Cure LGS 365 Research Grants

Focus Area: Research funding for Lennox-Gastaut Syndrome (LGS) treatment and cure development

Geographic Scope: International

Program Description:
The LGS Foundation funds innovative research projects aimed at advancing understanding of LGS and developing new therapies and cures. The foundation works to establish shared research priorities that include input from patients, families, and researchers.

Research Priorities

• Disease-modifying therapies
• Diagnostic approaches
• Antiseizure medication management
• Nonpharmacologic therapies (dietary, surgical, neuromodulation)
• Comorbidity management (including SUDEP prevention)
• Clinical and electroencephalographic evolution from early LGS to adulthood

Recent Funding Example

• 2024 Award: International Consensus for the Diagnosis and Management of Lennox-Gastaut Syndrome
  • Principal Investigators: Anthony Fine, MD (Mayo Clinic) and Juliet Knowles, MD, PhD (Stanford University School of Medicine)

Related Initiatives

• Part of the Chan Zuckerberg Initiative (CZI) Rare As One Network, which provides three years of funding for collaborative research network development and organizational capacity building
• LGS Research Meeting of the Minds - conferences to bring researchers and those living with LGS together to discuss research priorities
• Voices of LGS and Natural History - patient-focused research component

Contact Information:

• Email: info@lgsfoundation.org
• Phone: (718) 374-3800
• Address: 6030 Santo Road, Suite 1, Unit 420878, San Diego, CA 92142
• Tax ID: 26-2051377

Application Process

The foundation issues a Request for Applications (RFA) to fund new research projects.

Application Steps:

1. Monitor the LGS Foundation website for RFA announcements
2. Review research priorities and funding guidelines
3. Submit proposal following RFA requirements
4. Applications reviewed by Medical Science Advisory Council and research team

Required Materials:
Specific application materials not detailed in provided content. Contact foundation for current RFA guidelines and application materials.

Contact for Application Information:

• Email: info@lgsfoundation.org
• Phone: (718) 374-3800