National Alopecia Areata Foundation
NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those those impacted, and educates the public about the disease.
National Alopecia Areata Foundation at a glance
In short: National Alopecia Areata Foundation gave $284K across 7 grants in 2025 (avg $41K), top state Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $283,747
- +24.7% vs 2024
- Grants made (2025)
- 7
- +16.7% vs 2024
- Average grant
- $40,535
- +6.9% vs 2024
- Median grant
- $45,000
- Total assets
- $4,739,437
- +9.9% vs 2024
- Primary geography
- Pennsylvania (33% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to National Alopecia Areata Foundation
Open Grants
3 open opportunities from National Alopecia Areata Foundation
Early Career Award
National Alopecia Areata Foundation
Amount
Varies
Deadline
Deadline not published
Pediatric Alopecia Areata Challenge Grant
National Alopecia Areata Foundation
Amount
Varies
Deadline
Deadline not published
Research Grants
National Alopecia Areata Foundation
Amount
Varies
Deadline
Deadline not published
Who National Alopecia Areata Foundation funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Trustees of Columbia University in the City of New ($84K across 2 grants). Together the top 6 received $284K.
Grant Size Distribution
25 grants across all recorded years
The most common grant size was under $50K: 19 grants of 25 (76%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 7 itemized grants.
Cities
How National Alopecia Areata Foundation gives
- Giving grew 52% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $148K (2023) to $284K (2025). In 2025 it made 7 grants totaling $284K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Trustees of Columbia University in the City of New New York, NY | Research | $53,750 |
| PeDRA Portland, OR | Research | $50,000 |
| Penn State University University Park, PA | Research | $50,000 |
| The Trustees of the University of Pennsylvania Philadelphia, PA | Research | $45,000 |
| Brigham and Women's Hospital Boston, MA | Research | $30,000 |
| Trustees of Columbia University in the City of New New York, NY | Research | $30,000 |
| The University of Iowa Iowa City, IA | Research | $24,997 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,739,437 | $3,998,061 | $3,850,182 | $283,747 | 7 | $116,285 |
| 2024 | $4,314,356 | $3,418,405 | $2,978,013 | $227,488 | 6 | $231,917 |
| 2023 | $3,489,660 | $3,613,350 | $2,545,046 | $147,728 | 4 | $146,088 |
| 2022 | $2,724,730 | $2,397,922 | $2,381,788 | $186,429 | 3 | $-79,331 |
| 2021 | $2,313,900 | $2,187,420 | $1,760,033 | $161,190 | 5 | $12,651 |
| 2020 | $2,076,204 | $1,644,129 | $1,957,606 | $198,274 | 4 | $16,645 |
About National Alopecia Areata Foundation
Based on IRS filings
National Alopecia Areata Foundation is a public charity focused on Medical Research, based in Novato, CA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $4.7M in total assets. In 2025, it awarded 7 grants totaling $284K. Net investment income was $116K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Alopecia Areata Foundation is led by Nicole Friedland, President & CEO on every filing since 2022; 6 of 20 officers listed in 2025 are compensated.
Officers on the 2025 filing
Nicole Friedland
President & CEO
On filings since 2022
40 hrs/week
$215K (2022) → $328K (2025)
Ann Hollins
Chair
Director Chair-Part → Chair, 2022
On filings since 2020
4 hrs/week
No compensation reported
Jenna Smith
Marketing & Communications Director
New on the 2025 filing
40 hrs/week
$110K (2025)
Bonnie Chong
Director
Vice Chair → Chair, 2024
Chair → Director, 2025
On filings since 2020
4 hrs/week
No compensation reported
Jonelle Massey
Director
Director - Part → Director, 2022
On filings since 2020
2 hrs/week
No compensation reported
Simon Rubenstein
Director
Director - Part → Secretary, 2022
Secretary → Director, 2024
On filings since 2020
2 hrs/week
No compensation reported
Ron Saca
Director
On filings since 2022
2 hrs/week
No compensation reported
Brett King
Director
On filings since 2023
2 hrs/week
No compensation reported
Shamsha Damani
Director
On filings since 2023
2 hrs/week
No compensation reported
David Granson
Director
On filings since 2024
2 hrs/week
No compensation reported
Lisa Bard Levine
Director
On filings since 2024
2 hrs/week
No compensation reported
Ruth Rama-Witt
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Shawn Borisoff
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Laura Maciag
Chief Operating Officer
On filings since 2022
40 hrs/week
$121K (2022) → $204K (2025)
Lisa Anderson
Vice President of Research & Education
Senior Director & Research → Vice President of Research & Education, 2025
On filings since 2023
40 hrs/week
$109K (2023) → $144K (2025)
Robert Baker III
Chief Growth Officer
On filings since 2023
40 hrs/week
$129K (2023) → $192K (2025)
George Gondo
Chief Mission Officer
New on the 2025 filing
40 hrs/week
$160K (2025)
Jim OConnell
Chief Financial Officer
Director - Part → Chief Financial Officer, 2022
On filings since 2020
4 hrs/week
No compensation reported
Maureen McGettigan
Secretary
Director - Part → Director, 2022
Director → Secretary, 2024
On filings since 2020
4 hrs/week
No compensation reported
Tyrone Folliard-Olson
Vice Chair
Director - Part → Director, 2022
Director → Vice Chair, 2024
On filings since 2020
4 hrs/week
No compensation reported
Former officers (15)
- Former: Ann S Hedges (2020–2024) — Director
- Former: Deirdre Nero (2020–2024) — Director
- Former: Wendy Yu (2022–2024) — Director
- Former: Gary Sherwood (2024) — Communications Director
- Former: Judith Williams (2024) — Support & Education Director
- Former: Jeanne Rappoport (2020–2023) — Chief Administrative Officer
- Former: Amanda Wagner (2020–2022) — Director
- Former: Salman Hussain (2020–2022) — Director
- Former: Calvin A Bryant (2020–2021) — CEO
- Former: Jerry Knutson (2020–2021) — Director Cfo-Part
- Former: Kathleen Hanni (2021) — Cds
- Former: Robert Flint (2021) — Director-Part
- Former: Bob Flint (2020) — Director - Part
- Former: Dory Kranz (2020) — Prior CEO
- Former: Kimberly Shanahan (2020) — Director - Part
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $328K, to Nicole Friedland (President & CEO). 6 officers or directors reported compensation on that filing.
Frequently asked questions about National Alopecia Areata Foundation
How much does National Alopecia Areata Foundation give each year?
National Alopecia Areata Foundation gave $284K across 7 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $227K across 6 grants.
What is National Alopecia Areata Foundation's typical grant size?
National Alopecia Areata Foundation's median grant in 2025 was $45,000, and its average grant was $40,535, across 7 grants on its 2025 IRS Form 990.
Where does National Alopecia Areata Foundation give grants?
National Alopecia Areata Foundation's top state is Pennsylvania, with 33% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were New York (30%) and Oregon (18%). The most frequent recipient cities were New York, NY (2 grants).
Does National Alopecia Areata Foundation give general operating support?
Not in 2025: none of the 7 grants with a stated purpose on National Alopecia Areata Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (7 grants).
Who are National Alopecia Areata Foundation's largest grantees?
National Alopecia Areata Foundation's largest 2025 grantees include Trustees of Columbia University in the City of New ($83,750 across 2 grants), PeDRA ($50,000) and Penn State University ($50,000), according to its 2025 IRS Form 990. Together they received 65% of its itemized 2025 grant dollars.
How large is National Alopecia Areata Foundation?
National Alopecia Areata Foundation reported $4.7M in total assets on its 2025 IRS Form 990. Its revenue that year was $4.0M.
What is National Alopecia Areata Foundation?
National Alopecia Areata Foundation is a public charity focused on Medical Research, based in Novato, CA. It holds $4.7M in total assets as of 2025.
What is National Alopecia Areata Foundation's EIN?
National Alopecia Areata Foundation's EIN (Employer Identification Number) is 94-2780249. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS December 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS December 8, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS April 12, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 26, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 30, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS April 28, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work National Alopecia Areata Foundation funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in National Alopecia Areata Foundation's focus areas in our free grants database
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