ALD Connect Inc
To improve health outcomes for individuals with x-linked adrenoleukodystrophy (ALD) by raising awareness, empowering patients, and accelerating the translation
ALD Connect Inc at a glance
In short: ALD Connect Inc gave $7K across 1 grant in 2025 (avg $7K), mostly in Maryland. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $6,600
- -75.0% vs 2024
- Grants made (2025)
- 1
- -75.0% vs 2024
- Average grant
- $6,600
- +0.0% vs 2024
- Median grant
- $6,600
- Total assets
- $1,505,709
- +20.3% vs 2024
- Primary geography
- Maryland (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who ALD Connect Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Johns Hopkins University ($7K).
Grant Size Distribution
9 grants across all recorded years
The most common grant size was under $50K: 8 grants of 9 (89%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
Cities
How ALD Connect Inc gives
- Giving fell 82% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2025, annual grant giving ranged from $7K (2025) to $67K (2023). In 2025 it made 1 grant totaling $7K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Johns Hopkins University Baltimore, MD | Research | $6,600 |
Ready to take the next step with ALD Connect Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,505,709 | $982,449 | $780,119 | $6,600 | 1 | $20,442 |
| 2024 | $1,252,052 | $574,309 | $353,774 | $26,400 | 4 | $35 |
| 2023 | $1,033,151 | $413,327 | $306,862 | $67,200 | 3 | $825 |
| 2022 | $934,444 | $378,350 | $486,273 | $36,750 | 1 | $267 |
| 2021 | $1,037,308 | $461,053 | $183,979 | — | — | $-510 |
| 2020 | $753,352 | $339,880 | $126,417 | — | — | — |
About ALD Connect Inc
Based on IRS filings
ALD Connect Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Middleton, MA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.5M in total assets. In 2025, it awarded 1 grant totaling $7K. Net investment income was $20K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
ALD Connect Inc is led by Kelly Miettunen, Executive Director on every filing since 2020; 2 of 14 officers listed in 2025 are compensated.
Officers on the 2025 filing
Kelly Miettunen
Executive Director
On filings since 2020
28 hrs/week
$61K (2020) → $129K (2025)
Florian Eichler MD
President
On filings since 2020
1 hr/week
No compensation reported
Kathleen M. O'Sullivan-Fortin Esq.
Director
Treasurer → Director, 2025
On filings since 2020
10 hrs/week
$18K (2025)
Amber Salzman PhD
Director
On filings since 2020
1 hr/week
No compensation reported
Josh Bonkowsky MD PhD
Director
On filings since 2020
1 hr/week
No compensation reported
Keith Van Haren MD
Director
On filings since 2020
1 hr/week
No compensation reported
Patricia Chapman
Director
Clerk → Secretary, 2023
Secretary → Director, 2025
On filings since 2020
2 hrs/week
No compensation reported
S. Ali Fatemi MD
Director
On filings since 2020
1 hr/week
No compensation reported
Stephan Kemp PhD
Director
On filings since 2020
1 hr/week
No compensation reported
Troy Lund PhD MD
Director
On filings since 2020
1 hr/week
No compensation reported
Patricia Musolino
Director
On filings since 2022
1 hr/week
No compensation reported
Amena Smith-Fine
Director
New on the 2025 filing
1 hr/week
No compensation reported
Gregory Benton
Secretary
Director → Secretary, 2025
On filings since 2020
1 hr/week
No compensation reported
Timothy J. Maguire
Treasurer
Director → Treasurer, 2025
On filings since 2020
1 hr/week
No compensation reported
Former officers (3)
- Former: Alex Sherman (2020–2024) — Director
- Former: Benjamin Lenail (2020–2024) — Director
- Former: Jennifer Farmer (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $129K, to Kelly Miettunen (Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about ALD Connect Inc
How much does ALD Connect Inc give each year?
ALD Connect Inc gave $7K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $26K across 4 grants.
How large is ALD Connect Inc?
ALD Connect Inc reported $1.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $982K.
What is ALD Connect Inc?
ALD Connect Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Middleton, MA. It holds $1.5M in total assets as of 2025.
Where does ALD Connect Inc operate?
ALD Connect Inc has awarded grants in California, Massachusetts, Maryland, Utah.
What is ALD Connect Inc's EIN?
ALD Connect Inc's EIN (Employer Identification Number) is 46-3749890. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS July 8, 2026)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in ALD Connect Inc's focus areas in our free grants database
Similar Funders
Funders with grantees in common, and similar funders in Massachusetts
Drexel University
Philadelphia, PA
Drexel University’s reported grants primarily support research at universities, research organizations, and other institutions. In 2025, grants ranged from $5,125 to $2.21 million, with a median of about $63,000; recipients were concentrated in Pennsylvania, followed by California, Texas, Maryland, and New Jersey, with no stated geographic restriction. Its funding materials describe support for Drexel faculty and staff proposals, and do not state whether it accepts unsolicited requests.
Assets
$2.9B
Grants
120
Total Given
$16.9M
Seattle Children's Hospital
Seattle, WA
Seattle Children’s funds pediatric medical research, education, healthcare access, mental health and children’s health initiatives; its external Crossett Fund supports projects benefiting children and youth in Southeast Alaska. Its 2025 grants ranged from $5,326 to $15.3 million, with a median of $57,582, while Crossett awards are capped at $10,000. The Crossett Fund accepts applications year-round; other unsolicited requests are not described.
Assets
$6.0B
Grants
181
Total Given
$56.3M
The Children's Hospital of Philadelphia
Philadelphia, PA
CHOP primarily funds pediatric research at universities, hospitals, and research organizations, and also supports employee-led health projects in communities served by CHOP and its Care Network in Pennsylvania and New Jersey. In 2025, it awarded 138 grants totaling about $50.3 million; the median grant was about $115,000, with awards ranging from about $5,800 to $14 million. The profile does not state whether CHOP accepts unsolicited requests.
Assets
$9.1B
Grants
138
Total Given
$50.3M
The Simons Foundation Inc
New York, NY
The Simons Foundation funds research and public engagement in mathematics and the physical, life, autism, and neuroscience sciences. In 2024, it made 1,727 grants, with a median award of $72,000 and amounts ranging from $1,480 to $20 million, supporting organizations in the U.S. and internationally. It states that it funds only preselected charitable organizations and does not accept unsolicited requests.
Assets
$4.5B
Grants
1,727
Total Given
$272.0M
The Kahlert Foundation Inc
Sykesville, MD
The Kahlert Foundation funds health care, education, youth programs, veterans, and human services in Maryland and Utah, with a preference for work that builds organizations’ capacity and benefits local communities. Its 2025 grants ranged from $2,500 to $2.325 million, with a median award of $50,000; its filing says it funds preselected organizations only and does not accept unsolicited requests.
Assets
$84.3M
Grants
229
Total Given
$26.4M
IBM International Foundation
Armonk, NY
The IBM International Foundation funds education and workforce programs that build 21st-century and technology job skills, including initiatives for underserved students and job seekers. Its 2024 grants ranged from $10,000 to $8.48 million, with a median of $100,000, and went to organizations across several U.S. states, especially Delaware and Massachusetts. It funds only preselected organizations and does not accept unsolicited requests.
Assets
$357.7M
Grants
16
Total Given
$11.7M
More similar funders
More Funders in Massachusetts
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from ALD Connect Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
ALD Connect Inc down — hundreds of funders to go?