Tyler's Hope for Dystonia Cure Inc
The organization was established to advance research for a cure, discover effective treatments, and to promote awareness and education of the neurological movement disorder dyt1 dystonia.
Tyler's Hope for Dystonia Cure Inc at a glance
In short: Tyler's Hope for Dystonia Cure Inc gave $386K across 2 grants in 2025 (avg $193K), mostly in North Carolina. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $386,429
- -11.5% vs 2024
- Grants made (2025)
- 2
- +0.0% vs 2024
- Average grant
- $193,215
- -11.5% vs 2024
- Median grant
- $193,215
- Total assets
- $379,919
- -14.9% vs 2024
- Primary geography
- North Carolina (56% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Tyler's Hope for Dystonia Cure Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Duke University ($215K). Together the top 2 received $386K.
Grant Size Distribution
9 grants across all recorded years
The most common grant size was in the $100–250K range: 8 grants of 9 (89%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
How Tyler's Hope for Dystonia Cure Inc gives
- Giving held roughly steady from 2022 to 2025 (+4%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $171K (2020) to $436K (2024). In 2025 it made 2 grants totaling $386K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Duke University Durham, NC | Dystonia Research | $215,000 |
| University of Florida Foundation Gainesville, FL | Dystonia Research | $171,429 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $379,919 | $519,738 | $587,908 | $386,429 | 2 | $15,009 |
| 2024 | $446,360 | $746,640 | $640,863 | $436,429 | 2 | $17,419 |
| 2023 | $335,007 | $437,587 | $463,888 | $286,462 | 2 | $9,398 |
| 2022 | $359,448 | $376,541 | $504,125 | $371,429 | 2 | $3,260 |
| 2021 | $489,534 | $485,740 | $365,889 | $171,429 | 1 | $2,942 |
| 2020 | $369,685 | $252,969 | $231,023 | $171,429 | 1 | $120 |
About Tyler's Hope for Dystonia Cure Inc
Based on IRS filings
Tyler's Hope for Dystonia Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Alachua, FL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $380K in total assets. In 2025, it awarded 2 grants totaling $386K. Net investment income was $15K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Tyler's Hope for Dystonia Cure Inc is led by Richard A. Staab, President on every filing since 2020; none of the 20 officers listed in 2025 report compensation.
Officers on the 2025 filing
Richard A. Staab
President
On filings since 2020
20 hrs/week
No compensation reported
Alan Chatman
Director
On filings since 2020
3 hrs/week
No compensation reported
Daniel R. Galasso
Director
On filings since 2020
3 hrs/week
No compensation reported
John Hayes
Director
On filings since 2020
3 hrs/week
No compensation reported
Kelli Ross
Director
On filings since 2020
1 hr/week
No compensation reported
Kevin Griffin
Director
On filings since 2020
3 hrs/week
No compensation reported
Lisa Rutenberg Kinsell
Director
On filings since 2020
1 hr/week
No compensation reported
Michele Streitmatter
Director
On filings since 2020
2 hrs/week
No compensation reported
Patrick Banis
Director
On filings since 2020
3 hrs/week
No compensation reported
Scott Costello
Director
On filings since 2020
5 hrs/week
No compensation reported
Stephen Tanner
Director
On filings since 2020
1 hr/week
No compensation reported
Wj Rossi
Director
On filings since 2020
3 hrs/week
No compensation reported
Daurine Wehbe
Director
On filings since 2023
3 hrs/week
No compensation reported
Heather Parker
Director
On filings since 2023
3 hrs/week
No compensation reported
Mike Mitrook
Director
On filings since 2023
3 hrs/week
No compensation reported
Pete Seagroves
Director
On filings since 2023
3 hrs/week
No compensation reported
Dwaine Bush
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Brian Scarborough
Vice President Committee Affairs
Vice President Committee Affa → Vice President Committee Affairs, 2021
On filings since 2020
10 hrs/week
No compensation reported
Michelle Staab
Treasurer
On filings since 2020
10 hrs/week
No compensation reported
Miles Kinsell
Vice President Legal Issues
Vice President Legal Iss → Vice President Legal Issues, 2021
On filings since 2020
2 hrs/week
No compensation reported
Former officers (7)
- Former: Bush Dwaine (2023–2024) — Director
- Former: Brian Leslie (2020–2022) — Director
- Former: Franklin K. Lentz Jr. (2020–2022) — Director
- Former: John Marti (2020–2022) — Director
- Former: Kenneth E. Staab (2020–2022) — Director
- Former: Theodore B. Seagroves III (2020–2022) — Secretary
- Former: Anne Soeder (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Tyler's Hope for Dystonia Cure Inc
How much does Tyler's Hope for Dystonia Cure Inc give each year?
Tyler's Hope for Dystonia Cure Inc gave $386K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $436K across 2 grants.
How large is Tyler's Hope for Dystonia Cure Inc?
Tyler's Hope for Dystonia Cure Inc reported $380K in total assets on its 2025 IRS Form 990. Its revenue that year was $520K.
What is Tyler's Hope for Dystonia Cure Inc?
Tyler's Hope for Dystonia Cure Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Alachua, FL. It holds $380K in total assets as of 2025.
Where does Tyler's Hope for Dystonia Cure Inc operate?
Tyler's Hope for Dystonia Cure Inc has awarded grants in Florida, North Carolina.
What is Tyler's Hope for Dystonia Cure Inc's EIN?
Tyler's Hope for Dystonia Cure Inc's EIN (Employer Identification Number) is 20-3733312. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 10, 2023)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 12, 2024)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 6, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 19, 2026)
- IRS filings on file for fiscal years 2020–2024
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