Foundation for Sarcoidosis Research

Public charity · Grantmaker Chicago, IL EIN: 36-4378232

The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $7.5 million in sarcoidosis specific research efforts.

Foundation for Sarcoidosis Research at a glance

In short: Foundation for Sarcoidosis Research gave $450K across 4 grants in 2025 (avg $113K), top state Colorado. Source: 2025 IRS Form 990.

Annual giving (2025)
$450,000
-46.3% vs 2024
Grants made (2025)
4
-66.7% vs 2024
Average grant
$112,500
+61.0% vs 2024
Median grant
$100,000
Total assets
$18,793,381
+9.4% vs 2024
Primary geography
Colorado (33% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated November 2026.

How to apply to Foundation for Sarcoidosis Research

Who Foundation for Sarcoidosis Research funds

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2025

University of Colorado Denver: $150KUniversity of Colorado Denver$150KJohns Hopkins University: $100KJohns Hopkins University$100KUniversity of Illinois: $100KUniversity of Illinois$100KWashington University School of Medicine: $100KWashington University Schoolof Medicine$100K

The largest 2025 recipient was University of Colorado Denver ($150K). Together the top 4 received $450K.

Grant Size Distribution

41 grants across all recorded years

24<$50K5$50–100K12$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 24 grants of 41 (59%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

13states

Share of 2025 grant dollars across all 4 itemized grants.

Cities

DenverNew YorkBaltimoreEvanstonIndependenceIowa CityAlbanyChicagoCincinnatiDurhamMinneapolisAuroraChampaignChapel HillCharlestonChicgoClevelandConcordDoylestownOklahoma City

How Foundation for Sarcoidosis Research gives

  • Giving grew 28% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$250K$500K$750K$1M5 grants2020 10 grants2021 11 grants2022 4 grants2023 12 grants2024 4 grants2025

From 2020 to 2025, annual grant giving ranged from $283K (2023) to $838K (2024). In 2025 it made 4 grants totaling $450K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
University of Colorado Denver Denver, COResearch Fellowship$150,000
Johns Hopkins University Baltimore, MDCardiac Research Grant$100,000
University of Illinois Champaign, ILResearch Grant$100,000
Washington University School of Medicine Saint Louis, MOCardiac Research Grant$100,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$18,793,381$4,662,058$3,810,958$450,0004$717,533
2024$17,183,158$13,585,865$3,368,016$838,46112$364,032
2023$5,742,895$2,574,104$2,402,436$282,5004$-22,783
2022$4,929,854$1,673,599$2,027,945$352,10011$39,590
2021$6,004,041$2,385,283$1,728,967$363,50510$253,123
2020$5,212,814$1,785,472$1,389,197$341,0005$446,799

About Foundation for Sarcoidosis Research

Based on IRS filings

Foundation for Sarcoidosis Research is a public charity, based in Chicago, IL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $18.8M in total assets. In 2025, it awarded 4 grants totaling $450K. Net investment income was $718K.

Leadership & Key People

Officers and directors from IRS filings

Foundation for Sarcoidosis Research is led by Mary E McGowan, President & CEO since 2024 (on filings since 2020); 4 of 18 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Mary E McGowan

    President & CEO

    Executive Director → CEO, 2021

    CEO → President & CEO, 2024

    On filings since 2020

    40 hrs/week

    $61K (2020) → $298K (2025)

  • Mary Cobb

    President

    Director → Secretary, 2021

    Secretary → President, 2024

    On filings since 2020

    10 hrs/week

    No compensation reported

  • David Fischer

    Director of Operations

    New on the 2025 filing

    40 hrs/week

    $103K (2025)

  • Craig Lipset

    Director

    Vice President → Director, 2024

    On filings since 2020

    1 hr/week

    No compensation reported

  • Leslie Serchuck

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Louise M. Perkins

    Director

    President → Director, 2024

    On filings since 2020

    1 hr/week

    No compensation reported

  • Emerson Randy Hall Jr.

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Jeffrey Raich

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Michael Klingher

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Yvette C. Cozier

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Joan Levy

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • John Carlin

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • John Mockovciak

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Molly Flick

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Tricha Shivas

    Chief of Staff & Strategy

    Chief Strategy Officer → Chief of Staff & Strategy, 2024

    On filings since 2023

    40 hrs/week

    $161K (2023) → $249K (2025)

  • Elise Hoover

    Vice President of Research

    New on the 2025 filing

    40 hrs/week

    $150K (2025)

  • Calvin Harris

    Treasurer

    Director → Treasurer, 2025

    On filings since 2023

    5 hrs/week

    No compensation reported

  • Joel Rosen

    Secretary

    Director → Secretary, 2024

    On filings since 2023

    5 hrs/week

    No compensation reported

Former officers (11)
  • Former: Michael A. Walrond Jr. (2020–2024) — Director
  • Former: Heidi W. Junk (2021–2024) — Vice President
  • Former: Michael Kaplan (2021–2024) — Treasurer
  • Former: Jim Davis Jr. (2020–2022) — Director
  • Former: Yvette Cozier Dsc MPH (2021–2022) — Director
  • Former: Andrea Wilson (2020) — Director
  • Former: Azmi Nabulsi (2020) — Director
  • Former: Kirk Allen (2020) — Director
  • Former: Louie Hondros (2020) — Treasurer
  • Former: Mary Ellen Carroll (2020) — Director
  • Former: Reading Wilson (2020) — Director

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Mary McGowan — President & CEO: $298KMary McGowanPresident & CEO$298KTricha Shivas — Chief of Staff and Strategy: $249KTricha ShivasChief of Staff and Strategy$249KElise Hoover — VP of Research: $150KElise HooverVP of Research$150KDavid Fischer — Director of Operations: $103KDavid FischerDirector of Operations$103K

The highest reported compensation on the 2025 filing was $298K, to Mary McGowan (President & CEO). 4 officers or directors reported compensation on that filing.

Frequently asked questions about Foundation for Sarcoidosis Research

How much does Foundation for Sarcoidosis Research give each year?

Foundation for Sarcoidosis Research gave $450K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $838K across 12 grants.

What is Foundation for Sarcoidosis Research's typical grant size?

Foundation for Sarcoidosis Research's median grant in 2025 was $100,000, and its average grant was $112,500, across 4 grants on its 2025 IRS Form 990.

Where does Foundation for Sarcoidosis Research give grants?

Foundation for Sarcoidosis Research's top state is Colorado, with 33% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Maryland (22%) and Illinois (22%).

Does Foundation for Sarcoidosis Research give general operating support?

Not in 2025: none of the 4 grants with a stated purpose on Foundation for Sarcoidosis Research's 2025 IRS Form 990 were described as general or operating support.

How large is Foundation for Sarcoidosis Research?

Foundation for Sarcoidosis Research reported $18.8M in total assets on its 2025 IRS Form 990. Its revenue that year was $4.7M.

What is Foundation for Sarcoidosis Research's EIN?

Foundation for Sarcoidosis Research's EIN (Employer Identification Number) is 36-4378232. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated November 2026. Sourced from IRS Form 990 filings.

Data update history

(7)

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS September 4, 2026)
  2. Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS November 11, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS November 10, 2023)
  5. Updated Form 990 for fiscal year 2023 (received by the IRS November 5, 2024)
  6. Added Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
  7. IRS filings on file for fiscal years 2020–2023

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Foundation for Sarcoidosis Research's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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