Cystic Fibrosis Research Fund Inc
The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$6.0M
+19.1% YoY
Revenue
$3.5M
+23.3% YoY
Net Investment Income
$225K
+38.4% YoY
Expenses
$3.0M
+39.6% YoY
About Cystic Fibrosis Research Fund Inc
Based on IRS filings
Cystic Fibrosis Research Fund Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in ARDMORE, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $6.0M in total assets. Net investment income was $225K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,958,828 | $5,004,389 | $4,247,786 |
| Revenue | $3,451,167 | $2,799,957 | $1,789,652 |
| Expenses | $2,959,423 | $2,119,809 | $1,954,560 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $225,287 | $162,753 | $21,442 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Open Grants
3 open opportunities from Cystic Fibrosis Research Fund Inc
Collaborative Grants
Cystic Fibrosis Research Fund Inc
Amount
Varies
Deadline
Rolling / Open
Translational Research Grants
Cystic Fibrosis Research Fund Inc
Amount
Varies
Deadline
Rolling / Open
Venture Philanthropy Investments
Cystic Fibrosis Research Fund Inc
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Greg Reh | Director | 0.5 | — |
| Jessica Rutstein Lazarus | Director | 0.5 | — |
| Beth Shapiro Lavin | Director | 2 | — |
| Julie Wertheimer | Director | 0.2 | — |
| Coby Kramer Golinkoff | Director | 5 | — |
| Danielle Selber | Director | 0.5 | — |
| Doug Young | Director | 0.2 | — |
| Nickie Boston | Director | 1 | — |
| Emily Kramer Golinkoff | Director | 10 | — |
| Nick Dinges | Director | 1 | — |
| Joan Denenberg | Director | 2 | — |
| Michael Golinkoff | President | 10 | — |
| Elizabeth Kramer | Secretary | 20 | — |
| Nancy Astor Fox | Director | 0.2 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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