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PKD Care Team Grants

PKD Foundation

Funding Amount

Not stated

Deadline

Deadline not published

Grant Type

Foundation

Deadline history & next window

Cycle
Annual
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Other requirements

  • United States; limited to designated PKD Centers of Excellence and Partner Clinics
  • Contact: PKD Foundation (pkdcure.org)

Overview

Program Overview:
Three-year funding opportunity for PKD Centers of Excellence, Partner Clinics, Pediatric Centers of Excellence, and Pediatric Clinics to bolster their care teams and support patient navigation services. This grant is part of the PKD Centers of Excellence program and supports the pillars of research, enhanced care, and community education.

Award Details

  • Funding Duration: Three-year grants
  • Funding Amount: Not specified in provided materials
  • Eligibility: Teams in the PKD Foundation's Centers of Excellence, Partner Clinic, Pediatric Center of Excellence, or Pediatric Clinic programs

Program Focus

The grants support:

  • Patient navigation services
  • Comprehensive PKD-centered care team development
  • Staffing for care coordination
  • Patient education and self-management support
  • Clinical trial coordination
  • Research participation support
  • Care quality improvement initiatives
  • Transplant preparation and education support
  • Health coaching programs
  • Patient navigator roles

Recent Awardee Examples (2023-2027)

The program has funded initiatives including:

  • Patient navigator positions
  • Nurse coordinator roles
  • Health coaching programs
  • Care coordination staff
  • Administrative support for patient-facing services
  • Clinical trial facilitation
  • Transplant evaluation support
  • Research participation coordination

Institutions with Active Awards (as of 2026)

2025-2027 Awardees:

  • University of California San Francisco

2024-2026 Awardees:

  • Emory University
  • Tufts Medical Center
  • University of Colorado Denver
  • Children's National Hospital
  • Columbia University Medical Center
  • University of California San Diego

2023-2025 Awardees:

  • Mayo Clinic Jacksonville
  • Swedish Medical Center
  • The Rogosin Institute
  • University of Kansas Medical Center
  • University of Maryland
  • University of Wisconsin-Madison
  • Yale University

Geographic Scope

United States; limited to designated PKD Centers of Excellence and Partner Clinics

How to Apply

Application Process

Detailed application procedures are not fully specified in the provided materials. However, based on program information:

  1. Eligibility Verification
    • Confirm your institution is designated as a PKD Center of Excellence, Partner Clinic, Pediatric Center of Excellence, or Pediatric Clinic by the PKD Foundation
  2. Care Team Assessment
    • Assess current care team structure and staffing needs
    • Identify gaps in patient navigation, education, and care coordination services
    • Consult with clinical experts and patient stakeholders
  3. Project Planning
    • Develop proposal for care team enhancements
    • Identify specific positions or services to be funded (patient navigators, health coaches, coordinators, etc.)
    • Define measurable outcomes and quality improvements
    • Plan for multidisciplinary care coordination
    • Include patient education and support strategies
  4. Budget Development
    • Prepare three-year budget
    • Detail staffing positions and salaries
    • Include supporting resources and tools
    • Justify funding amounts
  5. Application Submission
    • Submit application through PKD Foundation (contact details to be obtained)
    • Include proposal narrative and supporting documentation
    • Demonstrate alignment with program pillars (research, care, community education)
  6. Review and Award
    • Applications reviewed by PKD Foundation's review committee
    • Awards announced for three-year funding period
  7. Post-Award Requirements
    • Implement funded initiatives
    • Track and report outcomes
    • Participate in PKD Foundation learning collaboratives
    • Share best practices with other Centers of Excellence

Note: Specific application forms, detailed submission procedures, and deadlines should be obtained directly from the PKD Foundation. Contact pkdcure.org for current application information.

What PKD Foundation actually gave

Source: IRS Form 990, 2025

Grants in 2025
38
Total given
$2.62M
Median grant
$70K
Range
$28K–$80K
  • By dollars: Kansas 17%, Minnesota 13%, Colorado 12%. Top recipient cities: Kansas City, KS; Rochester, MN; Denver, CO.
  • 0% of grants with a stated purpose were for general or operating support.
  • 50% of recipients were new grantees, not repeat recipients.

Example grants

  • Mayo Clinic · Rochester, MN

    Research Grant

    $80K

  • University of Alabama Birmingham · Birmingham, AL

    Research Grant

    $80K

  • University of Kansas Medical Center Research Institute · Kansas City, KS

    Research Grant

    $80K

  • State of Maryland - University of Maryland Baltimore · Baltimore, MD

    Research Grant

    $80K

  • Regents of the University of Colorado · Denver, CO

    Research Grant

    $80K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Healthcare
  • Community health

Categories

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