CMT Research Foundation Inc
With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$4.7M
+16.0% YoY
Annual Giving
$1.5M
+37.8% YoY
Grant Count
8
+33.3% YoY
Avg Grant Size
$191K
+3.3% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,673,303 | $4,029,470 | $3,915,699 |
| Revenue | $4,624,073 | $3,526,505 | $4,352,285 |
| Expenses | $4,074,218 | $3,602,656 | $2,599,551 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $103,382 | $76,362 | $3,127 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
Grant Size Distribution
31 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does CMT Research Foundation Inc fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Peter DeSilva | Chair | 2 | — |
| Susan Ruediger | Founder & Chief Mission Officer | 40 | $29,737 |
| Susan Canavari | Secretary | 1 | — |
| Adam Kauffman | Treasurer | 1 | — |
| Cleary Simpson | CEO | 40 | $215,000 |
| Maximiliano Barrientos | Member | 2 | — |
| William Motley | Member | 2 | — |
| Thomas Sander | Member | 1 | — |
| Arthur Suckow | Member | 1 | — |
| Santo Caivano | Member | 1 | — |
| Erich Fasnacht | Chief Operations Officer | 40 | $230,000 |
| Anna Price | VP of Philanthropy | 40 | $114,812 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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