Tyler's Hope for Dystonia Cure Inc
THE ORGANIZATION WAS ESTABLISHED TO ADVANCE RESEARCH FOR A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$446K
+33.2% YoY
Annual Giving
$436K
+52.4% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$218K
+52.4% YoY
About Tyler's Hope for Dystonia Cure Inc
Based on IRS filings
Tyler's Hope for Dystonia Cure Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in ALACHUA, FL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $446K in total assets. In 2024, it awarded 2 grants totaling $436K. Net investment income was $17K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $446,360 | $335,007 | $359,448 |
| Revenue | $746,640 | $437,587 | $376,541 |
| Expenses | $640,863 | $463,888 | $504,125 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $17,419 | $9,398 | $3,260 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
8 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Florida Foundation ($321,429), Duke University ($115,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF FLORIDA FOUNDATION GAINESVILLE, FL | DYSTONIA RESEARCH | $321,429 |
| DUKE UNIVERSITY DURHAM, NC | DYSTONIA RESEARCH | $115,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| PATRICK BANIS | DIRECTOR | 3 | — |
| ALAN CHATMAN | DIRECTOR | 3 | — |
| SCOTT COSTELLO | DIRECTOR | 5 | — |
| DANIEL R GALASSO | DIRECTOR | 3 | — |
| KEVIN GRIFFIN | DIRECTOR | 3 | — |
| JOHN HAYES | DIRECTOR | 3 | — |
| LISA RUTENBERG KINSELL | DIRECTOR | 1 | — |
| MILES KINSELL | VP LEGAL ISSUES | 2 | — |
| DR KELLI ROSS | DIRECTOR | 1 | — |
| WJ ROSSI | DIRECTOR | 3 | — |
| BRIAN SCARBOROUGH | VP COMM AFFAIRS | 10 | — |
| MICHELLE STAAB | TREASURER | 10 | — |
| RICHARD A STAAB | PRESIDENT | 20 | — |
| MICHELE STREITMATTER | DIRECTOR | 2 | — |
| STEPHEN TANNER | DIRECTOR | 1 | — |
| BUSH DWAINE | DIRECTOR | 3 | — |
| PETE SEAGROVES | DIRECTOR | 3 | — |
| DAURINE WEHBE | DIRECTOR | 3 | — |
| MIKE MITROOK | DIRECTOR | 3 | — |
| HEATHER PARKER | DIRECTOR | 3 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Tyler's Hope for Dystonia Cure Inc?
Tyler's Hope for Dystonia Cure Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in ALACHUA, FL. It holds $446K in total assets as of 2024.
How large is Tyler's Hope for Dystonia Cure Inc?
As of 2024, Tyler's Hope for Dystonia Cure Inc holds $446K in total assets with $747K in annual revenue. It awarded 2 grants totaling $436K in 2024.
Where does Tyler's Hope for Dystonia Cure Inc operate?
Tyler's Hope for Dystonia Cure Inc has awarded grants in Florida, North Carolina.
What size grants does Tyler's Hope for Dystonia Cure Inc award?
In 2024, Tyler's Hope for Dystonia Cure Inc awarded 2 grants totaling $436K — an average of about $218K per grant, based on its IRS Form 990 filings.
What is Tyler's Hope for Dystonia Cure Inc's EIN?
Tyler's Hope for Dystonia Cure Inc's EIN (Employer Identification Number) is 20-3733312. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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