Neurofibromatosis Inc Northeast
The diagnosis and treatment of neurofibromatosis and to support programs intended to increase awareness of neurofibromatosis.
Neurofibromatosis Inc Northeast at a glance
In short: Neurofibromatosis Inc Northeast gave $40K across 1 grant in 2024 (avg $40K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $40,000
- +100.0% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $40,000
- +100.0% vs 2023
- Median grant
- $40,000
- Total assets
- $900,101
- +14.7% vs 2023
- Primary geography
- Massachusetts (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Neurofibromatosis Inc Northeast
Open Grants
2 open opportunities from Neurofibromatosis Inc Northeast
Who Neurofibromatosis Inc Northeast funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Massachusetts General Hospital ($40K).
Grant Size Distribution
8 grants across all recorded years
The most common grant size was under $50K: 7 grants of 8 (88%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How Neurofibromatosis Inc Northeast gives
- Giving grew 167% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $15K (2021) to $86K (2022). In 2024 it made 1 grant totaling $40K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospital Boston, MA | Research | $40,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $900,101 | $675,651 | $685,189 | $40,000 | 1 | $24,101 |
| 2023 | $784,530 | $558,976 | $642,447 | $20,000 | 1 | $1,150 |
| 2022 | $842,757 | $616,977 | $651,825 | $86,063 | 3 | $41,112 |
| 2021 | $973,512 | $737,666 | $451,337 | $15,000 | 1 | $29,932 |
| 2020 | $701,178 | $439,880 | $484,116 | $50,000 | 2 | $295 |
About Neurofibromatosis Inc Northeast
Based on IRS filings
Neurofibromatosis Inc Northeast is a public charity, based in Burlington, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $900K in total assets. In 2024, it awarded 1 grant totaling $40K. Net investment income was $24K.
Leadership & Key People
Officers and directors from IRS filings
Neurofibromatosis Inc Northeast is led by John Manth, President since 2024 (on filings since 2020); 1 of 17 officers listed in 2024 is compensated.
Officers on the 2024 filing
John Manth
President
Director → Chairperson, 2022
Chairperson → President, 2024
On filings since 2020
1 hr/week
No compensation reported
Karen Peluso
Director
Executive Director → Director, 2024
On filings since 2020
1 hr/week
$87K (2020) → $0 (2024)
Alexandra Powers Cellucci
Director
On filings since 2020
1 hr/week
No compensation reported
John Shea
Director
On filings since 2020
1 hr/week
No compensation reported
John Thomson
Director
On filings since 2020
1 hr/week
No compensation reported
Justin Jordan
Director
On filings since 2020
1 hr/week
No compensation reported
Lori Ryan
Director
Chairperson → Director, 2022
On filings since 2020
1 hr/week
No compensation reported
Nicole Ullrich
Director
On filings since 2020
1 hr/week
No compensation reported
Patrick Callahan
Director
On filings since 2020
1 hr/week
No compensation reported
Frank Buono
Director
On filings since 2021
1 hr/week
No compensation reported
Tamara Indianer
Director
On filings since 2021
1 hr/week
No compensation reported
Marybeth Shaw
Director
On filings since 2022
1 hr/week
No compensation reported
Kristina Rath
Director
On filings since 2023
1 hr/week
No compensation reported
Theresa Owhady
Director
On filings since 2023
1 hr/week
No compensation reported
Sharon Klein
Executive Di
On filings since 2021
40 hrs/week
$60K (2021) → $139K (2024)
Andres Lessing
Treasurer
Director → Director & Treasurer, 2023
Director & Treasurer → Treasurer, 2024
On filings since 2020
1 hr/week
No compensation reported
Benjamin Buttrick
Clerk
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (4)
- Former: Melissa Shea Malerba (2020–2023) — Director & Secretary
- Former: Ben Buttrick (2022–2023) — Director
- Former: Robert Ryan (2020–2022) — Director & Treasurer
- Former: Robert Klouda (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $139K, to Sharon Klein (Executive Di).
Frequently asked questions about Neurofibromatosis Inc Northeast
How much does Neurofibromatosis Inc Northeast give each year?
Neurofibromatosis Inc Northeast gave $40K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $20K across 1 grant.
How large is Neurofibromatosis Inc Northeast?
Neurofibromatosis Inc Northeast reported $900K in total assets on its 2024 IRS Form 990. Its revenue that year was $676K.
Where does Neurofibromatosis Inc Northeast operate?
Neurofibromatosis Inc Northeast has awarded grants in Massachusetts, Pennsylvania, Wisconsin.
What is Neurofibromatosis Inc Northeast's EIN?
Neurofibromatosis Inc Northeast's EIN (Employer Identification Number) is 04-3013709. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS October 8, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 27, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS December 20, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2024
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