Castleman Disease Collaborative Network
TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.
Key facts about Castleman Disease Collaborative Network
- EIN
- 37-1510354
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $298,000
- Grants made (2024)
- 2
- Average grant
- $149,000
- Median grant
- $149,000
- Total assets
- $2,977,786
- Primary geography
- Pennsylvania (100% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated September 2026.
How Castleman Disease Collaborative Network gives
- Giving held roughly steady from 2021 to 2024 (−19%). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Castleman Disease Collaborative Network
- How to evaluate Castleman Disease Collaborative Network as a funder
Our grant prospecting guide: read the 990-PF, check fit, and decide whether to apply.
- Draft an LOI to Castleman Disease Collaborative Network with AI
AI grant writing that drafts from your organization’s own materials, in your voice.
- Track this opportunity in a free grant tracker
A free Google Sheets or Excel template for deadlines, award terms, and reports due.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.0M
+0.6% YoY
Annual Giving
$298K
-6.9% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$149K
+39.6% YoY
About Castleman Disease Collaborative Network
Based on IRS filings
Castleman Disease Collaborative Network is a nonprofit organization focused on Medical Research, based in Paso Robles, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.0M in total assets. In 2024, it awarded 2 grants totaling $298K. Net investment income was $143K.
Focus Areas
Ready to take the next step with Castleman Disease Collaborative Network?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 2 itemized 2024 grant dollars.
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,977,786 | $2,959,883 | $2,521,021 |
| Revenue | $979,030 | $1,265,979 | $898,672 |
| Expenses | $961,126 | $827,118 | $442,509 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $143,454 | $72,815 | $10,311 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
16 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include University of Pennsylvania ($278,000), Uplifting Athletes Inc ($20,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF PENNSYLVANIA Philadelphia, PA | MEDICAL RESEARCH | $278,000 |
| UPLIFTING ATHLETES INC Doylestown, PA | MEDICAL RESEARCH | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
No officer or director reported compensation in the available filings.
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Katherine Haeusel | Director | — | — |
| Kevin Silk | Director | — | — |
| Bette Jacobs | Director | — | — |
| Peter Buckman | Director | — | — |
| Tim Huval | Director | — | — |
| Charlyn Pacheco | Secretary | — | — |
| Greg Pacheco | Chairman | — | — |
| Jason Clark Diefenderfer | Vice President | — | — |
| David Fajgenbaum | President | — | — |
| Michael Stief | Treasurer | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Castleman Disease Collaborative Network?
Castleman Disease Collaborative Network is a nonprofit organization focused on Medical Research, based in Paso Robles, CA. It holds $3.0M in total assets as of 2024.
How large is Castleman Disease Collaborative Network?
As of 2024, Castleman Disease Collaborative Network holds $3.0M in total assets with $979K in annual revenue. It awarded 2 grants totaling $298K in 2024.
Where does Castleman Disease Collaborative Network operate?
Castleman Disease Collaborative Network has awarded grants in California, New York, Pennsylvania.
What size grants does Castleman Disease Collaborative Network award?
In 2024, Castleman Disease Collaborative Network awarded 2 grants totaling $298K — an average of about $149K per grant, based on its IRS Form 990 filings.
What is Castleman Disease Collaborative Network's EIN?
Castleman Disease Collaborative Network's EIN (Employer Identification Number) is 37-1510354. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Castleman Disease Collaborative Network's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
The Kansas City Royals Foundation
Kansas City, MO
Assets
$780K
Grants
83
Total Given
$2.4M
Pharmaceutical Research and Manufacturers of America
Washington, DC
Assets
$349.0M
Grants
461
Total Given
$41.4M
Aplastic Anemia & MDS International
Rockville, MD
Assets
$7.5M
Grants
3
Total Given
$90K
The Angel Family Foundation
New York, NY
Assets
$24.0M
Grants
21
Total Given
$1.7M
Rory Belle Foundation
Denver, CO
Assets
$468K
Grants
1
Total Given
$10K
The Neuromuscular Disease Foundation
Beverly Hills, CA
Assets
$660K
Grants
3
Total Given
$113K
Global Genes
Washington, DC
Assets
$1.5M
Grants
7
Total Given
$61K
ARID1B Research Foundation Inc
Chevy Chase, MD
Assets
$465K
Grants
1
Total Given
$10K
Asxl Rare Research Endowment Foundation
Gorham, ME
Assets
$1.1M
Grants
3
Total Given
$179K
GRIN2B Foundation
Niles, IL
Assets
$231K
Grants
1
Total Given
$42K
Project 8p Foundation
New York, NY
Assets
$2.9M
Grants
6
Total Given
$460K
Orange County Community Foundation
Irvine, CA
Assets
$688.2M
Grants
894
Total Given
$80.3M
More Funders in California
Data last updated September 2026. Sourced from IRS Form 990-PF filings.