Hidradenitis Suppurativa Foundation Inc logo

Hidradenitis Suppurativa Foundation Inc

Public charity · Grantmaker Cary, NC EIN: 20-3246772 Website

The mission of the hs foundation is to improve the lives of people affected by hs through advocacy, education and research.

Hidradenitis Suppurativa Foundation Inc at a glance

In short: Hidradenitis Suppurativa Foundation Inc gave $95K across 3 grants in 2022 (avg $32K), mostly in California. Source: 2022 IRS Form 990.

Annual giving (2022)
$95,000
+0.0% vs 2021
Grants made (2022)
3
+0.0% vs 2021
Average grant
$31,667
+0.0% vs 2021
Median grant
$10,000
Primary geography
California (79% of itemized 2022 grant dollars)
Latest 990 filing
Form 990, 2022 View filing

Data from IRS Form 990, 2022; updated September 2026.

Who Hidradenitis Suppurativa Foundation Inc funds

How this funder distributes its grants

Top Recipients

Top 3 recipients in 2022

The Regents of the University of California: $75KThe Regents of the Universityof California$75KThe Pennsylvania State University: $10KThe Pennsylvania StateUniversity$10KThe University of North Carolina at Chapel Hill: $10KThe University of NorthCarolina at Chapel Hill$10K

The largest 2022 recipient was The Regents of the University of California ($75K). Together the top 3 received $95K.

Grant Size Distribution

8 grants across all recorded years

5<$50K3$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 5 grants of 8 (63%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Share of 2022 grant dollars across all 3 itemized grants.

Cities

San FranciscoAtlantaBethesdaChapel HillOaklandRochesterUniversity Park

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$25K$50K$75K$100K2 grants2020 3 grants2021 3 grants2022

From 2020 to 2022, annual grant giving ranged from $85K (2020) to $95K (2022). In 2022 it made 3 grants totaling $95K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
The Regents of the University of California Oakland, CAGrant funding provided to researchers and institutions to support their research advances in hs.$75,000
The Pennsylvania State University University Park, PAGrant funding provided to researchers and institutions to support their research advances in hs.$10,000
The University of North Carolina at Chapel Hill Chapel Hill, NCGrant funding provided to researchers and institutions to support their research advances in hs.$10,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2022—$1,179,185$1,139,182$95,0003$5,546
2021$1,219,380$679,044$386,599$95,0003$2,362
2020$842,509$444,806$241,359$85,0002$4,447

About Hidradenitis Suppurativa Foundation Inc

Based on IRS filings

Hidradenitis Suppurativa Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Cary, NC. IRS filing data is available from 2020 through 2022. In 2022, it awarded 3 grants totaling $95K. Net investment income was $6K.

Leadership & Key People

Officers and directors from IRS filings

Hidradenitis Suppurativa Foundation Inc is led by Brent Hazelett, Executive Director on every filing since 2020; 5 of 18 officers listed in 2022 are compensated.

Officers on the 2022 filing

  • Brent Hazelett

    Executive Director

    On filings since 2020

    45 hrs/week

    $60K (2020) → $225K (2022)

  • Joslyn R. Sciacca Kirby MD

    President

    Board Member → Vice President, 2021

    Vice President → President, 2022

    On filings since 2020

    5 hrs/week

    No compensation reported

  • Amit Garg MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    $4K (2022)

  • Michelle Lowes Mbbs PhD

    Director

    Vice President → Board Member, 2021

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    $3K (2022)

  • Stephanie Goldberg MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    $3K (2022)

  • Athena Gierbolini

    Director

    Board Member → Director, 2022

    On filings since 2021

    1 hr/week

    $3K (2022)

  • Barry Resnik MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    No compensation reported

  • Christopher Sayed MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    No compensation reported

  • Haley Naik MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    No compensation reported

  • Steven Daveluy MD

    Director

    Board Member → Director, 2022

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jennifer Hsiao MD

    Director

    Board Member → Director, 2022

    On filings since 2021

    1 hr/week

    No compensation reported

  • Afsaneh Alavi MD

    Director

    New on the 2022 filing

    1 hr/week

    No compensation reported

  • Donna Atherton

    Director

    New on the 2022 filing

    1 hr/week

    No compensation reported

  • Ginette Okoye MD

    Director

    New on the 2022 filing

    1 hr/week

    No compensation reported

  • Hadar Lev-Tov MD

    Vice President

    Treasurer → Vice President, 2022

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Iltefat Hamzavi MD

    Immediate Past President

    President → Immediate Past President, 2022

    On filings since 2020

    1 hr/week

    No compensation reported

  • Martin Okun MD

    Secretary

    On filings since 2020

    1 hr/week

    No compensation reported

  • Vivian Shi MD

    Treasurer

    Board Member → Treasurer, 2022

    On filings since 2020

    2 hrs/week

    No compensation reported

Former officers (4)
  • Former: Paul Hazen (2020–2021) — Board Member
  • Former: Sandra Guilbault (2020–2021) — Board Member
  • Former: Dennis P. Orgill MD PhD (2020) — Board Member
  • Former: Richard Bennett (2020) — Board Member

Data from IRS Form 990 filings, 2020–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2022 IRS filing

Brent Hazelett — Executive Director: $225KBrent HazelettExecutive Director$225KAmit Garg MD — Director: $4KAmit Garg MDDirector$4KAthena Gierbolini — Director: $3KAthena GierboliniDirector$3KMichelle Lowes MBBS PHD — Director: $3KMichelle Lowes MBBS PHDDirector$3KStephanie Goldberg MD — Director: $3KStephanie Goldberg MDDirector$3K

The highest reported compensation on the 2022 filing was $225K, to Brent Hazelett (Executive Director). 5 officers or directors reported compensation on that filing.

Frequently asked questions about Hidradenitis Suppurativa Foundation Inc

How much does Hidradenitis Suppurativa Foundation Inc give each year?

Hidradenitis Suppurativa Foundation Inc gave $95K across 3 grants in 2022, according to its 2022 IRS Form 990. In 2021 it gave $95K across 3 grants.

What is Hidradenitis Suppurativa Foundation Inc's typical grant size?

Hidradenitis Suppurativa Foundation Inc's median grant in 2022 was $10,000, and its average grant was $31,667, across 3 grants on its 2022 IRS Form 990.

Where does Hidradenitis Suppurativa Foundation Inc give grants?

Hidradenitis Suppurativa Foundation Inc gives mostly in California: 79% of the grant dollars itemized on its 2022 IRS Form 990 went to recipients there. The next largest states were Pennsylvania (11%) and North Carolina (11%).

Does Hidradenitis Suppurativa Foundation Inc give general operating support?

Not in 2022: none of the 3 grants with a stated purpose on Hidradenitis Suppurativa Foundation Inc's 2022 IRS Form 990 were described as general or operating support.

What is Hidradenitis Suppurativa Foundation Inc?

Hidradenitis Suppurativa Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Cary, NC.

What is Hidradenitis Suppurativa Foundation Inc's EIN?

Hidradenitis Suppurativa Foundation Inc's EIN (Employer Identification Number) is 20-3246772. IRS Form 990 filing data is available on this page for 2020–2022.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(1)

When this profile's IRS filing data changed on Grantable

  1. IRS filings on file for fiscal years 2020–2022

Live grants for the work Hidradenitis Suppurativa Foundation Inc funds

Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.

Explore Open Grants

Browse active grant opportunities in Hidradenitis Suppurativa Foundation Inc's focus areas in our free grants database

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

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