Neurofibromatosis Inc Northeast
THE DIAGNOSIS AND TREATMENT OF NEUROFIBROMATOSIS AND TO SUPPORT PROGRAMS INTENDED TO INCREASE AWARENESS OF NEUROFIBROMATOSIS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$900K
+14.7% YoY
Revenue
$676K
+20.9% YoY
Net Investment Income
$24K
+1995.7% YoY
Expenses
$685K
+6.7% YoY
About Neurofibromatosis Inc Northeast
Based on IRS filings
Neurofibromatosis Inc Northeast is a nonprofit organization, based in BURLINGTON, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $900K in total assets. Net investment income was $24K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $900,101 | $784,530 | $842,757 |
| Revenue | $675,651 | $558,976 | $616,977 |
| Expenses | $685,189 | $642,447 | $651,825 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $24,101 | $1,150 | $41,112 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Open Grants
2 open opportunities from Neurofibromatosis Inc Northeast
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JOHN MANTH | PRESIDENT | 1 | — |
| ANDRES LESSING | TREASURER | 1 | — |
| BENJAMIN BUTTRICK | CLERK | 1 | — |
| SHARON KLEIN | EXECUTIVE DI | 40 | $138,873 |
| MARYBETH SHAW | DIRECTOR | 1 | — |
| LORI RYAN | DIRECTOR | 1 | — |
| JOHN SHEA | DIRECTOR | 1 | — |
| JUSTIN JORDAN | DIRECTOR | 1 | — |
| FRANK BUONO | DIRECTOR | 1 | — |
| ALEXANDRA CELLUCCI | DIRECTOR | 1 | — |
| PATRICK CALLAHAN | DIRECTOR | 1 | — |
| NICOLE ULLRICH | DIRECTOR | 1 | — |
| JOHN THOMSON | DIRECTOR | 1 | — |
| THERESA OWHADY | DIRECTOR | 1 | — |
| KAREN PELUSO | DIRECTOR | 1 | — |
| KRISTINA RATH | DIRECTOR | 1 | — |
| TAMARA INDIANER | DIRECTOR | 1 | — |
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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