Cystic Fibrosis Research Fund Inc logo

Venture Philanthropy Investments

Cystic Fibrosis Research Fund Inc

Funding Amount

Not stated

Deadline

Deadline not published

Grant Type

Foundation

Overview

Purpose: Strategic investment approach to accelerate development of therapies for CF patients in the final 10% without effective treatment options.

Funding Information

  • Type: Venture philanthropy investment mechanism (distinct from traditional grants)
  • Portfolio: Part of EE's diverse funding strategy

Research Support

  • Support for biotech companies and research initiatives
  • Clinical-stage company launched by EE (now conducting CF gene therapy trials)
  • Emphasis on high-impact, scalable therapeutic solutions

Contact

  • Email: hannah@emilysentourage.org
  • Website: https://www.emilysentourage.org/funding-opportunities/
  • Organization: Emily's Entourage, Lower Merion, PA
  • Tax ID: #45-3768161

How to Apply

Inquiry Process

Specific venture philanthropy investment application procedures not detailed in available materials.

To Explore Opportunities

  1. Contact Emily's Entourage directly at hannah@emilysentourage.org
  2. Visit the funding opportunities page for more information
  3. Submit a research inquiry through the website

Resources

  • Funding opportunities: https://www.emilysentourage.org/funding-opportunities/
  • Research inquiry form: https://www.emilysentourage.org/research-inquiries/

What Cystic Fibrosis Research Fund Inc actually gave

Source: IRS Form 990, 2025

Grants in 2025
10
Total given
$1.27M
Median grant
$105K
Range
$55K–$248K
  • By dollars: California 28%, Massachusetts 22%, Pennsylvania 14%. Top recipient cities: San Diego, CA; Amherst, MA; Philadelphia, PA.
  • 30% of recipients were new grantees, not repeat recipients.

Example grants

  • University of California San Diego · San Diego, CA

    $248K

  • University of Massachusetts · Amherst, MA

    $220K

  • Childrens Hospital of Philadelphia Research Institute · Philadelphia, PA

    $183K

  • University of IA · Iowa City, IA

    $161K

  • San Diego State University · San Diego, CA

    $110K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Science research

Categories

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