CMT Research Foundation Inc
With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
CMT Research Foundation Inc at a glance
In short: CMT Research Foundation Inc gave $1.7M across 7 grants in 2025 (avg $248K), top state Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,733,412
- +13.4% vs 2024
- Grants made (2025)
- 7
- -12.5% vs 2024
- Average grant
- $247,630
- +29.6% vs 2024
- Median grant
- $209,500
- Total assets
- $8,705,044
- +86.3% vs 2024
- Primary geography
- Massachusetts (29% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to CMT Research Foundation Inc
Open Grants
2 open opportunities from CMT Research Foundation Inc
Who CMT Research Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2025
The largest 2025 recipient was Alloy Therapeutics Inc ($500K). Together the top 7 received $1.7M.
Grant Size Distribution
33 grants across all recorded years
The most common grant size was in the $100–250K range: 12 grants of 33 (36%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 7 itemized grants.
Cities
How CMT Research Foundation Inc gives
- Giving grew 111% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $189K (2021) to $1.7M (2025). In 2025 it made 7 grants totaling $1.7M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Alloy Therapeutics Inc Waltham, MA | Collaborative research agreement | $500,000 |
| Nationwide Children's Hospital Columbus, OH | Collaborative research agreement | $392,096 |
| Vanderbilt University Nashville, TN | Collaborative research agreement | $260,803 |
| ASHA Therapeutics LLC Tampa, FL | Collaborative research agreement | $209,500 |
| University of Illinois at Chicago Chicago, IL | Collaborative research agreement | $207,892 |
| University of Miami Coral Gables, FL | Collaborative research agreement | $142,681 |
| Chicago Association for Research and Education in Science Hines, TN | Collaborative research agreement | $20,440 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $8,705,044 | $8,662,522 | $4,587,545 | $1,733,412 | 7 | $106,654 |
| 2024 | $4,673,303 | $4,624,073 | $4,074,218 | $1,528,947 | 8 | $103,382 |
| 2023 | $4,029,470 | $3,526,505 | $3,602,656 | $1,109,673 | 6 | $76,362 |
| 2022 | $3,915,699 | $4,352,285 | $2,599,551 | $823,150 | 8 | $3,127 |
| 2021 | $2,122,395 | $217,004 | $854,568 | $189,148 | 4 | $106 |
| 2020 | $2,731,283 | $1,687,608 | $1,482,324 | $597,229 | 5 | $1,330 |
About CMT Research Foundation Inc
Based on IRS filings
CMT Research Foundation Inc is a public charity focused on Medical Research, based in Atlanta, GA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $8.7M in total assets. In 2025, it awarded 7 grants totaling $1.7M. Net investment income was $107K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
CMT Research Foundation Inc is led by Cleary Simpson, Vice Chair & CEO since 2025 (on filings since 2020); 6 of 15 officers listed in 2025 are compensated.
Officers on the 2025 filing
Cleary Simpson
Vice Chair & CEO
Member → CEO, 2022
CEO → Vice Chair & CEO, 2025
On filings since 2020
2 hrs/week
$192K (2023) → $183K (2025)
Laura MacNeill
Chief Executive Officer
New on the 2025 filing
40 hrs/week
$74K (2025)
Peter DeSilva
Chair
Member → Chair, 2024
On filings since 2021
2 hrs/week
No compensation reported
Riann Egusquiza
Director of Research
New on the 2025 filing
40 hrs/week
$152K (2025)
Susan Ruediger
Co-Founder & Chief Mission Officer
Founder & CEO → Founder & Chief Mission Officer, 2022
Founder & Chief Mission Officer → Co-Founder & Chief Mission Officer, 2025
On filings since 2020
20 hrs/week
$160K (2020) → $38K (2025)
Erich Fasnacht
Chief Operations Officer
On filings since 2022
40 hrs/week
$201K (2022) → $240K (2025)
Anna Price
Vice President of Philanthropy
On filings since 2024
40 hrs/week
$115K (2024) → $163K (2025)
Adam Kauffman
Treasurer
Finance Chair → Treasurer, 2021
On filings since 2020
1 hr/week
No compensation reported
Susan Canavari
Secretary
Member → Secretary, 2021
On filings since 2020
1 hr/week
No compensation reported
Maximiliano Barrientos
Member
On filings since 2022
1 hr/week
No compensation reported
Arthur Suckow
Member
On filings since 2023
1 hr/week
No compensation reported
Thomas Sander
Member
On filings since 2023
1 hr/week
No compensation reported
William Motley
Member
On filings since 2023
2 hrs/week
No compensation reported
Santo Caivano
Member
On filings since 2024
1 hr/week
No compensation reported
Ann Fairchild
Member
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (6)
- Former: Patrick Livney (2020–2023) — Founder & Chairman
- Former: Paul August (2020–2023) — Member
- Former: Joseph Mulvey (2021–2023) — Member
- Former: Keith Fargo (2022–2023) — Chief Scientific Officer
- Former: Jeff Ellman (2020–2021) — Member
- Former: Michelle Moon (2020) — Secretary
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $240K, to Erich Fasnacht (Chief Operations Officer). 6 officers or directors reported compensation on that filing.
Frequently asked questions about CMT Research Foundation Inc
How much does CMT Research Foundation Inc give each year?
CMT Research Foundation Inc gave $1.7M across 7 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.5M across 8 grants.
What is CMT Research Foundation Inc's typical grant size?
CMT Research Foundation Inc's median grant in 2025 was $209,500, and its average grant was $247,630, across 7 grants on its 2025 IRS Form 990.
Where does CMT Research Foundation Inc give grants?
CMT Research Foundation Inc's top state is Massachusetts, with 29% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Ohio (23%) and Florida (20%).
Does CMT Research Foundation Inc give general operating support?
Not in 2025: none of the 7 grants with a stated purpose on CMT Research Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Collaborative research agreement" (7 grants).
Who are CMT Research Foundation Inc's largest grantees?
CMT Research Foundation Inc's largest 2025 grantees include Alloy Therapeutics Inc ($500,000), Nationwide Children's Hospital ($392,096) and Vanderbilt University ($260,803), according to its 2025 IRS Form 990. Together they received 67% of its itemized 2025 grant dollars.
How large is CMT Research Foundation Inc?
CMT Research Foundation Inc reported $8.7M in total assets on its 2025 IRS Form 990. Its revenue that year was $8.7M.
What is CMT Research Foundation Inc?
CMT Research Foundation Inc is a public charity focused on Medical Research, based in Atlanta, GA. It holds $8.7M in total assets as of 2025.
What is CMT Research Foundation Inc's EIN?
CMT Research Foundation Inc's EIN (Employer Identification Number) is 82-5476655. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS September 1, 2022)
- IRS filings on file for fiscal years 2020–2025
Explore Open Grants
Browse active grant opportunities in CMT Research Foundation Inc's focus areas in our free grants database
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