GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.5M
-26.7% YoY
Annual Giving
$61K
-74.8% YoY
Grant Count
7
-68.2% YoY
Avg Grant Size
$9K
-20.9% YoY
About Global Genes
Based on IRS filings
Global Genes is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.5M in total assets. In 2024, it awarded 7 grants totaling $61K. Net investment income was $9K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,538,482 | $2,099,140 | $2,294,462 |
| Revenue | $7,145,531 | $8,469,402 | $5,557,435 |
| Expenses | $7,415,893 | $8,561,859 | $7,700,189 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,473 | $3,487 | $1,739 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
101 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NICOLE R BOICE | FOUNDER & CHIEF MISSION OFFICER | 40 | $254,375 |
| WALT KOWTONIUK | CHAIR | 1 | — |
| KATHERINE MAYNARD | VICE CHAIR | 1 | — |
| SIMON FROST | CFO | 1 | — |
| CHRISTINA HARTMAN | SECRETARY | 1 | — |
| BETSY BOGARD | DIRECTOR | 1 | — |
| KHRYSTAL DAVIS | DIRECTOR | 1 | — |
| ILANA FOGELMAN | DIRECTOR | 1 | — |
| PETER GOODHAND | DIRECTOR | 1 | — |
| HUGH HEMPEL | DIRECTOR | 1 | — |
| RAM IYER | DIRECTOR | 1 | — |
| NEIL KUMAR | DIRECTOR | 1 | — |
| CAROLINE LOEWY | DIRECTOR | 1 | — |
| INDU NAVAR | DIRECTOR | 1 | — |
| DAVID PEARCE | DIRECTOR | 1 | — |
| JOHN REYNDERS | DIRECTOR | 1 | — |
| MORRIE RUFFIN | DIRECTOR | 1 | — |
| ALVIN SHIH | DIRECTOR | 1 | — |
| KELLY MCVEARRY | DIRECTOR | 1 | — |
| CHARLENE SON RIGBY | CEO | 40 | $319,125 |
| VICTORIA WEISS | SENIOR DIRECTOR, FINANCE | 24 | $136,800 |
| KARMEN TRZUPEK | SENIOR DIRECTOR, SCIENTIFIC PROGRAMS | 40 | $179,287 |
| ZOHREH TALEBIZADEH | SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM | 40 | $180,000 |
| LAUREN ALFORD | SENIOR DIRECTOR, MARKETING | 40 | $168,506 |
| TIMOTHY EHRHARD | SENIOR DIRECTOR, IT (TERM 12/24) | 40 | $151,746 |
| CHWENWOAN KUAN | DIRECTOR, PROGRAM OPERATIONS | 40 | $146,285 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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