FIND TREATMENTS AND A CURE FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) WHILE EMPOWERING OUR FAMILIES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.6M
-12.9% YoY
Revenue
$4.9M
+10.9% YoY
Net Investment Income
$122K
-17.9% YoY
Expenses
$5.5M
+27.0% YoY
About Fshd Society
Based on IRS filings
Fshd Society is a nonprofit organization focused on Medical Research, based in RANDOLPH, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.6M in total assets. Net investment income was $122K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,592,191 | $6,421,254 | $6,079,315 |
| Revenue | $4,942,571 | $4,455,414 | $3,508,920 |
| Expenses | $5,475,276 | $4,311,066 | $4,712,959 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $122,391 | $149,018 | $133,904 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
19 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| CHRISTINE FORD | FORMER SECRETARY | 10 | — |
| ELLEN K HANNAN | FORMER TREASURER | 10 | — |
| GEORGE POLLOCK JR | TREASURER | 10 | — |
| HOWARD L CHABNER JD | VICE CHAIRMAN | 10 | — |
| JAMES A CHIN SR | CHAIRMAN | 10 | — |
| MEL HAYES | BOARD MEMBER | 1 | — |
| LEE FRANK KOLAKOWSKI PHD | BOARD MEMBER | 10 | — |
| LINDA LAURELLO | BOARD MEMBER | 1 | — |
| ROBERT HUMPHREYS JR | BOARD MEMBER | 1 | — |
| MICHELLE HELEN MACKAY | BOARD MEMBER | 1 | — |
| NEIL ANDREW SOLOMON MD FACP | BOARD MEMBER | 1 | — |
| STUART LAI | BOARD MEMBER | 1 | — |
| CHRIS MANCILL | BOARD MEMBER | 1 | — |
| WILLIAM R LEWIS III MD | BOARD MEMBER | 1 | — |
| WILLIAM SARRAILLE | BOARD MEMBER | 1 | — |
| BRUCE RYSKAMP | BOARD MEMBER | 1 | — |
| AMY Z BEKIER | BOARD MEMBER | 10 | — |
| JACK GERBLICK | BOARD MEMBER | 1 | — |
| JASON SHI | BOARD MEMBER | 1 | — |
| AGNES M MESTRICH | CHIEF FINANCIAL OFFICER | 40 | $168,829 |
| MARK STONE | CEO & PRESIDENT | 40 | $226,757 |
| KENNETH ALEXANDER KAHTAVA | CHIEF OPERATING OFFICER | 40 | $190,956 |
| JUNE KINOSHITA | DIRECTOR OF RESEARCH AND PATIENT ENGAGEMENT | 40 | $110,048 |
| CAROLYN LLOYD | CHIEF DEVELOPMENT OFFICER | 40 | $145,482 |
| BETH JOHNSTON | CHIEF COMMUNITY ENGAGEMENT OFFICER | 40 | $151,086 |
| AMANDA HILL | SENIOR DIRECTOR OF RESEARCH AND CARE | 40 | $120,469 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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