Lupus Research Alliance Inc
Lupus Research Alliance Inc is a New York, New York–based public charity that funds research across the spectrum from foundational science to translational and clinical research. Its stated aim is to advance next-generation lupus diagnostics and treatments, including curative treatments, through research and collaboration.
Key facts about Lupus Research Alliance Inc
In short: Lupus Research Alliance Inc gave $12.3M across 63 grants in 2024 (avg $195K), top state New York. 19% of 2024 grantees were new. Source: 2024 IRS Form 990.
- EIN
- 58-2492929
- Latest 990 filing
- Form 990, 2024
- Annual giving (2024)
- $12,301,563
- Grants made (2024)
- 63
- Average grant
- $195,263
- Median grant
- $50,087
- New grantees (estimate)
- 19% first-time grantees (12 of 63, 2024)
- Total assets
- $93,254,416
- Primary geography
- New York (17% of itemized 2024 grant dollars)
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
Financial Overview
From 2024 IRS Form 990 · View filing
Total Assets
$93.3M
-16.7% YoY
Annual Giving
$12.3M
-15.4% YoY
Grant Count
63
+65.8% YoY
Avg Grant Size
$195K
-49.0% YoY
Is Lupus Research Alliance Inc open to new grantees?
19%
first-time grantees, 2024
In 2024, 12 of 63 grantees (19%) were first-time recipients. First grants averaged $134K; repeat grants $210K. How we count
Medians: $43K first-time, $61K repeat.
- 48% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (−8%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
The Alliance’s mission is to put people with lupus at the center of its work and drive the discovery and development of next-generation lupus diagnostics and curative treatments through innovative research and collaborations.
Its funding supports work ranging from basic research to clinical evaluation. Stated priorities include understanding lupus heterogeneity, advancing research toward clinical evaluation, improving participation and diversity in research and clinical trials, and strengthening clinical research infrastructure. Its programs also support areas such as innovative approaches to lupus mechanisms and targets, engineered cell therapies, and the translation of research discoveries into potential clinical products.
Recipients include universities, hospitals, and research institutes. For example, Emory University describes itself as an educational institution that also advances medical research; the Medical University of South Carolina Foundation says it promotes the university’s educational, research, and clinical programs; and La Jolla Institute for Immunology says its scientists study the immune system to promote health and prevent disease.
Grantmaking
In 2024, the IRS grant listing records 63 grants totaling $12,301,563. Grant amounts ranged from $10,000 to $1,287,995, with a median of $50,087. The organization’s filing narrative separately reports that more than $12 million was awarded for 38 highly innovative projects that year.
Review Cycle
for the Global Team Science, Mechanistic Clinical, and Translational Bridge awards have passed.
Open Grants
9 open opportunities from Lupus Research Alliance Inc
Distinguished Innovator Award
Lupus Research Alliance Inc
Amount
Varies
Deadline
Rolling / Open
Diversity in Lupus Research Postdoctoral Award
Lupus Research Alliance Inc
Amount
Varies
Deadline
Rolling / Open
Diversity Supplement Grant
Lupus Research Alliance Inc
Amount
Varies
Deadline
Rolling / Open
Ready to take the next step with Lupus Research Alliance Inc?
Geographic Focus
Where this funder awards grants
The 2024 grant listing shows recipients in multiple states. By grant dollars, the largest state shares were New York and Massachusetts at 17% each, followed by Georgia at 12%, and California and Pennsylvania at 9% each.
Grant Distribution by State
Share of 2024 grant dollars across all 63 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $10.5M (2022) to $21.0M (2020). In 2024 it made 63 grants totaling $12.3M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Emory University ($1.3M). Together the top 10 received $7.9M.
Grant Size Distribution
247 grants across all recorded years
The most common grant size was under $50K: 70 grants of 247 (28%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Emory University Atlanta, GA | Lupus Research | $1,287,995 |
| Hospital for Special Surgery New York, NY | Lupus Research | $973,154 |
| Brigham and Women's Hospital Boston, MA | Lupus Research | $935,996 |
| Boston Children's Hosptial Boston, MA | Lupus Research | $919,988 |
| Medical University of South Carolina Charleston, SC | Lupus Research | $798,495 |
| Seattle Children's Hospital Seattle, WA | Lupus Research | $769,121 |
| University of Pittsburgh Pittsburgh, PA | Lupus Research | $768,000 |
| University of Houston Houston, TX | Lupus Research | $600,000 |
| La Jolla Institute for Immunology La Jolla, CA | Lupus Research | $449,814 |
| Feinstein Institute for Medical Research Manhasset, NY | Lupus Research | $368,535 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants listed |
|---|---|---|---|---|
| 2024 | $93,254,416 | $18,554,982 | $38,175,432 | $12,301,563 across 63 grants |
| 2023 | $111,947,130 | $50,861,497 | $35,405,251 | 0 grants listed |
| 2022 | $98,907,292 | $22,699,491 | $32,373,925 | $10,481,683 across 36 grants |
The organization reports that its board-designated quasi-endowment income may support operations and the research program, with principal intended to remain intact unless high-priority lupus research projects otherwise could not be funded.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $93,254,416 | $111,947,130 | $98,907,292 |
| Revenue | $18,554,982 | $50,861,497 | $22,699,491 |
| Expenses | $38,175,432 | $35,405,251 | $32,373,925 |
| Net Investment Income | $4,937,822 | $8,063,403 | $2,452,805 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 23, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 20, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 11, 2025)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Ira Akselrad as chair, Joseph Mauriello as treasurer, and Anna Fisch as secretary. Directors listed include James Andrew, Bishop Rudy V Carlton, Willie Colon, Andrew C Chan, Jennifer Dakin, Jennie Descherer, and Katey Driscoll. The organization’s website identifies Albert T. Roy as president and CEO.
Lupus Research Alliance Inc is led by Albert Roy, CEO & President since 2022 (on filings since 2020); 13 of 38 officers listed in 2024 are compensated.
Officers on the 2024 filing
Albert Roy
CEO & President
Executive Director & Lucin → CEO & President, 2022
On filings since 2020
40 hrs/week
$273K (2020) → $427K (2024)
Kenneth M. Faber
Former CEO & President
CEO & President → Former CEO & President, 2023
On filings since 2020
40 hrs/week
$429K (2020) → $375K (2024)
Ira Akselrad
Chair
Co-Chair → Chair, 2024
On filings since 2020
1 hr/week
No compensation reported
Dorey Neilinger
Senior Director of Philanthropy
Senior Director of Philanthropy → Senior Director of Philant, 2023
Senior Director of Philant → Senior Director of Philanthropy, 2024
On filings since 2020
40 hrs/week
$168K (2020) → $189K (2024)
Jonathan Marks
Director of Corporate Development
On filings since 2020
40 hrs/week
$144K (2020) → $147K (2024)
Devon Kelly
Lupus Nexus Director
On filings since 2022
40 hrs/week
$160K (2022) → $227K (2024)
Hoang Nguyen
Director of Scientific Partnership
Director of Scientific Partnerships → Director of Scientific Partnership, 2024
On filings since 2023
40 hrs/week
$163K (2023) → $168K (2024)
Jennifer Meriwether
Clin Ops Director
New on the 2024 filing
40 hrs/week
$199K (2024)
Bishop Rudy V. Carlton
Director
On filings since 2020
1 hr/week
No compensation reported
Daniel J. Wallace
Director
On filings since 2020
1 hr/week
No compensation reported
Daniel Lavecchia
Director
On filings since 2020
1 hr/week
No compensation reported
David Kies
Director
On filings since 2020
1 hr/week
No compensation reported
Jennie Descherer
Director
On filings since 2020
1 hr/week
No compensation reported
Joe Germanotta
Director
On filings since 2020
1 hr/week
No compensation reported
Katey Driscoll
Director
On filings since 2020
1 hr/week
No compensation reported
Moti Ferder
Director
On filings since 2020
1 hr/week
No compensation reported
Nadeem Meghji
Director
On filings since 2020
1 hr/week
No compensation reported
Robert Seder MD
Director
On filings since 2020
1 hr/week
No compensation reported
Spencer Zwick
Director
On filings since 2020
1 hr/week
No compensation reported
William J. Mulvihill
Director
On filings since 2020
1 hr/week
No compensation reported
William Wolfe
Director
On filings since 2020
1 hr/week
No compensation reported
Willie Colon
Director
On filings since 2020
1 hr/week
No compensation reported
Julius Williams
Director
On filings since 2021
1 hr/week
No compensation reported
Veronica Vargas Lupo
Director
On filings since 2021
1 hr/week
No compensation reported
James Andrew
Director
On filings since 2023
1 hr/week
No compensation reported
Jennifer Dakin
Director
On filings since 2023
1 hr/week
No compensation reported
Nidhi Patel
Director
On filings since 2023
1 hr/week
No compensation reported
Andrew C. Chan
Director
New on the 2024 filing
1 hr/week
No compensation reported
Gary Koretsky
Director
New on the 2024 filing
1 hr/week
No compensation reported
Xavier Gross
Director
New on the 2024 filing
1 hr/week
No compensation reported
Andrea O'Neill
Vice President & Development
Vice President & Chief Development Officer → Vice President & Chief Development O, 2023
Vice President & Chief Development O → Vice President & Development, 2024
On filings since 2020
40 hrs/week
$262K (2020) → $248K (2024)
Debra Rose
Chief Financal Officer
Chief Finance Officer → Vice President & Chief Finance Officer, 2022
Vice President & Chief Finance Officer → Chief Financal Officer, 2024
On filings since 2020
40 hrs/week
$205K (2020) → $259K (2024)
Penelope Mitchell
Vice President of Communications
Director of Communications → Vice President of Communications, 2022
On filings since 2020
40 hrs/week
$164K (2020) → $211K (2024)
Teodora Staeva
Chief Scientific Officer
Vice President & Chief Scientific Officer → Vice President & Chief Scientific of, 2023
Vice President & Chief Scientific of → Chief Scientific Officer, 2024
On filings since 2020
40 hrs/week
$298K (2020) → $325K (2024)
Luke Easley
Vice President of Hr & Administration
On filings since 2023
40 hrs/week
$184K (2023) → $234K (2024)
Stacie Bell PhD
Chief Clinical Research Officer
Executive Vice President & Lupus Therapeutics → Chief Clinical Research Officer, 2024
On filings since 2023
40 hrs/week
$276K (2023) → $301K (2024)
Joseph Mauriello
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Anna Fisch
Secretary
Director → Secretary, 2023
On filings since 2022
1 hr/week
No compensation reported
Former officers (11)
- Former: Diane Gross (2020–2023) — National Director of Advoc
- Former: Marc Feldmann (2020–2023) — Director
- Former: Molly McCabe (2020–2023) — Director
- Former: Richard K. Descherer (2020–2023) — Co-Chair
- Former: Brenda Blackmon (2020–2022) — Secretary
- Former: Thomas O. Daniel (2020–2022) — Director
- Former: Ebony Scott (2022) — Health Equity Director
- Former: Carol Weisman (2020–2021) — Director
- Former: Jerome Chazen (2020–2021) — Director
- Former: Louis Lucido (2020–2021) — Director
- Former: Margy Meislin (2020–2021) — Editorial & Pr Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $427K, to Albert Roy (CEO and President). 13 officers or directors reported compensation on that filing.
Contact
Mailing address: 270 Madison Avenue Suite 300, New York, NY 10016
Phone: (646) 884-6000
Website: https://lupusresearch.org
Frequently asked questions about Lupus Research Alliance Inc
How much does Lupus Research Alliance Inc give each year?
Lupus Research Alliance Inc gave $12.3M across 63 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $14.5M across 38 grants.
What is Lupus Research Alliance Inc's typical grant size?
Lupus Research Alliance Inc's median grant in 2024 was $50,087, and its average grant was $195,263, across 63 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Lupus Research Alliance Inc that year got $134K on average.
Where does Lupus Research Alliance Inc give grants?
Lupus Research Alliance Inc's top state is New York, with 17% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Massachusetts (17%) and Georgia (12%). The most frequent recipient cities were Boston, MA (4 grants), New York, NY (4 grants), Seattle, WA (3 grants) and Los Angeles, CA (3 grants).
Does Lupus Research Alliance Inc give general operating support?
Not in 2024: none of the 63 grants with a stated purpose on Lupus Research Alliance Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Lupus Research" (63 grants).
Who are Lupus Research Alliance Inc's largest grantees?
Lupus Research Alliance Inc's largest 2024 grantees include Emory University ($1,287,995), Hospital for Special Surgery ($973,154) and Brigham and Women's Hospital ($935,996), according to its 2024 IRS Form 990. Together they received 26% of its itemized 2024 grant dollars.
How large is Lupus Research Alliance Inc?
Lupus Research Alliance Inc reported $93.3M in total assets on its 2024 IRS Form 990. Its revenue that year was $18.6M.
What does Lupus Research Alliance Inc fund?
The Alliance’s mission is to put people with lupus at the center of its work and drive the discovery and development of next-generation lupus diagnostics and curative treatments through innovative research and collaborations. See mission & focus areas ↑
How do I apply for a grant from Lupus Research Alliance Inc?
Lupus Research Alliance Inc has no public application process in the sources Grantable reviewed. Check lupusresearch.org for current guidelines, or contact the foundation directly before submitting a request.
What is Lupus Research Alliance Inc's EIN?
Lupus Research Alliance Inc's EIN (Employer Identification Number) is 58-2492929. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Here's the math on researching Lupus Research Alliance Inc by hand.
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