Wake Up Narcolepsy Inc logo

Wake Up Narcolepsy Inc

Public charity · Grantmaker Worcester, MA EIN: 26-3768711 Website

Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.

Key facts about Wake Up Narcolepsy Inc

In short: Wake Up Narcolepsy Inc gave $205K across 7 grants in 2024 (avg $29K), top state California. Source: 2024 IRS Form 990.

EIN
26-3768711
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$205,000
Grants made (2024)
7
Average grant
$29,286
Median grant
$30,000
Total assets
$619,318
Primary geography
California (44% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$619K

-0.5% YoY

Annual Giving

$205K

+30.6% YoY

Grant Count

7

+75.0% YoY

Avg Grant Size

$29K

-25.4% YoY

How Wake Up Narcolepsy Inc gives

  • Giving grew 63% from 2021 to 2024. Method

From the foundation's IRS Form 990 filings. Methodology.

About Wake Up Narcolepsy Inc

Based on IRS filings

Wake Up Narcolepsy Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Worcester, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $619K in total assets. In 2024, it awarded 7 grants totaling $205K. Net investment income was $27K.

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1 open opportunity from Wake Up Narcolepsy Inc

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Share of 2024 grant dollars across all 7 itemized grants.

Cities

BostonRedwood CityDarienAnn ArborOaklandSalt Lake CityTucson

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K3 grants2020 5 grants2021 5 grants2022 4 grants2023 7 grants2024

From 2020 to 2024, annual grant giving ranged from $63K (2020) to $205K (2024). In 2024 it made 7 grants totaling $205K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 6 recipients in 2024

Stanford Center for Narcolepsy Research: $90K across 2 grantsStanford Center for NarcolepsyResearch$90K · 2 grantsBeth Israel Deaconess MedicalHarvard: $50KBeth Israel DeaconessMedicalHarvard$50KCH Neurological Foundation Inc: $30KCH Neurological Foundation Inc$30KAmerican Academy of Sleep Medicine Found: $25KAmerican Academy of SleepMedicine Found$25KUniversity of Utah: $5KUniversity of Utah$5KUniversity of Arizona: $5KUniversity of Arizona$5K

The largest 2024 recipient was Stanford Center for Narcolepsy Research ($90K across 2 grants). Together the top 6 received $205K.

Grant Size Distribution

24 grants across all recorded years

21<$50K3$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 21 grants of 24 (88%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Beth Israel Deaconess MedicalHarvard Boston, MAResearch$50,000
Stanford Center for Narcolepsy Research Redwood City, CAResearch$50,000
Stanford Center for Narcolepsy Research Redwood City, CAResearch$40,000
CH Neurological Foundation Inc Boston, MAResearch$30,000
American Academy of Sleep Medicine Found Darien, ILResearch$25,000
University of Utah Salt Lake City, UTResearch$5,000
University of Arizona Tucson, AZResearch$5,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$500K$1M$1.5M$2M2020 2021 2022 2023 2024
Metric202420232022
Total Assets$619,318$622,313$642,220
Revenue$1,370,014$767,815$535,258
Expenses$1,374,620$771,584$499,286
Net Investment Income$27,490$4,700$1,218

Data update history

When this profile's IRS filing data changed on Grantable

  1. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Wake Up Narcolepsy Inc is led by Tammy Anderson, Executive Director on the 2024 filing; 2 of 14 officers listed in 2024 are compensated.

Officers on the 2024 filing

  • Tammy Anderson

    Executive Director

    New on the 2024 filing

    40 hrs/week

    $60K (2024)

  • Mary Beth Guckian

    Board Chair

    Chair → Board Chair, 2022

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Anne Samarawickrama

    Director

    On filings since 2020

    6 hrs/week

    No compensation reported

  • David Gow

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Gregg Levethan

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Kelsey Biddle

    Director

    On filings since 2020

    4 hrs/week

    No compensation reported

  • Nicole Jeray

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Prasanna Samarawickrama

    Director

    On filings since 2023

    4 hrs/week

    No compensation reported

  • Todd Grisco

    Director

    New on the 2024 filing

    6 hrs/week

    No compensation reported

  • Monica Gow

    Former Executive Director

    Chair → Executive Director, 2021

    Executive Director → Former Executive Director, 2024

    On filings since 2020

    40 hrs/week

    $70K (2022) → $37K (2024)

  • Gordon Gow

    Emeritus

    Board Member Emeritus → President & CEO, 2022

    President & CEO → Emeritus, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Kevin Guckian

    Treasurer

    On filings since 2020

    4 hrs/week

    No compensation reported

  • Kimberly Cassidy

    Secretary

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Lynn Grisco

    Vice Chair

    On filings since 2023

    6 hrs/week

    No compensation reported

Former officers (6)
  • Former: Deborah Pollock (2022) — Director of Philanthropy
  • Former: Claire Crisp (2020–2021) — Former Executive Director
  • Former: Lindsay Jesteadt (2020–2021) — Director of Development
  • Former: Tamara Smith (2020–2021) — Director & Secretary
  • Former: Jeff Nouhan (2020) — Secretary
  • Former: MaryBeth Guckian (2020) — Vice Chair

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Tammy Anderson — Executive Director: $60KTammy AndersonExecutive Director$60KMonica Gow — Former Executive Director: $37KMonica GowFormer Executive Director$37K

The highest reported compensation on the 2024 filing was $60K, to Tammy Anderson (Executive Director). 2 officers or directors reported compensation on that filing.

Frequently asked questions about Wake Up Narcolepsy Inc

How much does Wake Up Narcolepsy Inc give each year?

Wake Up Narcolepsy Inc gave $205K across 7 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $157K across 4 grants.

What is Wake Up Narcolepsy Inc's typical grant size?

Wake Up Narcolepsy Inc's median grant in 2024 was $30,000, and its average grant was $29,286, across 7 grants on its 2024 IRS Form 990.

Where does Wake Up Narcolepsy Inc give grants?

Wake Up Narcolepsy Inc's top state is California, with 44% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (39%) and Illinois (12%). The most frequent recipient cities were Redwood City, CA (2 grants) and Boston, MA (2 grants).

Does Wake Up Narcolepsy Inc give general operating support?

Not in 2024: none of the 7 grants with a stated purpose on Wake Up Narcolepsy Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (7 grants).

Who are Wake Up Narcolepsy Inc's largest grantees?

Wake Up Narcolepsy Inc's largest 2024 grantees include Stanford Center for Narcolepsy Research ($90,000 across 2 grants), Beth Israel Deaconess MedicalHarvard ($50,000) and CH Neurological Foundation Inc ($30,000), according to its 2024 IRS Form 990. Together they received 83% of its itemized 2024 grant dollars.

How large is Wake Up Narcolepsy Inc?

Wake Up Narcolepsy Inc reported $619K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.4M.

What is Wake Up Narcolepsy Inc?

Wake Up Narcolepsy Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Worcester, MA. It holds $619K in total assets as of 2024.

What is Wake Up Narcolepsy Inc's EIN?

Wake Up Narcolepsy Inc's EIN (Employer Identification Number) is 26-3768711. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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