Wake Up Narcolepsy Inc
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$619K
-0.5% YoY
Annual Giving
$205K
+30.6% YoY
Grant Count
7
+75.0% YoY
Avg Grant Size
$29K
-25.4% YoY
About Wake Up Narcolepsy Inc
Based on IRS filings
Wake Up Narcolepsy Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WORCESTER, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $619K in total assets. In 2024, it awarded 7 grants totaling $205K. Net investment income was $27K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $619,318 | $622,313 | $642,220 |
| Revenue | $1,370,014 | $767,815 | $535,258 |
| Expenses | $1,374,620 | $771,584 | $499,286 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $27,490 | $4,700 | $1,218 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
24 grants across all recorded years
Open Grants
1 open opportunity from Wake Up Narcolepsy Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Beth Israel Deaconess MedicalHarvard ($50,000), Stanford Center for Narcolepsy Research ($50,000), Stanford Center for Narcolepsy Research ($40,000).
| Recipient | Purpose | Amount |
|---|---|---|
| American Academy of Sleep Medicine Found Darien, IL | Research | $25,000 |
| Beth Israel Deaconess MedicalHarvard Boston, MA | Research | $50,000 |
| University of Utah Salt Lake City, UT | Research | $5,000 |
| Stanford Center for Narcolepsy Research Redwood City, CA | Research | $50,000 |
| CH Neurological Foundation Inc Boston, MA | Research | $30,000 |
| University of Arizona Tucson, AZ | Research | $5,000 |
| Stanford Center for Narcolepsy Research Redwood City, CA | Research | $40,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Gordon Gow | Emeritus | 1 | — |
| David Gow | Director | 2 | — |
| Anne Samarawickrama | Director | 6 | — |
| Nicole Jeray | Director | 1 | — |
| Kevin Guckian | Treasurer | 4 | — |
| Kelsey Biddle | Director | 4 | — |
| Mary Beth Guckian | Board Chair | 2 | — |
| Gregg Levethan | Director | 1 | — |
| Lynn Grisco | Vice Chair | 6 | — |
| Kimberly Cassidy | Secretary | 2 | — |
| Todd Grisco | Director | 6 | — |
| Prasanna Samarawickrama | Director | 4 | — |
| Tammy Anderson | Executive Director | 40 | $60,125 |
| Monica Gow | Former Executive Director | 40 | $36,630 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Wake Up Narcolepsy Inc?
Wake Up Narcolepsy Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WORCESTER, MA. It holds $619K in total assets as of 2024.
How large is Wake Up Narcolepsy Inc?
As of 2024, Wake Up Narcolepsy Inc holds $619K in total assets with $1.4M in annual revenue. It awarded 7 grants totaling $205K in 2024.
Where does Wake Up Narcolepsy Inc operate?
Wake Up Narcolepsy Inc has awarded grants in Arizona, California, Illinois, Massachusetts, Michigan, Utah.
What size grants does Wake Up Narcolepsy Inc award?
In 2024, Wake Up Narcolepsy Inc awarded 7 grants totaling $205K — an average of about $29K per grant, based on its IRS Form 990 filings.
What is Wake Up Narcolepsy Inc's EIN?
Wake Up Narcolepsy Inc's EIN (Employer Identification Number) is 26-3768711. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Wake Up Narcolepsy Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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