PKD Foundation
The PKD Foundation is a public charity based in Kansas City, Missouri. It funds research, education, advocacy, support, and awareness efforts related to polycystic kidney disease (PKD), and says it is the only U.S. organization solely dedicated to finding treatments and a cure for PKD.
PKD Foundation at a glance
In short: PKD Foundation gave $2.6M across 38 grants in 2025 (avg $69K), top state Kansas. 42% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $2,620,000
- +0.3% vs 2024
- Grants made (2025)
- 38
- +46.2% vs 2024
- Average grant
- $68,947
- -31.4% vs 2024
- Median grant
- $70,000
- Total assets
- $36,993,653
- +6.8% vs 2024
- New grantees (estimate)
- 42% first-time grantees (10 of 24, 2025; small sample)
- Primary geography
- Kansas (17% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to PKD Foundation
- How to Apply
-
Submit a pre-application to be considered for a research grant. Full applications are accepted only from applicants invited by the Foundation. The 2027 research-grant guidelines include basic, translational, clinical, and epidemiology or data-analysis research; they give special consideration to applications for research conducted in Canada or Australia through international partnerships.
- Review Cycle
- The 2027 research-grant pre-application deadline was August 17, 2026, and has passed. The full-application deadline is January 19, 2027, at 5 p.m. CST; only invited applicants may submit.
- Deadline
- The 2027 research-grant pre-application deadline was August 17, 2026, and has passed.
- Contact
Mailing address: 1001 E 101St Ter 220, Kansas City, MO 64131
Phone: (816) 931-2600
Website: https://pkdcure.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
4 open opportunities from PKD Foundation
Community Engagement Grants
PKD Foundation
Amount
Up to $6,000
Deadline
Deadline not published
PKD Care Team Grants
PKD Foundation
Amount
Varies
Deadline
Deadline not published
PKD Research Grants
PKD Foundation
Amount
Up to US $160,000
Deadline
Deadline not published
Who PKD Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Mayo Clinic ($410K across 6 grants). Together the top 10 received $1.7M.
Grant Size Distribution
112 grants across all recorded years
The most common grant size was in the $50–100K range: 85 grants of 112 (76%).
Geographic Focus
Where this funder awards grants
The Foundation describes its work as national and local. Its 2025 grant dollars went to recipients in multiple states, with the largest shares reported for Kansas (17%), Minnesota (13%), Colorado (12%), Maryland (11%), and California (8%). Its research-grant guidelines also provide special consideration for research conducted in Canada and Australia through international partnerships.
Grant Distribution by State
Share of 2025 grant dollars across all 38 itemized grants.
States
Cities
Is PKD Foundation open to new grantees?
42%
first-time grantees, 2025
In 2025, 10 of 24 grantees (42%) were first-time recipients. With only 24 grantees, that is a small sample: one grantee more or less moves the share by about 4 points. First grants averaged $86K; repeat grants $126K. How we count
Medians: $73K first-time, $72K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $1.1M (2021) to $2.6M (2025). In 2025 it made 38 grants totaling $2.6M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Mayo Clinic Rochester, MN | Research Grant | $80,000 |
| University of Alabama Birmingham Birmingham, AL | Research Grant | $80,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Research Grant | $80,000 |
| State of Maryland - University of Maryland Baltimore Baltimore, MD | Research Grant | $80,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Research Grant | $80,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Research Grant | $80,000 |
| Mayo Clinic Rochester, NY | Research Grant | $80,000 |
| Regents of the University of Colorado Denver, CO | Research Grant | $80,000 |
| University of Kansas Medical Center Research Institute Kansas City, KS | Research Grant | $80,000 |
| National Institutes of Health Bethesda, MD | Research Grant | $80,000 |
Ready to take the next step with PKD Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $36,993,653 | $11,009,122 | $9,872,297 | $2,620,000 | 38 | $1,272,154 |
| 2024 | $34,638,627 | $8,819,830 | $9,646,034 | $2,613,049 | 26 | $652,841 |
| 2023 | $33,103,416 | $10,283,998 | $9,075,142 | $1,898,000 | 23 | $824,102 |
| 2022 | $31,113,409 | $18,472,948 | $7,358,317 | $1,360,000 | 15 | $285,943 |
| 2021 | $25,693,539 | $8,954,721 | $6,814,636 | $1,120,000 | 10 | $1,194,688 |
| 2020 | $20,909,832 | $16,124,449 | $7,241,943 | $1,355,964 | 10 | $281,624 |
| 2019 | $10,606,466 | $6,759,603 | $8,169,957 | $2,090,000 | 29 | $217,531 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
The Foundation’s mission is “We give hope. We fund research, advocate for patients, and build a community for all impacted by PKD.” Its research funding supports basic, translational, clinical, and epidemiology or data-analysis research relevant to autosomal dominant and autosomal recessive PKD. Its website also describes funding nephrology fellowships and scientific meetings.
The Foundation’s 2025 grants included research awards to universities, medical centers, and research institutes. Grantees describe a range of missions: Augusta University Research Institute says it serves Augusta University and supports its excellence as a research institution; Children’s Research Institute says it conducts and promotes translational and clinical medical research and education to improve understanding, prevention, treatment, and care of childhood diseases; and The Rogosin Institute says it provides kidney-disease services and conducts basic and clinical research, among other work.
The Foundation also offers care team grants for eligible PKD Centers of Excellence, Partner Clinics, and pediatric counterparts. These three-year grants support care teams and patient navigation services, including care coordination, patient education, clinical-trial coordination, and research participation support.
Grantmaking
In filing year 2025, the Foundation reported 38 grants totaling $2,620,000. Grants ranged from $28,000 to $80,000, with a median of $70,000. The largest reported awards were $80,000 research grants to organizations including Mayo Clinic, the University of Alabama Birmingham, University of Kansas Medical Center Research Institute, the University of Maryland Baltimore, the Regents of the University of Colorado, the National Institutes of Health, the Regents of the University of California San Francisco, and Rutgers.
Other 2025 awards included $80,000 to Augusta University Research Institute, $73,000 to Emory University, $70,000 to Children’s Research Institute, $67,000 to Swedish Medical Center Foundation, $62,000 to the Trustees of Columbia University, $60,000 to Loyola University of Chicago, $60,000 to the Kansas University Endowment Association, and $28,000 to The Rogosin Institute.
For its research grant program, the Foundation describes a two-year award structure of $120,000 per year. Applicants must have an M.D., Ph.D., or equivalent degree and a faculty appointment at the institution where the research will be conducted; U.S. citizenship is not required. The Foundation requires a pre-application and invitation before a full application can be submitted. Grants are two-year commitments, with an interim report after year one and a final report after year two; both reports include research accomplishments and a reconciliation of grant spending against the approved budget.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Susan Bushnell as president and CEO. Listed directors include Navin Manglani, chair; Chris Wess, vice chair; Stu Caplan, treasurer; and Amanda Yen, secretary. Other listed directors are Alix Piccirilli, Debora Plunkett, Fouad Chabib MD FASN, Glenn Frommer, and Julie Marshall.
PKD Foundation is led by Susan Bushnell, President & CEO since 2025 (on filings since 2023); 8 of 21 officers listed in 2025 are compensated.
Officers on the 2025 filing
Susan Bushnell
President & CEO
Chief Executive Officer → President & CEO, 2025
On filings since 2023
40 hrs/week
$253K (2024) → $292K (2025)
Navin Manglani
Director & Chair
Secretary → Director & Vice Chair, 2022
Director & Vice Chair → Director & Chair, 2024
On filings since 2021
1 hr/week
No compensation reported
Nicole Harr
Senior Director of Community Programs & Education
New on the 2025 filing
40 hrs/week
$101K (2025)
Chris Wess
Director & Vice Chair
Director & Treasurer → Director, 2023
Director → Director & Vice Chair, 2024
On filings since 2021
1 hr/week
No compensation reported
Julie Marshall
Director
On filings since 2021
1 hr/week
No compensation reported
Stu Caplan
Director & Treasurer
Director → Director & Treasurer, 2023
On filings since 2021
1 hr/week
No compensation reported
Amanda Yen
Director & Secretary
Director → Director & Secretary, 2024
On filings since 2023
1 hr/week
No compensation reported
Meyeon Park MD
Director
On filings since 2023
1 hr/week
No compensation reported
Alix Piccirilli
Director
On filings since 2024
1 hr/week
No compensation reported
Debora Plunkett
Director
On filings since 2024
1 hr/week
No compensation reported
Glenn Frommer
Director
On filings since 2024
1 hr/week
No compensation reported
Michael Haggard
Director
On filings since 2024
1 hr/week
No compensation reported
Shawna Webb
Director
On filings since 2024
1 hr/week
No compensation reported
Vishal Patel MD
Director
On filings since 2024
1 hr/week
No compensation reported
Fouad Chabib Md Fasn
Director
New on the 2025 filing
1 hr/week
No compensation reported
Carmen Gleason
Chief Operating Officer
Chief Operations Officer → Chief Operating Officer, 2025
On filings since 2022
40 hrs/week
$90K (2022) → $225K (2025)
Craig Robertson
Chief Growth Officer
On filings since 2023
40 hrs/week
$116K (2024) → $234K (2025)
Desiree White
Vice President & Information Services
Vice President of Information Systems → Vice President & Information Services, 2025
On filings since 2024
40 hrs/week
$111K (2024) → $127K (2025)
Matthew Becka
Chief Research Officer
On filings since 2024
40 hrs/week
$119K (2024) → $218K (2025)
Krystn Kuckleman
Vice President & Community Development
New on the 2025 filing
40 hrs/week
$152K (2025)
Tanya Bissen
Vice President & Leadership Giving
New on the 2025 filing
40 hrs/week
$153K (2025)
Former officers (59)
- Former: Jonathan Rich (2023–2024) — Chief Development Officer
- Former: Krystn Kuckelman (2023–2024) — Vice President of Community Development
- Former: Elise Hoover (2024) — Director of Research
- Former: Foaud T. Chebib Md Fasn (2024) — Director
- Former: Katherine Dell (2019–2023) — Director
- Former: Michael Mrug (2019–2023) — Director
- Former: Paula Hutchinson (2019–2023) — Director
- Former: Rob Roth (2019–2023) — Director & Chair
- Former: Susan Lee Deremer (2019–2023) — Director of Leadership Gifts
- Former: Amy Omenn (2021–2023) — Director & Secretary
- Former: Andrew Betts (2021–2023) — Chief Executive Officer
- Former: Christopher Rusconi (2022–2023) — Chief Research Officer
- Former: Shanna Eiklenborg (2022–2023) — Senior Dir.-Education & Events
- Former: Bruce Winn (2023) — Director
- Former: Ashley Brown (2019–2022) — Director
- Former: Chad Iseman (2021–2022) — Chief Advancement Officer
- Former: Bev Benson (2022) — Director & Past Chair
- Former: Andrea Kringstein (2019–2021) — Director
- Former: Beverly Benson (2019–2021) — Chair
- Former: Bill Brazell (2019–2021) — Director
- Former: Craig Ramseyer (2019–2021) — Director
- Former: Jerry Waxman (2019–2021) — Director
- Former: Michele Karl (2019–2021) — Director
- Former: Amanda Hanova (2021) — Chief Operations Officer
- Former: Chris Rusconi (2021) — Chief Research Officer
- Former: Kim Walter (2021) — Director
- Former: Baron David (2020) — Chief Research Officer
- Former: Benson Dr Beverly (2020) — Chair
- Former: Betts Andrew (2020) — President & CEO
- Former: Brazell Bill (2020) — Director
- Former: Brown Ashley (2020) — Director
- Former: Dell Katherine (2020) — Director
- Former: Denny Alexis (2020) — Director of Government Affairs
- Former: Deremer Susan (2020) — Director of Leadership Gifts
- Former: Habermann Georgina (2020) — Director
- Former: Hanova Amanda (2020) — Chief Operating Officer
- Former: Hutchinson Paula (2020) — Secretary
- Former: Karl Michele (2020) — Director
- Former: Kleber Klee (2020) — Vice Chair
- Former: Kringstein Andrea (2020) — Director
- Former: Manglani Navin (2020) — Director
- Former: Mrug Michal (2020) — Director
- Former: Ramseyer Craig (2020) — Director
- Former: Roth Rob (2020) — Treasurer
- Former: Sullens Stephanie (2020) — Chief Advancement Officer
- Former: Towey Fran Jr. (2020) — Director
- Former: Waxman Jerry (2020) — Director
- Former: Wess Chris (2020) — Director
- Former: Alexis Denny (2019) — Director of Govt Affairs
- Former: Andy Betts (2019) — President & CEO
- Former: Brock Nelson (2019) — Treasurer
- Former: David Baron (2019) — Chief Scientific Officer
- Former: Dwight Odland (2019) — Director
- Former: Fran Towey (2019) — Director
- Former: Georgina Haberman (2019) — Director
- Former: Kenneth McLaughlin (2019) — COO - Left December
- Former: Klee Kleber (2019) — Chair
- Former: Robin Strachan - Left July (2019) — Planned Giving Director
- Former: Terry Watnick (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $292K, to Susan Bushnell (President & CEO). 8 officers or directors reported compensation on that filing.
Frequently asked questions about PKD Foundation
How much does PKD Foundation give each year?
PKD Foundation gave $2.6M across 38 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $2.6M across 26 grants.
What is PKD Foundation's typical grant size?
PKD Foundation's median grant in 2025 was $70,000, and its average grant was $68,947, across 38 grants on its 2025 IRS Form 990. Organizations receiving their first grant from PKD Foundation that year got $86K on average.
Where does PKD Foundation give grants?
PKD Foundation's top state is Kansas, with 17% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Minnesota (13%) and Colorado (12%). The most frequent recipient cities were Kansas City, KS (5 grants), Rochester, MN (5 grants), Denver, CO (5 grants) and Baltimore, MD (3 grants).
Does PKD Foundation give general operating support?
Not in 2025: none of the 38 grants with a stated purpose on PKD Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Grant" (19 grants), "Care Center Grant" (14 grants) and "Fellowship Grant" (5 grants).
Who are PKD Foundation's largest grantees?
PKD Foundation's largest 2025 grantees include Mayo Clinic ($410,000 across 6 grants), University of Kansas Medical Center Research Institute ($390,000 across 5 grants) and Regents of the University of Colorado ($237,000 across 4 grants), according to its 2025 IRS Form 990. Together they received 40% of its itemized 2025 grant dollars.
How large is PKD Foundation?
PKD Foundation reported $37.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $11.0M.
What does PKD Foundation fund?
The Foundation’s mission is “We give hope. We fund research, advocate for patients, and build a community for all impacted by PKD.” Its research funding supports basic, translational, clinical, and epidemiology or data-analysis research relevant to autosomal dominant and autosomal recessive PKD. See mission & focus areas ↑
How do I apply for a grant from PKD Foundation?
Submit a pre-application to be considered for a research grant. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is PKD Foundation's EIN?
PKD Foundation's EIN (Employer Identification Number) is 43-1266906. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS January 29, 2021)
- Updated Form 990 for fiscal year 2020 (received by the IRS January 29, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 7, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 5, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 16, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS April 14, 2026)
Explore Open Grants
Browse active grant opportunities in PKD Foundation's focus areas in our free grants database
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Cite this profile
Grantable. (2026). PKD Foundation funder profile. GrantGraph. Retrieved October 10, 2026, from https://grantable.co/funders/pkd-foundation-morg_02e638551d954889a058fe9a6e223561
BibTeX
@misc{grantable_431266906_2026,
author = {{Grantable}},
title = {{PKD Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/pkd-foundation-morg_02e638551d954889a058fe9a6e223561},
note = {Accessed 2026-10-10. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from PKD Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
PKD Foundation down — hundreds of funders to go?