To find a cure for epilepsy by promoting and funding patient focused research.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$10.7M
+1.0% YoY
Revenue
$6.1M
-2.1% YoY
Net Investment Income
$492K
+38.2% YoY
Expenses
$6.2M
+3.4% YoY
About Citizens United for Research in Epilepsy
Based on IRS filings
Citizens United for Research in Epilepsy is a nonprofit organization focused on Medical Research, based in CHICAGO, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $10.7M in total assets. Net investment income was $492K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $10,689,964 | $10,587,072 | $10,154,743 |
| Revenue | $6,050,647 | $6,183,163 | $6,231,376 |
| Expenses | $6,196,609 | $5,993,350 | $5,793,113 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $492,012 | $355,902 | $846,777 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
38 grants across all recorded years
Open Grants
5 open opportunities from Citizens United for Research in Epilepsy
CURE Epilepsy Award
Citizens United for Research in Epilepsy
Amount
Varies
Deadline
Rolling / Open
CURE Epilepsy: Catalyst Award
Citizens United for Research in Epilepsy
Amount
Varies
Deadline
Rolling / Open
Rare Epilepsy Partnership Award
Citizens United for Research in Epilepsy
Amount
$100,000
Deadline
September 1, 2026
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Beth Dean | CEO | 37.5 | $329,727 |
| Laura Lubbers | CSO | 37.5 | $330,864 |
| Alysha BIehl | Director of Development | 37.5 | $164,737 |
| John Anderluh | CFO | 37.5 | $115,356 |
| Lisa Cotton | Chair | 4 | — |
| Shalee Cunneen | Secretary | 3 | — |
| Kathy McKenna | Treasurer | 4 | — |
| Steve Austin | Director | 2 | — |
| Irina Colon | Director | 2 | — |
| Kim Borden | Director | 2 | — |
| Roger Heldman | Director | 2 | — |
| Carrie Garman | Director | 2 | — |
| Maureen Flood Rabus | Director | 2 | — |
| David Reifman | Director | 2 | — |
| Walter Kelly | Director | 2 | — |
| Matt Schneider | Director | 2 | — |
| Hannah Whitten | Director | 2 | — |
| Kelly Cervantes | Director | 2 | — |
| Justin Gover | Chair Elect | 2 | — |
| Michael Alexrod | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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