Wake Up Narcolepsy Inc
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$619K
-0.5% YoY
Annual Giving
$205K
+30.6% YoY
Grant Count
7
+75.0% YoY
Avg Grant Size
$29K
-25.4% YoY
About Wake Up Narcolepsy Inc
Based on IRS filings
Wake Up Narcolepsy Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WORCESTER, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $619K in total assets. In 2024, it awarded 7 grants totaling $205K. Net investment income was $27K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $619,318 | $622,313 | $642,220 |
| Revenue | $1,370,014 | $767,815 | $535,258 |
| Expenses | $1,374,620 | $771,584 | $499,286 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $27,490 | $4,700 | $1,218 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
24 grants across all recorded years
Open Grants
1 open opportunity from Wake Up Narcolepsy Inc
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Gordon Gow | Emeritus | 1 | — |
| David Gow | Director | 2 | — |
| Anne Samarawickrama | Director | 6 | — |
| Nicole Jeray | Director | 1 | — |
| Kevin Guckian | Treasurer | 4 | — |
| Kelsey Biddle | Director | 4 | — |
| Mary Beth Guckian | Board Chair | 2 | — |
| Gregg Levethan | Director | 1 | — |
| Lynn Grisco | Vice Chair | 6 | — |
| Kimberly Cassidy | Secretary | 2 | — |
| Todd Grisco | Director | 6 | — |
| Prasanna Samarawickrama | Director | 4 | — |
| Tammy Anderson | Executive Director | 40 | $60,125 |
| Monica Gow | Former Executive Director | 40 | $36,630 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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