With a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.7M
+16.0% YoY
Annual Giving
$1.5M
+37.8% YoY
Grant Count
8
+33.3% YoY
Avg Grant Size
$191K
+3.3% YoY
About CMT Research Foundation Inc
Based on IRS filings
CMT Research Foundation Inc is a nonprofit organization focused on Medical Research, based in ATLANTA, GA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.7M in total assets. In 2024, it awarded 8 grants totaling $1.5M. Net investment income was $103K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,673,303 | $4,029,470 | $3,915,699 |
| Revenue | $4,624,073 | $3,526,505 | $4,352,285 |
| Expenses | $4,074,218 | $3,602,656 | $2,599,551 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $103,382 | $76,362 | $3,127 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
Grant Size Distribution
31 grants across all recorded years
Open Grants
2 open opportunities from CMT Research Foundation Inc
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Peter DeSilva | Chair | 2 | — |
| Susan Ruediger | Founder & Chief Mission Officer | 40 | $29,737 |
| Susan Canavari | Secretary | 1 | — |
| Adam Kauffman | Treasurer | 1 | — |
| Cleary Simpson | CEO | 40 | $215,000 |
| Maximiliano Barrientos | Member | 2 | — |
| William Motley | Member | 2 | — |
| Thomas Sander | Member | 1 | — |
| Arthur Suckow | Member | 1 | — |
| Santo Caivano | Member | 1 | — |
| Erich Fasnacht | Chief Operations Officer | 40 | $230,000 |
| Anna Price | VP of Philanthropy | 40 | $114,812 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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