Wake Up Narcolepsy Inc
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Wake Up Narcolepsy Inc at a glance
In short: Wake Up Narcolepsy Inc gave $205K across 7 grants in 2024 (avg $29K), top state California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $205,000
- +30.6% vs 2023
- Grants made (2024)
- 7
- +75.0% vs 2023
- Average grant
- $29,286
- -25.4% vs 2023
- Median grant
- $30,000
- Total assets
- $619,318
- -0.5% vs 2023
- Primary geography
- California (44% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Wake Up Narcolepsy Inc
Open Grants
1 open opportunity from Wake Up Narcolepsy Inc
Who Wake Up Narcolepsy Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2024
The largest 2024 recipient was Stanford Center for Narcolepsy Research ($90K across 2 grants). Together the top 6 received $205K.
Grant Size Distribution
24 grants across all recorded years
The most common grant size was under $50K: 21 grants of 24 (88%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 7 itemized grants.
Cities
How Wake Up Narcolepsy Inc gives
- Giving grew 63% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $63K (2020) to $205K (2024). In 2024 it made 7 grants totaling $205K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Beth Israel Deaconess MedicalHarvard Boston, MA | Research | $50,000 |
| Stanford Center for Narcolepsy Research Redwood City, CA | Research | $50,000 |
| Stanford Center for Narcolepsy Research Redwood City, CA | Research | $40,000 |
| CH Neurological Foundation Inc Boston, MA | Research | $30,000 |
| American Academy of Sleep Medicine Found Darien, IL | Research | $25,000 |
| University of Utah Salt Lake City, UT | Research | $5,000 |
| University of Arizona Tucson, AZ | Research | $5,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $619,318 | $1,370,014 | $1,374,620 | $205,000 | 7 | $27,490 |
| 2023 | $622,313 | $767,815 | $771,584 | $157,000 | 4 | $4,700 |
| 2022 | $642,220 | $535,258 | $499,286 | $135,000 | 5 | $1,218 |
| 2021 | $596,931 | $498,207 | $340,001 | $126,000 | 5 | — |
| 2020 | $435,669 | $453,917 | $289,823 | $63,000 | 3 | — |
About Wake Up Narcolepsy Inc
Based on IRS filings
Wake Up Narcolepsy Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Worcester, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $619K in total assets. In 2024, it awarded 7 grants totaling $205K. Net investment income was $27K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Wake Up Narcolepsy Inc is led by Tammy Anderson, Executive Director on the 2024 filing; 2 of 14 officers listed in 2024 are compensated.
Officers on the 2024 filing
Tammy Anderson
Executive Director
New on the 2024 filing
40 hrs/week
$60K (2024)
Mary Beth Guckian
Board Chair
Chair → Board Chair, 2022
On filings since 2021
2 hrs/week
No compensation reported
Anne Samarawickrama
Director
On filings since 2020
6 hrs/week
No compensation reported
David Gow
Director
On filings since 2020
2 hrs/week
No compensation reported
Gregg Levethan
Director
On filings since 2020
1 hr/week
No compensation reported
Kelsey Biddle
Director
On filings since 2020
4 hrs/week
No compensation reported
Nicole Jeray
Director
On filings since 2020
1 hr/week
No compensation reported
Prasanna Samarawickrama
Director
On filings since 2023
4 hrs/week
No compensation reported
Todd Grisco
Director
New on the 2024 filing
6 hrs/week
No compensation reported
Monica Gow
Former Executive Director
Chair → Executive Director, 2021
Executive Director → Former Executive Director, 2024
On filings since 2020
40 hrs/week
$70K (2022) → $37K (2024)
Gordon Gow
Emeritus
Board Member Emeritus → President & CEO, 2022
President & CEO → Emeritus, 2023
On filings since 2020
1 hr/week
No compensation reported
Kevin Guckian
Treasurer
On filings since 2020
4 hrs/week
No compensation reported
Kimberly Cassidy
Secretary
On filings since 2023
2 hrs/week
No compensation reported
Lynn Grisco
Vice Chair
On filings since 2023
6 hrs/week
No compensation reported
Former officers (6)
- Former: Deborah Pollock (2022) — Director of Philanthropy
- Former: Claire Crisp (2020–2021) — Former Executive Director
- Former: Lindsay Jesteadt (2020–2021) — Director of Development
- Former: Tamara Smith (2020–2021) — Director & Secretary
- Former: Jeff Nouhan (2020) — Secretary
- Former: MaryBeth Guckian (2020) — Vice Chair
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $60K, to Tammy Anderson (Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Wake Up Narcolepsy Inc
How much does Wake Up Narcolepsy Inc give each year?
Wake Up Narcolepsy Inc gave $205K across 7 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $157K across 4 grants.
What is Wake Up Narcolepsy Inc's typical grant size?
Wake Up Narcolepsy Inc's median grant in 2024 was $30,000, and its average grant was $29,286, across 7 grants on its 2024 IRS Form 990.
Where does Wake Up Narcolepsy Inc give grants?
Wake Up Narcolepsy Inc's top state is California, with 44% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (39%) and Illinois (12%). The most frequent recipient cities were Redwood City, CA (2 grants) and Boston, MA (2 grants).
Does Wake Up Narcolepsy Inc give general operating support?
Not in 2024: none of the 7 grants with a stated purpose on Wake Up Narcolepsy Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (7 grants).
Who are Wake Up Narcolepsy Inc's largest grantees?
Wake Up Narcolepsy Inc's largest 2024 grantees include Stanford Center for Narcolepsy Research ($90,000 across 2 grants), Beth Israel Deaconess MedicalHarvard ($50,000) and CH Neurological Foundation Inc ($30,000), according to its 2024 IRS Form 990. Together they received 83% of its itemized 2024 grant dollars.
How large is Wake Up Narcolepsy Inc?
Wake Up Narcolepsy Inc reported $619K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.4M.
What is Wake Up Narcolepsy Inc?
Wake Up Narcolepsy Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Worcester, MA. It holds $619K in total assets as of 2024.
What is Wake Up Narcolepsy Inc's EIN?
Wake Up Narcolepsy Inc's EIN (Employer Identification Number) is 26-3768711. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Wake Up Narcolepsy Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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Browse active grant opportunities in Wake Up Narcolepsy Inc's focus areas in our free grants database
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