Lupus Research Alliance Inc
Lupus Research Alliance Inc is a New York, NY–based public charity that funds lupus research. Its work spans foundational, translational, and clinical research, with the stated aim of advancing next-generation diagnostics and treatments for people with lupus.
Lupus Research Alliance Inc at a glance
In short: Lupus Research Alliance Inc gave $12.3M across 63 grants in 2024 (avg $195K), top state New York. 19% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $12,301,563
- -15.4% vs 2023
- Grants made (2024)
- 63
- +65.8% vs 2023
- Average grant
- $195,263
- -49.0% vs 2023
- Median grant
- $50,087
- Total assets
- $93,254,416
- -16.7% vs 2023
- New grantees (estimate)
- 19% first-time grantees (12 of 63, 2024)
- Primary geography
- New York (17% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Lupus Research Alliance Inc
- Contact
Mailing address: 270 Madison Avenue Suite 300, New York, NY 10016
Phone: (646) 884-6000
Website: https://lupusresearch.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
9 open opportunities from Lupus Research Alliance Inc
Distinguished Innovator Award
Lupus Research Alliance Inc
Amount
Varies
Deadline
Deadline not published
Diversity in Lupus Research Postdoctoral Award
Lupus Research Alliance Inc
Amount
Varies
Deadline
Deadline not published
Diversity Supplement Grant
Lupus Research Alliance Inc
Amount
Varies
Deadline
Deadline not published
Who Lupus Research Alliance Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Emory University ($1.3M). Together the top 10 received $7.9M.
Grant Size Distribution
247 grants across all recorded years
The most common grant size was under $50K: 70 grants of 247 (28%).
Geographic Focus
Where this funder awards grants
The 2024 grant dollars were distributed across recipient states, led by New York and Massachusetts at 17% each, Georgia at 12%, and California and Pennsylvania at 9% each.
Grant Distribution by State
Share of 2024 grant dollars across all 63 itemized grants.
States
Cities
Is Lupus Research Alliance Inc open to new grantees?
19%
first-time grantees, 2024
In 2024, 12 of 63 grantees (19%) were first-time recipients. First grants averaged $134K; repeat grants $210K. How we count
Medians: $43K first-time, $61K repeat.
- 48% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (−8%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $10.5M (2022) to $21.0M (2020). In 2024 it made 63 grants totaling $12.3M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Emory University Atlanta, GA | Lupus Research | $1,287,995 |
| Hospital for Special Surgery New York, NY | Lupus Research | $973,154 |
| Brigham and Women's Hospital Boston, MA | Lupus Research | $935,996 |
| Boston Children's Hosptial Boston, MA | Lupus Research | $919,988 |
| Medical University of South Carolina Charleston, SC | Lupus Research | $798,495 |
| Seattle Children's Hospital Seattle, WA | Lupus Research | $769,121 |
| University of Pittsburgh Pittsburgh, PA | Lupus Research | $768,000 |
| University of Houston Houston, TX | Lupus Research | $600,000 |
| La Jolla Institute for Immunology La Jolla, CA | Lupus Research | $449,814 |
| Feinstein Institute for Medical Research Manhasset, NY | Lupus Research | $368,535 |
Ready to take the next step with Lupus Research Alliance Inc?
Financial History
Multi-year comparison from IRS filings
The organization states in its 2024 filing that its board of directors funds administrative and fundraising expenses, so that 100% of other contributions support its lupus research programs.
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $93,254,416 | $18,554,982 | $38,175,432 | $12,301,563 | 63 | $4,937,822 |
| 2023 | $111,947,130 | $50,861,497 | $35,405,251 | $14,543,329 | 38 | $8,063,403 |
| 2022 | $98,907,292 | $22,699,491 | $32,373,925 | $10,481,683 | 36 | $2,452,805 |
| 2021 | $110,909,946 | $23,780,030 | $26,772,083 | $13,340,545 | 55 | $3,679,888 |
| 2020 | $103,408,141 | $44,790,052 | $34,266,813 | $20,997,003 | 55 | $1,938,994 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
The organization’s mission is to put people with lupus at the center of its work and drive the discovery and development of next-generation lupus diagnostics and curative treatments through research and collaboration. Its stated strategic goal is to accelerate the discovery and development of patient-centered treatments and diagnostics. Its priorities include understanding lupus heterogeneity, moving findings from preclinical research toward clinical evaluation, improving diversity and participation in lupus research and clinical trials, and strengthening clinical research infrastructure.
The funder supports research institutions and other research organizations. Its 2024 grants included Emory University, whose stated mission is to create, preserve, teach, and apply knowledge in the service of humanity; Hospital for Special Surgery, which describes its mission as providing patient care and advancing research and education in orthopedics, rheumatology, and related disciplines; and La Jolla Institute for Immunology, whose scientists study the immune system to promote health and prevent disease.
Grantmaking
In filing year 2024, the IRS data lists 63 grants totaling $12,301,563. Grant amounts ranged from $10,000 to $1,287,995, with a median of $50,087. The organization separately reported that it awarded more than $12 million across 38 highly innovative projects in 2024.
The largest listed grants included $1,287,995 to Emory University for lupus research; $973,154 to Hospital for Special Surgery; $935,996 to Brigham and Women’s Hospital; $919,988 to Boston Children’s Hospital; and $798,495 to the Medical University of South Carolina. Other listed recipients included Seattle Children’s Hospital ($769,121), the University of Pittsburgh ($768,000), and the University of Houston ($600,000), all for lupus research.
The funder’s materials describe several grant opportunities. The Lupus Innovation Award supports high-risk, high-reward research addressing major challenges in lupus, including fundamental mechanisms, novel targets and pathways, and new technologies. Its 2027 request for applications offers up to $150,000 per year for up to two years, with early-stage investigators eligible for a third year. The Diversity Supplement provides up to $30,000 for up to two years for promising trainees working with LRA-funded researchers or lupus investigators supported by eligible NIH, Department of Defense, or equivalent grants in good standing. The Lupus Insight Prize recognizes significant scientific insights relevant to lupus; the listed award is $100,000 to the recipient’s institution, and nominations are open to researchers worldwide. The funder’s 2024 filing also describes programs for career development, postdoctoral fellowships, translational research, engineered cell therapies, and clinical research.
The 2027 Lupus Innovation Award request for applications outlines a letter-of-intent and application process, but the available details do not specify application materials or a deadline. The funder’s funding-opportunities page states that 2026 deadlines for the Global Team Science Award, Mechanistic Clinical Award, and Translational Bridge Award have passed.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Ira Akselrad as chair, Joseph Mauriello as treasurer, and Anna Fisch as secretary. It also lists James Andrew, Bishop Rudy V Carlton, Willie Colon, Andrew C Chan, Jennifer Dakin, Jennie Descherer, and Katey Driscoll as directors. The organization’s website identifies Albert T. Roy as president and CEO.
Lupus Research Alliance Inc is led by Albert Roy, CEO & President since 2022 (on filings since 2020); 13 of 38 officers listed in 2024 are compensated.
Officers on the 2024 filing
Albert Roy
CEO & President
Executive Director & Lucin → CEO & President, 2022
On filings since 2020
40 hrs/week
$273K (2020) → $427K (2024)
Kenneth M. Faber
Former CEO & President
CEO & President → Former CEO & President, 2023
On filings since 2020
40 hrs/week
$429K (2020) → $375K (2024)
Ira Akselrad
Chair
Co-Chair → Chair, 2024
On filings since 2020
1 hr/week
No compensation reported
Dorey Neilinger
Senior Director of Philanthropy
Senior Director of Philanthropy → Senior Director of Philant, 2023
Senior Director of Philant → Senior Director of Philanthropy, 2024
On filings since 2020
40 hrs/week
$168K (2020) → $189K (2024)
Jonathan Marks
Director of Corporate Development
On filings since 2020
40 hrs/week
$144K (2020) → $147K (2024)
Devon Kelly
Lupus Nexus Director
On filings since 2022
40 hrs/week
$160K (2022) → $227K (2024)
Hoang Nguyen
Director of Scientific Partnership
Director of Scientific Partnerships → Director of Scientific Partnership, 2024
On filings since 2023
40 hrs/week
$163K (2023) → $168K (2024)
Jennifer Meriwether
Clin Ops Director
New on the 2024 filing
40 hrs/week
$199K (2024)
Bishop Rudy V. Carlton
Director
On filings since 2020
1 hr/week
No compensation reported
Daniel J. Wallace
Director
On filings since 2020
1 hr/week
No compensation reported
Daniel Lavecchia
Director
On filings since 2020
1 hr/week
No compensation reported
David Kies
Director
On filings since 2020
1 hr/week
No compensation reported
Jennie Descherer
Director
On filings since 2020
1 hr/week
No compensation reported
Joe Germanotta
Director
On filings since 2020
1 hr/week
No compensation reported
Katey Driscoll
Director
On filings since 2020
1 hr/week
No compensation reported
Moti Ferder
Director
On filings since 2020
1 hr/week
No compensation reported
Nadeem Meghji
Director
On filings since 2020
1 hr/week
No compensation reported
Robert Seder MD
Director
On filings since 2020
1 hr/week
No compensation reported
Spencer Zwick
Director
On filings since 2020
1 hr/week
No compensation reported
William J. Mulvihill
Director
On filings since 2020
1 hr/week
No compensation reported
William Wolfe
Director
On filings since 2020
1 hr/week
No compensation reported
Willie Colon
Director
On filings since 2020
1 hr/week
No compensation reported
Julius Williams
Director
On filings since 2021
1 hr/week
No compensation reported
Veronica Vargas Lupo
Director
On filings since 2021
1 hr/week
No compensation reported
James Andrew
Director
On filings since 2023
1 hr/week
No compensation reported
Jennifer Dakin
Director
On filings since 2023
1 hr/week
No compensation reported
Nidhi Patel
Director
On filings since 2023
1 hr/week
No compensation reported
Andrew C. Chan
Director
New on the 2024 filing
1 hr/week
No compensation reported
Gary Koretsky
Director
New on the 2024 filing
1 hr/week
No compensation reported
Xavier Gross
Director
New on the 2024 filing
1 hr/week
No compensation reported
Andrea O'Neill
Vice President & Development
Vice President & Chief Development Officer → Vice President & Chief Development O, 2023
Vice President & Chief Development O → Vice President & Development, 2024
On filings since 2020
40 hrs/week
$262K (2020) → $248K (2024)
Debra Rose
Chief Financal Officer
Chief Finance Officer → Vice President & Chief Finance Officer, 2022
Vice President & Chief Finance Officer → Chief Financal Officer, 2024
On filings since 2020
40 hrs/week
$205K (2020) → $259K (2024)
Penelope Mitchell
Vice President of Communications
Director of Communications → Vice President of Communications, 2022
On filings since 2020
40 hrs/week
$164K (2020) → $211K (2024)
Teodora Staeva
Chief Scientific Officer
Vice President & Chief Scientific Officer → Vice President & Chief Scientific of, 2023
Vice President & Chief Scientific of → Chief Scientific Officer, 2024
On filings since 2020
40 hrs/week
$298K (2020) → $325K (2024)
Luke Easley
Vice President of Hr & Administration
On filings since 2023
40 hrs/week
$184K (2023) → $234K (2024)
Stacie Bell PhD
Chief Clinical Research Officer
Executive Vice President & Lupus Therapeutics → Chief Clinical Research Officer, 2024
On filings since 2023
40 hrs/week
$276K (2023) → $301K (2024)
Joseph Mauriello
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Anna Fisch
Secretary
Director → Secretary, 2023
On filings since 2022
1 hr/week
No compensation reported
Former officers (11)
- Former: Diane Gross (2020–2023) — National Director of Advoc
- Former: Marc Feldmann (2020–2023) — Director
- Former: Molly McCabe (2020–2023) — Director
- Former: Richard K. Descherer (2020–2023) — Co-Chair
- Former: Brenda Blackmon (2020–2022) — Secretary
- Former: Thomas O. Daniel (2020–2022) — Director
- Former: Ebony Scott (2022) — Health Equity Director
- Former: Carol Weisman (2020–2021) — Director
- Former: Jerome Chazen (2020–2021) — Director
- Former: Louis Lucido (2020–2021) — Director
- Former: Margy Meislin (2020–2021) — Editorial & Pr Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $427K, to Albert Roy (CEO and President). 13 officers or directors reported compensation on that filing.
Frequently asked questions about Lupus Research Alliance Inc
How much does Lupus Research Alliance Inc give each year?
Lupus Research Alliance Inc gave $12.3M across 63 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $14.5M across 38 grants.
What is Lupus Research Alliance Inc's typical grant size?
Lupus Research Alliance Inc's median grant in 2024 was $50,087, and its average grant was $195,263, across 63 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Lupus Research Alliance Inc that year got $134K on average.
Where does Lupus Research Alliance Inc give grants?
Lupus Research Alliance Inc's top state is New York, with 17% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (17%) and Georgia (12%). The most frequent recipient cities were Boston, MA (4 grants), New York, NY (4 grants), Seattle, WA (3 grants) and Los Angeles, CA (3 grants).
Does Lupus Research Alliance Inc give general operating support?
Not in 2024: none of the 63 grants with a stated purpose on Lupus Research Alliance Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Lupus Research" (63 grants).
Who are Lupus Research Alliance Inc's largest grantees?
Lupus Research Alliance Inc's largest 2024 grantees include Emory University ($1,287,995), Hospital for Special Surgery ($973,154) and Brigham and Women's Hospital ($935,996), according to its 2024 IRS Form 990. Together they received 26% of its itemized 2024 grant dollars.
How large is Lupus Research Alliance Inc?
Lupus Research Alliance Inc reported $93.3M in total assets on its 2024 IRS Form 990. Its revenue that year was $18.6M.
What does Lupus Research Alliance Inc fund?
The organization’s mission is to put people with lupus at the center of its work and drive the discovery and development of next-generation lupus diagnostics and curative treatments through research and collaboration. See mission & focus areas ↑
How do I apply for a grant from Lupus Research Alliance Inc?
Lupus Research Alliance Inc has no public application process in the sources Grantable reviewed. Check lupusresearch.org for current guidelines, or contact the foundation directly before submitting a request.
What is Lupus Research Alliance Inc's EIN?
Lupus Research Alliance Inc's EIN (Employer Identification Number) is 58-2492929. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 23, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 20, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 11, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Lupus Research Alliance Inc funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Lupus Research Alliance Inc's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Lupus Research Alliance Inc funder profile. GrantGraph. Retrieved October 20, 2026, from https://grantable.co/funders/lupus-research-alliance-inc-morg_56b1cac3e5d8481abce11875774c7c2e
BibTeX
@misc{grantable_582492929_2026,
author = {{Grantable}},
title = {{Lupus Research Alliance Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/lupus-research-alliance-inc-morg_56b1cac3e5d8481abce11875774c7c2e},
note = {Accessed 2026-10-20. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Lupus Research Alliance Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Lupus Research Alliance Inc down — hundreds of funders to go?