To find a cure for epilepsy by promoting and funding patient focused research.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$10.7M
+1.0% YoY
Revenue
$6.1M
-2.1% YoY
Net Investment Income
$492K
+38.2% YoY
Expenses
$6.2M
+3.4% YoY
About Citizens United for Research in Epilepsy
Based on IRS filings
Citizens United for Research in Epilepsy is a nonprofit organization focused on Medical Research, based in CHICAGO, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $10.7M in total assets. Net investment income was $492K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $10,689,964 | $10,587,072 | $10,154,743 |
| Revenue | $6,050,647 | $6,183,163 | $6,231,376 |
| Expenses | $6,196,609 | $5,993,350 | $5,793,113 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $492,012 | $355,902 | $846,777 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
38 grants across all recorded years
Open Grants
5 open opportunities from Citizens United for Research in Epilepsy
CURE Epilepsy Award
Citizens United for Research in Epilepsy
Amount
Varies
Deadline
Rolling / Open
CURE Epilepsy: Catalyst Award
Citizens United for Research in Epilepsy
Amount
Varies
Deadline
Rolling / Open
Rare Epilepsy Partnership Award
Citizens United for Research in Epilepsy
Amount
$100,000
Deadline
September 1, 2026
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Beth Dean | CEO | 37.5 | $329,727 |
| Laura Lubbers | CSO | 37.5 | $330,864 |
| Alysha BIehl | Director of Development | 37.5 | $164,737 |
| John Anderluh | CFO | 37.5 | $115,356 |
| Lisa Cotton | Chair | 4 | — |
| Shalee Cunneen | Secretary | 3 | — |
| Kathy McKenna | Treasurer | 4 | — |
| Steve Austin | Director | 2 | — |
| Irina Colon | Director | 2 | — |
| Kim Borden | Director | 2 | — |
| Roger Heldman | Director | 2 | — |
| Carrie Garman | Director | 2 | — |
| Maureen Flood Rabus | Director | 2 | — |
| David Reifman | Director | 2 | — |
| Walter Kelly | Director | 2 | — |
| Matt Schneider | Director | 2 | — |
| Hannah Whitten | Director | 2 | — |
| Kelly Cervantes | Director | 2 | — |
| Justin Gover | Chair Elect | 2 | — |
| Michael Alexrod | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Citizens United for Research in Epilepsy?
Citizens United for Research in Epilepsy is a nonprofit organization focused on Medical Research, based in CHICAGO, IL. It holds $10.7M in total assets as of 2024.
How large is Citizens United for Research in Epilepsy?
As of 2024, Citizens United for Research in Epilepsy holds $10.7M in total assets with $6.1M in annual revenue.
Where does Citizens United for Research in Epilepsy operate?
Citizens United for Research in Epilepsy has awarded grants in California, Colorado, Connecticut, Florida, Georgia, Illinois, Kentucky, Massachusetts, Maryland, Montana, North Carolina, New Jersey, New York, Ohio, Pennsylvania, Rhode Island, Tennessee, Texas, Utah, Virginia, Vermont, Washington, Wisconsin.
What is Citizens United for Research in Epilepsy's EIN?
Citizens United for Research in Epilepsy's EIN (Employer Identification Number) is 36-4253176. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Citizens United for Research in Epilepsy's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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