The Lupus Research Alliance (LRA) is the largest private nonprofit organization dedicated to advancing lupus research worldwide. Based in New York, NY, the organization drives discovery and development of next-generation lupus diagnostics and curative treatments through innovative research and collaborations. The organization was founded in 1999 and has been tax-exempt since January 2000.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$93.3M
-16.7% YoY
Annual Giving
$12.3M
Grant Count
63
Avg Grant Size
$195K
Mission & Focus Areas
Mission Statement: Putting people with lupus at the center of all we do, the Lupus Research Alliance drives the discovery and development of next-generation lupus diagnostics and curative treatments through innovative research and collaborations.
Focus Areas: The organization focuses on understanding systemic lupus erythematosus (SLE), a chronic, complex, and often disabling autoimmune disease. Research priorities include understanding the causes of lupus, improving diagnostics, developing personalized treatments, and ultimately finding a cure. The organization addresses the significant health disparities in lupus, which affects 90% women and is 2-3 times more prevalent among African Americans, Latinas, Asians, and Native Americans compared to Caucasians.
Grantmaking
Typical awards range from $6,526 to $3,390,307.
Grant Range
s:**
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Geographic Focus
Where this funder awards grants
Primary funding focus includes California, New York, and Massachusetts.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Assets: $93,254,416 (most recent filing)
Total Assets (2023): $112,000,000
Total Liabilities (2023): $36,600,000
Annual Giving: $15,491,102 (most recent filing)
Revenue (2023): $50,900,000
Expenses (2023): $35,400,000
Cumulative Giving: Over $245 million allocated since inception; over $17 million awarded in 2022 alone for projects with potential to significantly impact treatment and diagnosis.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $93,254,416 | $111,947,130 | $98,907,292 |
| Revenue | $18,554,982 | $50,861,497 | $22,699,491 |
| Expenses | $38,175,432 | $35,405,251 | $32,373,925 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $4,937,822 | $8,063,403 | $2,452,805 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
186 grants across all recorded years
Open Grants
9 open opportunities from Lupus Research Alliance Inc
Distinguished Innovator Award
LUPUS RESEARCH ALLIANCE INC
Amount
Varies
Deadline
Rolling / Open
Diversity in Lupus Research Postdoctoral Award
LUPUS RESEARCH ALLIANCE INC
Amount
Varies
Deadline
Rolling / Open
Diversity Supplement Grant
LUPUS RESEARCH ALLIANCE INC
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Kenneth M. Farber - CEO
Albert Roy - President & CEO
Teodora Staeva, Ph.D. - Vice President & Chief Scientific Officer Responsible for overseeing the organization's research portfolio and operations, including development of research strategy and implementation, and overseeing all research initiatives, partnerships, and collaborations.
Hoang Nguyen, Ph.D. - Assistant Vice President, Research Leads the Lupus Accelerating Breakthroughs Consortium (Lupus ABC), the first public-private partnership with the FDA focused on advancing lupus treatment development.
Staff Size: 35 employees
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| IRA AKSELRAD | CHAIR | 1 | — |
| JOSEPH MAURIELLO | TREASURER | 1 | — |
| ANNA FISCH | SECRETARY | 1 | — |
| JAMES ANDREW | DIRECTOR | 1 | — |
| BISHOP RUDY V CARLTON | DIRECTOR | 1 | — |
| WILLIE COLON | DIRECTOR | 1 | — |
| ANDREW C CHAN | DIRECTOR | 1 | — |
| JENNIFER DAKIN | DIRECTOR | 1 | — |
| JENNIE DESCHERER | DIRECTOR | 1 | — |
| KATEY DRISCOLL | DIRECTOR | 1 | — |
| MOTI FERDER | DIRECTOR | 1 | — |
| XAVIER GROSS | DIRECTOR | 1 | — |
| JOE GERMANOTTA | DIRECTOR | 1 | — |
| DAVID KIES | DIRECTOR | 1 | — |
| GARY KORETSKY | DIRECTOR | 1 | — |
| DANIEL LAVECCHIA | DIRECTOR | 1 | — |
| VERONICA VARGAS LUPO | DIRECTOR | 1 | — |
| NADEEM MEGHJI | DIRECTOR | 1 | — |
| WILLIAM J MULVIHILL | DIRECTOR | 1 | — |
| NIDHI PATEL | DIRECTOR | 1 | — |
| ROBERT SEDER MD | DIRECTOR | 1 | — |
| DANIEL J WALLACE | DIRECTOR | 1 | — |
| JULIUS WILLIAMS | DIRECTOR | 1 | — |
| WILLIAM WOLFE | DIRECTOR | 1 | — |
| SPENCER ZWICK | DIRECTOR | 1 | — |
| ALBERT ROY | CEO AND PRESIDENT | 40 | $427,429 |
| STACIE BELL PHD | CHIEF CLINICAL RESEARCH OFFICER | 40 | $301,419 |
| DEBRA ROSE | CHIEF FINANCAL OFFICER | 40 | $259,368 |
| TEODORA STAEVA | CHIEF SCIENTIFIC OFFICER | 40 | $325,453 |
| ANDREA O'NEILL | VP, DEVELOPMENT | 40 | $248,348 |
| PENELOPE MITCHELL | VP OF COMMUNICATIONS | 40 | $210,708 |
| LUKE EASLEY | VP OF HR & ADMINISTRATION | 40 | $233,917 |
| DEVON KELLY | LUPUS NEXUS DIRECTOR | 40 | $226,537 |
| DOREY NEILINGER | SENIOR DIRECTOR OF PHILANTHROPY | 40 | $189,043 |
| HOANG NGUYEN | DIRECTOR OF SCIENTIFIC PARTNERSHIP | 40 | $167,678 |
| JONATHAN MARKS | DIRECTOR OF CORPORATE DEVELOPMENT | 40 | $147,444 |
| KENNETH M FABER | FORMER CEO & PRESIDENT | 40 | $375,000 |
| JENNIFER MERIWETHER | CLIN OPS DIRECTOR, LT | 40 | $199,140 |
Recent News & Activity
Recent developments and announcements
**May 2025:** Announced the launch of the Lupus Nexus Foundational Analyses, a major scientific initiative to create one of the most comprehensive and accessible lupus research datasets ever assembled. The effort generates numerous molecular datasets using biospecimens collected through the Lupus Landmark Study, integrated with robust clinical data including both clinician- and patient-reported outcomes. This represents a first for a private nonprofit in the lupus research space. The initiative is being conducted in collaboration with Azenta, Cmbio (formerly CosmosID), iRepertoire, LabCorp, MitogenDx/University of Calgary, Sano Genetics, and Standard BioTools.
Lupus Research Alliance Grants Lupus Innovation Awards to Eleven TalentedSubject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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