Crohn's & Colitis Foundation Inc
The Crohn's & Colitis Foundation is a leading nonprofit organization dedicated to research and patient support for inflammatory bowel disease (IBD). Headquartered in New York, NY, the Foundation operates as a 501(c)(3) tax-exempt organization that has been recognized by the IRS since July 1966. The organization employs approximately 372-414 staff members and operates chapters across multiple regions, including the Pacific Northwest serving Washington, Oregon, Idaho, Montana, and Alaska.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$50.6M
-6.2% YoY
Annual Giving
$13.0M
-17.1% YoY
Grant Count
75
-1.3% YoY
Avg Grant Size
$173K
-16.0% YoY
Mission & Focus Areas
The Foundation's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.
The Foundation's work encompasses:
Research Funding: Since its inception, the Foundation has provided more than $500 million for research on the treatment and cures of IBD. The research portfolio includes basic, translational, and clinical research initiatives.
Priority Research Initiatives: The Foundation funds multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment.
IBD Plexus Platform: An innovative research database designed to accelerate the research process. Currently the single largest IBD database in the United States and the most comprehensive IBD database in the world, providing researchers with data from over 30,000 patients, including 250,000 biosamples (blood, stool, and intestinal tissue).
Patient Support & Education: Extensive educational resources for patients and their families, medical professionals, and the public.
Grantmaking
The Foundation actively funds research initiatives targeting inflammatory bowel disease. Recent grantmaking activity includes:
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Most Recent (2024):
- Total Revenues: $85,182,348
- Total Expenses: $83,504,823
- Total Assets: $50,647,406
Staffing:
- 372 employees (2024 filing)
- 414 employees (alternative source)
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $50,647,406 | $54,000,124 | $57,441,645 |
| Revenue | $85,182,348 | $81,765,248 | $81,491,223 |
| Expenses | $83,504,823 | $86,537,979 | $82,569,900 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,327,009 | $729,260 | $-30,834 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
250 grants across all recorded years
Open Grants
8 open opportunities from Crohn's & Colitis Foundation Inc
Career Development Awards
CROHN'S & COLITIS FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Clinical Research Investigator-Initiated Awards Grant
CROHN'S & COLITIS FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
IBD Ventures Grant
CROHN'S & COLITIS FOUNDATION INC
Amount
Up to US $500,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Infinity Biologix Llc ($661,903), Mobius Care Inc ($500,000), Cedars Sinai Medical Center ($426,341).
| Recipient | Purpose | Amount |
|---|---|---|
| ADA SCIENCE & RESEARCH INSTITUTE LLC CHICAGO, IL | RESEARCH | $9,750 |
| AETION INC NEW YORK, NY | RESEARCH | $315,500 |
| ALBERT EINSTEIN COLLEGE OF MEDICINE NEW YORK, NY | RESEARCH | $57,915 |
| AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC AUGUSTA, GA | RESEARCH | $90,000 |
| BAYLOR COLLEGE OF MEDICINE HOUSTON, TX | RESEARCH | $12,100 |
| BAYLOR SCOTT & WHITE RESEARCH INSTITUTE DALLAS, TX | RESEARCH | $269,345 |
| BENAROYA RESEARCH INSTITUTE OF VIRGINIA SEATTLE, WA | RESEARCH | $32,485 |
| BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM MADISON, WI | RESEARCH | $115,709 |
| BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM - MEDICAL COLLEGE MADISON, WI | RESEARCH | $156,454 |
| BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY EAST LANSING, MI | RESEARCH | $17,500 |
Leadership & Key People
Leadership team and compensation from IRS filings
The Foundation maintains a board of directors and regional leadership structure. Key personnel identified include:
- Regional and Executive Directors across multiple chapters
- Board members including Johanna Mora (joined December 2025), Kelli A Young, Becky Flaherty, and Paul Ragos
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| MICHAEL OSSO | PRESIDENT/CEO(NON-VOTING) | 35 | $604,255 |
| DANIEL STONE | TREASURER | 1 | — |
| JODI YELLEN | SECRETARY (THRU 03/2024) | 1 | — |
| JEFFREY MITTLEMAN | SECRETARY (AS OF 03/2024) | 1 | — |
| BRENT POLK MD | CHAIRMAN (THRU 03/2024) | 1 | — |
| AMBER BACKHAUS | CHAIRMAN (AS OF 03/2024) | 1 | — |
| RHONDA BOLDING | TRUSTEE | 1 | — |
| NOEL BROWN | TRUSTEE (AS OF 03/2024) | 1 | — |
| JOHN CAPODILUNO | TRUSTEE | 1 | — |
| CHASE CARPENTER | TRUSTEE | 1 | — |
| ROCIO CASTRILLON | TRUSTEE (AS OF 03/2024) | 1 | — |
| DEBORAH CRAWFORD | TRUSTEE | 1 | — |
| TOLULOPE FALAIYE MD | TRUSTEE | 1 | — |
| BECKY FLAHERTY | TRUSTEE (AS OF 03/2024) | 1 | — |
| ALEX FUNDERBURG | TRUSTEE (THRU 03/2024) | 1 | — |
| CHERYL GUERIN | TRUSTEE | 1 | — |
| KEVIN HARLEN | TRUSTEE | 1 | — |
| PETER HIGGINS MD PHD MSC | NSAC CHAIR ELECT | 1 | — |
| KELLY ISSOKSON MSRDCNSC | TRUSTEE | 1 | — |
| SEAN KELLEY | TRUSTEE (THRU 03/2024) | 1 | — |
| SANDRA KIM MD | TRUSTEE (AS OF 03/2024) | 1 | — |
| MICHELE KISSOUS-HUNT | TRUSTEE (THRU 03/2024) | 1 | — |
| ANNETTE MARTINEZ | TRUSTEE | 1 | — |
| AUDRA MILLER | TRUSTEE | 1 | — |
| JOE MONK | TRUSTEE (THRU 03/2024) | 1 | — |
| MARK MURRAY PHD | TRUSTEE (THRU 03/2024) | 1 | — |
| ARMIN RAHMANIAN | TRUSTEE | 1 | — |
| MEGAN RIEHL PSYD | TRUSTEE (AS OF 03/2024) | 1 | — |
| JONATHAN ROSE | TRUSTEE (AS OF 07/2024) | 1 | — |
| DAVID RUBIN MD | TRUSTEE | 1 | — |
| FRANK RUSSOMANO | TRUSTEE (THRU 03/2024) | 1 | — |
| LORI SIEGEL RABINOWITZ | TRUSTEE | 1 | — |
| ANDREW STERN | TRUSTEE (AS OF 03/2024) | 1 | — |
| NICHOLAS UZL | TRUSTEE (THRU 06/2024) | 1 | — |
| TROY VOLLERTSEN | TRUSTEE | 1 | — |
| DOUGLAS WOLF MD | TRUSTEE (AS OF 03/2024) | 1 | — |
| SHARON LUNGRIN | CHIEF OP. OFF./CHIEF FIN. | 35 | $267,379 |
| ALAN MOSS | CHIEF SCIENTIFIC OFFICER | 35 | $450,466 |
| ROHIT SURI | CHIEF TECHNOLOGY OFFICER | 35 | $304,578 |
| ALLISON COFFEY | CHIEF DEVELOPMENT OFFICER | 35 | $273,205 |
| CHRIS FIDYK | EVP, BUSINESS DEVELOPMENT | 35 | $213,952 |
| CHRISTY DESANTIS | CHIEF MKTNG. & COMM. OFFCR. | 35 | $256,701 |
| LAURA WINGATE | CHIEF EDU. SUPP. & ADVOC. OFFICER | 35 | $219,544 |
| SARAH WEAVER | VP, CLINICAL QUALITY & INNOVATION | 35 | $206,702 |
| ANGELA DOBES | VICE PRESIDENT, IBD PLEXUS | 35 | $259,396 |
| MARISA MAYER | CHIEF LEGAL OFFICER | 35 | $259,396 |
| LEANA PATEL | VP, PEOPLE & CULTURE | 35 | $202,086 |
| JACK MATARASSO | SVP, DIGITAL MARKETING | 35 | $202,684 |
Contact Information
- Website: crohnscolitisfoundation.org
- Address: 733 Third Avenue, Suite 510, New York, NY 10017
- Phone: 1-800-932-2423
- Email: info@crohnscolitisfoundation.org
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What does Crohn's & Colitis Foundation Inc fund?
The Foundation's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation's work encompasses: • **Research Funding**: Since its inception, the Foundation has provided more than $500 million for research on the treatment and cures of IBD. The research portfolio includes basic, translational, and clinical research initiatives. • **Priority Research Initiatives**: The Foundation funds multi-i…
How do I apply for a grant from Crohn's & Colitis Foundation Inc?
The Foundation actively funds research initiatives targeting inflammatory bowel disease. Recent grantmaking activity includes: • A grant to EnLiSense LLC in March 2023 for sensor technology development related to IBD monitoring. The Foundation has defined itself by sponsoring research from leading scientists and institutions, resulting in groundbreaking studies and research initiatives to advance understanding and treatment of inflammatory bowel diseases.
What size grants does Crohn's & Colitis Foundation Inc award?
In 2024, Crohn's & Colitis Foundation Inc awarded 75 grants totaling $13.0M — an average of about $173K per grant, based on its IRS Form 990 filings.
What is Crohn's & Colitis Foundation Inc's EIN?
Crohn's & Colitis Foundation Inc's EIN (Employer Identification Number) is 13-6193105. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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