Crohn's & Colitis Foundation Inc
The Crohn's & Colitis Foundation Inc is a New York, New York–based public charity, formed in 1967, that supports research related to Crohn’s disease, ulcerative colitis, and inflammatory bowel disease (IBD). Its work also includes education, patient support services, and advocacy.
Crohn's & Colitis Foundation Inc at a glance
In short: Crohn's & Colitis Foundation Inc gave $13.0M across 75 grants in 2024 (avg $173K), top state Ohio. 20% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $12,970,297
- -17.1% vs 2023
- Grants made (2024)
- 75
- -1.3% vs 2023
- Average grant
- $172,937
- -16.0% vs 2023
- Median grant
- $120,406
- Total assets
- $50,647,406
- -6.2% vs 2023
- New grantees (estimate)
- 20% first-time grantees (15 of 75, 2024)
- Primary geography
- Ohio (13% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Crohn's & Colitis Foundation Inc
- Contact
Mailing address: 733 Third Avenue 510, New York, NY 10017
Phone: (800) 932-2423
Website: https://crohnscolitisfoundation.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
8 open opportunities from Crohn's & Colitis Foundation Inc
Career Development Awards
Crohn's & Colitis Foundation Inc
Amount
Varies
Deadline
Deadline not published
Clinical Research Investigator-Initiated Awards Grant
Crohn's & Colitis Foundation Inc
Amount
Varies
Deadline
Deadline not published
IBD Ventures Grant
Crohn's & Colitis Foundation Inc
Amount
Up to US $500,000
Deadline
Deadline not published
Who Crohn's & Colitis Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Infinity Biologix LLC ($662K). Together the top 10 received $4.6M.
Organizations only. It also paid 1 grant to individuals ($134,628), which are not listed by name.
Grant Size Distribution
366 grants across all recorded years
The most common grant size was in the $100–250K range: 102 grants of 366 (28%).
Geographic Focus
Where this funder awards grants
The 2024 grant dollars were distributed across recipient states, with the largest reported shares going to Ohio (13%), California (12%), New York (12%), Massachusetts (12%), and New Jersey (8%). The listed grants include recipients in multiple states, such as New York, New Jersey, Ohio, California, and Massachusetts.
Grant Distribution by State
Share of 2024 grant dollars across all 75 itemized grants.
States
Cities
Is Crohn's & Colitis Foundation Inc open to new grantees?
20%
first-time grantees, 2024
In 2024, 15 of 75 grantees (20%) were first-time recipients. First grants averaged $159K; repeat grants $176K. How we count
Medians: $75K first-time, $132K repeat.
- 75% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (−15%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2019–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $12.6M (2022) to $20.8M (2019). In 2024 it made 75 grants totaling $13.0M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Infinity Biologix LLC Piscataway, NJ | Research | $661,903 |
| The Regents of the University of Michigan Ann Arbor, CO | Research | $561,992 |
| Weill Medical College of Cornell University New York, NY | Research | $534,898 |
| Mobius Care Inc Cleveland, OH | Research | $500,000 |
| Cedars Sinai Medical Center Los Angeles, CA | Research | $426,341 |
| Icahn School of Medicine at Mount Sinai New York, NY | Research | $407,003 |
| The Trustees of the University of Pennsylvania Philadelphia, MI | Research | $388,114 |
| The University of North Carolina at Chapel Hill Chapel Hill, IL | Research | $384,631 |
| Cincinnati Children's Hospital Medical Center Cincinnati, OH | Research | $375,023 |
| Massachusetts General Hospital Boston, MA | Research | $362,986 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $50,647,406 | $85,182,348 | $83,504,823 | $12,970,297 | 75 | $1,327,009 |
| 2023 | $54,000,124 | $81,765,248 | $86,537,979 | $15,641,669 | 76 | $729,260 |
| 2022 | $57,441,645 | $81,491,223 | $82,569,900 | $12,560,980 | 59 | $-30,834 |
| 2021 | $57,664,028 | $78,027,022 | $78,323,556 | $15,250,359 | 71 | $601,277 |
| 2020 | $55,619,176 | $76,220,042 | $75,670,117 | $18,074,395 | 85 | $1,180,691 |
| 2019 | $45,274,249 | $73,925,250 | $75,723,530 | $20,840,454 | 76 | $958,595 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
The Foundation’s mission is to cure Crohn’s disease and ulcerative colitis and improve the quality of life of children and adults affected by these diseases. It reports providing more than $500 million for IBD research and describes its research priorities as collaborative, multidisciplinary projects with potential to advance treatment. Its 2024 research agenda emphasizes interception, remission, and restoration.
Its research portfolio includes basic, translational, and clinical research. The Foundation also describes education for patients, families, and healthcare professionals; support services; and advocacy as parts of its work. Its filing describes IBD Plexus as a research platform with data from more than 30,000 patients and 250,000 biosamples.
The 2024 grants listed in the filing include research support to medical centers, universities, and companies. For example, the Foundation’s grantees include Cedars-Sinai Medical Center, whose stated mission is to elevate the health status of the communities it serves, and Cincinnati Children’s Hospital Medical Center, which says it aims to improve child health through research, education, and innovation.
Grantmaking
In filing year 2024, the Foundation reported 75 grants totaling $12,970,297. Grants ranged from $6,600 to $661,903, with a median of $120,406. The filing says research awards are generally for two to three years, require annual progress reports reviewed by the chief scientific officer and National Scientific Advisory Committee, and may be discontinued if reports do not show significant progress.
Among the largest 2024 grants were $661,903 to Infinity BioLogix LLC for research, $561,992 to the Regents of the University of Michigan for research, $534,898 to Weill Medical College of Cornell University for research, $500,000 to Mobius Care Inc for research, and $426,341 to Cedars-Sinai Medical Center for research.
The Foundation’s listed programs include Student Research Fellowship Awards for undergraduate, graduate, and medical students conducting IBD-related research; Research Fellowship Awards for postdoctoral researchers; Career Development Awards; Senior Research Awards; Clinical Research Investigator-Initiated Awards; Litwin IBD Pioneers Awards; and IBD Ventures. The student fellowship listing describes awards of up to $2,500 for a minimum of 10 weeks of research, with awards payable to the institution. The Research Fellowship Awards listing describes support of up to $70,000 per year for up to three years. IBD Ventures considers product-oriented research and development by companies and academic investigators, with funding of up to $500,000 per project per year and accelerator resources and advising for funded programs.
Applications for IBD Ventures are submitted through proposalCENTRAL; the program information describes a letter of intent followed by an invited full application. The listed September 18, 2026 letter-of-intent deadline has passed. The website’s listed 2026 deadlines for student fellowships and the fellowship, career development, senior research, and Litwin awards have also passed. The listed clinical research investigator-initiated award deadline is January 21, 2027.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Michael Osso as president/CEO (non-voting) and Daniel Stone as treasurer. It lists Jeffrey Mittleman as secretary as of March 2024 and Jodi Yellen as secretary through March 2024. Amber Backhaus is listed as chairman as of March 2024, and Brent Polk MD as chairman through March 2024. Trustees listed include Rhonda Bolding, Noel Brown (as of March 2024), John Capodiluno, and Chase Carpenter.
Crohn's & Colitis Foundation Inc is led by Michael Osso, President & CEO on every filing since 2019; 13 of 48 officers listed in 2024 are compensated.
Officers on the 2024 filing
Michael Osso
President & CEO
On filings since 2019
35 hrs/week
$473K (2019) → $604K (2024)
Amber Backhaus
Chairman
Trustee → Chairman, 2024
On filings since 2019
1 hr/week
No compensation reported
Brent Polk MD
Chairman
Trustee & Nsac Chair → Chairman, 2021
On filings since 2019
1 hr/week
No compensation reported
Alex Funderburg
Trustee
On filings since 2019
1 hr/week
No compensation reported
Andrew Stern
Trustee
Secretary → Trustee, 2024
On filings since 2019
1 hr/week
No compensation reported
David Rubin MD
Trustee
Trustee → Nsac Chair, 2021
Nsac Chair → Trustee, 2024
On filings since 2019
1 hr/week
No compensation reported
Frank Russomano
Trustee
On filings since 2019
1 hr/week
No compensation reported
Joe Monk
Trustee
On filings since 2019
1 hr/week
No compensation reported
Mark Murray PhD
Trustee
On filings since 2019
1 hr/week
No compensation reported
Michele Kissous-Hunt
Trustee
On filings since 2019
1 hr/week
No compensation reported
Noel Brown
Trustee
On filings since 2019
1 hr/week
No compensation reported
Troy Vollertsen
Trustee
On filings since 2019
1 hr/week
No compensation reported
Rhonda Bolding
Trustee
On filings since 2020
1 hr/week
No compensation reported
Sean Kelley
Trustee
On filings since 2020
1 hr/week
No compensation reported
Annette Martinez
Trustee
On filings since 2021
1 hr/week
No compensation reported
Armin Rahmanian
Trustee
On filings since 2021
1 hr/week
No compensation reported
Deborah Crawford
Trustee
On filings since 2021
1 hr/week
No compensation reported
Tolulope Falaiye MD
Trustee
On filings since 2021
1 hr/week
No compensation reported
Audra Miller
Trustee
On filings since 2022
1 hr/week
No compensation reported
Chase Carpenter
Trustee
On filings since 2022
1 hr/week
No compensation reported
Lori Siegel Rabinowitz
Trustee
On filings since 2022
1 hr/week
No compensation reported
Cheryl Guerin
Trustee
On filings since 2023
1 hr/week
No compensation reported
John Capodiluno
Trustee
On filings since 2023
1 hr/week
No compensation reported
Kelly Issokson Msrdcnsc
Trustee
On filings since 2023
1 hr/week
No compensation reported
Kevin Harlen
Trustee
On filings since 2023
1 hr/week
No compensation reported
Nicholas Uzl
Trustee
On filings since 2023
1 hr/week
No compensation reported
Becky Flaherty
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Douglas Wolf MD
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Jonathan Rose
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Megan Riehl Psyd
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Rocio Castrillon
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Sandra Kim MD
Trustee
New on the 2024 filing
1 hr/week
No compensation reported
Allison Coffey
Chief Development Officer
On filings since 2019
35 hrs/week
$208K (2019) → $273K (2024)
Jack Matarasso
Senior Vice President & Digital Marketing
Vice President Digital Marketing → Senior Vice President & Digital Marketing, 2022
On filings since 2019
35 hrs/week
$169K (2019) → $203K (2024)
Rohit Suri
Chief Technology Officer
On filings since 2019
35 hrs/week
$257K (2019) → $305K (2024)
Angela Dobes
Vice President & Ibd Plexus
On filings since 2020
35 hrs/week
$176K (2020) → $259K (2024)
Laura Wingate
Chief Edu. Supp. & Advoc. Officer
Executive Vice President, Education, Support & Advocacy → Executive Vice President, Edu., Support & Advocacy, 2023
Executive Vice President, Edu., Support & Advocacy → Chief Edu. Supp. & Advoc. Officer, 2024
On filings since 2020
35 hrs/week
$175K (2020) → $220K (2024)
Marisa Mayer
Chief Legal Officer
On filings since 2021
35 hrs/week
$185K (2021) → $259K (2024)
Sharon Lungrin
Chief Op. Officer & Chief Finance
COO → Chief Op. Officer & Chief Finance Officer, 2023
Chief Op. Officer & Chief Finance Officer → Chief Op. Officer & Chief Finance, 2024
On filings since 2022
35 hrs/week
$118K (2022) → $267K (2024)
Alan Moss
Chief Scientific Officer
New on the 2024 filing
35 hrs/week
$450K (2024)
Chris Fidyk
Executive Vice President & Business Development
New on the 2024 filing
35 hrs/week
$214K (2024)
Christy Desantis
Chief Mktng. & Committee Offcr.
New on the 2024 filing
35 hrs/week
$257K (2024)
Leana Patel
Vice President, People & Culture
New on the 2024 filing
35 hrs/week
$202K (2024)
Sarah Weaver
Vice President, Clinical Quality & Innovation
New on the 2024 filing
35 hrs/week
$207K (2024)
Jodi Yellen
Secretary
Trustee → Secretary, 2021
On filings since 2019
1 hr/week
No compensation reported
Jeffrey Mittleman
Secretary
Trustee → Secretary, 2024
On filings since 2021
1 hr/week
No compensation reported
Daniel Stone
Treasurer
Trustee → Treasurer, 2023
On filings since 2022
1 hr/week
No compensation reported
Peter Higgins Md Phd Msc
Nsac Chair Elect
On filings since 2022
1 hr/week
No compensation reported
Former officers (33)
- Former: Alessandro Dinello (2019–2023) — Treasurer
- Former: Caren Heller (2019–2023) — Chief Science Officer
- Former: Joel Rosh MD (2019–2023) — Trustee
- Former: Judy Hoffstein (2019–2023) — Chief Mktng. & Committee Offcr.
- Former: Michael Elkow (2019–2023) — Chief Field Officer
- Former: Shelby Modell (2019–2023) — Co-Founder & Trustee
- Former: John Michael Mize (2020–2023) — Executive Vice President & Business Development
- Former: Meena Bewtra (2020–2023) — Trustee
- Former: Rep Ander Crenshaw (2020–2023) — Trustee
- Former: Andres Hurtado-Lorenzo (2023) — Senior Vice President, Tr & Ibdv
- Former: Jaime Blanda (2023) — Senior Vice President & Finance
- Former: Marcy Beth Nanus (2019–2022) — Trustee
- Former: Robert Territo (2019–2022) — CFO & COO
- Former: Anthony Leon (2021–2022) — Senior Vice President
- Former: Christopher Collette (2019–2021) — Trustee
- Former: Donald Kortz (2019–2021) — Trustee
- Former: Jason Burr (2019–2021) — Trustee
- Former: Jennifer O'Neill (2019–2021) — Trustee
- Former: John Crosson (2019–2021) — Chairman
- Former: Robert Van Pulley (2019–2021) — Treasurer
- Former: Ronald Goldsman (2021) — Senior Vice President & Finance
- Former: Cindi Roth (2019–2020) — Trustee
- Former: Eric Stone (2019–2020) — Trustee
- Former: Jennifer Fagerstrom (2019–2020) — Vice President, Chapter Growth & Development
- Former: Kristin Kaplan (2019–2020) — Senior Vice President & Special Events
- Former: Maria Oliva-Hemker MD (2019–2020) — Trustee
- Former: Paula Hilbert (2019–2020) — Trustee
- Former: Deb Crawford (2020) — Trustee
- Former: Tolu Falaiye (2020) — Trustee
- Former: f Rep Ander Crenshaw (2019) — Trustee
- Former: Kimberly Frederick-Sna (2019) — Regional Director
- Former: Robert Bryan (2019) — Vice President, Chapter Growth & Development
- Former: Sheri Markus-Kennell (2019) — Senior Vice President & Business Development
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $604K, to Michael Osso (President/CEO(NON-Voting)). 13 officers or directors reported compensation on that filing.
Frequently asked questions about Crohn's & Colitis Foundation Inc
How much does Crohn's & Colitis Foundation Inc give each year?
Crohn's & Colitis Foundation Inc gave $13.0M across 75 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $15.6M across 76 grants.
What is Crohn's & Colitis Foundation Inc's typical grant size?
Crohn's & Colitis Foundation Inc's median grant in 2024 was $120,406, and its average grant was $172,937, across 75 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Crohn's & Colitis Foundation Inc that year got $159K on average.
Where does Crohn's & Colitis Foundation Inc give grants?
Crohn's & Colitis Foundation Inc's top state is Ohio, with 13% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were California (12%) and New York (12%). The most frequent recipient cities were New York, NY (6 grants), Boston, MA (4 grants), Cleveland, OH (3 grants) and Baltimore, MD (3 grants).
Does Crohn's & Colitis Foundation Inc give general operating support?
Not in 2024: none of the 75 grants with a stated purpose on Crohn's & Colitis Foundation Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (75 grants).
Who are Crohn's & Colitis Foundation Inc's largest grantees?
Crohn's & Colitis Foundation Inc's largest 2024 grantees include Infinity Biologix LLC ($661,903), The Regents of the University of Michigan ($561,992) and Weill Medical College of Cornell University ($534,898), according to its 2024 IRS Form 990. It also paid 1 grant to individuals ($134,628), which are not listed by name. Together they received 14% of its itemized 2024 grant dollars.
How large is Crohn's & Colitis Foundation Inc?
Crohn's & Colitis Foundation Inc reported $50.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $85.2M.
What does Crohn's & Colitis Foundation Inc fund?
The Foundation’s mission is to cure Crohn’s disease and ulcerative colitis and improve the quality of life of children and adults affected by these diseases. See mission & focus areas ↑
How do I apply for a grant from Crohn's & Colitis Foundation Inc?
Crohn's & Colitis Foundation Inc has no public application process in the sources Grantable reviewed. Check crohnscolitisfoundation.org for current guidelines, or contact the foundation directly before submitting a request.
What is Crohn's & Colitis Foundation Inc's EIN?
Crohn's & Colitis Foundation Inc's EIN (Employer Identification Number) is 13-6193105. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 13, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 4, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS February 4, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS November 13, 2020)
- IRS filings on file for fiscal years 2019–2024
Explore Open Grants
Browse active grant opportunities in Crohn's & Colitis Foundation Inc's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Crohn's & Colitis Foundation Inc funder profile. GrantGraph. Retrieved October 10, 2026, from https://grantable.co/funders/crohn-s-and-colitis-foundation-inc-morg_c928e2d9b1124f7db5e5382bbb04df2e
BibTeX
@misc{grantable_136193105_2026,
author = {{Grantable}},
title = {{Crohn's \& Colitis Foundation Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/crohn-s-and-colitis-foundation-inc-morg_c928e2d9b1124f7db5e5382bbb04df2e},
note = {Accessed 2026-10-10. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Crohn's & Colitis Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Crohn's & Colitis Foundation Inc down — hundreds of funders to go?