Castleman Disease Collaborative Network
To develop awareness of castleman's disease and to raise money to fund education and laboratory research to determine cause, treatment and ultimate cure.
Castleman Disease Collaborative Network at a glance
In short: Castleman Disease Collaborative Network gave $298K across 2 grants in 2024 (avg $149K), mostly in Pennsylvania. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $298,000
- -6.9% vs 2023
- Grants made (2024)
- 2
- -33.3% vs 2023
- Average grant
- $149,000
- +39.6% vs 2023
- Median grant
- $149,000
- Total assets
- $2,977,786
- +0.6% vs 2023
- Primary geography
- Pennsylvania (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Castleman Disease Collaborative Network funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was University of Pennsylvania ($278K). Together the top 2 received $298K.
Grant Size Distribution
16 grants across all recorded years
The most common grant size was under $50K: 8 grants of 16 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How Castleman Disease Collaborative Network gives
- Giving held roughly steady from 2021 to 2024 (−19%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $137K (2022) to $367K (2021). In 2024 it made 2 grants totaling $298K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania Philadelphia, PA | Medical Research | $278,000 |
| Uplifting Athletes Inc Doylestown, PA | Medical Research | $20,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,977,786 | $979,030 | $961,126 | $298,000 | 2 | $143,454 |
| 2023 | $2,959,883 | $1,265,979 | $827,118 | $320,099 | 3 | $72,815 |
| 2022 | $2,521,021 | $898,672 | $442,509 | $137,200 | 3 | $10,311 |
| 2021 | $2,064,859 | $788,631 | $670,727 | $366,800 | 3 | $190 |
| 2020 | $1,946,955 | $1,031,462 | $615,045 | $312,566 | 5 | $5,702 |
About Castleman Disease Collaborative Network
Based on IRS filings
Castleman Disease Collaborative Network is a public charity focused on Medical Research, based in Paso Robles, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.0M in total assets. In 2024, it awarded 2 grants totaling $298K. Net investment income was $143K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Castleman Disease Collaborative Network is led by David Fajgenbaum, President since 2022 (on filings since 2020); none of the 10 officers listed in 2024 report compensation.
Officers on the 2024 filing
David Fajgenbaum
President
Executive Director → President, 2022
On filings since 2020
No compensation reported
Greg Pacheco
Chairman
President & CEO → Chairman, 2022
On filings since 2020
No compensation reported
Bette Jacobs
Director
On filings since 2020
No compensation reported
Kevin Silk
Director
On filings since 2020
No compensation reported
Peter Buckman
Director
On filings since 2021
No compensation reported
Katherine Haeusel
Director
On filings since 2022
No compensation reported
Tim Huval
Director
On filings since 2022
No compensation reported
Charlyn Pacheco
Secretary
On filings since 2020
No compensation reported
Jason Clark Diefenderfer
Vice President
On filings since 2020
No compensation reported
Michael Stief
Treasurer
On filings since 2020
No compensation reported
Former officers (1)
- Former: Kim Driscoll (2020–2023) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Castleman Disease Collaborative Network
How much does Castleman Disease Collaborative Network give each year?
Castleman Disease Collaborative Network gave $298K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $320K across 3 grants.
How large is Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network reported $3.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $979K.
What is Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network is a public charity focused on Medical Research, based in Paso Robles, CA. It holds $3.0M in total assets as of 2024.
Where does Castleman Disease Collaborative Network operate?
Castleman Disease Collaborative Network has awarded grants in California, New York, Pennsylvania.
What is Castleman Disease Collaborative Network's EIN?
Castleman Disease Collaborative Network's EIN (Employer Identification Number) is 37-1510354. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 7, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 5, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Castleman Disease Collaborative Network funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Castleman Disease Collaborative Network's focus areas in our free grants database
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