LGS Foundation Inc
The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
LGS Foundation Inc at a glance
In short: LGS Foundation Inc gave $78K across 4 grants in 2024 (avg $19K), top state California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $77,500
- +55.2% vs 2023
- Grants made (2024)
- 4
- +300.0% vs 2023
- Average grant
- $19,375
- -61.2% vs 2023
- Median grant
- $17,500
- Total assets
- $984,047
- -23.2% vs 2023
- Primary geography
- California (48% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to LGS Foundation Inc
Open Grants
1 open opportunity from LGS Foundation Inc
Who LGS Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
The largest 2024 recipient was Stanford University ($38K). Together the top 4 received $78K.
Grant Size Distribution
15 grants across all recorded years
The most common grant size was under $50K: 15 grants of 15 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
Cities
How LGS Foundation Inc gives
- Giving held roughly steady from 2021 to 2024 (−16%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $23K (2022) to $93K (2021). In 2024 it made 4 grants totaling $78K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Stanford University Los Angeles, CA | Grant | $37,500 |
| Mayo Clinic Rochester, MN | Grant | $30,000 |
| Danny Did Foundation Evanston, IL | Grant | $5,000 |
| Northwestern University Chicago, IL | Grant | $5,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $984,047 | $1,248,197 | $1,565,600 | $77,500 | 4 | $28,637 |
| 2023 | $1,281,404 | $1,070,661 | $1,253,284 | $49,951 | 1 | $14,542 |
| 2022 | $1,598,197 | $1,363,205 | $1,379,227 | $22,500 | 4 | $190 |
| 2021 | $1,489,428 | $785,563 | $723,112 | $92,500 | 4 | $97 |
| 2020 | $1,393,791 | $1,165,055 | $382,339 | $50,000 | 2 | $120 |
| 2019 | $623,167 | $774,334 | $663,108 | $47,500 | 1 | $98 |
About LGS Foundation Inc
Based on IRS filings
LGS Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in San Diego, CA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $984K in total assets. In 2024, it awarded 4 grants totaling $78K. Net investment income was $29K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
LGS Foundation Inc is led by Tracy Dixon-Salazar PhD, Executive Director on every filing since 2020; 2 of 8 officers listed in 2024 are compensated.
Officers on the 2024 filing
Tracy Dixon-Salazar PhD
Executive Director
On filings since 2020
60 hrs/week
$88K (2021) → $132K (2024)
Fred Roedl
Chair
Member → Chair, 2024
On filings since 2023
10 hrs/week
No compensation reported
Amber Mathas
Senior Director of Operations
New on the 2024 filing
40 hrs/week
$95K (2024)
Dale Todd
Secretary
Board Member → Member, 2022
Member → Secretary, 2024
On filings since 2019
2 hrs/week
No compensation reported
Kevin Merritt CFA
Treasurer
On filings since 2020
2 hrs/week
No compensation reported
Deena Andreola
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Jacqueline Villatoro
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Kat Belendiuk PhD
Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (9)
- Former: Christopher Mitchell JD (2019–2023) — Secretary
- Former: Melanie Huntley (2019–2023) — Member
- Former: Natalie Gilmore (2019–2023) — President
- Former: Brittany Brown (2021–2023) — Member
- Former: Karen H. Groff Med (2021–2023) — Vice President
- Former: Elizabeth Terry (2019–2020) — Former Vice President & Left Dec
- Former: John Currier (2019–2020) — Former Treasurer & Left Dec
- Former: Karen Groff (2019–2020) — Vice President
- Former: Christina Saninocencio (2019) — Executive Director
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $132K, to Tracy Dixon-Salazar PhD (Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about LGS Foundation Inc
How much does LGS Foundation Inc give each year?
LGS Foundation Inc gave $78K across 4 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $50K across 1 grant.
What is LGS Foundation Inc's typical grant size?
LGS Foundation Inc's median grant in 2024 was $17,500, and its average grant was $19,375, across 4 grants on its 2024 IRS Form 990.
Where does LGS Foundation Inc give grants?
LGS Foundation Inc's top state is California, with 48% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Minnesota (39%) and Illinois (13%).
Does LGS Foundation Inc give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on LGS Foundation Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Grant" (4 grants).
How large is LGS Foundation Inc?
LGS Foundation Inc reported $984K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.2M.
What is LGS Foundation Inc?
LGS Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in San Diego, CA. It holds $984K in total assets as of 2024.
What is LGS Foundation Inc's EIN?
LGS Foundation Inc's EIN (Employer Identification Number) is 26-2051377. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 19, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
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