SLC6A1 Connect
SLC6A1 Connect is a patient advocacy group dedicated to improving the lives of children and families affected by the slc6a1 mutation. Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.
SLC6A1 Connect at a glance
In short: SLC6A1 Connect gave $264K across 7 grants in 2024 (avg $38K), top state Colorado. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $264,280
- -60.5% vs 2023
- Grants made (2024)
- 7
- -12.5% vs 2023
- Average grant
- $37,754
- -54.9% vs 2023
- Median grant
- $26,384
- Total assets
- $2,404,524
- +4.6% vs 2023
- Primary geography
- Colorado (40% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to SLC6A1 Connect
Open Grants
1 open opportunity from SLC6A1 Connect
Who SLC6A1 Connect funds
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
The largest 2024 recipient was University of Colorado ($107K). Together the top 7 received $264K.
Grant Size Distribution
21 grants across all recorded years
The most common grant size was under $50K: 14 grants of 21 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 7 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $5K (2019) to $818K (2022). In 2024 it made 7 grants totaling $264K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Colorado Aurora, CO | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $106,740 |
| Nationwide Children's Hospital Columbus, OH | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $50,255 |
| American Society of Gene & Cell Therapy Waukesha, WI | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $33,334 |
| University of Texas Southwestern Dallas, TX | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $26,384 |
| Combinedbrian Inc Brentwood, TN | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $25,417 |
| University of Alabama Tuscaloosa, AL | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $11,935 |
| The Epilepsy Foundation Bowie, MD | The purpose of the grants are to advance scientific and clinical efforts to advance the cure of slc6a1. | $10,215 |
Ready to take the next step with SLC6A1 Connect?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,404,524 | $716,694 | $679,506 | $264,280 | 7 | $94,500 |
| 2023 | $2,299,269 | $676,629 | $1,264,542 | $668,980 | 8 | $91,086 |
| 2022 | $2,802,564 | $944,773 | $957,076 | $818,223 | 6 | $27,196 |
| 2021 | $2,783,114 | $984,255 | $482,756 | — | — | $793 |
| 2020 | $2,212,220 | $800,954 | $714,151 | — | — | $8,039 |
| 2019 | $2,224,812 | $2,176,855 | $71,569 | $5,000 | Total only | $14,839 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About SLC6A1 Connect
Based on IRS filings
SLC6A1 Connect is a public charity focused on Medical Research, based in Frisco, TX. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $2.4M in total assets. In 2024, it awarded 7 grants totaling $264K. Net investment income was $95K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
SLC6A1 Connect is led by Amber Freed, Founder & CEO since 2021 (on filings since 2019); 1 of 8 officers listed in 2024 is compensated.
Officers on the 2024 filing
Amber Freed
Founder & CEO
Co-Founder & CEO → Founder & CEO, 2021
On filings since 2019
60 hrs/week
$100K (2023) → $100K (2024)
Kimberly Fry
Vice President
On filings since 2020
25 hrs/week
No compensation reported
Chantal Pittman
Patient Advocate
On filings since 2021
1 hr/week
No compensation reported
Gretchen McAlister
Fundraising Co-Chair
On filings since 2021
1 hr/week
No compensation reported
Kelsey Piro
Secretary & Treasurer
On filings since 2021
5 hrs/week
No compensation reported
Angela Mazur
Advisor
On filings since 2022
1 hr/week
No compensation reported
Michaella Gallina
Advisor
On filings since 2023
1 hr/week
No compensation reported
Angela Melka
Advisor
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (9)
- Former: Angela Giesen (2023) — Advisor
- Former: Andy Funk (2021–2022) — Advisor
- Former: Dan House (2021–2022) — Director of Engagement
- Former: Todd Griffin (2021) — Fundraising Co-Chair
- Former: Angela McHardy (2019–2020) — Director of Clinical Medic
- Former: Kimberly Nichols (2019–2020) — Director of Patient Advoca
- Former: Mark Freed (2019–2020) — Secretary & Treasurer
- Former: Tyler Rabun (2020) — Vice Chairperson & Director
- Former: Scott Fox (2019) — Vice Chairperson & Director of Development
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $100K, to Amber Freed (Founder/CEO).
Frequently asked questions about SLC6A1 Connect
How much does SLC6A1 Connect give each year?
SLC6A1 Connect gave $264K across 7 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $669K across 8 grants.
What is SLC6A1 Connect's typical grant size?
SLC6A1 Connect's median grant in 2024 was $26,384, and its average grant was $37,754, across 7 grants on its 2024 IRS Form 990.
Where does SLC6A1 Connect give grants?
SLC6A1 Connect's top state is Colorado, with 40% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Ohio (19%) and Wisconsin (13%).
Does SLC6A1 Connect give general operating support?
Not in 2024: none of the 7 grants with a stated purpose on SLC6A1 Connect's 2024 IRS Form 990 were described as general or operating support.
Who are SLC6A1 Connect's largest grantees?
SLC6A1 Connect's largest 2024 grantees include University of Colorado ($106,740), Nationwide Children's Hospital ($50,255) and American Society of Gene & Cell Therapy ($33,334), according to its 2024 IRS Form 990. Together they received 72% of its itemized 2024 grant dollars.
How large is SLC6A1 Connect?
SLC6A1 Connect reported $2.4M in total assets on its 2024 IRS Form 990. Its revenue that year was $717K.
What is SLC6A1 Connect?
SLC6A1 Connect is a public charity focused on Medical Research, based in Frisco, TX. It holds $2.4M in total assets as of 2024.
What is SLC6A1 Connect's EIN?
SLC6A1 Connect's EIN (Employer Identification Number) is 83-1415567. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 17, 2020)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 5, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 3, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in SLC6A1 Connect's focus areas in our free grants database
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