The Cholangiocarcinoma Foundation
The organization's mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.
The Cholangiocarcinoma Foundation at a glance
In short: The Cholangiocarcinoma Foundation gave $820K across 7 grants in 2025 (avg $117K), top state Minnesota. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $820,000
- -4.4% vs 2024
- Grants made (2025)
- 7
- +0.0% vs 2024
- Average grant
- $117,143
- -4.4% vs 2024
- Median grant
- $65,000
- Total assets
- $5,767,836
- -3.6% vs 2024
- Primary geography
- Minnesota (30% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who The Cholangiocarcinoma Foundation funds
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2025
The largest 2025 recipient was Mayo Clinic ($245K). Together the top 7 received $820K.
Grant Size Distribution
38 grants across all recorded years
The most common grant size was in the $50–100K range: 28 grants of 38 (74%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 7 itemized grants.
States
Cities
How The Cholangiocarcinoma Foundation gives
- Giving grew 64% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $194K (2020) to $946K (2023). In 2025 it made 7 grants totaling $820K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Mayo Clinic Rochester, MN | Cancer Research | $245,000 |
| UCSF San Francisco, CA | Cancer Research | $185,000 |
| Vanderbilt Nashville, TN | Cancer Research | $130,000 |
| Mass General Hospital Boston, MA | Cancer Research | $65,000 |
| MD Anderson Cancer Center Houston, TX | Cancer Research | $65,000 |
| National Cancer Institute Bethesda, MD | Cancer Research | $65,000 |
| Beth Israel Deaconess Medical Cente Boston, MA | Cancer Research | $65,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $5,767,836 | $7,130,406 | $7,195,778 | $820,000 | 7 | $143,869 |
| 2024 | $5,980,953 | $6,918,626 | $6,237,924 | $857,545 | 7 | $168,916 |
| 2023 | $4,624,165 | $5,082,650 | $5,266,027 | $946,026 | 8 | $88,227 |
| 2022 | $4,018,118 | $4,935,665 | $3,620,452 | $500,000 | 9 | $4,515 |
| 2021 | $2,743,945 | $3,901,961 | $2,279,422 | $350,000 | 7 | $28,506 |
| 2020 | $1,219,709 | $1,887,741 | $1,782,307 | $194,000 | 2 | $2,907 |
| 2019 | $815,602 | $2,209,603 | $1,933,077 | $364,936 | 5 | $816 |
About The Cholangiocarcinoma Foundation
Based on IRS filings
The Cholangiocarcinoma Foundation is a public charity focused on Medical Research, based in Salt Lake City, UT. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $5.8M in total assets. In 2025, it awarded 7 grants totaling $820K. Net investment income was $144K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Cholangiocarcinoma Foundation is led by Stacie Lindsey, CEO & Founder since 2021 (on filings since 2019); 5 of 14 officers listed in 2025 are compensated.
Officers on the 2025 filing
Stacie Lindsey
CEO & Founder
President → CEO, 2020
CEO → CEO & Founder, 2021
On filings since 2019
40 hrs/week
$81K (2019) → $179K (2025)
Teresa Delcorso-Ellmann
Chair
Board Member → Chair, 2022
On filings since 2021
5 hrs/week
No compensation reported
Alli Ward
COO
On filings since 2020
40 hrs/week
$136K (2021) → $144K (2025)
Melinda Bachini
Cpo
On filings since 2024
40 hrs/week
$103K (2024) → $133K (2025)
Juan Valle
Chief Medica
New on the 2025 filing
40 hrs/week
$228K (2025)
Lily Zhang
CFO
New on the 2025 filing
40 hrs/week
$56K (2025)
Daniel Blum
Treasurer
On filings since 2019
2.5 hrs/week
No compensation reported
Jason Scott
Board Member
Chair → Board Member, 2022
On filings since 2019
2.5 hrs/week
No compensation reported
Ross Green
Board Member
On filings since 2019
2.5 hrs/week
No compensation reported
Jack Callaway
Board Member
On filings since 2022
2.5 hrs/week
No compensation reported
Liz Warner
Board Member
On filings since 2022
2.5 hrs/week
No compensation reported
Tyler Bridegan
Board Member
On filings since 2024
2.5 hrs/week
No compensation reported
Jerry Huang
Board Member
New on the 2025 filing
2.5 hrs/week
No compensation reported
Kris High
Board Member
New on the 2025 filing
2.5 hrs/week
No compensation reported
Former officers (9)
- Former: Patricia Maxin (2019–2024) — Secretary
- Former: Dean Meyer (2021–2024) — Board Member
- Former: Colleen Mather (2024) — Board Member
- Former: Kourtney Sanchez (2024) — CDO
- Former: Robert Russell (2021–2023) — Secretary
- Former: Bruce Coppock (2019–2022) — Vice Chair
- Former: Barbara Dupont (2019–2021) — Secretary
- Former: Donna Mayer (2019–2020) — Executive Di
- Former: Sara Hinkley (2019–2020) — Board Member
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $228K, to Juan Valle (Chief Medica). 5 officers or directors reported compensation on that filing.
Frequently asked questions about The Cholangiocarcinoma Foundation
How much does The Cholangiocarcinoma Foundation give each year?
The Cholangiocarcinoma Foundation gave $820K across 7 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $858K across 7 grants.
What is The Cholangiocarcinoma Foundation's typical grant size?
The Cholangiocarcinoma Foundation's median grant in 2025 was $65,000, and its average grant was $117,143, across 7 grants on its 2025 IRS Form 990.
Where does The Cholangiocarcinoma Foundation give grants?
The Cholangiocarcinoma Foundation's top state is Minnesota, with 30% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were California (23%) and Tennessee (16%). The most frequent recipient cities were Boston, MA (2 grants).
Does The Cholangiocarcinoma Foundation give general operating support?
Not in 2025: none of the 7 grants with a stated purpose on The Cholangiocarcinoma Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Cancer Research" (7 grants).
Who are The Cholangiocarcinoma Foundation's largest grantees?
The Cholangiocarcinoma Foundation's largest 2025 grantees include Mayo Clinic ($245,000), UCSF ($185,000) and Vanderbilt ($130,000), according to its 2025 IRS Form 990. Together they received 68% of its itemized 2025 grant dollars.
How large is The Cholangiocarcinoma Foundation?
The Cholangiocarcinoma Foundation reported $5.8M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.1M.
What is The Cholangiocarcinoma Foundation?
The Cholangiocarcinoma Foundation is a public charity focused on Medical Research, based in Salt Lake City, UT. It holds $5.8M in total assets as of 2025.
What is The Cholangiocarcinoma Foundation's EIN?
The Cholangiocarcinoma Foundation's EIN (Employer Identification Number) is 20-5776861. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS January 31, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS January 28, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS January 21, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS February 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS March 2, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 7, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS December 14, 2023)
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