FIND TREATMENTS AND A CURE FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) WHILE EMPOWERING OUR FAMILIES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.6M
-12.9% YoY
Revenue
$4.9M
+10.9% YoY
Net Investment Income
$122K
-17.9% YoY
Expenses
$5.5M
+27.0% YoY
About Fshd Society
Based on IRS filings
Fshd Society is a nonprofit organization focused on Medical Research, based in RANDOLPH, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.6M in total assets. Net investment income was $122K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,592,191 | $6,421,254 | $6,079,315 |
| Revenue | $4,942,571 | $4,455,414 | $3,508,920 |
| Expenses | $5,475,276 | $4,311,066 | $4,712,959 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $122,391 | $149,018 | $133,904 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
19 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| CHRISTINE FORD | FORMER SECRETARY | 10 | — |
| ELLEN K HANNAN | FORMER TREASURER | 10 | — |
| GEORGE POLLOCK JR | TREASURER | 10 | — |
| HOWARD L CHABNER JD | VICE CHAIRMAN | 10 | — |
| JAMES A CHIN SR | CHAIRMAN | 10 | — |
| MEL HAYES | BOARD MEMBER | 1 | — |
| LEE FRANK KOLAKOWSKI PHD | BOARD MEMBER | 10 | — |
| LINDA LAURELLO | BOARD MEMBER | 1 | — |
| ROBERT HUMPHREYS JR | BOARD MEMBER | 1 | — |
| MICHELLE HELEN MACKAY | BOARD MEMBER | 1 | — |
| NEIL ANDREW SOLOMON MD FACP | BOARD MEMBER | 1 | — |
| STUART LAI | BOARD MEMBER | 1 | — |
| CHRIS MANCILL | BOARD MEMBER | 1 | — |
| WILLIAM R LEWIS III MD | BOARD MEMBER | 1 | — |
| WILLIAM SARRAILLE | BOARD MEMBER | 1 | — |
| BRUCE RYSKAMP | BOARD MEMBER | 1 | — |
| AMY Z BEKIER | BOARD MEMBER | 10 | — |
| JACK GERBLICK | BOARD MEMBER | 1 | — |
| JASON SHI | BOARD MEMBER | 1 | — |
| AGNES M MESTRICH | CHIEF FINANCIAL OFFICER | 40 | $168,829 |
| MARK STONE | CEO & PRESIDENT | 40 | $226,757 |
| KENNETH ALEXANDER KAHTAVA | CHIEF OPERATING OFFICER | 40 | $190,956 |
| JUNE KINOSHITA | DIRECTOR OF RESEARCH AND PATIENT ENGAGEMENT | 40 | $110,048 |
| CAROLYN LLOYD | CHIEF DEVELOPMENT OFFICER | 40 | $145,482 |
| BETH JOHNSTON | CHIEF COMMUNITY ENGAGEMENT OFFICER | 40 | $151,086 |
| AMANDA HILL | SENIOR DIRECTOR OF RESEARCH AND CARE | 40 | $120,469 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Fshd Society?
Fshd Society is a nonprofit organization focused on Medical Research, based in RANDOLPH, MA. It holds $5.6M in total assets as of 2024.
How large is Fshd Society?
As of 2024, Fshd Society holds $5.6M in total assets with $4.9M in annual revenue.
Where does Fshd Society operate?
Fshd Society has awarded grants in Colorado, Connecticut, Kansas, Maryland, Minnesota, Missouri, New York, Ohio, Utah.
What is Fshd Society's EIN?
Fshd Society's EIN (Employer Identification Number) is 52-1762747. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Fshd Society's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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