American Parkinson Disease Assoc
American Parkinson Disease Association (APDA) is a public charity based in Staten Island, New York. Founded in 1961, it supports people affected by Parkinson’s disease through education, patient and community services, public awareness, and research funding.
Key facts about American Parkinson Disease Assoc
In short: American Parkinson Disease Assoc gave $4.4M across 57 grants in 2025 (avg $77K), top state Massachusetts. 32% of 2025 grantees were new. Source: 2025 IRS Form 990.
- EIN
- 13-1962771
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $4,362,523
- Grants made (2025)
- 57
- Average grant
- $76,535
- Median grant
- $54,167
- New grantees (estimate)
- 32% first-time grantees (12 of 38, 2025)
- Total assets
- $35,251,185
- Primary geography
- Massachusetts (18% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
Financial Overview
From 2025 IRS Form 990 · Covers 16 months (fiscal year-end changed) · View filing
Total Assets
$35.3M
+16.3% YoY
Annual Giving
$4.4M
Grant Count
57
Avg Grant Size
$77K
Is American Parkinson Disease Assoc open to new grantees?
32%
first-time grantees, 2025
In 2025, 12 of 38 grantees (32%) were first-time recipients. First grants averaged $59K; repeat grants $141K. How we count
Medians: $49K first-time, $108K repeat.
- 42% of 2025 grantees were also funded in 2024. Method
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
APDA’s mission is to provide support, education, research, and community to help everyone impacted by Parkinson’s disease live life to the fullest. Its stated priorities include expanding programs and resources, reaching under-resourced and under-studied communities, strengthening its research grant program, and advancing policy and funding initiatives.
The 2025 filing describes educational publications and public awareness campaigns, patient services and educational programs delivered through chapters, Information & Referral Centers and community partners, and research support. It reports funding eight Centers for Advanced Research; APDA’s website describes nine such centers.
APDA’s research grants support work on Parkinson’s disease pathophysiology, etiology, and treatment, ranging from basic science to rehabilitation-focused projects. Its 2027 Research Grants cycle identifies molecular mechanisms of environmental toxicity in Parkinson’s disease as a special topic. The organization also describes fellowships for researchers and clinicians.
APDA’s 2025 grantees include universities, hospitals, and medical schools. For example, the University of Pittsburgh received $245,000; its stated mission is to serve its region, Pennsylvania, and the nation through education, research, and community partnership. Morehouse School of Medicine received $75,000; it describes its mission as advancing health equity and improving health and well-being, with emphasis on people of color and underserved populations. These are the grantees’ stated missions, not APDA’s.
Grantmaking
In filing year 2025, APDA reported 57 grants totaling $4,362,523. The grants ranged from $7,700 to $293,750, with a median of $54,167. The largest reported grants included $293,750 to the University of Alabama at Birmingham, $245,000 to the University of Pittsburgh, $238,750 to Washington University School of Medicine, and $232,500 to the Brigham & Women’s Hospital. Reported purposes included medical research, support for advanced research centers, fellowships, and Information & Referral services.
APDA’s website describes one-year Research Grants of up to $100,000 for research scientists with an MD, MD/PhD, or PhD. It also describes the George C. Cotzias Memorial Fellowship as a three-year award of $125,000 per year for a physician completing or having completed training in a clinical discipline concerned with nervous-system disorders. The website lists a 2027–2029 Cotzias cycle and a 2027 Research Grants cycle. Their stated application deadlines—June 5, 2026, for full applications—have passed.
Other listed opportunities include post-doctoral fellowships of up to $75,000 per year for two years and a Diversity in Parkinson’s Disease Research Grant. The available program information does not specify a deadline for these opportunities.
For research grants, APDA states that its Scientific Advisory Board recommends recipients and its Board of Directors approves them. The 2025 filing says subsequent payments depend on progress reports and that final reports are required before final payment. For Centers for Advanced Research funded for more than one year, annual progress reports are required; Information & Referral Center payments after the initial payment are also contingent on progress reports.
Open Grants
5 open opportunities from American Parkinson Disease Assoc
APDA Diversity in Parkinson's Disease Research Grant
American Parkinson Disease Assoc
Amount
Varies
Deadline
Deadline not published
APDA: Diversity in Parkinson’s Disease Research Grant
American Parkinson Disease Assoc
Amount
Up to US $75,000
Deadline
Deadline not published
George C. Cotzias, MD, Memorial Fellowship
American Parkinson Disease Assoc
Amount
Varies
Deadline
Deadline not published
Ready to take the next step with American Parkinson Disease Assoc?
Geographic Focus
Where this funder awards grants
APDA describes its services and partnerships as nationwide. Its 2025 grant dollars were distributed across recipient states, with the largest reported shares going to Massachusetts (18%), New York (12%), Alabama (10%), California (8%), and Georgia (7%).
Grant Distribution by State
Share of 2025 grant dollars across all 57 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $1.7M (2022) to $4.4M (2025, 16 months). In 2025 it made 57 grants totaling $4.4M.
*2025: Covers 16 months (fiscal year-end changed).
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was University of Alabama at Birmingham ($385K across 2 grants). Together the top 10 received $2.5M.
Organizations only. It also paid 1 grant to individuals ($37,500), which are not listed by name.
Grant Size Distribution
244 grants across all recorded years
The most common grant size was under $50K: 130 grants of 244 (53%).
Giving History
Grant recipients and amounts by year
*2025: Covers 16 months (fiscal year-end changed).
| Recipient | Purpose | Amount |
|---|---|---|
| University of Alabama at Birmingham Birmingham, AL | Research grant - $93,750, medical research-advanced centers - $125,000 & information and referral - $75,000, | $293,750 |
| University of Pittsburgh Pittsburgh, PA | Medical research - $56,250 & medical research - advanced centers - $188,750 | $245,000 |
| Washington University School of Medicine St. Louis, MO | Medical research - $125,000 & medical research - advanced centers - $113,750 | $238,750 |
| The Brigham & Womens Hospital Boston, MA | Cotzias - $100,000, medical research-advanced centers - $113,750 & medical research - $18,750 | $232,500 |
| Trustees of Boston University Boston, MA | Medical research - $56,250, medical research grant-advanced centers - $113,750 & other grants - rehab center $52,000 | $222,000 |
| Rutgers the State University of NJ Piscataway, NJ | Information and referral - $75,000 & medical research - advanced centers - $113,750 | $188,750 |
| Emory University School of Medicine Atlanta, GA | Fellowship grant - $12,500, medical research grant-advanced centers - $133,750 & information & referral - $25,000 | $171,250 |
| The Brigham & Womens Hospital Boston, MA | Cotzia - $75,000, advanced centers - $31,250 and medical research - $37,500 | $143,750 |
| Cleveland Clinic Foundation Cleveland, OH | Medical Research | $131,250 |
| University of Miami Miller School of Medicine Miami, FL | Information and referral - $75,000 & medical research - $56,250 | $131,250 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants reported |
|---|---|---|---|---|
| 2025 | $35,251,185 | $30,935,042 | $27,639,031 | $4,362,523 |
| 2024 | $30,317,278 | $23,361,566 | $18,328,051 | $3,002,518 |
| 2023 | $23,456,567 | $12,931,965 | $15,357,104 | $2,869,588 |
*2025: Covers 16 months (fiscal year-end changed).
| Metric | 2025* | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $35,251,185 | $30,317,278 | $23,456,567 |
| Revenue | $30,935,042 | $23,361,566 | $12,931,965 |
| Expenses | $27,639,031 | $18,328,051 | $15,357,104 |
| Net Investment Income | $476,403 | $824,494 | $37,254 |
*2025: Covers 16 months (fiscal year-end changed).
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS April 24, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS March 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 3, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 29, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS March 29, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS February 13, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS May 15, 2026)
- IRS filings on file for fiscal years 2019–2025
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Bernard Battista as chairman, Donna JC Fanelli as vice chair, Patrick McDermott as treasurer, and Elena Maestrone Imperato as secretary. It also lists Thomas K. Penett and J. Zoe Beckerman as executive committee members, and Adalynn E. Harris, David G. Standaert, Lisa Esposito, and Mario J. Esposito Jr. as directors. The filing’s narrative identifies Standaert as a nonvoting board member and chair of APDA’s Scientific Advisory Board.
APDA’s website identifies Leslie A. Chambers as president and CEO and David G. Standaert as chair of the Scientific Advisory Board.
American Parkinson Disease Assoc is led by Leslie A. Chambers, President & CEO on every filing since 2019; 10 of 21 officers listed in 2025 are compensated.
Officers on the 2025 filing
Leslie A. Chambers
President & CEO
On filings since 2019
40 hrs/week
$273K (2019) → $344K (2025)
Bernard Battista
Chairman
Director → Treasurer, 2021
Treasurer → Chairman, 2024
On filings since 2019
1.5 hrs/week
No compensation reported
Catherine Krane
Regional Director
Executive Director & Mo Chapter → Regional Director, 2023
On filings since 2022
40 hrs/week
$120K (2022) → $149K (2025)
Jean Allenbach
Regional Director
Executive Director & Nw Chapter → Regional Director, 2023
On filings since 2022
40 hrs/week
$126K (2022) → $153K (2025)
William Patjane
Regional Director
On filings since 2023
40 hrs/week
$129K (2023) → $142K (2025)
David G. Standaert MD PhD
Director
On filings since 2019
0.5 hrs/week
No compensation reported
Lisa Esposito Dvm
Director
On filings since 2019
0.5 hrs/week
No compensation reported
Mario J. Esposito Jr.
Director
Executive Committee Member → Director, 2021
On filings since 2019
0.5 hrs/week
No compensation reported
Sally Ann Esposito Browne
Director
Vice Chair → Secretary, 2024
Secretary → Director, 2025
On filings since 2019
0.5 hrs/week
No compensation reported
Adalynn E. Harris PhD
Director
New on the 2025 filing
0.5 hrs/week
No compensation reported
Eloise Caggiano
Vice President, Development, Mktg & Committee
Vice President Development, Mktg & Communications → Vice President Development, Mktg & Committee, 2024
Vice President Development, Mktg & Committee → Vice President, Development, Mktg & Committee, 2025
On filings since 2019
40 hrs/week
$123K (2019) → $167K (2025)
Rebecca Gilbert
Chief Mission Officer
Vice President & Chief Scientific Officer → Senior Vice President & Chief Scientific Officer, 2022
Senior Vice President & Chief Scientific Officer → Chief Mission Officer, 2023
On filings since 2019
32 hrs/week
$126K (2019) → $222K (2025)
Michelle McDonald
Chief Operations Officer
Senior Vice President, Chapter Development & Field Operations → Senior Vice President Chapter Development, 2022
Senior Vice President Chapter Development → Chief Operations Officer, 2023
On filings since 2020
40 hrs/week
$147K (2020) → $223K (2025)
Rosa Pena
Vice President Program & Services
Vice President, Programs & Services → Vice President Programs & Services, 2024
Vice President Programs & Services → Vice President Program & Services, 2025
On filings since 2022
40 hrs/week
$109K (2022) → $153K (2025)
Anne Hubbard
Chief Public Policy Officer
New on the 2025 filing
40 hrs/week
$99K (2025)
Heather Ann Hays
Vice President & Development
New on the 2025 filing
40 hrs/week
$188K (2025)
Donna Jc Fanelli Dnp
Vice Chair
Director → Secretary, 2021
Secretary → Vice Chair, 2024
On filings since 2019
1.5 hrs/week
No compensation reported
Elena Maestrone Imperato
Secretary
Treasurer → Director, 2021
Director → Secretary, 2025
On filings since 2019
1.5 hrs/week
No compensation reported
Patrick McDermott
Treasurer
Chairman → Executive Committee Member, 2021
Executive Committee Member → Treasurer, 2024
On filings since 2019
1.5 hrs/week
No compensation reported
Thomas K. Penett Esq.
Executive Committee Member
1st Vice Chair → Chairman, 2021
Chairman → Executive Committee Member, 2024
On filings since 2019
0.5 hrs/week
No compensation reported
J. Zoe Beckerman
Executive Committee Member
New on the 2025 filing
0.5 hrs/week
No compensation reported
Former officers (12)
- Former: Athol Cochrane (2019–2024) — Director
- Former: Elizabeth Braun RN (2019–2024) — Director
- Former: Tom Liodice (2024) — Director
- Former: Michael Melnicke (2019–2023) — Director
- Former: Chris Salicco (2023) — Vice President Finance & Administration
- Former: Cheryl Weiner (2019–2021) — Director Finance & Administration
- Former: Robin Kornhaber (2019–2021) — Senior Vice President Programs & Services
- Former: Stephanie Paul (2019–2020) — Senior Vice President Development & Marketing
- Former: Deborah Guyer (2020) — Executive Director & Mo Chapter
- Former: David Butler (2019) — Director to
- Former: Joel A. Miele Jr. (2019) — Director
- Former: Penny Westberry (2019) — Vice President Chapter Development & Field Ope
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $344K, to Leslie a Chambers (President/CEO). 10 officers or directors reported compensation on that filing.
Contact
Mailing address: 2562 Hylan Blvd 61420, Staten Island, NY 10306
Phone: (718) 981-8001
Website: https://apdaparkinson.org
Frequently asked questions about American Parkinson Disease Assoc
How much does American Parkinson Disease Assoc give each year?
American Parkinson Disease Assoc gave $4.4M across 57 grants in 2025, according to its 2025 IRS Form 990. The 2025 filing year covers 16 months because its fiscal year-end changed. In 2024 it gave $3.0M across 40 grants.
What is American Parkinson Disease Assoc's typical grant size?
American Parkinson Disease Assoc's median grant in 2025 was $54,167, and its average grant was $76,535, across 57 grants on its 2025 IRS Form 990. Organizations receiving their first grant from American Parkinson Disease Assoc that year got $59K on average.
Where does American Parkinson Disease Assoc give grants?
American Parkinson Disease Assoc's top state is Massachusetts, with 18% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were New York (12%) and Alabama (10%). The most frequent recipient cities were Boston, MA (6 grants), Atlanta, GA (4 grants), New York, NY (4 grants) and Birmingham, AL (2 grants).
Does American Parkinson Disease Assoc give general operating support?
Not in 2025: none of the 57 grants with a stated purpose on American Parkinson Disease Assoc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Information and Referral" (19 grants), "Medical Research" (9 grants) and "Fellowships" (4 grants).
Who are American Parkinson Disease Assoc's largest grantees?
American Parkinson Disease Assoc's largest 2025 grantees include University of Alabama at Birmingham ($385,417 across 2 grants), The Brigham & Womens Hospital ($376,250 across 2 grants) and Trustees of Boston University ($305,250 across 2 grants), according to its 2025 IRS Form 990. It also paid 1 grant to individuals ($37,500), which are not listed by name. Together they received 24% of its itemized 2025 grant dollars.
How large is American Parkinson Disease Assoc?
American Parkinson Disease Assoc reported $35.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $30.9M.
What does American Parkinson Disease Assoc fund?
APDA’s mission is to provide support, education, research, and community to help everyone impacted by Parkinson’s disease live life to the fullest. See mission & focus areas ↑
How do I apply for a grant from American Parkinson Disease Assoc?
American Parkinson Disease Assoc has no public application process in the sources Grantable reviewed. Check apdaparkinson.org for current guidelines, or contact the foundation directly before submitting a request.
What is American Parkinson Disease Assoc's EIN?
American Parkinson Disease Assoc's EIN (Employer Identification Number) is 13-1962771. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Here's the math on researching American Parkinson Disease Assoc by hand.
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