The Barth Syndrome Foundation
THE BARTH SYNDROME FOUNDATION IS AN ENGAGED, GLOBAL COMMUNITY WHOSE MISSION IS SAVING LIVES THROUGH EDUCATION, ADVANCES IN TREATMENTS, AND FINDING A CURE FOR BARTH SYNDROME.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.6M
+2.7% YoY
Annual Giving
$236K
+84.1% YoY
Grant Count
4
+33.3% YoY
Avg Grant Size
$59K
+38.1% YoY
About The Barth Syndrome Foundation
Based on IRS filings
The Barth Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in LARCHMONT, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.6M in total assets. In 2024, it awarded 4 grants totaling $236K. Net investment income was $257K.
Focus Areas
Ready to take the next step with The Barth Syndrome Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,640,640 | $5,491,330 | $5,372,000 |
| Revenue | $1,940,887 | $1,334,806 | $1,387,712 |
| Expenses | $2,093,891 | $1,421,717 | $1,367,327 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $256,783 | $106,410 | $-9,426 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| BRUCE DEVELLE | BOARD MEMBER | 2 | — |
| JONATHAN STOKES | BOARD MEMBER | 2 | — |
| MEGAN BRANAGH | BOARD MEMBER | 2 | — |
| MICHELLE FLOREZ | BOARD MEMBER | 2 | — |
| NINA RUSSELL | BOARD MEMBER | 2 | — |
| PETER VAN LOO | BOARD MEMBER | 2 | — |
| MIRIAM GREENBERG | BOARD MEMBER | 2 | — |
| ANDREW BUDDEMEYER TERM 24 | BOARD MEMBER | 2 | — |
| FLORENCE MANNES TERM 24 | BOARD MEMBER | 2 | — |
| KATHERINE MCCURDY | CHAIR | 2 | — |
| JAMES BAFFA | VICE CHAIR | 2 | — |
| MARK GREENE | TREASURER | 2 | — |
| BRANDI DAGUE | SECRETARY | 2 | — |
| EMILY MILLIGAN | EXECUTIVE DIRECTOR | 35 | $227,314 |
| LINDSAY MARJORAM | DIRECTOR OF RESEARCH | 35 | $174,980 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
Launa Beuhler Foundation for
BROOKLYN, NY
Assets
$2K
Grants
4
Total Given
$20K
Uw E J Madden Mem Open Hearts Club 10-214880
NEW YORK, NY
Assets
$1.3M
Grants
1
Total Given
$307K
Hindy's Foundation
BROOKLYN, NY
Assets
$142K
Grants
8
Total Given
$225K
Jeanne & Thomas Hardy Family Foundation
NEW YORK, NY
Assets
$3K
Grants
3
Total Given
$3K
Ramsleg Foundation
BRIGHTWATERS, NY
Assets
$543
Grants
1
Total Given
$500
Druckenmiller Foundation
NEW YORK, NY
Assets
$1.8B
Grants
58
Total Given
$135.7M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The Barth Syndrome Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities