Neurofibromatosis Inc Northeast
THE DIAGNOSIS AND TREATMENT OF NEUROFIBROMATOSIS AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF NEUROFIBROMATOSIS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$900K
+14.7% YoY
Revenue
$676K
+20.9% YoY
Net Investment Income
$24K
+1995.7% YoY
Expenses
$685K
+6.7% YoY
About Neurofibromatosis Inc Northeast
Based on IRS filings
Neurofibromatosis Inc Northeast is a nonprofit organization, based in BURLINGTON, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $900K in total assets. Net investment income was $24K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $900,101 | $784,530 | $842,757 |
| Revenue | $675,651 | $558,976 | $616,977 |
| Expenses | $685,189 | $642,447 | $651,825 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $24,101 | $1,150 | $41,112 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Open Grants
2 open opportunities from Neurofibromatosis Inc Northeast
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JOHN MANTH | PRESIDENT | 1 | — |
| ANDRES LESSING | TREASURER | 1 | — |
| BENJAMIN BUTTRICK | CLERK | 1 | — |
| SHARON KLEIN | EXECUTIVE DI | 40 | $138,873 |
| MARYBETH SHAW | DIRECTOR | 1 | — |
| LORI RYAN | DIRECTOR | 1 | — |
| JOHN SHEA | DIRECTOR | 1 | — |
| JUSTIN JORDAN | DIRECTOR | 1 | — |
| FRANK BUONO | DIRECTOR | 1 | — |
| ALEXANDRA CELLUCCI | DIRECTOR | 1 | — |
| PATRICK CALLAHAN | DIRECTOR | 1 | — |
| NICOLE ULLRICH | DIRECTOR | 1 | — |
| JOHN THOMSON | DIRECTOR | 1 | — |
| THERESA OWHADY | DIRECTOR | 1 | — |
| KAREN PELUSO | DIRECTOR | 1 | — |
| KRISTINA RATH | DIRECTOR | 1 | — |
| TAMARA INDIANER | DIRECTOR | 1 | — |
Frequently Asked Questions
How large is Neurofibromatosis Inc Northeast?
As of 2024, Neurofibromatosis Inc Northeast holds $900K in total assets with $676K in annual revenue.
Where does Neurofibromatosis Inc Northeast operate?
Neurofibromatosis Inc Northeast has awarded grants in Massachusetts, Pennsylvania.
What is Neurofibromatosis Inc Northeast's EIN?
Neurofibromatosis Inc Northeast's EIN (Employer Identification Number) is 04-3013709. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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