Child Neurology Education and Research Foundation
The Child Neurology Education and Research Foundation is a public charity based in Lexington, Kentucky. It supports education, resources, and support for children and families affected by neurologic conditions, and funds research and scholarships related to pediatric neurologic diseases.
Child Neurology Education and Research Foundation at a glance
In short: Child Neurology Education and Research Foundation gave $231K across 18 grants in 2024 (avg $13K), top state Massachusetts. 88% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $230,500
- -37.4% vs 2023
- Grants made (2024)
- 18
- +125.0% vs 2023
- Average grant
- $12,806
- -72.2% vs 2023
- Median grant
- $13,000
- Total assets
- $739,008
- -63.6% vs 2023
- New grantees (estimate)
- 88% first-time grantees (15 of 17, 2024; small sample)
- Primary geography
- Massachusetts (17% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Child Neurology Education and Research Foundation
- Contact
Mailing address: PO Box 1226, Lexington, KY 40588
Phone: (888) 417-3435
Website: https://childneurologyfoundation.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
12 open opportunities from Child Neurology Education and Research Foundation
Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship
Child Neurology Education and Research Foundation
Amount
Varies
Deadline
Deadline not published
CNF Family Grants (Harnett Grant & RISE Family Grants)
Child Neurology Education and Research Foundation
Amount
$1,000 per grant
Deadline
Deadline not published
CNF Neurodevelopmental Disabilities Summer Scholarship
Child Neurology Education and Research Foundation
Amount
Varies
Deadline
Deadline not published
Who Child Neurology Education and Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of Louisville Research Foundation Inc ($25K). Together the top 10 received $148K.
Organizations only. It also paid 1 individual scholarship ($6,000), which are not listed by name.
Grant Size Distribution
54 grants across all recorded years
The most common grant size was under $50K: 46 grants of 54 (85%).
Geographic Focus
Where this funder awards grants
The foundation is based in Lexington, Kentucky. Its 2024 grants went to recipients in multiple states. The largest reported shares of grant dollars by recipient state were Massachusetts (17%), Missouri (14%), New York (11%), Kentucky (11%), and Colorado (6%).
Grant Distribution by State
Share of 2024 grant dollars across all 18 itemized grants.
States
Cities
Is Child Neurology Education and Research Foundation open to new grantees?
88%
first-time grantees, 2024
In 2024, 15 of 17 grantees (88%) were first-time recipients. With only 17 grantees, that is a small sample: one grantee more or less moves the share by about 6 points. First grants averaged $12K; repeat grants $19K. How we count
Medians: $13K first-time, $19K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $231K (2024) to $447K (2022). In 2024 it made 18 grants totaling $231K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Louisville Research Foundation Inc Louisville, KY | 2023 Quality Improvement Grants Continued - $25000 | $25,000 |
| Washington University St. Louis, MO | 2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000 | $19,000 |
| St Marys Hospital for Children Bayside, NY | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Regents of the University of Colorado Anschutz Medical Campus Aurora, CO | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| ChildServe Foundation Inc Johnston, IA | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 |
| The Trustees of Columbia University New York, NY | 2024 Quality Improvement Care Coordination Grant - $13000 | $13,000 |
| Childrens Mercy Hospital Kansas City, MO | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Angelman Syndrome Foundation Inc Aurora, IL | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Hugo W Moser Research Institute at Kennedy Krieger Inc Baltimore, MD | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
| Children Hospital Corporation dba Boston Childrens Hospital Boston, MA | 2024 Quality Improvement Transition of Care Grant - $13000 | $13,000 |
Ready to take the next step with Child Neurology Education and Research Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $739,008 | $1,263,681 | $1,885,833 | $230,500 | 18 | $57,568 |
| 2023 | $2,028,346 | $3,146,217 | $3,449,342 | $368,000 | 8 | $70,749 |
| 2022 | $2,744,200 | $1,869,480 | $3,680,696 | $446,875 | 7 | $-30,731 |
| 2021 | $4,583,151 | $3,554,448 | $3,190,132 | $298,000 | 7 | $13,506 |
| 2020 | $3,990,213 | $3,558,837 | $2,810,072 | $330,000 | 14 | $16,769 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The foundation’s mission is to serve as a collaborative center of education, resources, and support for children and families living with neurologic conditions, and to connect them with medical professionals. Its stated vision is that all children affected by neurologic disorders reach their full potential.
Its grantmaking includes research and scholarships for child neurologists, medical students, institutions, and researchers. The 2024 filing also describes Quality Improvement Grants addressing transition of care and care coordination. Its family grant programs include support for families affected by infantile spasms.
Examples of supported organizations illustrate the range of grantees. The University of Louisville Research Foundation says its purpose is to promote and support research, clinical services, and other activities related to the university’s mission. ChildServe Foundation says it partners with families to help children with special health care needs live a great life. St. Mary’s Hospital for Children describes its work as improving the health and quality of life of children and young adults with special health care needs through specialized services.
Grantmaking
In filing year 2024, the foundation reported 18 grants totaling $230,500. Grants ranged from $6,000 to $25,000, with a median of $13,000. The filing describes Quality Improvement Grants for transition of care and care coordination, as well as Dr. Kenneth F. Swaiman Medical Student Scholarships and a Neurodevelopmental Disabilities Summer Research Scholarship.
Notable 2024 recipients included the University of Louisville Research Foundation ($25,000), Washington University ($19,000), and St. Mary’s Hospital for Children, the Regents of the University of Colorado, ChildServe Foundation, and the Trustees of Columbia University ($13,000 each). The filing also reports awards to 13 organizations for Quality Improvement Grants in 2024.
The foundation’s website describes a $1,000 Harnett Mini-Grant for a child with infantile spasms and caregivers, and the foundation’s grant-program information also lists RISE Family Grants of $1,000 for families living with infantile spasms. The website’s 2026 medical-student scholarship application cycle closed on March 30, 2026; that deadline has passed.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Amy Brin as Executive Director from January through February, Breanna McCormley as Interim Executive Director from March through July, and Lindsey Taveren as Interim Executive Director from July through December. Allyson Eyermann is listed as Deputy Director.
Directors listed on the filing are Dr. Donald Pearl, Dr. Alison Christy, Dr. Geetanjali Rathore, Jason Schmidt, Jason Vinson, and Dr. Madeline Chadehumbe.
Child Neurology Education and Research Foundation is led by Amy Brin Jan - Feb, Executive Director on the 2024 filing; 4 of 25 officers listed in 2024 are compensated.
Officers on the 2024 filing
Amy Brin Jan - Feb
Executive Director
New on the 2024 filing
40 hrs/week
$312K (2024)
Breanna McCormley Mar - Jul
Interim Executive Director
New on the 2024 filing
40 hrs/week
$76K (2024)
Lindsey Taveren Jul - Dec
Interim Executive Director
New on the 2024 filing
40 hrs/week
$114K (2024)
Stephen Peters
President
Treasurer → President-Elect, 2021
President-Elect → President, 2023
On filings since 2020
5 hrs/week
No compensation reported
Monique Terrell
Executive Officio Child Neurology Society Executive Director Non-Voting Member
On filings since 2022
0.3 hrs/week
No compensation reported
Peter Kang
Executive Officio Child Neurology Society President
Executive Officio Child Neurology Society President-Elect → Executive Officio Child Neurology Society President, 2023
On filings since 2022
0.5 hrs/week
No compensation reported
Donald Pearl
Director
On filings since 2020
2 hrs/week
No compensation reported
Mary Zupanc
Executive Officio Honorary Director Non-Voting Member
Director → Non-Voting Honorary Director, 2021
Non-Voting Honorary Director → Executive Officio Honorary Director Non-Voting Member, 2022
On filings since 2020
4 hrs/week
No compensation reported
W Donald Shields
Executive Officio Honorary Director Non-Voting Member
Honorary Director of Bod → Non-Voting Honorary Director, 2021
Non-Voting Honorary Director → Executive Officio Honorary Director Non-Voting Member, 2022
On filings since 2020
2 hrs/week
No compensation reported
Sonika Agarwal
Director
On filings since 2021
2 hrs/week
No compensation reported
Amaris Sanchez Larragoity
Director
On filings since 2022
2 hrs/week
No compensation reported
Madeline Chadehumbe
Director
On filings since 2022
2 hrs/week
No compensation reported
Alison Christy
Director
New on the 2024 filing
1 hr/week
No compensation reported
Geetanjali Rathore
Director
New on the 2024 filing
2 hrs/week
No compensation reported
Jason Schmidt
Director
New on the 2024 filing
2 hrs/week
No compensation reported
Jason Vinson
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Tristin West
Director
New on the 2024 filing
2 hrs/week
No compensation reported
Allyson Eyermann
Deputy Director
New on the 2024 filing
40 hrs/week
$122K (2024)
Ann Tilton
Past President
Non-Voting Honorary Director → Executive Officio Honorary Director Non-Voting Member, 2022
Executive Officio Honorary Director Non-Voting Member → Past President, 2023
On filings since 2020
2 hrs/week
No compensation reported
M Scott Perry
President Elect
Director → President Elect, 2023
On filings since 2020
4 hrs/week
No compensation reported
Shaun Hussain
Secretary
On filings since 2020
2 hrs/week
No compensation reported
John Millichap
Secretary
Director → Secretary, 2024
On filings since 2021
2 hrs/week
No compensation reported
Rebecca Schultz Feb - Dec
Treasurer
New on the 2024 filing
2 hrs/week
No compensation reported
Timothy Engel Jan
Treasurer
New on the 2024 filing
No compensation reported
Yasmin Khakoo
Executive Officio Child Neurology Society President Elect
New on the 2024 filing
4 hrs/week
No compensation reported
Former officers (21)
- Former: Anup Patel (2020–2023) — Former President
- Former: Scott Pomeroy (2020–2023) — Former Past-President
- Former: Bruce Cohen (2021–2023) — Executive Officio Child Neurology Society Past President
- Former: Rebecca Schultz (2021–2023) — Director
- Former: Timothy Engel (2021–2023) — Treasurer
- Former: Amy Brin Executive Director (2022–2023) — Executive Officio Non-Voting Member
- Former: Breanna McCormley Former (2023) — Director of Development
- Former: Greta Wright (2020–2022) — Chief Operations Officer
- Former: Katie Hentges (2022) — Director of Programs
- Former: Amy Brin (2020–2021) — Executive Director Non-Voting Member
- Former: Julie Gilbert (2020–2021) — Director
- Former: Phillip Pearl (2020–2021) — Executive Officio Child Neurology Society Past-President
- Former: Roger Larson (2020–2021) — Non-Voting Executive Officio Child Neurology Society Executive Director
- Former: Amaris Sanchez-Larragoity (2021) — Director
- Former: Carol MacMillan (2021) — Director
- Former: Loren Wood (2021) — Vice President Marketing Non-Voting Member
- Former: John Hutchins (2020) — Director
- Former: Jonathan Mink (2020) — Ex-Officio Director
- Former: Sandra Cushner Weinstein (2020) — Director
- Former: Sue Yudovin (2020) — Director
- Former: Thomas Langan (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $312K, to Amy Brin Jan - Feb (Executive Director). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Child Neurology Education and Research Foundation
How much does Child Neurology Education and Research Foundation give each year?
Child Neurology Education and Research Foundation gave $231K across 18 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $368K across 8 grants.
What is Child Neurology Education and Research Foundation's typical grant size?
Child Neurology Education and Research Foundation's median grant in 2024 was $13,000, and its average grant was $12,806, across 18 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Child Neurology Education and Research Foundation that year got $12K on average.
Where does Child Neurology Education and Research Foundation give grants?
Child Neurology Education and Research Foundation's top state is Massachusetts, with 17% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Missouri (14%) and New York (11%). The most frequent recipient cities were Boston, MA (3 grants).
Does Child Neurology Education and Research Foundation give general operating support?
Not in 2024: none of the 18 grants with a stated purpose on Child Neurology Education and Research Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "2024 Quality Improvement Transition of Care Grant - $13000" (7 grants), "2024 Quality Improvement Care Coordination Grant - $13000" (5 grants) and "2024 Swaiman Scholarship - $6000" (3 grants).
Who are Child Neurology Education and Research Foundation's largest grantees?
Child Neurology Education and Research Foundation's largest 2024 grantees include University of Louisville Research Foundation Inc ($25,000), Washington University ($19,000) and St Marys Hospital for Children ($13,000), according to its 2024 IRS Form 990. It also paid 1 individual scholarship ($6,000), which are not listed by name. Together they received 25% of its itemized 2024 grant dollars.
How large is Child Neurology Education and Research Foundation?
Child Neurology Education and Research Foundation reported $739K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.3M.
What does Child Neurology Education and Research Foundation fund?
The foundation’s mission is to serve as a collaborative center of education, resources, and support for children and families living with neurologic conditions, and to connect them with medical professionals. See mission & focus areas ↑
How do I apply for a grant from Child Neurology Education and Research Foundation?
Child Neurology Education and Research Foundation has no public application process in the sources Grantable reviewed. Check childneurologyfoundation.org for current guidelines, or contact the foundation directly before submitting a request.
What is Child Neurology Education and Research Foundation's EIN?
Child Neurology Education and Research Foundation's EIN (Employer Identification Number) is 41-1984675. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 29, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 7, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 31, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 8, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Child Neurology Education and Research Foundation's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Child Neurology Education and Research Foundation funder profile. GrantGraph. Retrieved October 6, 2026, from https://grantable.co/funders/child-neurology-education-and-research-foundation-morg_470cf39964284bd99c31475d5d68350f
BibTeX
@misc{grantable_411984675_2026,
author = {{Grantable}},
title = {{Child Neurology Education and Research Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/child-neurology-education-and-research-foundation-morg_470cf39964284bd99c31475d5d68350f},
note = {Accessed 2026-10-06. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Child Neurology Education and Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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