvania, with 24% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Iowa (19%) and California (18%).
Does Foundation for Sarcoidosis Research give general operating support?
Not in 2024: none of the 12 grants with a stated purpose on Foundation for Sarcoidosis Research's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (11 grants).
Who are Foundation for Sarcoidosis Research's largest grantees?
Foundation for Sarcoidosis Research's largest 2024 grantees include University of Pennsylvania ($200,000), University of Iowa ($163,400) and University of California San Francisco ($150,000), according to its 2024 IRS Form 990. Together they received 61% of its itemized 2024 grant dollars.
How large is Foundation for Sarcoidosis Research?
Foundation for Sarcoidosis Research reported $17.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $13.6M.
What is Foundation for Sarcoidosis Research's EIN?
Foundation for Sarcoidosis Research's EIN (Employer Identification Number) is 36-4378232. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 11, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 5, 2024)
- Added Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2023
Explore Open Grants
Browse active grant opportunities in Foundation for Sarcoidosis Research's focus areas in our free grants database
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