Cystic Fibrosis Research Fund Inc

ARDMORE, PA EIN: 45-3768161 Website

Diseases, Disorders & Medical Disciplines

The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$6.0M

+19.1% YoY

Revenue

$3.5M

+23.3% YoY

Net Investment Income

$225K

+38.4% YoY

Expenses

$3.0M

+39.6% YoY

About Cystic Fibrosis Research Fund Inc

Based on IRS filings

Cystic Fibrosis Research Fund Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in ARDMORE, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $6.0M in total assets. Net investment income was $225K.

Focus Areas

Diseases, Disorders & Medical Disciplines

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Connecticut $141K (23%)

Ohio $110K (18%)

California $83K (13%)

New York $75K (12%)

Alabama $55K (9%)

Illinois $55K (9%)

Pennsylvania $55K (9%)

Georgia $51K (8%)

States

Alabama California Connecticut Georgia Illinois New York Ohio Pennsylvania

Cities

ATLANTABIRMINGHAMCLEVELANDCOLD SPRING HARBORNEW HAVENNEW YORK CITYPHILADELPHIASAN FRANCISCOURBANA

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$5,958,828	$5,004,389	$4,247,786
Revenue	$3,451,167	$2,799,957	$1,789,652
Expenses	$2,959,423	$2,119,809	$1,954,560
Qualifying Distributions	—	—	—
Net Investment Income	$225,287	$162,753	$21,442
Distributable Amount	—	—	—

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2024

Grant Size Distribution

Deadline

Rolling / Open

Giving History

Grant recipients and amounts by year

No grants recorded for 2024.

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

Name	Title	Hours	Compensation
Greg Reh	Director	0.5	—
Jessica Rutstein Lazarus	Director	0.5	—
Beth Shapiro Lavin	Director	2	—
Julie Wertheimer	Director	0.2	—
Coby Kramer Golinkoff	Director	5	—
Danielle Selber	Director	0.5	—
Doug Young	Director	0.2	—
Nickie Boston	Director	1	—
Emily Kramer Golinkoff	Director	10	—
Nick Dinges	Director	1	—
Joan Denenberg	Director	2	—
Michael Golinkoff	President	10	—
Elizabeth Kramer	Secretary	20	—
Nancy Astor Fox	Director	0.2	—

Subject Areas

Focus areas based on grantmaking activity

Diseases, Disorders & Medical Disciplines

Frequently Asked Questions

What is Cystic Fibrosis Research Fund Inc?

Cystic Fibrosis Research Fund Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in ARDMORE, PA. It holds $6.0M in total assets as of 2024.

How large is Cystic Fibrosis Research Fund Inc?

As of 2024, Cystic Fibrosis Research Fund Inc holds $6.0M in total assets with $3.5M in annual revenue.

Where does Cystic Fibrosis Research Fund Inc operate?

Cystic Fibrosis Research Fund Inc has awarded grants in Alabama, California, Connecticut, Georgia, Illinois, New York, Ohio, Pennsylvania.

What is Cystic Fibrosis Research Fund Inc's EIN?

Cystic Fibrosis Research Fund Inc's EIN (Employer Identification Number) is 45-3768161. IRS Form 990 filing data is available on this page for 2020–2024.