Additional Ventures Foundation
Additional Ventures Foundation is a private foundation based in San Francisco, California, established in 2018. The organization is dedicated to advancing research and treatment for single ventricle heart disease through strategic funding, collaboration, and scientific innovation. The foundation operates with a focused mission to accelerate progress toward curing this rare cardiac condition.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$220.3M
+6.9% YoY
Annual Giving
$17.2M
+3.6% YoY
Grant Count
68
-13.9% YoY
Avg Grant Size
$252K
+20.4% YoY
Under IRS private-foundation payout rules, Additional Ventures Foundation reported a distributable amount of $10.9M for 2024 — the minimum it must pay out in qualifying distributions.
Mission & Focus Areas
Mission: To cure single ventricle heart disease through transformative research and strategic investments that revolutionize treatment and care.
Core Approach: Additional Ventures spurs catalytic collaboration within the single ventricle community, facilitates faster and better science through agile approaches to research funding, and ensures researchers have the resources needed to drive toward a cure—all with intentionality, optimism, and urgency.
Primary Focus Areas:
- Single ventricle heart disease research and treatment
- Molecular and genetic basis of single ventricle disease
- Genomics research and data collection
- Translational and foundational science
- Cardiovascular development
- Tissue engineering
Grantmaking
Grant Range
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How to Apply
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Geographic Focus
Where this funder awards grants
The foundation funds research across multiple states, with primary focus areas including California, Massachusetts, Ohio, and Colorado. Notable grantees include Emory University.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Assets & Revenue (2024):
- Total Assets: $220,336,715
- Annual Revenue: $29.1 million
- Total Expenses: $19.5 million
- Total Liabilities: $17.4 million
Giving Activity (2024):
- Total Distributions: $20 million
- Total Giving: $17,151,264
- Contributions: $16 million
Historical Growth:
- Total assets have grown from $144.4 million in 2019 to $220.3 million in 2024
Staffing:
- 7 full-time employees
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $220,336,715 | $206,084,034 | $180,921,457 |
| Revenue | $29,136,428 | $39,091,290 | $19,582,543 |
| Expenses | $19,505,047 | $26,204,199 | $10,587,777 |
| Qualifying Distributions | $20,058,316 | $19,156,209 | $14,675,069 |
| Net Investment Income | $18,414,641 | $38,387,473 | $5,348,026 |
| Distributable Amount | $10,904,319 | $9,347,319 | $8,834,497 |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
197 grants across all recorded years
Open Grants
5 open opportunities from Additional Ventures Foundation
Expansion Award Grant
ADDITIONAL VENTURES FOUNDATION
Amount
Up to US $50,000
Deadline
Rolling / Open
Expansion Award Program
ADDITIONAL VENTURES FOUNDATION
Amount
$50,000
Deadline
Rolling / Open
Outstanding Research Presentation Award
ADDITIONAL VENTURES FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Renata Medical Inc ($1,100,000), Boston Children's Hospital ($934,317), Nationwide Children's Hospital Inc ($594,872).
| Recipient | Purpose | Amount |
|---|---|---|
| BAYLOR COLLEGE OF MEDICINE HOUSTON, TX | SINGLE VENTRICLE RESEARCH FUND | $208,396 |
| BAYLOR COLLEGE OF MEDICINE HOUSTON, TX | SINGLE VENTRICLE RESEARCH FUND | $219,877 |
| BOSTON CHILDREN'S HOSPITAL BOSTON, MA | CATALYST TO INDEPENDENCE AWARD | $125,444 |
| BOSTON CHILDREN'S HOSPITAL BOSTON, MA | SINGLE VENTRICLE RESEARCH FUND | $219,901 |
| BOSTON CHILDREN'S HOSPITAL BOSTON, MA | FORCE FUND | $934,317 |
| CALIFORNIA INSTITUTE OF TECHNOLOGY PASADENA, CA | SINGLE VENTRICLE RESEARCH FUND | $220,000 |
| CARNEGIE MELLON UNIVERSITY PITTSBURGH, PA | CURES COLLABORATIVE | $493,452 |
| CATHOLIC UNIVERSITY OF LEUVEN | SINGLE VENTRICLE RESEARCH FUND | $230,000 |
| CENTRE HOSPITALIER UNIVERSITAIRE SAINTE-JUSTINE | 2024 WEINSTEIN CONFERENCE | $20,000 |
| CHARLES UNIVERSITY | INTERNATIONAL CARDIOVASCULAR DEVELOPMENT AND REGENERATION MEETING | $5,000 |
Leadership & Key People
Leadership team and compensation from IRS filings
Executive Leadership:
- Erin Hoffmann – Executive Chairman & Founder
- Mike Schroepfer – Founder
- Kirstie Keller, PhD – CEO
- Tom Van Loben Sels – Secretary
Program & Scientific Staff:
- Dylan Barbera, PhD – Program Officer
- Kaitlin Davis, PhD – Director of Translational Science
- Stefânia Forner, PhD – Director of Foundational Science
- Megan N. Freeland, PharmD – Director of Communications
- Taylor MacLean – Program Manager
- Tiana Medley, PhD, PMP – Program Officer
- Diane Pickles – Director of SOURCE
- Courtney Steger, PhD – Program Manager
- Daniel Radecki – Program Officer
Scientific Advisory Board:
- Deepak Srivastava, MD – President, Gladstone Institutes; Professor, University of California, San Francisco
- Daniel Licht, MD – Professor of Neurology, Children's National Hospital
- R. Mark Payne, MD – Professor of Pediatrics and Medical & Molecular Genetics, Indiana University School of Medicine
- Cecilia Lo, PhD, FAHA – Distinguished Professor and F. Sargent Cheever Chair in Developmental Biology, University of Pittsburgh
- Anthony Philippakis, MD, PhD – Chief Data Officer, Institute Scientist, Broad Institute of MIT and Harvard
- Alison Marsden, PhD – Professor of Pediatrics–Cardiology and Bioengineering, Stanford University
- Anthony B. Firulli, PhD – Endowed Professor of Pediatrics, Indiana University School of Medicine
- Shelley Miyamoto, MD – Jack Cooper Millisor Chair in Pediatric Heart Disease, Professor of Pediatrics
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ERIN HOFFMANN | PRESIDENT/CHAIRMAN/DIRECTOR | 6 | — |
| MICHAEL SCHROEPFER | CFO/DIRECTOR | 1 | — |
| TOM VAN LOBEN SELS | SECRETARY | 1 | — |
| KIRSTIE KELLER | CEO | 40 | $309,728 |
Recent News & Activity
Recent developments and announcements
**Translational Accelerator Launch:** Additional Ventures has launched the Translational Accelerator, a groundbreaking program designed to enable the next phase of progress in single ventricle science.
Additional Ventures Foundation - Grant Information & Application ...**Single Ventricle Research Fund:** The sixth cycle of the Single Ventricle Research Fund (SVRF), the foundation's flagship research award program, is currently open for applications.
**Collaborative Partnerships:** The foundation has announced collaborative initiatives, including the AHA/AV Collaborative Sciences Awards, demonstrating commitment to partnership-based research advancement.
Announcing the Launch of the AHA/AV Collaborative Sciences Awards \u2013\Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What does Additional Ventures Foundation fund?
**Mission:** To cure single ventricle heart disease through transformative research and strategic investments that revolutionize treatment and care. **Core Approach:** Additional Ventures spurs catalytic collaboration within the single ventricle community, facilitates faster and better science through agile approaches to research funding, and ensures researchers have the resources needed to drive toward a cure—all with intentionality, optimism, and urgency. **Primary Focus Areas:** • Single ven…
How do I apply for a grant from Additional Ventures Foundation?
**Grant Activity:** • Since 2020, Additional Ventures has distributed over $95 million in single ventricle research funding • Supported 200+ studies aimed at understanding and curing single ventricle • Generated 125+ research publications from funded researchers • Made 68 grants in the most recent reporting period **Grant Sizes:** • Typical awards range from $2,500 to $1,200,000 • Median grant amount: $220,000 • Maximum grant award: $1,200,000 **Active Grant Programs:** *Single Ventricle Resear…
Where does Additional Ventures Foundation make grants?
The foundation funds research across multiple states, with primary focus areas including California, Massachusetts, Ohio, and Colorado. Notable grantees include Emory University.
What size grants does Additional Ventures Foundation award?
In 2024, Additional Ventures Foundation awarded 68 grants totaling $17.2M — an average of about $252K per grant, based on its IRS Form 990 filings.
How much is Additional Ventures Foundation required to give away each year?
Private foundations must generally distribute about 5% of their assets annually. For 2024, Additional Ventures Foundation reported a distributable amount of $10.9M on its IRS Form 990-PF — the minimum it must pay out in qualifying distributions.
What is Additional Ventures Foundation's EIN?
Additional Ventures Foundation's EIN (Employer Identification Number) is 81-4429034. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Additional Ventures Foundation's focus areas in our free grants database
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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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