Tatton Brown Rahman Syndrome Community Inc
TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
Tatton Brown Rahman Syndrome Community Inc at a glance
In short: Tatton Brown Rahman Syndrome Community Inc gave $82K across 2 grants in 2025 (avg $41K), mostly in Missouri. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $82,000
- +720.0% vs 2024
- Grants made (2025)
- 2
- +100.0% vs 2024
- Average grant
- $41,000
- +310.0% vs 2024
- Median grant
- $41,000
- Total assets
- $781,995
- +13.1% vs 2024
- Primary geography
- Missouri (91% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Tatton Brown Rahman Syndrome Community Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Washington University ($75K). Together the top 2 received $82K.
Grant Size Distribution
7 grants across all recorded years
The most common grant size was under $50K: 6 grants of 7 (86%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
Cities
How Tatton Brown Rahman Syndrome Community Inc gives
- Giving grew 720% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $10K (2022) to $82K (2025). In 2025 it made 2 grants totaling $82K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Washington University Saint Louis, MO | Research | $75,000 |
| Unravel Bioscience Medford, MA | Research | $7,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $781,995 | $349,738 | $329,642 | $82,000 | 2 | $22,386 |
| 2024 | $691,528 | $270,669 | $399,562 | $10,000 | 1 | $28,126 |
| 2023 | $868,444 | $309,002 | $333,744 | $20,000 | 1 | $16,493 |
| 2022 | $832,865 | $165,360 | $157,087 | $10,000 | 1 | — |
| 2021 | $422,765 | $337,246 | $62,026 | $21,115 | 2 | — |
| 2020 | $140,714 | $97,655 | $24,397 | — | — | — |
About Tatton Brown Rahman Syndrome Community Inc
Based on IRS filings
Tatton Brown Rahman Syndrome Community Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanfordville, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $782K in total assets. In 2025, it awarded 2 grants totaling $82K. Net investment income was $22K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Tatton Brown Rahman Syndrome Community Inc is led by Jill Kiernan, Executive Director since 2021 (on filings since 2020); 1 of 8 officers listed in 2025 is compensated.
Officers on the 2025 filing
Jill Kiernan
Executive Director
President → Executive Director, 2021
On filings since 2020
40 hrs/week
$24K (2021) → $76K (2025)
Kacee Richter
President
Board Chair → President, 2021
On filings since 2020
10 hrs/week
No compensation reported
Monic Bejano
Director
On filings since 2024
1 hr/week
No compensation reported
Robert Thibodeau
Director
On filings since 2024
1 hr/week
No compensation reported
Kerry Grens
Vice President
On filings since 2020
5 hrs/week
No compensation reported
Erin Rooker
Marketing Manager
Marketing Director → Marketing Manager, 2022
On filings since 2021
5 hrs/week
No compensation reported
Zoe Wisnoski
Secretary
Director → Secretary, 2025
On filings since 2024
1 hr/week
No compensation reported
Tim Bernier
Treasurer
New on the 2025 filing
5 hrs/week
No compensation reported
Former officers (4)
- Former: Thomas Watson (2022–2024) — Treasurer
- Former: Jennifer York Isaacs (2022–2023) — Secretary
- Former: Jennifer York-Isaacs (2020–2021) — Secretary
- Former: Tom Watson (2020–2021) — Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $76K, to Jill Kiernan (Executive Director).
Frequently asked questions about Tatton Brown Rahman Syndrome Community Inc
How much does Tatton Brown Rahman Syndrome Community Inc give each year?
Tatton Brown Rahman Syndrome Community Inc gave $82K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $10K across 1 grant.
How large is Tatton Brown Rahman Syndrome Community Inc?
Tatton Brown Rahman Syndrome Community Inc reported $782K in total assets on its 2025 IRS Form 990. Its revenue that year was $350K.
What is Tatton Brown Rahman Syndrome Community Inc?
Tatton Brown Rahman Syndrome Community Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanfordville, NY. It holds $782K in total assets as of 2025.
Where does Tatton Brown Rahman Syndrome Community Inc operate?
Tatton Brown Rahman Syndrome Community Inc has awarded grants in Massachusetts, Missouri, Pennsylvania.
What is Tatton Brown Rahman Syndrome Community Inc's EIN?
Tatton Brown Rahman Syndrome Community Inc's EIN (Employer Identification Number) is 81-2216511. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS September 4, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 2, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 22, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 27, 2026)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- IRS filings on file for fiscal years 2020–2024
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