Galactosemia Foundation
To educate, support and provide advocacy for those affected by galactosemia.
Galactosemia Foundation at a glance
In short: Galactosemia Foundation gave $89K across 1 grant in 2024 (avg $89K), mostly in Virginia. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $89,329
- +350.3% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $89,329
- +350.3% vs 2023
- Median grant
- $89,329
- Total assets
- $818,648
- +4.7% vs 2023
- Primary geography
- Virginia (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Galactosemia Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was American Institute of Biological Sciences ($89K).
Grant Size Distribution
6 grants across all recorded years
The most common grant size was under $50K: 4 grants of 6 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How Galactosemia Foundation gives
- Giving held roughly steady from 2021 to 2024 (−3%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $20K (2023) to $93K (2021). In 2024 it made 1 grant totaling $89K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| American Institute of Biological Sciences Reston, VA | Research | $89,329 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $818,648 | $385,642 | $350,856 | $89,329 | 1 | $8 |
| 2023 | $781,746 | $477,376 | $258,143 | $19,837 | 1 | $104 |
| 2022 | $564,223 | $376,578 | $301,012 | $36,153 | 1 | $14 |
| 2021 | $489,043 | $229,742 | $181,534 | $92,542 | 3 | $12 |
| 2020 | $440,835 | $229,496 | $88,338 | $48,250 | Total only | $8 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Galactosemia Foundation
Based on IRS filings
Galactosemia Foundation is a public charity focused on Mental Health & Crisis Intervention, based in Albany, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $819K in total assets. In 2024, it awarded 1 grant totaling $89K. Net investment income was $8.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Galactosemia Foundation is led by Nicole Casale, President since 2022 (on filings since 2020); none of the 9 officers listed in 2024 report compensation.
Officers on the 2024 filing
Nicole Casale
President
Treasurer → President, 2022
On filings since 2020
10 hrs/week
No compensation reported
Brittany Cudzilo
Vice President
Outreach Lead → Vice President, 2022
On filings since 2020
2 hrs/week
No compensation reported
Jodi Solari
Communications Lead
On filings since 2020
2 hrs/week
No compensation reported
Keith Topper
Member at Large
On filings since 2020
1 hr/week
No compensation reported
Scott Saylor
Member at Large
Vice President → Treasurer, 2022
Treasurer → Member at Large, 2024
On filings since 2020
1 hr/week
No compensation reported
Kelly Foley
Member at Large
On filings since 2023
1 hr/week
No compensation reported
Gillain Sapia
Member at Large
New on the 2024 filing
1 hr/week
No compensation reported
Jessica Taylor
Treasurer
New on the 2024 filing
5 hrs/week
No compensation reported
Mary Leimbach
Secretary
New on the 2024 filing
2 hrs/week
No compensation reported
Former officers (3)
- Former: Cari Miller (2020–2023) — Secretary
- Former: Kellie Wilcox (2020–2021) — President
- Former: Layne Long (2020–2021) — Conference Chair
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Galactosemia Foundation
How much does Galactosemia Foundation give each year?
Galactosemia Foundation gave $89K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $20K across 1 grant.
How large is Galactosemia Foundation?
Galactosemia Foundation reported $819K in total assets on its 2024 IRS Form 990. Its revenue that year was $386K.
What is Galactosemia Foundation?
Galactosemia Foundation is a public charity focused on Mental Health & Crisis Intervention, based in Albany, NY. It holds $819K in total assets as of 2024.
Where does Galactosemia Foundation operate?
Galactosemia Foundation has awarded grants in Georgia, Utah, Virginia.
What is Galactosemia Foundation's EIN?
Galactosemia Foundation's EIN (Employer Identification Number) is 13-3349708. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 5, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Galactosemia Foundation funds
Mental Health & Crisis Intervention Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Galactosemia Foundation's focus areas in our free grants database
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