National Ataxia Foundation Incorporated
National Ataxia Foundation Incorporated is a Minneapolis, Minnesota-based public charity established in 1957. It supports people living with ataxia and their families through research funding, community programs and services, education, and partnerships aimed at developing treatments and a cure.
National Ataxia Foundation Incorporated at a glance
In short: National Ataxia Foundation Incorporated gave $1.8M across 31 grants in 2025 (avg $59K), top state California. 35% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,834,987
- +9.8% vs 2024
- Grants made (2025)
- 31
- +34.8% vs 2024
- Average grant
- $59,193
- -18.6% vs 2024
- Median grant
- $50,000
- Total assets
- $11,852,332
- +147.4% vs 2024
- New grantees (estimate)
- 35% first-time grantees (11 of 31, 2025)
- Primary geography
- California (14% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to National Ataxia Foundation Incorporated
- Contact
Mailing address: PO Box 27986, Minneapolis, MN 55427
Phone: (763) 553-0020
Website: https://ataxia.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
7 open opportunities from National Ataxia Foundation Incorporated
Michael Lundquist Grant to Advance MSA-C Research
National Ataxia Foundation Incorporated
Amount
Up to US $50,000
Deadline
Deadline not published
NAF: Research Grants - Early Career Investigator Award
National Ataxia Foundation Incorporated
Amount
US $50,000
Deadline
Deadline not published
NAF: Research Grants - National Ataxia Foundation Graduate Research Fellowship
National Ataxia Foundation Incorporated
Amount
US $25,000
Deadline
Deadline not published
Who National Ataxia Foundation Incorporated funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Regents of the University of MN ($197K). Together the top 10 received $1.0M.
Grant Size Distribution
105 grants across all recorded years
The most common grant size was in the $50–100K range: 48 grants of 105 (46%).
Geographic Focus
Where this funder awards grants
The foundation invites applications from domestic and international institutions, and researchers outside the United States are eligible for most research grants. Its 2025 grant dollars were distributed among recipients in multiple states; the largest listed shares were California (14%), Minnesota (11%), Florida (11%), Illinois (10%), and Michigan (9%).
Grant Distribution by State
Share of 2025 grant dollars across all 31 itemized grants.
States
Cities
Is National Ataxia Foundation Incorporated open to new grantees?
35%
first-time grantees, 2025
In 2025, 11 of 31 grantees (35%) were first-time recipients. First grants averaged $46K; repeat grants $67K. How we count
Medians: $50K first-time, $59K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2020–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $465K (2020) to $1.8M (2025). In 2025 it made 31 grants totaling $1.8M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the University of MN Minneapolis, MN | Research | $196,568 |
| University of Chicago Chicago, IL | Research | $122,384 |
| University of Texas Southwestern Dallas, TX | Research | $111,369 |
| University of South Florida Tampa, FL | Research | $102,852 |
| Columbia University New York New York, NY | Research | $101,150 |
| Regents of the University of Michigan Ann Arbor, MI | Research | $89,450 |
| University of North Carolina Chapel Hill Chapel Hill, NC | Research | $85,000 |
| Massachusetts General Hospital Boston, MA | Research | $84,000 |
| Regents of the University of California dba University of California Irvin Irvine, CA | Research | $75,000 |
| Indiana University - Purdue Detroit, MI | Research | $72,608 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $11,852,332 | $13,032,062 | $6,119,642 | $1,834,987 | 31 | $262,905 |
| 2024 | $4,791,426 | $6,951,282 | $6,275,125 | $1,671,635 | 23 | $96,230 |
| 2023 | $4,116,826 | $3,981,625 | $4,863,570 | $1,148,356 | 17 | $73,728 |
| 2022 | $5,008,595 | $4,581,188 | $4,116,605 | $1,267,870 | 18 | $70,303 |
| 2021 | $4,406,293 | $2,867,520 | $2,585,574 | $626,047 | 16 | $68,653 |
| 2020 | $4,138,714 | $3,047,008 | $2,803,976 | $465,000 | 12 | $56,917 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
The foundation’s mission is to accelerate the development of treatments and a cure while improving the lives of people living with ataxia. Its research program supports basic, translational, and clinical research relevant to hereditary, sporadic, and acquired ataxia. The foundation also provides education and community support, conducts advocacy, and works with partners on clinical research and drug development.
Its awards go to researchers at domestic and international nonprofit and for-profit institutions. In 2025, examples of supported organizations included universities, hospitals, and a genetics center. The University of Chicago describes its mission as sustaining excellence in communicating and creating knowledge and fostering a community of scholars and students. Columbia University describes itself as a leading research institution with a medical center. Greenwood Genetic Center describes its work as clinical genetic services, diagnostic testing, education, and research, with patient care and scientific advancement at its center.
Grantmaking
In filing year 2025, the foundation reported 31 grants totaling $1,834,987. Grants ranged from $5,600 to $196,568, with a median of $50,000. The largest awards included $196,568 to the Regents of the University of Minnesota for research; $122,384 to the University of Chicago for research; $111,369 to the University of Texas Southwestern for research; $102,852 to the University of South Florida for research; and $101,150 to Columbia University for research.
The foundation’s annual research program uses a multistage competitive review process. Applicants first submit a letter of intent; high-scoring applicants may be invited to submit full applications. Its listed mechanisms include fellowships, early-career awards, seed-money grants, and awards for SCA3 translational research and MSA-C research. The foundation’s filing describes scientific review and Board-level funding decisions. Research awards are for direct costs and cannot be used for indirect costs or institutional overhead. Its FY2027 materials set an LOI deadline of November 18, 2026, and a full-proposal deadline of March 1, 2027.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Jim Keene as President, David Brunnert as Vice President, David Spotts as Treasurer, and Linda Snider as Secretary. It also lists Sandi Brettler, Bryan Tabery, Jason Gale, Bryce Suchomel, Mark Hazlin, and Serena Hung as board members.
National Ataxia Foundation Incorporated is led by Andrew Rosen, Chief Executive Officer since 2023 (on filings since 2020); 5 of 19 officers listed in 2025 are compensated.
Officers on the 2025 filing
Andrew Rosen
Chief Executive Officer
Executive Director → Chief Executive Officer, 2023
On filings since 2020
40 hrs/week
$120K (2020) → $194K (2025)
Jim Keene
President
Board Member → President, 2024
On filings since 2021
5 hrs/week
No compensation reported
Joel Sutherland
Vice President of Development
Development Director → Vice President of Development, 2023
On filings since 2020
40 hrs/week
$123K (2020) → $171K (2025)
Lauren Moore
Vice President & Chief Scientific of
Chief Scientific Officer → Vice President & Chief Scientific Officer, 2023
Vice President & Chief Scientific Officer → Vice President & Chief Scientific of, 2024
On filings since 2021
40 hrs/week
$171K (2022) → $209K (2025)
Kyle Billadeau
Vice President
On filings since 2024
40 hrs/week
$104K (2024) → $127K (2025)
Richard McCutchen Jr.
Regional Development Manager
New on the 2025 filing
40 hrs/week
$106K (2025)
David Brunnert
Vice President
Board Member → Vice President, 2024
On filings since 2020
2 hrs/week
No compensation reported
Linda Snider
Secretary
Vice President → Secretary, 2024
On filings since 2020
2 hrs/week
No compensation reported
Michael Cammer
Board Member
On filings since 2020
2 hrs/week
No compensation reported
Ann Riley
Board Member
On filings since 2022
2 hrs/week
No compensation reported
Serena Hung
Board Member
On filings since 2022
2 hrs/week
No compensation reported
David Spotts
Treasurer
Board Member → Treasurer, 2024
On filings since 2023
2 hrs/week
No compensation reported
Hayley McLoughlin
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Mark Hazlin
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Bryan Tabery
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Bryce Suchomel
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Jason Gale
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Sandi Brettler
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Nick Kozauer
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (14)
- Former: Denise Kolpack (2022–2024) — Board Member
- Former: Cindy DeMint (2020–2023) — Board Member
- Former: Greg Rooks (2020–2023) — Treasurer
- Former: John Mauro (2020–2023) — Secretary
- Former: Samuel Kirton (2020–2023) — President
- Former: Greg Klassen (2021–2023) — Board Member
- Former: John Dwyer (2022–2023) — Board Member
- Former: Camille Daglio (2020–2021) — Treasurer
- Former: Joseph DeCrescenzo (2020–2021) — Board Member
- Former: Michael Leader (2020–2021) — Board Member
- Former: Peter Schnobrich (2020–2021) — Board Member
- Former: William Sweeney (2020–2021) — Board Member
- Former: Wilson Romero (2020–2021) — Board Member
- Former: Devin Cobb (2021) — Board Member
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $209K, to Lauren Moore (VP and Chief Scientific Of). 5 officers or directors reported compensation on that filing.
Frequently asked questions about National Ataxia Foundation Incorporated
How much does National Ataxia Foundation Incorporated give each year?
National Ataxia Foundation Incorporated gave $1.8M across 31 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.7M across 23 grants.
What is National Ataxia Foundation Incorporated's typical grant size?
National Ataxia Foundation Incorporated's median grant in 2025 was $50,000, and its average grant was $59,193, across 31 grants on its 2025 IRS Form 990. Organizations receiving their first grant from National Ataxia Foundation Incorporated that year got $46K on average.
Where does National Ataxia Foundation Incorporated give grants?
National Ataxia Foundation Incorporated's top state is California, with 14% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Minnesota (11%) and Florida (11%). The most frequent recipient cities were Chicago, IL (2 grants), Boston, MA (2 grants) and Philadelphia, PA (2 grants).
Does National Ataxia Foundation Incorporated give general operating support?
Not in 2025: none of the 31 grants with a stated purpose on National Ataxia Foundation Incorporated's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (31 grants).
Who are National Ataxia Foundation Incorporated's largest grantees?
National Ataxia Foundation Incorporated's largest 2025 grantees include Regents of the University of MN ($196,568), University of Chicago ($122,384) and University of Texas Southwestern ($111,369), according to its 2025 IRS Form 990. Together they received 23% of its itemized 2025 grant dollars.
How large is National Ataxia Foundation Incorporated?
National Ataxia Foundation Incorporated reported $11.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $13.0M.
What does National Ataxia Foundation Incorporated fund?
The foundation’s mission is to accelerate the development of treatments and a cure while improving the lives of people living with ataxia. Its research program supports basic, translational, and clinical research relevant to hereditary, sporadic, and acquired ataxia. See mission & focus areas ↑
How do I apply for a grant from National Ataxia Foundation Incorporated?
National Ataxia Foundation Incorporated has no public application process in the sources Grantable reviewed. Check ataxia.org for current guidelines, or contact the foundation directly before submitting a request.
What is National Ataxia Foundation Incorporated's EIN?
National Ataxia Foundation Incorporated's EIN (Employer Identification Number) is 41-0832903. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 7, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 21, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 2, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 5, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS June 16, 2026)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in National Ataxia Foundation Incorporated's focus areas in our free grants database
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Cite this profile
Grantable. (2026). National Ataxia Foundation Incorporated funder profile. GrantGraph. Retrieved October 12, 2026, from https://grantable.co/funders/national-ataxia-foundation-incorporated-morg_1243847a5f9e4496be809e4b0f3384b7
BibTeX
@misc{grantable_410832903_2026,
author = {{Grantable}},
title = {{National Ataxia Foundation Incorporated funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/national-ataxia-foundation-incorporated-morg_1243847a5f9e4496be809e4b0f3384b7},
note = {Accessed 2026-10-12. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from National Ataxia Foundation Incorporated's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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