Child Neurology Education and Research Foundation
The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$739K
-63.6% YoY
Annual Giving
$231K
-37.4% YoY
Grant Count
18
+125.0% YoY
Avg Grant Size
$13K
-72.2% YoY
About Child Neurology Education and Research Foundation
Based on IRS filings
Child Neurology Education and Research Foundation is a nonprofit organization focused on Medical Research, based in LEXINGTON, KY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $739K in total assets. In 2024, it awarded 18 grants totaling $231K. Net investment income was $58K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $739,008 | $2,028,346 | $2,744,200 |
| Revenue | $1,263,681 | $3,146,217 | $1,869,480 |
| Expenses | $1,885,833 | $3,449,342 | $3,680,696 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $57,568 | $70,749 | $-30,731 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
54 grants across all recorded years
Open Grants
10 open opportunities from Child Neurology Education and Research Foundation
Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
Amount
Varies
Deadline
Rolling / Open
CURE Epilepsy Award
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
Amount
$250,000
Deadline
Rolling / Open
CURE Innovator Award
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
Amount
$50,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Louisville Research Foundation Inc ($25,000), Washington University ($19,000), St Marys Hospital for Children ($13,000).
| Recipient | Purpose | Amount |
|---|---|---|
| University of Louisville Research Foundation Inc Louisville, KY | 2023 Quality Improvement Grants Continued - $25000 | $25,000 |
| Washington University St Louis, MO | 2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000 | $19,000 |
| St Marys Hospital for Children Bayside, NY | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Regents of the University of Colorado Aurora, CO | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| ChildServe Foundation Inc Johnston, IA | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 |
| The Trustees of Columbia University New York, NY | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 |
| Childrens Mercy Hospital Kansas City, MO | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Angelman Syndrome Foundation Inc Aurora, IL | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Hugo W Moser Research Institute at Kennedy Krieger Inc Baltimore, MD | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Children Hospital Corporation dba Boston Childrens Hospital Boston, MA | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Amy Brin Jan - Feb | Executive Director | 40 | $312,275 |
| Lindsey Taveren Jul - Dec | Interim Executive Director | 40 | $113,844 |
| Allyson Eyermann | Deputy Director | 40 | $121,718 |
| Breanna McCormley Mar - Jul | Interim Executive Director | 40 | $76,190 |
| Dr Donald Pearl | Director | 2 | — |
| Dr Alison Christy | Director | 1 | — |
| Dr Geetanjali Rathore | Director | 2 | — |
| Jason Schmidt | Director | 2 | — |
| Jason Vinson | Director | 0.5 | — |
| Dr Madeline Chadehumbe | Director | 2 | — |
| Dr Sonika Agarwal | Director | 2 | — |
| Tristin West | Director | 2 | — |
| Dr Peter Kang | Ex Officio Child Neurology Society President | 0.5 | — |
| Dr Yasmin Khakoo | Ex Officio Child Neurology Society President Elect | 4 | — |
| Monique Terrell | Ex Officio Child Neurology Society Executive Director Non-voting Member | 0.25 | — |
| Dr Mary Zupanc | Ex Officio Honorary Director Non-voting member | 4 | — |
| Dr W Donald Shields | Ex Officio Honorary Director Non-voting member | 2 | — |
| Stephen Peters | President | 5 | — |
| Dr M Scott Perry | President Elect | 4 | — |
| Dr Ann Tilton | Past President | 2 | — |
| Dr John Millichap | Secretary | 2 | — |
| Dr Rebecca Schultz Feb - Dec | Treasurer | 2 | — |
| Dr Amaris Sanchez Larragoity | Director | 2 | — |
| Dr Shaun Hussain | Secretary | 2 | — |
| Timothy Engel Jan | Treasurer | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Child Neurology Education and Research Foundation?
Child Neurology Education and Research Foundation is a nonprofit organization focused on Medical Research, based in LEXINGTON, KY. It holds $739K in total assets as of 2024.
How large is Child Neurology Education and Research Foundation?
As of 2024, Child Neurology Education and Research Foundation holds $739K in total assets with $1.3M in annual revenue. It awarded 18 grants totaling $231K in 2024.
Where does Child Neurology Education and Research Foundation operate?
Child Neurology Education and Research Foundation has awarded grants in California, Colorado, District of Columbia, Florida, Georgia, Iowa, Illinois, Kentucky, Massachusetts, Maryland, Minnesota, Missouri, New York, Ohio, Oregon, Pennsylvania, Texas, Utah, Virginia.
What size grants does Child Neurology Education and Research Foundation award?
In 2024, Child Neurology Education and Research Foundation awarded 18 grants totaling $231K — an average of about $13K per grant, based on its IRS Form 990 filings.
What is Child Neurology Education and Research Foundation's EIN?
Child Neurology Education and Research Foundation's EIN (Employer Identification Number) is 41-1984675. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Child Neurology Education and Research Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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