GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.5M
-26.7% YoY
Annual Giving
$61K
-74.8% YoY
Grant Count
7
-68.2% YoY
Avg Grant Size
$9K
-20.9% YoY
About Global Genes
Based on IRS filings
Global Genes is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.5M in total assets. In 2024, it awarded 7 grants totaling $61K. Net investment income was $9K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,538,482 | $2,099,140 | $2,294,462 |
| Revenue | $7,145,531 | $8,469,402 | $5,557,435 |
| Expenses | $7,415,893 | $8,561,859 | $7,700,189 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $9,473 | $3,487 | $1,739 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
101 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Lhon Collective ($9,000), National Foundation for Ectodermal Dysplasias ($9,000), Oxalosis & Hyperoxaluria Foundation ($9,000).
| Recipient | Purpose | Amount |
|---|---|---|
| LHON COLLECTIVE SAN DIEGO, CA | MENTAL HEALTH IMPACT GRANT | $9,000 |
| CURE JM FOUNDATION LEESBURG, VA | MENTAL HEALTH IMPACT GRANT | $6,750 |
| NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS FAIRVIEW HEIGHTS, IL | MENTAL HEALTH IMPACT GRANT | $9,000 |
| OXALOSIS & HYPEROXALURIA FOUNDATION NEW PALTZ, NY | MENTAL HEALTH IMPACT GRANT | $9,000 |
| PEDIATRIC BRAIN TUMOR FOUNDATION WINSTON SALEM, NC | MENTAL HEALTH IMPACT GRANT | $9,000 |
| THE ALLO HOPE FOUNDATION TUSCALOOSA, AL | MENTAL HEALTH IMPACT GRANT | $9,000 |
| THE SUMAIRA FOUNDATION SOMERVILLE, MA | MENTAL HEALTH IMPACT GRANT | $9,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NICOLE R BOICE | FOUNDER & CHIEF MISSION OFFICER | 40 | $254,375 |
| WALT KOWTONIUK | CHAIR | 1 | — |
| KATHERINE MAYNARD | VICE CHAIR | 1 | — |
| SIMON FROST | CFO | 1 | — |
| CHRISTINA HARTMAN | SECRETARY | 1 | — |
| BETSY BOGARD | DIRECTOR | 1 | — |
| KHRYSTAL DAVIS | DIRECTOR | 1 | — |
| ILANA FOGELMAN | DIRECTOR | 1 | — |
| PETER GOODHAND | DIRECTOR | 1 | — |
| HUGH HEMPEL | DIRECTOR | 1 | — |
| RAM IYER | DIRECTOR | 1 | — |
| NEIL KUMAR | DIRECTOR | 1 | — |
| CAROLINE LOEWY | DIRECTOR | 1 | — |
| INDU NAVAR | DIRECTOR | 1 | — |
| DAVID PEARCE | DIRECTOR | 1 | — |
| JOHN REYNDERS | DIRECTOR | 1 | — |
| MORRIE RUFFIN | DIRECTOR | 1 | — |
| ALVIN SHIH | DIRECTOR | 1 | — |
| KELLY MCVEARRY | DIRECTOR | 1 | — |
| CHARLENE SON RIGBY | CEO | 40 | $319,125 |
| VICTORIA WEISS | SENIOR DIRECTOR, FINANCE | 24 | $136,800 |
| KARMEN TRZUPEK | SENIOR DIRECTOR, SCIENTIFIC PROGRAMS | 40 | $179,287 |
| ZOHREH TALEBIZADEH | SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM | 40 | $180,000 |
| LAUREN ALFORD | SENIOR DIRECTOR, MARKETING | 40 | $168,506 |
| TIMOTHY EHRHARD | SENIOR DIRECTOR, IT (TERM 12/24) | 40 | $151,746 |
| CHWENWOAN KUAN | DIRECTOR, PROGRAM OPERATIONS | 40 | $146,285 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Global Genes?
Global Genes is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WASHINGTON, DC. It holds $1.5M in total assets as of 2024.
How large is Global Genes?
As of 2024, Global Genes holds $1.5M in total assets with $7.1M in annual revenue. It awarded 7 grants totaling $61K in 2024.
Where does Global Genes operate?
Global Genes has awarded grants in Alabama, California, Colorado, Delaware, Florida, Georgia, Idaho, Illinois, Kansas, Kentucky, Louisiana, Massachusetts, Maryland, Maine, Michigan, Minnesota, North Carolina, New Jersey, Nevada, New York, Oklahoma, Oregon, Pennsylvania, Pr, Pw, Tennessee, Texas, Virginia, Washington, Wisconsin.
What size grants does Global Genes award?
In 2024, Global Genes awarded 7 grants totaling $61K — an average of about $9K per grant, based on its IRS Form 990 filings.
What is Global Genes's EIN?
Global Genes's EIN (Employer Identification Number) is 26-3331487. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Global Genes's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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