With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.7M
+16.0% YoY
Annual Giving
$1.5M
+37.8% YoY
Grant Count
8
+33.3% YoY
Avg Grant Size
$191K
+3.3% YoY
About CMT Research Foundation Inc
Based on IRS filings
CMT Research Foundation Inc is a nonprofit organization focused on Medical Research, based in ATLANTA, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.7M in total assets. In 2024, it awarded 8 grants totaling $1.5M. Net investment income was $103K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,673,303 | $4,029,470 | $3,915,699 |
| Revenue | $4,624,073 | $3,526,505 | $4,352,285 |
| Expenses | $4,074,218 | $3,602,656 | $2,599,551 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $103,382 | $76,362 | $3,127 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
Grant Size Distribution
31 grants across all recorded years
Open Grants
2 open opportunities from CMT Research Foundation Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Armatus Bio Inc ($570,999), Vanderbilt University ($277,631), Nationwide Children's Hospital ($190,382).
| Recipient | Purpose | Amount |
|---|---|---|
| Chicago Association for Research and Education in Science Hines, TN | Collaborative research agreement | $20,000 |
| Nationwide Children's Hospital Columbus, OH | Collaborative research agreement | $190,382 |
| University of Illinois at Chicago Chicago, IL | Collaborative research agreement | $143,124 |
| Vanderbilt University Nashville, TN | Collaborative research agreement | $277,631 |
| Georgia Tech Research Corporation Atlanta, GA | Collaborative research agreement | $38,130 |
| University of Miami Coral Gables, FL | Collaborative research agreement | $142,681 |
| Armatus Bio Inc Columbus, OH | Collaborative research agreement | $570,999 |
| ReviR Therapeutics Inc Brisbane, CA | Collaborative research agreement | $146,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Peter DeSilva | Chair | 2 | — |
| Susan Ruediger | Founder & Chief Mission Officer | 40 | $29,737 |
| Susan Canavari | Secretary | 1 | — |
| Adam Kauffman | Treasurer | 1 | — |
| Cleary Simpson | CEO | 40 | $215,000 |
| Maximiliano Barrientos | Member | 2 | — |
| William Motley | Member | 2 | — |
| Thomas Sander | Member | 1 | — |
| Arthur Suckow | Member | 1 | — |
| Santo Caivano | Member | 1 | — |
| Erich Fasnacht | Chief Operations Officer | 40 | $230,000 |
| Anna Price | VP of Philanthropy | 40 | $114,812 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is CMT Research Foundation Inc?
CMT Research Foundation Inc is a nonprofit organization focused on Medical Research, based in ATLANTA, GA. It holds $4.7M in total assets as of 2024.
How large is CMT Research Foundation Inc?
As of 2024, CMT Research Foundation Inc holds $4.7M in total assets with $4.6M in annual revenue. It awarded 8 grants totaling $1.5M in 2024.
Where does CMT Research Foundation Inc operate?
CMT Research Foundation Inc has awarded grants in California, Delaware, Florida, Georgia, Illinois, Kansas, Massachusetts, Maine, Missouri, Ohio, Tennessee.
What size grants does CMT Research Foundation Inc award?
In 2024, CMT Research Foundation Inc awarded 8 grants totaling $1.5M — an average of about $191K per grant, based on its IRS Form 990 filings.
What is CMT Research Foundation Inc's EIN?
CMT Research Foundation Inc's EIN (Employer Identification Number) is 82-5476655. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in CMT Research Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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