TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.0M
+0.6% YoY
Annual Giving
$298K
-6.9% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$149K
+39.6% YoY
About Castleman Disease Collaborative Network
Based on IRS filings
Castleman Disease Collaborative Network is a nonprofit organization focused on Medical Research, based in PASO ROBLES, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.0M in total assets. In 2024, it awarded 2 grants totaling $298K. Net investment income was $143K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,977,786 | $2,959,883 | $2,521,021 |
| Revenue | $979,030 | $1,265,979 | $898,672 |
| Expenses | $961,126 | $827,118 | $442,509 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $143,454 | $72,815 | $10,311 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
16 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Pennsylvania ($278,000), Uplifting Athletes Inc ($20,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF PENNSYLVANIA PHILADELPHIA, PA | MEDICAL RESEARCH | $278,000 |
| UPLIFTING ATHLETES INC DOYLESTOWN, PA | MEDICAL RESEARCH | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KATHERINE HAEUSEL | Director | — | — |
| KEVIN SILK | Director | — | — |
| BETTE JACOBS | Director | — | — |
| PETER BUCKMAN | Director | — | — |
| TIM HUVAL | Director | — | — |
| CHARLYN PACHECO | Secretary | — | — |
| GREG PACHECO | Chairman | — | — |
| JASON CLARK DIEFENDERFER | Vice President | — | — |
| DAVID FAJGENBAUM | President | — | — |
| MICHAEL STIEF | Treasurer | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network is a nonprofit organization focused on Medical Research, based in PASO ROBLES, CA. It holds $3.0M in total assets as of 2024.
How large is Castleman Disease Collaborative Network?
As of 2024, Castleman Disease Collaborative Network holds $3.0M in total assets with $979K in annual revenue. It awarded 2 grants totaling $298K in 2024.
Where does Castleman Disease Collaborative Network operate?
Castleman Disease Collaborative Network has awarded grants in California, New York, Pennsylvania.
What size grants does Castleman Disease Collaborative Network award?
In 2024, Castleman Disease Collaborative Network awarded 2 grants totaling $298K — an average of about $149K per grant, based on its IRS Form 990 filings.
What is Castleman Disease Collaborative Network's EIN?
Castleman Disease Collaborative Network's EIN (Employer Identification Number) is 37-1510354. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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