Pitt Hopkins Research Foundation
Pitt Hopkins Research Foundation's mission is to support research dedicated to finding a treatment and an eventual cure of pitt hopkins syndrome and other similar disorders. The organization's mission is to also support the pitt hopkins community with resource recommendations, parental support and the latest medical information.
Pitt Hopkins Research Foundation at a glance
In short: Pitt Hopkins Research Foundation gave $204K across 4 grants in 2025 (avg $51K), mostly in Texas. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $204,321
- -41.1% vs 2024
- Grants made (2025)
- 4
- +33.3% vs 2024
- Average grant
- $51,080
- -55.8% vs 2024
- Median grant
- $45,764
- Total assets
- $1,331,798
- +10.3% vs 2024
- Primary geography
- Texas (52% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Pitt Hopkins Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was UT Southwestern Medical Center ($106K). Together the top 4 received $204K.
Grant Size Distribution
19 grants across all recorded years
The most common grant size was under $50K: 8 grants of 19 (42%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
Cities
How Pitt Hopkins Research Foundation gives
- Giving grew 44% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $55K (2020) to $378K (2019). In 2025 it made 4 grants totaling $204K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UT Southwestern Medical Center Dallas, TX | To Support Research Projects on Pitt Hopkins Syndrome | $106,000 |
| University of California - Davis Davis, CA | To Support Research Projects on Pitt Hopkins Syndrome | $73,985 |
| Arizona State University Tempe, AZ | To Support Research Projects on Pitt Hopkins Syndrome | $17,543 |
| ASU Foundation for a New American University Tempe, AZ | To Support Research Projects on Pitt Hopkins Syndrome | $6,793 |
Ready to take the next step with Pitt Hopkins Research Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,331,798 | $836,745 | $510,731 | $204,321 | 4 | $10,828 |
| 2024 | $1,206,999 | $598,736 | $710,101 | $346,723 | 3 | $12,334 |
| 2023 | $1,135,807 | $397,950 | $599,530 | $334,952 | 4 | $11,628 |
| 2022 | $1,204,954 | $923,115 | $378,393 | $141,767 | 4 | $873 |
| 2021 | $1,004,696 | $351,382 | $315,259 | $239,010 | 4 | $999 |
| 2020 | $838,553 | $383,809 | $156,177 | $54,851 | 2 | $394 |
| 2019 | $793,081 | $493,775 | $532,102 | $377,721 | 4 | $317 |
About Pitt Hopkins Research Foundation
Based on IRS filings
Pitt Hopkins Research Foundation is a public charity focused on Health, based in Winston-Salem, NC. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.3M in total assets. In 2025, it awarded 4 grants totaling $204K. Net investment income was $11K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Pitt Hopkins Research Foundation is led by Audrey Davidow Lapidus, President since 2025 (on filings since 2019); 1 of 9 officers listed in 2025 is compensated.
Officers on the 2025 filing
Audrey Davidow Lapidus
President
President & Director → President, 2025
On filings since 2019
20 hrs/week
$29K (2022) → $50K (2025)
Claudette Mirigliani
Director
On filings since 2019
3 hrs/week
No compensation reported
Diane Krell
Director
On filings since 2019
3 hrs/week
No compensation reported
Traci Green
Director
On filings since 2019
3 hrs/week
No compensation reported
Aimee Ramos-Martinez
Director
On filings since 2023
3 hrs/week
No compensation reported
Jessica Fletcher
Vice President
Vice President & Director → Vice President, 2025
On filings since 2019
15 hrs/week
$6K (2024) → $0 (2025)
Diane Sellew
Treasurer
On filings since 2019
6 hrs/week
No compensation reported
Heather Maginn
Secretary
Secretary & Director → Secretary, 2025
On filings since 2019
3 hrs/week
No compensation reported
Theresa Pauca
Vice President
Vice President & Director → Vice President, 2025
On filings since 2019
3 hrs/week
No compensation reported
Former officers (7)
- Former: Stefanie Izzi (2020–2024) — Director · Filing note: Until 2/2024
- Former: Nicole Anderson (2019–2022) — Director
- Former: Eric Lapidus (2019–2020) — Director · Filing note: Thru 111920
- Former: Jeffrey Davidow (2019–2020) — Director · Filing note: Thru 111920
- Former: John Maginn (2019–2020) — Director · Filing note: Thru 111920
- Former: Paul Pauca (2019–2020) — Director · Filing note: Thru 111920
- Former: William Eyres (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $50K, to Audrey Davidow Lapidus (President).
Frequently asked questions about Pitt Hopkins Research Foundation
How much does Pitt Hopkins Research Foundation give each year?
Pitt Hopkins Research Foundation gave $204K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $347K across 3 grants.
What is Pitt Hopkins Research Foundation's typical grant size?
Pitt Hopkins Research Foundation's median grant in 2025 was $45,764, and its average grant was $51,080, across 4 grants on its 2025 IRS Form 990.
Where does Pitt Hopkins Research Foundation give grants?
Pitt Hopkins Research Foundation gives mostly in Texas: 52% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were California (36%) and Arizona (12%). The most frequent recipient cities were Tempe, AZ (2 grants).
Does Pitt Hopkins Research Foundation give general operating support?
Not in 2025: none of the 4 grants with a stated purpose on Pitt Hopkins Research Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "To Support Research Projects on Pitt Hopkins Syndrome" (4 grants).
How large is Pitt Hopkins Research Foundation?
Pitt Hopkins Research Foundation reported $1.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $837K.
What is Pitt Hopkins Research Foundation?
Pitt Hopkins Research Foundation is a public charity focused on Health, based in Winston-Salem, NC. It holds $1.3M in total assets as of 2025.
What is Pitt Hopkins Research Foundation's EIN?
Pitt Hopkins Research Foundation's EIN (Employer Identification Number) is 46-0770142. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS April 27, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS May 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 30, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS March 7, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS March 25, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS April 2, 2026)
- IRS filings on file for fiscal years 2019–2025
Explore Open Grants
Browse active grant opportunities in Pitt Hopkins Research Foundation's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
KPMG US Foundation Inc
Montvale, NJ
KPMG US Foundation supports education, mental health, community vitality, and community relief and resilience, with grants distributed across the United States. Its 2025 grants had a median of $25,000, though amounts ranged from about $5,000 to $2.2 million. The available information does not say whether it accepts unsolicited requests.
Assets
$12.4M
Grants
387
Total Given
$33.5M
Johns Hopkins University
Baltimore, MD
Johns Hopkins University funds a broad range of education, research, health, and community-related work, with 2025 grants ranging from $5,500 to nearly $95 million and a median of $100,000; many of the largest awards were sub-awards. Its grants went to organizations across the U.S., with the largest shares in California and Maryland, and the profile does not state whether it accepts unsolicited requests.
Assets
$25.3B
Grants
813
Total Given
$594.1M
The Children's Hospital of Philadelphia
Philadelphia, PA
CHOP primarily funds pediatric research at universities, hospitals, and research organizations, and also supports employee-led health projects in communities served by CHOP and its Care Network in Pennsylvania and New Jersey. In 2025, it awarded 138 grants totaling about $50.3 million; the median grant was about $115,000, with awards ranging from about $5,800 to $14 million. The profile does not state whether CHOP accepts unsolicited requests.
Assets
$9.1B
Grants
138
Total Given
$50.3M
Emory University
Atlanta, GA
Emory University primarily funds research and subcontract work for universities, hospitals, research organizations, and other organizations, across a range of academic and health-related fields. Its 2025 grants ranged from $5,500 to $19.1 million, with a median of about $97,000; 41% of grant dollars went to Georgia recipients. The profile does not state whether Emory accepts unsolicited requests.
Assets
$24.9B
Grants
362
Total Given
$183.7M
American Thrombosis and Hemostasis Network Inc
Hickory, NC
The American Thrombosis and Hemostasis Network funds data management and research projects that improve care for people with bleeding and clotting disorders, including work by treatment centers, hospitals, universities, and community organizations. Its 2024 grants ranged from $5,324 to $566,663, with a median of $14,400, and went to recipients in multiple U.S. states. The profile does not state whether it accepts unsolicited requests.
Assets
$5.2M
Grants
71
Total Given
$4.8M
Cornell University
Ithaca, NY
Cornell funds education, research—especially research grants—medical services, and public-service activities, with grants concentrated in New York and also reaching recipients across the U.S. In 2025, its grants ranged from $5,043 to $5.66 million, with a median of about $96,000. The profile does not state whether Cornell accepts unsolicited requests.
Assets
$19.8B
Grants
338
Total Given
$126.7M
More similar funders
More Funders in North Carolina
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Pitt Hopkins Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Pitt Hopkins Research Foundation down — hundreds of funders to go?