Children's Tumor Foundation
The Children’s Tumor Foundation (CTF) is a public charity based in New York, NY. Founded in 1978, it funds research and works to advance care for the neurofibromatosis and schwannomatosis community.
Children's Tumor Foundation at a glance
In short: Children's Tumor Foundation gave $4.2M across 50 grants in 2024 (avg $84K), top state Pennsylvania. 24% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $4,215,584
- +14.9% vs 2023
- Grants made (2024)
- 50
- +31.6% vs 2023
- Average grant
- $84,312
- -12.6% vs 2023
- Median grant
- $39,764
- Total assets
- $30,677,831
- +2.0% vs 2023
- New grantees (estimate)
- 24% first-time grantees (12 of 50, 2024)
- Primary geography
- Pennsylvania (13% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Children's Tumor Foundation
- Contact
Mailing address: 697 3Rd Avenue 418, New York, NY 10017
Phone: (212) 344-6633
Website: https://ctf.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
5 open opportunities from Children's Tumor Foundation
Children’s Tumor Foundation: Clinical Research Awards (CRA) Grant
Children's Tumor Foundation
Amount
Up to US $200,000
Deadline
Deadline not published
Children’s Tumor Foundation: Young Investigator Award (YIA) Grant
Children's Tumor Foundation
Amount
More than US $56,448
Deadline
Deadline not published
NF Data Utilization (NDU) Grant
Children's Tumor Foundation
Amount
Up to US $125,000
Deadline
Deadline not published
Who Children's Tumor Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Massachusetts General Hospital ($450K). Together the top 10 received $2.8M.
Grant Size Distribution
164 grants across all recorded years
The most common grant size was under $50K: 81 grants of 164 (49%).
Geographic Focus
Where this funder awards grants
CTF’s 2024 grant dollars were distributed across recipient states, with the largest reported shares going to Pennsylvania (13%), Massachusetts (12%), Missouri (10%), California (10%), and Washington (8%). These figures describe its 2024 giving, not stated geographic eligibility rules for all programs. The YIA is described as international, with no citizenship requirement.
Grant Distribution by State
Share of 2024 grant dollars across all 50 itemized grants.
States
Cities
Is Children's Tumor Foundation open to new grantees?
24%
first-time grantees, 2024
In 2024, 12 of 50 grantees (24%) were first-time recipients. First grants averaged $47K; repeat grants $96K. How we count
Medians: $34K first-time, $40K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $2.0M (2021) to $4.2M (2024). In 2024 it made 50 grants totaling $4.2M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospital Boston, MA | Research - contract award, yia, ddi, cra and nf clinic network | $449,795 |
| Washington University St. Louis, MO | Research - Contract Award and YIA | $437,707 |
| The Regents of the University of California Los Angeles, CA | Research - Contract Award, YIA and NFCN | $336,410 |
| Sage Bionetworks Seattle, WA | Research - Contract Award | $328,754 |
| National Cancer Institute Pittsburg, PA | Research - Contract Award and CRA | $242,758 |
| University of Arkansas for Medical Sciences Little Rock, AR | Research - NFCN | $234,442 |
| Cincinnati Children's Hospital Medical Center Cincinnati, OH | Research - opg, contract award, nf clinic network, yia and cra | $230,224 |
| Children's Hospital of Philadelphia Philadelphia, PA | Research - OPG | $228,194 |
| Indiana University Indianapolis, IN | Research - yia, contract award and nf clinic network | $189,658 |
| University of Miami Coral Gables, FL | Research - Contract Award | $166,667 |
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Financial History
Multi-year comparison from IRS filings
The 2024 grant total covered 50 grants; the 2023 and 2022 totals covered 38 and 30 grants, respectively.
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $30,677,831 | $19,738,640 | $19,009,492 | $4,215,584 | 50 | $853,571 |
| 2023 | $30,074,603 | $16,447,289 | $18,828,152 | $3,667,332 | 38 | $912,204 |
| 2022 | $32,079,774 | $16,990,325 | $15,815,548 | $3,544,715 | 30 | $280,593 |
| 2021 | $29,600,801 | $16,779,578 | $10,418,437 | $1,993,051 | 16 | $96,024 |
| 2020 | $23,094,143 | $12,831,946 | $10,393,620 | $2,311,726 | 30 | $120,799 |
| 2019 | $19,223,379 | $17,897,687 | $11,267,232 | $2,050,230 | 46 | $198,308 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
CTF’s mission is to drive research, expand knowledge, and advance care for the NF community; its vision is to end NF. Its research funding includes the Discovery Fund programs—NF Data Utilization, Young Investigator Award (YIA), Drug Discovery Initiative (DDI), and Clinical Research Awards (CRA)—as well as Contract Awards. Its stated priorities include attracting investigators to NF research, supporting innovative research, and fostering collaboration to find treatments and cures. CTF also describes efforts to connect research with larger federally funded projects through CDMRP and NIH.
Its 2024 grantees included universities, hospitals, and research organizations. For example, Sage Bionetworks describes its mission as advancing open science and collaboration for human health. Cincinnati Children’s Hospital Medical Center says it aims to improve child health through integrated research, education, and care. The University of Pennsylvania describes a public-service mission encompassing education, research, and patient care.
Grantmaking
In filing year 2024, CTF reported 50 grants totaling $4,215,584. Grant amounts ranged from $5,095 to $449,795, with a median of $39,764. The largest awards included $449,795 to Massachusetts General Hospital for research, including Contract Award, YIA, DDI, CRA, and NF Clinic Network work; $437,707 to Washington University for research, including a Contract Award and YIA; and $336,410 to the Regents of the University of California for research, including a Contract Award, YIA, and NF Clinic Network work. Other large awards included $328,754 to Sage Bionetworks and $242,758 to the National Cancer Institute.
CTF’s YIA provides two-year salary support to early-career NF researchers. Eligible applicants include senior doctoral students and postdoctoral fellows within seven years of completing their first doctoral degree. Applicants must be affiliated with a senior researcher serving as their sponsor; the program permits one funded YIA application per laboratory per year, and an individual may receive no more than one postdoctoral YIA. No citizenship requirement is stated. The listed deadline is December 2, 2026.
The CRA supports early-stage investigations into therapeutic and psychosocial interventions for NF. Its listed award ceiling is $200,000. The website’s published CRA application dates—January 5 to February 3, 2026—are past.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Gabriel Groisman as chair. Other listed board members were Daniel Altman, Emily Parker, Frank Haughton, George Thuronyi, Jaishri Blakeley, and Kenneth Rudd. Carol Kalagher, Daniel Gilbert, and Ed Stern were listed as outgoing board members.
Children's Tumor Foundation is led by Annette Bakker, President on every filing since 2019; 10 of 39 officers listed in 2024 are compensated.
Officers on the 2024 filing
Annette Bakker
President
On filings since 2019
37.5 hrs/week
$328K (2019) → $405K (2024)
Gabriel Groisman
Chair
Secretary → Vice Chair, 2020
Vice Chair → Chair, 2023
On filings since 2019
1 hr/week
No compensation reported
Irene Morganstern
Director & Preclinical Initiatives
New on the 2024 filing
37.5 hrs/week
$184K (2024)
Jennifer Ching
Director & Human Resources
New on the 2024 filing
37.5 hrs/week
$160K (2024)
Amy Boulas
Vice President Development Ptp & Field Based Events
Board Member → Vice President Development Ptp & Field Based Event, 2023
Vice President Development Ptp & Field Based Event → Vice President Development Ptp & Field Based Events, 2024
On filings since 2019
37.5 hrs/week
$146K (2023) → $152K (2024)
Barbara Gallagher
Vice President of Development
On filings since 2019
37.5 hrs/week
$137K (2019) → $172K (2024)
Michele Przypyszny
Chief Advancement Officer
On filings since 2019
37.5 hrs/week
$229K (2019) → $167K (2024)
Sarah Bourne
Senior Vice President, Finance & Operations
Vice President, Finance & Operations → Senior Vice President, Finance & Operations, 2024
On filings since 2019
37.5 hrs/week
$143K (2019) → $194K (2024)
Simon Vukelj
Chief Marketing Officer
Chief Marketing Officer → Chief Communications Officer, 2023
Chief Communications Officer → Chief Marketing Officer, 2024
On filings since 2019
37.5 hrs/week
$190K (2019) → $246K (2024)
Brigid Garelik
Chief Medical Officer
On filings since 2023
37.5 hrs/week
$185K (2023) → $343K (2024)
Monica Sohn
Chief Growth Officer
New on the 2024 filing
37.5 hrs/week
$259K (2024)
Carol Kalagher
Board Member
On filings since 2019
1 hr/week
No compensation reported
Daniel Altman
Board Member
On filings since 2019
1 hr/week
No compensation reported
Daniel Gilbert
Board Member
On filings since 2019
1 hr/week
No compensation reported
Kenneth Rudd
Board Member
On filings since 2019
1 hr/week
No compensation reported
Linda H. Martin
Chair Emeritus
On filings since 2019
1 hr/week
No compensation reported
Liz Rodbell
Vice Chair
Board Member → Vice Chair, 2023
On filings since 2019
1 hr/week
No compensation reported
Randall Stanicky
Board Member
Treasurer → Board Member, 2023
On filings since 2019
1 hr/week
No compensation reported
Richard Horvitz
Chair Emeritus
Chair → Chair Emeritus, 2020
On filings since 2019
1 hr/week
No compensation reported
Richard Soll
Board Member
On filings since 2019
1 hr/week
No compensation reported
Robert Brainin
Board Member
On filings since 2019
1 hr/week
No compensation reported
Scott Plotkin
Board Member
On filings since 2019
1 hr/week
No compensation reported
Simone Manso
Board Member
On filings since 2019
1 hr/week
No compensation reported
Steven L. McKenzie
Board Member
On filings since 2019
1 hr/week
No compensation reported
Tracy Galloway
Board Member
Vice Chair → Chair, 2020
Chair → Board Member, 2023
On filings since 2019
1 hr/week
No compensation reported
Frank Haughton
Board Member
On filings since 2020
1 hr/week
No compensation reported
Rb Harrison
Treasurer
Board Member → Treasurer, 2023
On filings since 2020
1 hr/week
No compensation reported
Ed Stern
Board Member
On filings since 2021
1 hr/week
No compensation reported
Sally Gottesman
Board Member
On filings since 2021
1 hr/week
No compensation reported
Wade Clapp
Board Member
On filings since 2021
1 hr/week
No compensation reported
Emily Parker
Board Member
On filings since 2022
1 hr/week
No compensation reported
George Thuronyi
Board Member
On filings since 2022
1 hr/week
No compensation reported
Roger - Ketcha Ngassam
Board Member
On filings since 2022
1 hr/week
No compensation reported
Mark Oppenheimer
Board Member
On filings since 2023
1 hr/week
No compensation reported
Montse Montaner Picart
Board Member
On filings since 2023
1 hr/week
No compensation reported
Vicki Match Suna
Board Member
On filings since 2023
1 hr/week
No compensation reported
Jaishri Blakeley
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Laura Granneman
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Lu Le
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (16)
- Former: John Golfinos (2019–2023) — Board Member
- Former: Patrice Pancza (2019–2023) — Vice President & External Relations
- Former: Stuart Suna (2019–2023) — Board Member
- Former: Anita Gribben (2021–2023) — Board Member
- Former: Carolyn Setlow (2021–2023) — Board Member
- Former: Terri Rawson (2022–2023) — Board Member
- Former: Michael Peterson (2019–2022) — Board Member
- Former: Salvatore La Rosa (2019–2022) — Chief Scientific Officer
- Former: Nate Walker (2021–2022) — Board Member
- Former: Suzanne Earle (2021–2022) — Board Member
- Former: Bruce R. Korf MD PhD (2019–2021) — Board Member
- Former: Laura Perfetti (2019–2021) — Board Member
- Former: Lee Babbis (2019–2020) — Board Member
- Former: Peggy Wallace (2019–2020) — Board Member
- Former: Renie Moss (2019–2020) — Board Member
- Former: Rachel Tiven (2019) — Board Member
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $405K, to Annette Bakker (President). 10 officers or directors reported compensation on that filing.
Frequently asked questions about Children's Tumor Foundation
How much does Children's Tumor Foundation give each year?
Children's Tumor Foundation gave $4.2M across 50 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $3.7M across 38 grants.
What is Children's Tumor Foundation's typical grant size?
Children's Tumor Foundation's median grant in 2024 was $39,764, and its average grant was $84,312, across 50 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Children's Tumor Foundation that year got $47K on average.
Where does Children's Tumor Foundation give grants?
Children's Tumor Foundation's top state is Pennsylvania, with 13% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (12%) and Missouri (10%). The most frequent recipient cities were Boston, MA (2 grants), Seattle, WA (2 grants), Philadelphia, PA (2 grants) and Washington, DC (2 grants).
Does Children's Tumor Foundation give general operating support?
Not in 2024: none of the 50 grants with a stated purpose on Children's Tumor Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research - NF Clinic Network" (17 grants), "Research - YIA" (5 grants) and "Research - Contract Award" (4 grants).
Who are Children's Tumor Foundation's largest grantees?
Children's Tumor Foundation's largest 2024 grantees include Massachusetts General Hospital ($449,795), Washington University ($437,707) and The Regents of the University of California ($336,410), according to its 2024 IRS Form 990. Together they received 29% of its itemized 2024 grant dollars.
How large is Children's Tumor Foundation?
Children's Tumor Foundation reported $30.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $19.7M.
What does Children's Tumor Foundation fund?
CTF’s mission is to drive research, expand knowledge, and advance care for the NF community; its vision is to end NF. See mission & focus areas ↑
How do I apply for a grant from Children's Tumor Foundation?
Children's Tumor Foundation has no public application process in the sources Grantable reviewed. Check ctf.org for current guidelines, or contact the foundation directly before submitting a request.
What is Children's Tumor Foundation's EIN?
Children's Tumor Foundation's EIN (Employer Identification Number) is 13-2298956. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 26, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS October 29, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 29, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Children's Tumor Foundation funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Children's Tumor Foundation's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Children's Tumor Foundation funder profile. GrantGraph. Retrieved October 19, 2026, from https://grantable.co/funders/children-s-tumor-foundation-morg_02c072a7932540439d1088b59f092b50
BibTeX
@misc{grantable_132298956_2026,
author = {{Grantable}},
title = {{Children's Tumor Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/children-s-tumor-foundation-morg_02c072a7932540439d1088b59f092b50},
note = {Accessed 2026-10-19. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Children's Tumor Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Children's Tumor Foundation down — hundreds of funders to go?